Charleston Bound, part 2

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  • philomene
    philomene Member Posts: 45
    edited March 2014

    I don't know what a skin paddle is and my attempt to google it just brought up a bunch of pictures of actual surgeries. Is it the skin on the flap that is football shaped? My mastectomy will be skin-sparing so I won't have football shaped flaps. 

  • 5andcounting
    5andcounting Member Posts: 232
    edited March 2014

    Feeling great! 9 days post op and shopped all afternoon:) still very swollen, compression garment another week. Very happy with results. This was well worth it:)

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited March 2014

    Crs319,

    Thanks for your post -- I am so happy that you're so happy with your results! You've been through so much with this dreaded BC and your amazing positive strength and other brave women on this board is helping to pull me through, too.   💗

  • Ashira
    Ashira Member Posts: 161
    edited March 2014

    CRS, that is so good to hear!  I am glad that you are happy with your results. 

    There has been much discussion on other threads, around dissatisfaction after stage 1. I have been preparing myself for that, so feel a sense of relief to read your post. 

    Thanks so much for sharing!

  • brca35
    brca35 Member Posts: 68
    edited March 2014

    martyj and cascader thank you for the feedback on the rooms at east cooper medical center. Do they have a cafeteria in the hospital? Is there food within walking distance. My caregiver is planning to stay with me the entire time I'm there. I am hoping we won't need to rent a car because that is just more of an expense I hope to avoid. Thanks for the info!!  Also, does Homewood Suites offer a shuttle to the hospital? Looking for tips on logistics. :-) 

  • 5andcounting
    5andcounting Member Posts: 232
    edited March 2014

    I was sad after stage 1 because they didn't look like breasts yet. More like mounds of clay. I knew it was a necessary step and honestly tried not to look at them much. It was much better after stage 2 and now it's over the top.

    Homewood suites was a good place to stay, I didn't notice a shuttle. My husband ate cafeteria food without complaint. The chair bed is fine for one night. May be a little hard after that. The staff is wonderful and will help in any way possible. East Cooper is a good hospital-I'm an RN and I'm ridiculously picky about hospitals. 

    I can't thank this group enough for the support and sharing. It's a horrible club to belong to but there are some very strong kick ass women in here. 

  • MartyJ
    MartyJ Member Posts: 1,859
    edited March 2014

    Sorry, but there is not shuttle between Homewood and the hospital.  If your caregiver gets tired of cafeteria food, there is nothing I would recommend walking to.  Just not that urban, though Arby's is about a mile from the new hospital.  Some of the roads are way too busy to walk.  I would suggest that a car would be helpful.  There is an Enterprise rental location not far and they will pick your caregiver up to get the car.  If you rent away from an airport it is less expensive.  There is also a Hertz not too far away.  Following a major surgical procedure it is safer to have a vehicle should you need to return to the hospital or get to the doctor.  We have taxi service, but it can take a bit of time.  The best part about Homewood is that Target (with a pharmacy) is behind it, Harris Teeter (with a pharmacy) is in front and there are several restaurants within a block.

  • Davy
    Davy Member Posts: 114
    edited March 2014

    Brca35/Philomene, 

    I agree with MartyJ in that walking the area near the hospital is not the best way to go.  It's just not a walkable area.  The Enterprise is probably a mile away from the hospital, if that. You could try Hotwire.com to compare rates, I have saved money that way.  

    The chair/bed in the hospital room is okay for sleeping.  It's difficult to imagine that someone would make it out "unscathed" if they slept on it for four days straight though. There is just not a lot of give in it to make it comfortable. 

    I had SGAP with the skin paddle left in place after stage 1. Mine looked like a patch in the center of the breast below the nipple.  After it was removed the two sides were sutured together leaving one line from the nipple to the IMF, much like you've probably seen in other pictures. The suture line on the right side is fading nicely, the left side is taking longer to fade, but I can see that both will probably be barely visible in a year.

