Anyone From the Seattle Area?

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Sinsin
Sinsin Member Posts: 358
edited April 2015 in Managing Side Effects of Breast Cancer and Its Treatment

Was wondering if anyone from the pacific northwest area at least? I reside in Sammamish, which is east of Seattle. 

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  • Kicks
    Kicks Member Posts: 4,131
    edited March 2014

    Don't live there anymore but lived on Whidbey Island for  12 yrs.  Son now lives in Woodland.

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  • curveball
    curveball Member Posts: 3,040
    edited March 2014

    I used to live in Seattle but moved to the Olympia area after I retired.

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  • gillyone
    gillyone Member Posts: 1,727
    edited March 2014

    There's a thread called northwest ladies in the gettogethers forum. It has not been very active recently, but I'm sure lot's of those ladies have it in their favorites and will see it if oyu post there. I'm in north Idaho, so consider myself northwest in terms of the whole US, but certainly not in the Seattle area.

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  • Kicks
    Kicks Member Posts: 4,131
    edited March 2014

    Sinsin - are in the Oso area and safe?

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  • Sinsin
    Sinsin Member Posts: 358
    edited March 2014

    I am in Sammamish and safe, yes. Thanks!

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  • pumela115
    pumela115 Member Posts: 231
    edited March 2014

    Hi Sinsin,

    I live in West Seattle. Born and raised in Seattle.

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  • Sinsin
    Sinsin Member Posts: 358
    edited March 2014

    Hiya Pumela! Nice to meet a fellow Seattlite! How are you faring? Do you go to Fred Hutchinson at Seattle Cancer Care for treatment and doctors?

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  • pumela115
    pumela115 Member Posts: 231
    edited March 2014

    hi, 

     I'm doing great! I have a few minor issues but nothing that stops me from living life. I go to Swedish women's cancer center, and you? June 9th will be 4 years for me, I see you were diagnosed this year. How are you doing? I hope the chemo is not to rough on you. Take Care!

    Pam

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  • Sinsin
    Sinsin Member Posts: 358
    edited March 2014

    I go to Evergreen at Totem Lake. They're apart of Seattle Cancer Care Alliance. I've only had one infusion this far and it was Hell that week of but now I feel fine. 

    Kinda nervous as my WBC is down to .9 so I am scared it won't be up in time for my next infusion on Monday. 

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  • pumela115
    pumela115 Member Posts: 231
    edited March 2014

    you can do it!! Do they give you the neulasta shot? That's what I got after my AC infusions and I didn't have a problem with my blood counts. I don't know anything about Ellence though. I hope the next one is not to bad for you, but you do want it to its job. Just rest and be good to yourself. Let me know how you are doing. Sending you big hugs(((()))))

    Pam

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  • Sunny_Girl
    Sunny_Girl Member Posts: 111
    edited March 2014

    Another NW girl here, live in the Tacoma area - Drs are up at Swedish though, they are great.   Hang in there with your treatment.  I had odd things happen each time I had chemo, the only consistent things were water tasting horrible, clean dishwasher dishes smelling horrible and insomnia after the steroids.  I was so grateful I didn't have any nausea, it was an easy trade off for insomnia.  I hope you have an easier round or at least you'll be prepared for the next round, so the edges & bumps can be smoothed out. 

    Best wishes - Patty

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  • Sinsin
    Sinsin Member Posts: 358
    edited March 2014

    Thanks! I got the heavy cement feeling fatigue and just overall feeling like shite. No nausea either but I do have a lack of appetite and nothing tasting right. Fun stuff! ;)

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  • bestock
    bestock Member Posts: 322
    edited March 2014

    SinSin are you still on the terrible combo of Cytoxan and Ellence. I have had 2 serssionsand I feel bad a lot right after.FAtigue and Nausea.

    I have to take Nuelasta as well for low white count..Let me know how you are doing??

    Becky

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  • Caking0923
    Caking0923 Member Posts: 3
    edited March 2014

    Hii! I am  in Mountlake Terrace. My surgeon and oncologist is at swedish downtown. My radiation is  at swedish edmonds. So nice to see fellow NW gals here

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  • Sinsin
    Sinsin Member Posts: 358
    edited March 2014

    Bestock, yes I am still on Epirubicin and Cytoxan. I am currently getting my 2nd infusion right now and get my 3rd and possibly last treatment with it April 14th. Then I am suppose to do Taxol every week for 12 weeks.

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  • Sinsin
    Sinsin Member Posts: 358
    edited March 2014

    I am starting to shed a lot. Can't run my fingers through my hair without it falling out all around. Ew. It's not noticeable on top of my head yet.

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  • bestock
    bestock Member Posts: 322
    edited March 2014

    sinsin

    On day 14 my air mostly fell out. I have ad two chemo so far and feel okay 1 whole week of SE's after chemo.still weak, tired and neauseous...

