Shrinkage - Please Respond

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percy4
percy4 Member Posts: 477

I had a lumpectomy and rads.  Was worried about shrinkage, but was assured that usually it is minimal.  Well.  I'm 3 wks out from rads, and I thought it was all good.  Surgery was great, surgeon was great (minor scar, no dent), skin is great.  What I feared most has happened.  My treated breast is about two-thirds the size of my other breast, and higher, and it's early days.  Any experiences out there?  I am already grieving the fact that a new man will never see me the way I was made.  I will adjust, as it is not too noticable in clothes, and only the future Mr. Right will see it, and he will love me, as, at this age, there wouldn't be anyone else.  Anyone have this degree of shrinkage early on and then not have more?  More would be too much; it would really be noticable to all. This is a lot of physical sacrifice for a very low-grade thing.  I know I am lucky, if I had to have this at all, but was really hoping to be in the "not too much shrinkage" catagory.  Help!

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  • percy4
    percy4 Member Posts: 477
    edited April 2014


    I am about 15 lbs over my nornal weight, which, on a 5'2" frame, is a lot.  If the radiated breast is kind of "stuck" where it  is, I'm hoping that going back to my normal weight will normalize the breasts, or will the treated breast lose size, as well?

  • DawnCT
    DawnCT Member Posts: 143
    edited April 2014

    Hi Percy.  I am sorry that you are experiencing shrinkage.   I am a couple months post Rads and worry about it too.   One thing I wanted to mention is that you could have surgery on the other Breast so they match. It would most likely be covered by insurance.   I had a Breast reduction after my 2nd lumpectomy to get clear margins because the plastic surgeon told me I would have a smaller and different Breast after a 2nd surgery and rads.   Just know that this is an option if you cannot live with the difference in the breasts.   

    All of this is hard and I'm sorry. 

  • percy4
    percy4 Member Posts: 477
    edited April 2014

    Thanks so much for responding, girlfriend.  The reduction is great for the larger girls, but I'm small.  I do appreciate your input, as I find the Rads girls a little less responding than my DCIS section.  Any more?

  • Lilyluv
    Lilyluv Member Posts: 160
    edited April 2014

    Hi percy,  I've noticed that my scar is getting longer in proportion to my breast and it's a month out.  So it's shrinking a bit already maybe.  It's also got red blotches that still won't go away since rads and there's a real dark tan near the scar line so that makes it look more indented. (poor thing looks pretty mangled)   But at this point it looks like I had a boob lift, except for it's a bit flatter on one side of it where the lump was removed.  If I put my arm up you can tell it's quite a bit smaller.   For me it's subjective though...I can't tell if it was this size after healing up from surgery, or if it got smaller after rads.

    If you have insurance, some insurance companies will pay for reconstruction  if, after all is said and done, your breast isn't cosmetically acceptable to you.  That could be an option for you.

  • percy4
    percy4 Member Posts: 477
    edited April 2014

    Thank you, Love.  I've been told that any reconstruct on a radiated breast is hard.  Oh Dear.

  • faerywings
    faerywings Member Posts: 173
    edited April 2014

    Oh yuck. I am so sorry that you are going through this. I am now kind of nervous. I start rads today, doing the 4 week "compressed" schedule. The ro did say that the compressed schedule has more cosmetic issues than the traditional 6 week. So far, post-lump. my boob just has a little dent below my incision but here is a lot of scar tissue underneath.  I am practically in training bras as it is, so if this boob shrinks, I'll be concave!

    Just know that if the man you think is Mr Right thinks *any* less of you, he does not deserve you.

  • crazyride43
    crazyride43 Member Posts: 154
    edited April 2014

    Percy, my BC breast was already a little smaller than the other to start with, so this was also my concern.  There was some initial "shrinkage", but not sure whether it was from of the amount of breast removed with the lumpectomy, the radiation, or both.  By the time I was a few months out from rads, my two breasts were distinctly different (at least to me!)...one a full D and the other a C and a lot more perky.  I have considered reconstruction which would be covered by insurance, but the advice I have received from several docs is that the risks might outweigh the benefits and the scarring from a reduction and lift is considerable.  My doctors keep assuring me that I look great, and they see a lot of breasts!  Like you I look fine in clothes, so the only person that really notices the size difference is me, when I'm naked in front of the mirror.  My husband says he can't tell unless I really point it out. He doesn't want me to have the surgery.  It's mostly annoying for getting a bra that fits properly because one side has a muffin top while the other side is barely filling the cup, but I have found some soft stretchy bra's that are supportive and minimize this issue (called Warner's Friday bra).  In terms of weight loss, I have both lost 10 lbs and and then gained them back again since rads and haven't noticed a big difference i.e. the size difference and perkiness difference stays about the same. Hopefully the shrinkage you are seeing will stay about where it is now.  