  • brca35
    brca35 Member Posts: 68
    edited March 2014

    Thanks for the car rental tips. (I was google searching it for hours last night.) the last couple times I called the CFNBR, I felt like the people were rude. This is a VERY tough decision to make and keep (to fly there for reconstruction). So, I gotta say, it's freaking me out. In the past year, I've probably called 4 times. It's not like I'm heckling them... This last time I didn't even identify myself and receivedvery short  responses with a tone that seemed to imply  they wanted the call to end ASAP. Perhaps I am sensitive to this since this is a very scary journey to be moving forward with. Is it too much to ask for courtesy and a tiny bit of compassion? Trying to stay strong.cant share this with my family because I have to constantly tell them how great it is in order to get their support. 

  • Davy
    Davy Member Posts: 114
    edited March 2014

    Brca, 

    I'm sorry you had to experience that with whomever you spoke with at The Center. I know firsthand the courage it takes to travel for surgery and your inquiries should always be handled with care and compassion. I believe Dr. Kline and Dr. Craigie would be mortified to know that you felt this way. They seem to take great pride in the team they have selected there. 

    I had four surgeries in 2013 with them and have honestly never felt that anyone was rude or even rushed. I do hope and pray you never experience that again. May I suggest picking a contact person and always direct questions to that individual. This approach allows you to build a rapport with someone specific and maybe that will help you gain confidence in your choice.  I always spoke with Chris, Dr. Kline's nurse, who I just think is a fantastic and compassionate human being. Kim, the PA, is truly a gem as well. And if are going with Dr. Kline I know he answers questions day and night every day of the week. 

    Good luck! 

  • philomene
    philomene Member Posts: 45
    edited March 2014

    Thanks, Davy, that (the skin paddle along the incision) was exactly what I was asking about. I couldn't figured out where they put it, but it makes sense that it would be there. 

    BRCA, I'm sorry to hear that they've been rude to you. I had a similar experience with a different doctor at another hospital when I was looking for a surgeon and it was really upsetting.

  • brca35
    brca35 Member Posts: 68
    edited March 2014

    Great to hear about the positive experiences. Makes me feel better. Dr. Craigie has always been fantastic to speak with. Great idea to keep rapport with a specific person. It makes sense to surround yourself with positive energy! 

  • cascader
    cascader Member Posts: 599
    edited March 2014

    brca, I am so sorry that you feel that way but I think Davy's idea of communicating with a specific person is a great idea. I had nothing but positive experiences and I hope that you will continue to as well. So much to think about and figure out when traveling for surgery, it is stressful at times that is for sure. 

    I am traveling tomorrow to Baltimore for my areola tatt with Vinnie ! My appt is not until Monday  so I will check in again later next week and let you all know how it goes. Nervous.

  • brca35
    brca35 Member Posts: 68
    edited March 2014

    cascader, I used to live just outside of Baltimore. It's a fun town. I hope you get to enjoy the inner harbor area while you are there. 

    I'm looking for a hotel in Mt Pleasant that offers at least a one bedroom suite with the medical rate. I thought I found my match with Homewood Suites, but they allow animals and I am very allergic to cats. They say they shampoo the rooms after a pet, but cat dander is tough to control. Worried I would end up back in the hospital with breathing issues if I risk staying there. I'm going through the list of medical rate hotels that is on the east cooper web site. It is very helpful, just thought I would reach out to see if there was something out there I hadn't thought of. 

    Have a great day ladies!!!!!

  • MartyJ
    MartyJ Member Posts: 1,859
    edited March 2014

    One option might be Sandpiper Village.  It is an independent living facility for those over 55, BUT they do rent temporary furnished apartments.  Several of Dr. Kline's patients have stayed there and liked it.  All meals are provided, I believe.  Another option might be Extended Stay.  To reach Sandpiper:  http://www.premierseniorliving.com/sandpiper.html This would be my first recommendation.

    I think your biggest challenge is the mid summer date when all our rates go sky high.  You could also look at a condo rental on the Isle of Palms (try Island Realty, Wild Dunes Realty, Wyndham Vacation Properties) - most will have no pet condos.  Least expensive are Sea Cabins or Ocean Inn - try the Island Realty website first.  Though in the middle of the summer this can be expensive.  Another option might be a short term condo rental in Mount Pleasant.