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  • Sinsin
    Sinsin Member Posts: 358
    edited March 2014

    Bestock, are you still getting the Epirubicin and Cytoxan treatments? How many doses are you getting? I am to have three then move on to Taxol. Are yours every other week? Hope you start feeling better soon!

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  • AKJ
    AKJ Member Posts: 190
    edited April 2014

    Hey Seattle Gals!  I also live in Seattle, West Seattle to be exact.  Going for my third round of chemo this Thursday.  I'm being treated at Group Health.  They've been great so far. 

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  • bestock
    bestock Member Posts: 322
    edited April 2014

    SinSIn and AKJ   I am having third treatment wednesday. if white counts are up,may be my last if scan is okay..... I have a scan tomorrow to see if lesion is growing or NOT ..OH NO I hate the waiting?? 

     the SE's were bad , I believe the chemo must be doing  the JOB. I may be in clinical trial soon, and it shoud be easier??? tell me what  side effects both of you have. I have extreme fatigue, some nausea, eye  watering, extremely low whte counts --even with Neulasta. I just feel bad all over...week 2 much better..

    oops I am not in seattle, maybe need to do a different thead....

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  • Sinsin
    Sinsin Member Posts: 358
    edited April 2014

    Bestock, you're more than welcome to stay here and chat with us! No need to leave! My SE's are fatigue, bad muscle weakness, bad taste in mouth so nothing tastes good, lack of appetite, sometimes my heart pounds for no reason, and I've noticed my eyes water a lot too! I also think I may be having some depression from it affecting my hormones? I don't know for sure but I've struggled emotionally with both infusions. Anyone else experiencing this?

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  • Sinsin
    Sinsin Member Posts: 358
    edited April 2014

    image

    A good friend is in town for the next two weeks to help out so we took her sight seeing today. This is a prime spot for a beautiful shot of Seattle.

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  • AKJ
    AKJ Member Posts: 190
    edited April 2014

    Gorgeous picture, Sinsin!  Is that the lookout in the Admiral area?

    Beestock, my SE's are extreme fatigue, bad tastebuds (nothing taste good except creamy salty things), runny nose and nosebleeds, and of course a bald head!

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  • Sinsin
    Sinsin Member Posts: 358
    edited April 2014

    AKJ, it's Kerry Park.

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  • bestock
    bestock Member Posts: 322
    edited April 2014

    thanks for the welcome to Seattle thread..I love your City, I love Spokane as well..I live in NV. it is lovely here near Reno...

    Today  I get chemo. I just got a scan so we will see if harsh chemo has helped...I ask for prayers, as I get"scanxiety" not knowing what is going on..I may be in clinial trial if this combo helps  stop the progression.(I am brca1) thanks for thinking of me..more later.

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  • Sinsin
    Sinsin Member Posts: 358
    edited April 2014

    Bestock, good luck with scans and let us know! I think we all get scanxiety! 

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  • Snohomom
    Snohomom Member Posts: 9
    edited April 2014

    Hi, I am from Snohomish! Coming onto my 2 year anniversary of hearing the "you've got cancer" phone call. I, too, go to Evergreen. I had terrible nausea from chemo--became very dehydrated because I couldn't eat or drink. Everything tasted and smelled horrible. Glad to see nausea isn't a big problem for you. 

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  • Sinsin
    Sinsin Member Posts: 358
    edited April 2014

    Hi Snohomom! Where in Snohomish are you from? I'm in Sammamish. My oncologist at Evergreen is Dr. VanHaelst. When do you go in for infusions?

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  • bestock
    bestock Member Posts: 322
    edited April 2014

    My scan was good one tumor(largest) shrunk from 10mm to 6 mm and ca 27/29 went down significantly. I am happy tho suffering side effects for 5 days after chemo.  Thanks for praying and thinking of me..I cannot have taxol because of facial neuropathy that I get...

    >> I will have -2 more of this combo.. still...then I do not know what is next.

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  • Snohomom
    Snohomom Member Posts: 9
    edited April 2014

    Hi Sinsin,

    I'm actually closer to Mill Creek than Snohomish. My oncologist is Dr. Kohn. I finished up infusions last June. Went in for an MRI follow up yesterday and found out it was clear today! So thankful. We are leaving for Arizona next week and the last time I had an MRI, I had 3 suspicious spots that needed biopsies. Still waiting on tumor marker results, but I am thankful for this good news today. When I was active in treatment (6 rounds of TCH and a full year of Herceptin), it was enough to just focus on getting through. Now, for the most part, I enjoy each day and my family and try not to think about cancer. Then, it'll be time for my 4 month doctor visit or mammography or blood test, and I start going "cancer-mode" again. Anyway, good to "meet" a neighbor. Who knows, we might run into each other at the doctor's office someday!

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