Slightly HER2 possative. Herceptin trial Anyone do this?

Options
Patti777
Patti777 Member Posts: 45
edited September 2014 in Triple-Negative Breast Cancer

This is a re-post but that's to someone a lot more knowledgeable than me corrected me. Has anyone taken part in this tria or know too much about it?

· Share on FacebookShare on Twitter

Comments

  • AlishaCatherine
    AlishaCatherine Member Posts: 56
    edited August 2013

    What was your HER2? My mom just got hers back and it was 1.8 which isn't positive or negative as far as I can see. Not sure what this means as far as if she is trip negative or not.

    · Share on FacebookShare on Twitter
  • JennaJMU
    JennaJMU Member Posts: 97
    edited August 2013

    Yes I tested 2+ in the initial testing but the FISH test said I was Her2 negative. That 2+ made me eligible for the Herceptin trial and I am in the Herceptin arm. I'm really happy to be in the trial because the thought is that there are her2 receptors on all tumors, some just express way more than others. I'm ready to block any and all fuel this cancer needs!!

    · Share on FacebookShare on Twitter
  • Patti777
    Patti777 Member Posts: 45
    edited August 2013

    I am just a 1.0. Does it seem positive to be able to be in the trial?

    · Share on FacebookShare on Twitter
  • sheila63
    sheila63 Member Posts: 38
    edited August 2013

    After I was diagnosed as TN, I looked at my pathology report that stated that I was slightly positive for HER2.  I was so excited thinking the doctor made a mistake, and I could take herceptin to decrease my chances of a recurrence.  Unfortunately he said that I was still TN, and did not offer further treatment after chemo.  That has been well over a year ago, and there seems to be a lot of new studies out for TN.  I am not sure about the side effects of herceptin, but I would be willing to take it for protection.  Thank you ladies for sharing this,  I will be calling my oncologist on Monday.

    · Share on FacebookShare on Twitter
  • Nandal
    Nandal Member Posts: 1
    edited February 2014

    My sister is mTN but her new test shows HER2 at 2.I wonder if that qualifies her for herceptin.She has to undergo another biopsy as the sample taken from first biopsy was not enough for FISH test.negligent doctors!! I may add her new tests show  mild PR+ at 10%

    · Share on FacebookShare on Twitter
  • youcancallmeang
    youcancallmeang Member Posts: 2
    edited April 2014

    yes, I was referred for this trial as well and am curious, but weekly herceptin + some type of immunization? I've got the study but am far too foggy to decide at this point, although my blood work came back as a match for the trial, Doc says he thinks I would benefit side effects are rashes on upper thighs? But for a year!! 

    · Share on FacebookShare on Twitter
  • rosewater
    rosewater Member Posts: 2
    edited September 2014

    Hi there, I am only slightly HER positive (+1). This chain is a little bit old, but I'm wondering if anyone else only slightly HER+ has looked into this trial further? (I'm currently triple negative). By the way, is this referring to the NeuVax trial?

    Thanks!

    · Share on FacebookShare on Twitter
  • Moderators
    Moderators Member Posts: 25,912
    edited September 2014

    Welcome to BCO Rosewater.

    You may be interested to read the NeuVax Vaccine Trial topic on here? 

    Or on the main BCO site Experimental Vaccine May Help Treat HER2-Positive Cancers and Experimental HER2 Vaccine Shows Promise - Breastcancer.org

    All the best

    The Mods

    · Share on FacebookShare on Twitter

Categories