  • lbrewer
    lbrewer Member Posts: 766
    edited March 2014

    haven't been on in a while and I miss chatting!  My MIL has been diagnosed with terminal pancreatic cancer and we moved her up with us.  She plans on starting chemo soon once a week for three weeks then a break and the cycle just repeats. It's palliative and I'm not sure she can handle it,   She is 85 and very frail. Anyway I will probably have to cancel my April date with dr k.  Don't see how I can possibly squeeze that in right now too. I was so looking forward to it and was hoping it would be the only grafting and then nips and done.  

    But she needs me more than I need boobs!

  • mags20487
    mags20487 Member Posts: 1,591
    edited March 2014

    (((lbrewer)))) group hug with you in our middle....sorry you must deal with this on top of everything else.

    Mags

  • 5andcounting
    5andcounting Member Posts: 232
    edited March 2014

    Sorry to hear that lbrewer. She is lucky to have family that care about her:)

  • ketch
    ketch Member Posts: 157
    edited March 2014

    We have stayed at the Sandpiper twice. Food is not included but is cheap plus you have a kitchen-ette. They do have a shuttle. Everyone there is very nice. It was no frills, but clean, centrally located, provided a place to walk daily. We got a 2 bedroom and each had a bath (my mama goes with us). The rate is around $70 for a 1 bedroom, $85 for a 2 bedroom. No complaints with staying there except I'd rather be beachfront!

    The first night after my surgery, I had a nurse who stayed in the room with me the entire night. Sent my mama home to rest rather than stay. Then she and hubby took turns staying and my son came down on the weekend and he stayed. The 2nd surgery, I was alert and felt pretty decent compared to the first surgery, so I stayed that night alone, checked out the next day. Third surgery, mama stayed as it was a bit more of a surgery, then we went back to the Sandpiper that morning.

    The nursing staff at East Cooper was the best I've ever experienced. They were excellent. One thing I noticed about the nursing staff is that the doctors truly appreciate them and expect the best from them. Never before have I had doctors appreciate the nursing staff like Kline/Craigie.

  • lbrewer
    lbrewer Member Posts: 766
    edited March 2014

    MIL coming home with hospice today. Dr says days left. Keep me in your prayers. 

  • MartyJ
    MartyJ Member Posts: 1,859
    edited March 2014

    Done!  May all be well with you Lbrewer and may your mil get some peace.

  • bethcw
    bethcw Member Posts: 98
    edited March 2014

    lbrewer, you and your entire family are in my thoughts and prayers!

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited March 2014

    Lbrewer,

    My heart goes out to you and you all are in my prayers. 

  • cascader
    cascader Member Posts: 599
    edited March 2014

    lbrewer, Thinking of you and your family. 

  • Ashira
    Ashira Member Posts: 161
    edited March 2014

    lbrewer,

    Sending blessings to you and your family in the days ahead. 

  • lbrewer
    lbrewer Member Posts: 766
    edited March 2014
  • brca35
    brca35 Member Posts: 68
    edited March 2014

    I did it! After canceling my surgery last summer when my heart told me I had the wrong PS here in Michigan, and after hoping for an opening last summer in SC that never came to fruition, I finally have a firm date and FLIGHT  BOOKED for surgery with Dr. Craigie in July 2014. I am so excited to move forward!  I am going to take the next 3 months to get my body as strong as possible before surgery. Thank you to everyone in this thread for advice and for helping me to get to this point. You are all so strong and brave!!!! 

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited March 2014

    Brca35,

    That's great news to hear for you!  Please keep us posted and ask us questions that are sure to come up.  

  • MartyJ
    MartyJ Member Posts: 1,859
    edited March 2014

    Way to go brca35!  You found a place to stay, too?

  • brca35
    brca35 Member Posts: 68
    edited April 2014

    Thanks ladies. Yes, staying at a nearby hotel that has a medical rate. :-) 

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