Starting Chemo in March 2014

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  • Lovemysons
    Lovemysons Member Posts: 31
    edited March 2014

    When do you take the Claritin - day before or day of the shot?  I had my first chemo today and get the shot tomorrow. 

  • jbdayton
    jbdayton Member Posts: 700
    edited March 2014

    I started taking it the day before chemo.  First round I had severe bone pain when I took it the day of the shot.

    My MO changed my schedule to begin a couple of days before the injection and it seemed to do the trick; mild bone pain for the rest of my treatments.  

    Good luck.

  • Lovemysons
    Lovemysons Member Posts: 31
    edited March 2014

    Thanks!  I'll take it tonight.  So far I feel great - just tired since I didn't sleep much last night. Probably from the steroids.   They said 24-48 hours till the onset of the side effects. 

  • Summerwheat
    Summerwheat Member Posts: 86
    edited March 2014

    The first time, I took the Claritin the day of Chemo and then 5 days following, but now, I started the day prior to Chemo, which seems to have helped against the bone pain, it has only been mild (and I have been taking Tylenol when I started feeling more of it).

    Regarding being wired and sleepless after the steroids, an Ativan (let it melt under your tongue when you go to bed, that was my MO's recommendation) has helped me tremendeously and I slept like a baby. I have literally never taken any pills and medication prior to this BC journey and initially (after surgery) tried to stay away from all but Tylenol, but I have to admit, Ativan has been very helpful in getting sleep and keeping anxiety ahead of procedures at bay. I don't take it often though, not sure how addictive it is.

    Good luck and mild SEs to you, Lovemysons.  

  • lgoldie
    lgoldie Member Posts: 120
    edited March 2014

    Yeah, now I have itchy red spots on my face from the sun, I guess.  The weather is beautiful...but this does not bode well for summer.  I miss my grandbabies....time for another visit to granny

  • lgoldie
    lgoldie Member Posts: 120
    edited March 2014
  • Sinsin
    Sinsin Member Posts: 358
    edited March 2014

    So my WBC is down to .9 and am really freaked by it. My doc palpitated and couldn't feel my spleen as enlarged so not sure what to think. Really hoping my Neulasta kicks in and gets my counts up enough for Monday's infusion. I have my mother in law coming in to help that week and everything. Otherwise, I feel fine, viral cold included. 

  • jmg58
    jmg58 Member Posts: 185
    edited March 2014

    lgoldie, happy early birthday in case I miss you tomorrow!!  :-)  

    Sinsin, don't worry...I bet it will go up. I am keeping my fingers crossed!

    Mine actually went up to 17 all of a sudden.  They said it was from the bone shot, but I think I have an infection.  I'm taking Penicillin right now because the insertion site at my PICC line is really red and painful.  Waiting on results of a culture.  5 strong pills down, no improvement, but I go to MO tomorrow.  Also suddenly severe toothache in my GUM.  I went to the dentist a month before chemo for a bad tooth/redo of a root canal.  Instead of sending me to an endodontist while I still had time he said a new cap would fix it. I told him time was of the essence, but by doing that, HE got to get $1500 for nothing first.  Now I'm screwed.  Now I can worry about an infection there, too.  Called the triage nurse and she said the Penicillin should keep me good until tomorrow's visit.  I hope so, my gum's red and hurts like nerve pain.  I swear to God, the weirdest crap happens to me.  I just cannot get a break.  I would be feeling good right now and getting ready for next infusion and heading back to work for the final week but all this weird stuff keeps happening to me.  And I'm afraid it's stuff that keeps me up at night...like the fear of getting sepsis. 

  • WifeWBC
    WifeWBC Member Posts: 53
    edited March 2014

    wife is at day 19 tomorrow of first round.  5 rounds to go.  Sounds like a bloody boxing match.  Days 1-9 were up and down, but mostly down.  Couple of good days, but some bad back aches, headaches and nausea (like a bad hangover she described it).  Since day 9 however, she has been herself, so if you have just started, and feel crap, then hopefully beyond day 8 you too will see similar improvements.

    I am wondering if my wife's response to her treatment is normal.  Is this what we can expect in the next 5 rounds.  Think I'll look at some other chemo threads to try get an idea of what we might expect.

    Wife still has her hair, but it's pretty much on its last follicles.  She said it was tingling, so thought I'd mention that, as I think Ali had asked about it.  Sounds like that is the way it happens.  Wife asked me would I buzz off her hair, but her wig lady said she would do it, and I think I might mess it up.  Wel, hurt her head more so.  She says it is tender.  