    And as to whether a new man will find you appealing with slightly lopsided breasts, my experience is that men don't always notice these things or care about them the same way we do.  They are just happy to have a real, warm, affectionate woman to be with!  Remember they are not perfect either...they may have receding hair or a little extra padding in the middle that they are self conscious about.  I try to focus on doing things that help me feel good about myself.  Your confidence and shining, positive personality are always what's most appealing!

  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited April 2014


    I was happy to find scar tissue developed and replaced most of the volume I'd lost from two lumpectomies in my B-C cup breast. .  I did see a lymphedema therapist, who "mobilized" the scar tissue so it did not stick (not her word) and distort my breast.  I guess I saw her once or twice early on after my skin was healed, and again a couple of months later. I highly recommend you (and anyone [all of us] concerned about post-surgical appearance), try this.

  • RMlulu
    RMlulu Member Posts: 1,989
    edited April 2014

    Percy - ah, the changes of our post lx post rad girl :(  swelling and then slowly settling down to size. 

    My girl did change...more perky, down a size or so, a D to a B, but she is all mine, and feels good.  Brookside is right...go see your RO discuss, set up appointments with LE to work on scar tissue.  Give her time she has been through so much.  Visit a fitter for a proper bra and if needed a prosthesis...I did, but now am comfortable just being me&my girls...just the way we are:)  you do what us right for you and makes you feel good!

    (((Hugs)))

    Cindy

  • lane4
    lane4 Member Posts: 175
    edited April 2014

    Percy - My treated breast ended up about 1 1/2 cup sizes smaller than the other breast. The difference did not become apparent until after radiation. After I finished rads, I went to a mastectomy fitter who ordered a compensation form for me. I wore that form in my bra for a year while I waited to have corrective surgery for symmetry correction. My insurance covered the symmetry procedures. Unfortunately, the treated breast will continue to change for a while. 

    Just thought I'd add that the place where you are now was a very emotional time for me. I was depressed and angry over the fact that I'd lost so much tissue from my breast (I'm petite, about your height), angry about the shrinkage from radiation, and all of this for a non-invasive cancer. None of my doctors warned me this could happen. None of my doctors told me there were partial prostheses or compensation forms available to balance the breasts. I was fortunate to have a friend who went through the same thing several years before and she told me about the local prosthesis fitter. I thank God for her, because I was so self-conscious about my uneven breasts. She is still happy wearing a partial prosthesis every day, but I just hated it. Having surgery to correct the asymmetry was so worth it.

  • percy4
    percy4 Member Posts: 477
    edited April 2014

    Thank you, lane 4 and all.  Tell me, please.  Being small, what is the compensation surgery you're having?  Of course I will wait a year (or less) to see where it really ends up.  The larger girls are happy to have a reduction on the other side, but we small girls will be left with nothing.  Also, I've read that the scars for a reduction are so bad.  I'm worried about fat injections, as they often fail (especially after rads) and also the fat comes from your belly fat, which is the area rich in estrogen (not good) after menopause.  I feel like saying to the surgeon "Why have the big scar?  Why not just do the minimal scar around the nipple curve I had with the cancer lumpectomy on the other breast, and remove something like was done in the lumpectomy?"  May sound simple, I know, but really.  When I had to have an edometrial abaltion years ago for protracted bleeding, they told me I had to have a Lupron (hormone blocker) shot; awful, for months.  To thin the uterine lining before ablation.  I said "Why not just do it after my period, when the lining is thin?"  They said no, this is the way we do it.  When it grew back and I had to have a second abaltion a few years later, they did not have the Lupron shot, my doc said "We just do it after your period now, when the lining is thinner" as though that wasn't what I'd suggested earlier.  Oh dear.  They do not like to be advised, as logical as the advice may be.

