Anyone have Retinal Tumor from Breast Mets?

Options
SusaninSF
SusaninSF Member Posts: 1,213
edited June 2014 in Just Diagnosed With a Recurrence or Metastasis
Anyone have Retinal Tumor from Breast Mets?
· Share on FacebookShare on Twitter

Comments

  • SusaninSF
    SusaninSF Member Posts: 1,213
    edited March 2014

    I was experiencing some distorted vision so went to the Ophthalmologist.  He shocked me when he said there was a mass on the back of my retina and he thought it might be metastasis from some other cancer.  I had DCIS twice, the last 8 years ago.  Nodes clean.  Full unilateral mast.  Apparently, retinal tumors don't happen on their own, they are pretty much always the results of mets, generally lung or breast.

    Scheduled to have a PET-CT scan and orbital MRI on Friday.  Scared and shocked!  I have been having annual mammograms and nothing showed on the last one.  I have had a persistent cough for the last four months but so have a lot of people.  Anyone else experience something like this?

    Best, Susan

    · Share on FacebookShare on Twitter
  • jill47
    jill47 Member Posts: 351
    edited March 2014

    Hi Susan,  I'm sorry to hear about the new tumor.   At my first eye and dental appointments post dx, both doctors insisted to do extra exams with eyes and in mouth & neck to check for mets; my eye doc said bc does like to go to the eyes.  BC dx puts our doctors on alert to look deeper and more closely.  I have a persistent cough for the last year too, which occurs during sleep, I don't remember them but DH says I wake him up, most likely a sleep disorder.  Blessings to you.  Jill

    · Share on FacebookShare on Twitter
  • doxie
    doxie Member Posts: 1,455
    edited March 2014

    Susan,

    First keep in mind he said "might" be a metastasis.  He didn't say it was.  He is being extra cautious because of your history.  I've had a few wild goose chases because of eye SEs on AIs.  

    Yes, BC can cause tumors in the eye and a good eye doctor will check for these.  Mets to the eye are rare, and with your history of only DCIS it would be extraordinarily rare.  The DCIS would have had to changed to IDC somewhere along the line.

    Any problem is the eye is not welcome, but let's hope everything turns out ok for no BC tumor or anything else wrong, but an overly cautious doctor.  

    · Share on FacebookShare on Twitter
  • SusaninSF
    SusaninSF Member Posts: 1,213
    edited March 2014

    Thanks jill47 and doxie!  I hadn't had someone look at my eyes in 14 years since I had lasik and no longer need contact lenses.  I had no idea that I should be checked.

    My oncologists thought it was odd too given my previous two bouts were only DCIS.  I'm not too worried about my eye at this point, just the possibility of metastasis.  The Ophthalmologist was so sweet and looked so sad and devastated by what he thinks is my condition.  But, as you said, not a certainty yet.  I mean the eye tumor is a certainty but not the metastasis.  Will hopefully know more after my scans tomorrow.

    Appreciate your thoughts!

    · Share on FacebookShare on Twitter
  • Nan54
    Nan54 Member Posts: 93
    edited March 2014

    Thinking of you and hoping for clean scans and an unrelated, easily treatable eye condition!

    · Share on FacebookShare on Twitter
  • SusaninSF
    SusaninSF Member Posts: 1,213
    edited March 2014

    Well the doc just called and I have a  4cm mass on my right lung, a bunch of enlarged lymph nodes, spots on my brain and breast in addition to the eye tumor.  Definitely not good news.

    · Share on FacebookShare on Twitter
  • bevin
    bevin Member Posts: 1,902
    edited March 2014

    Dear Susanin SF, I'm so sorry to hear this news.  I am hoping you have family around you to support you. Praying for you and wishing you strength. Please keep us posted.

    · Share on FacebookShare on Twitter
  • SusaninSF
    SusaninSF Member Posts: 1,213
    edited March 2014

    Thanks Bevin!  Guess I will move over to the Stage IV board :-(

    · Share on FacebookShare on Twitter
  • doxie
    doxie Member Posts: 1,455
    edited March 2014

    So very sorry Susan.  I hope they can get you onto effective treatment soon.

    · Share on FacebookShare on Twitter
  • SusaninSF
    SusaninSF Member Posts: 1,213
    edited March 2014

    Thanks Doxie!  Best to you!

    · Share on FacebookShare on Twitter
  • Nan54
    Nan54 Member Posts: 93
    edited March 2014

    So very sorry to hear this... Wishing you strength and hoping that they get you on treatments that kick the @$!& out of that cancer!

    · Share on FacebookShare on Twitter
  • lindacam
    lindacam Member Posts: 161
    edited March 2014

    Hi.  I dont have mets but just wanted to say I am truly sorry.  If you need someone to vent to pm me anytime.

    Linda

    · Share on FacebookShare on Twitter
  • SusaninSF
    SusaninSF Member Posts: 1,213
    edited March 2014

    Thanks Nan54 and lindacam!  Cancer sucks!!!

    · Share on FacebookShare on Twitter

Categories