diagnosed with ilc spine mets after what was a good prognosis

Torridon - I'm so sorry to hear of your progression.  The women on the stage IV threads will be able to give you loads of support and of course you can keep posting here.  When will you find out your treatment plan?  

Sorry to hear of your new dx. I too have spine mets, IDC, at T4. Join us over at the stage IV board. Lots of good info and support. You'll feel less devastated and overwhelmed once you and your onc get a treatment plan in place.

Torridon - I'm sorry that you got this news. I have the same question as Holeinone. Will they do a biopsy to confirm BC and to evaluate the hormone status? There is a bone mets thread in the Stage IV forum where I'm sure that you can find lots of support and good advice. Offering you cyber hugs!

SO, so sorry you are experiencing this, I don't know if there are women from The Young Survival Coalition in the UK, but they are a very active group in the States, you could check their website, they are an amazing organization, and I think you will find inspiration from other young women who are able to deeply understand your anxiety, and are also doing very, very well.

http://www.youngsurvival.org/

Torridon ~ I got my st iv spine mets dx only 9 months after my initial st II dx, so I know how shocking it is to be faced with mets so soon. I had ZERO positive nodes. I also have a young son, so I know how very difficult it is. For the first few weeks every time I thought of him I busted out in tears. It does get easier. He sees a counselor at school and she has helped tremendously. He will talk to her about things that he will not bring up at home, and I can see his anxiety levels have dropped dramatically. He is scared and is very concerned about his mum. He is my sweet mumma's boy

When I went for my PETscan after my spine mets were discovered on an MRI, that one met at t4 was the ONLY met I had. None others were found. Don't be so quick to assume that more will be found. A quick 10 rads and that met of mine was blasted out. Try to stay positive. I know that seems impossible right now. Like I said earlier, once your tx plan is in place you will feel calmer and more in control.

I agree with the comments above re meds. See if some anti-anxiety or anti-depressants will help. At least some sleep aids. XO

Hi

This is a real kick in the gut and it is so normal to initially down that dark road...I noticed your post as I was scrolling down to the Stage IV posts and just wanted to say that there are a lot of women who have been living with this rotten disease for a long time, and that the ladies in the stageIV provide a lot of support and wisdom. Give yourself some time to take this all in. It's overwhelming at the beginning. Once you have a tx plan going that helps.  Hang in there

Marian