  • faerywings
    faerywings Member Posts: 173
    edited April 2014

    percy, I am wondering the same thing-- there is no way I could have a reduction on my left side, but after rads, what sort of options do we have for the lump. side? My BS said that after I am all healed up (she said about 1 year later)I can speak to a PS and a fat graft would be a possible option. I might just need to invest in a padded bra that has a removable pad for my left side.

    And gah,don't you hate when drs have no clue???

  • lane4
    lane4 Member Posts: 175
    edited April 2014

    Percy and faerywings - I had a small reduction and lift on my healthy breast. The breast was reduced by liposuction and the lift was a crescent lift. The only scar is around the areola from about 9:00 - 3:00. The liposuction reduced me by about 1/2 cup size or so. (I still wear the same cup size I wore before the partial mastectomy, so not a huge reduction.) In addition, I had fat grafting to the radiated breast and that brought me up a 1/2 cup size or so. Now they look very close in size and shape, a little smaller than before, but lifted. My fat was harvested from my thighs. I've read that standard reduction/lift surgery causes calcifications and scarring that could interfere with mammograms, but liposuction reduction does not appear to affect mammos.

  • percy4
    percy4 Member Posts: 477
    edited April 2014

    Thanks.  I will see how things settle in a year or so; if there's more shinkage, I will consider this, as it seems it's not too much off the other side.  Did your insurance cover this as reconstruction, the way they're supposed to?  Was it a day-surgery, not much downtime?  And I guess the PS doing the lipo has to be pretty skilled, so it's left smooth, without lumps or dents; yes?  Not familiar with a "crescent lift".  Is that necessary for the extra skin hanging after even a small breast lipo?  I ask because, with me, both breasts don't hang much, though I guess one could if some fat were removed but no radiation tightening occured on the skin.  Thanks again very much.

  • percy4
    percy4 Member Posts: 477
    edited April 2014

    Sorry, you already said your insurance covered it; one less question. xx

  • percy4
    percy4 Member Posts: 477
    edited April 2014

    Oh; here's one more question, besides the above.  You said you (like me) noticed the primary difference right after rads.  When you say the treated breast will continue to change more, can you say for how long more it continued to change, and how?  How much more shrinkage after the right-after-rads shrinkage?  And did hardening occur, and when?  I can't thank you enough for your info.

  • lane4
    lane4 Member Posts: 175
    edited April 2014

    Hi, percy - Yes, the reduction/lift and fat grafting were day surgeries. The breast that was reduced by liposuction has no lumps or dents whatsoever. And the crescent lift removed a crescent of skin to raise the nipple/areola to the same height as the other breast. I had a second fat grafting to the radiated breast a year after the first one to fill out a dent. Very easy day surgeries, almost no down time. The worst part was the soreness from the liposuction fat harvesting, and that was not really bad.

  • motherofone
    motherofone Member Posts: 62
    edited April 2014

    Percy4, I totally understand!  One of my worries as well.  I have a list of worries.  I'm a BC.  My surgery was 3 weeks ago and looks pretty good.  Happy with the scar and can't really see a size difference.  CT scan tomorrow, so rads will begin soon after.  I too am wondering what I'll have in the end.  I seriously considered a total mastectomy with one of the reasons being that I would have more control of the cosmetic outcome in the end.  I didn't think of myself as vein, but now I realize I must be or this would not be bugging me so much.  The PS I saw before making my lumpectomy vs mastectomy decision said the radiation keeps giving for years to come and the plastic surgery options do diminish.  He did say he could take some fat from my back.  I didn't even realize I had fat on my back.  Geeze!

  • lane4
    lane4 Member Posts: 175
    edited April 2014

    percy - I somehow missed your last post (until now) and didn't address those questions. It's hard to say for sure, but I do believe my radiated breast continued to lose volume for more than a year after I finished. Of course, it's very gradual. My BS and PS recommended that I wait at least a year before having corrective surgery so that the breast would hopefully reach its final size. The breast never did really get hard, just somewhat firm, especially in the boost area. My PS broke up the dense scar tissue before he grafted fat there and that took care of the dimpling/dent in that area. I still have firmness/lumpiness in the boost area, but it's not something you can see.

  • percy4
    percy4 Member Posts: 477
    edited April 2014

    Thank you so much for all the info.  I feel less powerless now. xx

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