New here, newly diagnosed

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noonrider
noonrider Member Posts: 464
edited June 2014 in Just Diagnosed

Hi there!

Like the rest of you, I don't really want to be there. But, here I am. Member of a club none of us wanted to join. 

I'm mom to 10 kids. My oldest 5 are adults and on their own. My youngest five, ages 17, 13, 10, 9, 9, and all five have Down syndrome. We just brought our newest child home from Serbia on March 19th, and the 20th I had a mammogram, then ultrasound followed by biopsy and "99% sure this will come back as cancer", all within an hour. 

As it turns out I have DCIS and IDC. My breast MRI was ok with the exception of an intramammory lymph node. They told me I'm at Stage 1a, but my pathology report says 'grade 2". I'm still trying to learn about the whole grading thing. I get "staging", but grading seems more complicated. I was told lumpectomy, SNB, followed by radiation, but that everything depends on the SNB. I'm scheduled for surgery on April 2nd. 

Then there is my husband. He lost his previous wife to BRCA 1 & 2. To say he's freaking out is an understatement, even though he's been told many times this is a very different type of cancer, and it will NOT be the experience he had last time. 

I just wish I could know what the nodes were going to show without having to wait. (I know you know this, I'm just blowing steam here.) I just have this horrible feeling I got all excited I would "only" have to do radiation only to find out ding ding ding, the nodes say chemo for me! 

I'm an avid blogger and the cures for breast cancer have been rolling in the comments there and on Facebook. I'm trying to keep my fingers from writing a snark post. I mean, really??? If all it took was to spend thousands of dollars on all the natural and homeopathic cures, we wouldn't all be here on this forum, would we? 

Anyway, just wanted to introduce myself, and vent about the stupid SNB. Thanks!

Comments

  • TB90
    TB90 Member Posts: 992
    edited March 2014

    Hi Lespring:  Sorry to welcome you to BC.O.  But this is a terrific place to vent, get support and lots of valuable information.  The beginning is the most difficult part, not knowing your final pathology report yet and therefore, diagnosis.  I remember vividly worrying about that final report and always the possibility of surprises.  I just completed radiation and therefore my diagnosis, surgery and treatment all occurred in a space of about four months.  For some, it takes longer, but there is so much support here for whatever you are going through.  You will never be alone.  Sounds like you are very busy at home and bless your heart for (I am thinking adopting??) children with Down's Syndrome.  Sorry for your husband's stress and concern.  He too can get on here for support if that would help him.  Come here to vent and let us know how we can help.  Thinking of you . . . (((((hugs)))))) 

  • TB90
    TB90 Member Posts: 992
    edited March 2014

    Oh yeah.  Stage refers to how far the disease has progressed while grade refers to the aggressiveness of your cancer cells.  Your stage is very early and the grade is intermediate.  There are three grades and 2 is obviously in the middle.  As you aware, this can all change yet, but it looks like you have an excellent prognosis.

  • noonrider
    noonrider Member Posts: 464
    edited March 2014

    Thank you for your reply! My 17 year old with Down syndrome is my biological daughter, and the four youngest are adopted from Serbia in 2010, 2011, 2013 and the last just last week. 

  • AZ85048
    AZ85048 Member Posts: 2,613
    edited March 2014

    Welcome, lespring!  I just wanted to say that you're one remarkable women - ten kids - grown or not - ten kids?  Wow, God bless you.  Staging has a lot to do with the size of the tumor they found:

    Stage 0 - noninvasive, carcinoma in situ

    In stage 0, there is no evidence of cancer cells breaking out of the part of the breast in which they started, or of getting through to or invading neighboring normal tissue.

    Stage 1 - breast cancer

    In stage I, the tumor measures up to two centimeters and no lymph nodes are involved.

    Stage 2 - (invasive) breast cancer

    In stage II, the tumor measures between two to five centimeters, or the cancer has spread to the lymph nodes under the arm on the same side as the breast cancer.

    Stage 3 - (locally advanced) breast cancer

    In stage III, the tumor in the breast is more than two inches in diameter across and the cancer is extensive in the underarm lymph nodes, or has spread to other lymph nodes or tissues near the breast.

    Stage 4 - (metastatic) breast cancer

    In stage IV, the cancer has spread beyond the breast, underarm and internal mammary lymph nodes to other parts of the body near to or distant from the breast.

    The grades (or characteristics) are as follows:



      • Grade 1 (Low grade or well differentiated)
      • Grade 2 (Intermediate grade or
        moderately differentiated)
      • Grade 3 (High grade or poorly differentiated)

      Anyway, welcome to BCO!  Look around and make yourself at home!

    1. noonrider
      noonrider Member Posts: 464
      edited March 2014

      Oh, and I forgot I can't take Tamoxifen. I have a significant family history of strokes, so I am not a candidate for it. I had a partial hysterectomy when I was 29, so I still have my ovaries but no uterus. I say go ahead and take my ovaries. But..then what? I won't be talking to my doctors again until after surgery. 

    2. lv2crft
      lv2crft Member Posts: 29
      edited March 2014

      LeSpring, I was just recently diagnosed and still have 5 more tests to take (already had about 8), including the most important one, PET, which is at the very end.  

      My point being:  I know how you must feel, right now in limbo.  {{{{{Le Spring}}}}}

    3. LovebeingNana
      LovebeingNana Member Posts: 134
      edited March 2014

      Lespring just wanted to say I am sorry you are here and I know how overwhelming it can be especially when you are worrying about your husband too. My husband had a very tough time too. Once we started going to appointments and getting more information we both calmed down. Take care and know you are not alone.

    4. Holeinone
      Holeinone Member Posts: 2,478
      edited March 2014

      lespring, 

      When you had your biopsy did they do a punch biopsy on your sentinel node? It is all so overwhelming to start. Hopefully, you will not need chemo. 

      My lumpectomy was easy, all the pain was from the SNB, cutting through the muscles. Also radiation, is daily & at the end our skin is rashy but still pretty easy compared to chemo.  

      Congratulations on the lastest adoption. You must be such a generous person to be so selfless. Let us know how your surgery goes....good luck..oh, you can probably take one of the AIs, Arimidex or Femara. Don't worry about that yet...

    5. noonrider
      noonrider Member Posts: 464
      edited March 2014

      Hi Holeinone! My biopsy was a punch biopsy. My SNB will be done at the same time as my lumpectomy this week. 

    6. Anonymous
      Anonymous Member Posts: 1,376
      edited April 2014

      Hi lespring,

      Welcome! My mother was recently diagnosed and she is now preparing her mind whatever might happened to her.

    7. noonrider
      noonrider Member Posts: 464
      edited April 2014

      Hi Sandrawright! Thinking about your mom! Please keep us posted. I had my lumpectomy and SNB on 4/2, one week ago today. I'm doing ok! I go into my surgeon tomorrow morning for a follow up and to discuss the final pathology of my lump. 

    8. AZ85048
      AZ85048 Member Posts: 2,613
      edited April 2014

      lespring - Good to hear from you!  Please let us know how it goes tomorrow... ThumbsUp

    9. mjm1
      mjm1 Member Posts: 139
      edited April 2014

      Hi Lespring, thinking of you on 'results day'. 

      Sandra, my Mum was diagnosed in Jan, so I sympathise with where you're both at right now.

    10. noonrider
      noonrider Member Posts: 464
      edited April 2014

      HI! Well noting really new today. Mostly just confirmed what we already knew. Stage 1A, grade 2, clear nodes, clear margins. I thought they had done an oncotype test but I must have misunderstood what the surgeon told me just before surgery. It its going to be done the oncologist will order it. Thanks for checking on me!

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