    As for losing hair, if you ask me, there is something to be said about a woman in a scarf.  Totally trendy and there are so many things you can do to look great.  My suggestion to you all is to experiment with it.  You'll all look great.  Embrace it.  Be positive.  

    Back for #2 treatment on Friday.  We haven't spoken of it, but can imagine wife is pretty apprehensive about the coming week.  We'll see the MO so will ask for some pain meds for the booming headaches and neck/shoulder pains.

    Have a great week all.

  • jbdayton
    jbdayton Member Posts: 700
    edited March 2014

    WifeWBC I had TAC last year at this time.  I had about 7-9 days each cycle that were not so good and almost 2 weeks of feeling myself.  I did notice I had a little more fatigue with each cycle.  Did 6 cycles of TAC every 21 days.  The only real difference is I did chemo before surgery so my body was fresher.  This combo did shrink my tumor to almost non-existence by time of surgery.  

    I was able to walk the making strides for breast cancer walk at week 2 of treatment 3 and attended my grandsons wedding 6 days after my last cycle and did just fine with a good afternoon nap.

    I had my head shaved one year ago today at day 12 of cycle 1.  I now have about 3 inches of super curly new hair.  Wow what one year brings.

    Your wife will do ok just love her and help her get the rest she needs.  

    Prayers for the next 3 months as you navigate this treatment.  It to shall pass.  

  • Mitzro
    Mitzro Member Posts: 48
    edited March 2014

    Sandydoc - Thanks for the tip about L-Glutamine powder.  I have had it handy because it was recommended by a friend, but didn't really feel like I needed it before this (5 days after my second round of ACT) so I will try doing this regimen before chemo next time.  My MO recommended taking B6 along with it.  Stupid of me, but I did not ask why.  Now I would like to know? 

  • Mitzro
    Mitzro Member Posts: 48
    edited March 2014

    Good luck to you and your wife WifeWBC.  Yes, that is how the hair thing goes.  I shaved my head last Saturday and just so you know, I had a very tender scalp for 4 or 5 days.  It was very uncomfortable to lie down at night.  I have heard a silk pillowcase is a good idea.  Not sure if that would have helped me, but my head is feeling better now.  It's just so strange to see yourself in the mirror.  I am not a big fan of mirrors right now. :)

  • jmg58
    jmg58 Member Posts: 185
    edited March 2014

    Interesting about the hair!  I am on day 13 after chemo and it's now coming out on my head, too. All of a sudden today, hair falling all around.  May get it shaved tomorrow if I am up to it.  Have to get a re-ROOT CANAL tomorrow.  I got the okay from the doctor because my blood cell counts are all up==have to hurry to do it now before chemo again next week=, but I am really worried about endocarditis and the PICC line.  If blood from the infected root gets in my bloodsream and sticks to that PICC or sticks on my heart/valve.  But I don't see what choice I have.  My tooth now hurts all the way up through my gum and almost to my nose---all in 24 hours.  Going to an endodontist and premedicating but I'm still really really nervous about infection.  But having an infection all through my mouth/jaw isn't going to help me any either.  This is one of those things you don't want to search on the internet!  I think this is probably the scariest thing for me so far.

  • maryland
    maryland Member Posts: 1,298
    edited March 2014

    Well so far it seems I have evaded my husband's cold, but I woke up with the complexion of a 13 year old. Not sure if it's exactly acne but that's sure what it looks like. Even in my ears and on my scalp....arrggh.. I hate chemo. Still not losing any hair, I'm on day 12 jmg, now you have me wondering about tomorrow.

  • WifeWBC
    WifeWBC Member Posts: 53
    edited March 2014

    jmg58 the tooth thing is a bummer.  Hopefully, you are feeling yourself, so you can get in and out do the dentist, and have it over with.  Like anyone needs more crap to worry about during this.  You'll do fine.

    Wife got her hair shaved today.  She looks great in her wig.  She looks awesome without too.  GI jane look out.

    Read some of the TAC threads today.  Seems my wife's response is somehow reasonable, so kinda happy with that.   Also jbdayton's post above - thanks for that.  Nice to see a few 9 and 10 year vets still posting about their experiences, and still free of the cancer.  Very encouraging to read when you are in the dark.  Makes this all worth while, as does seeing our 4 young kids huddled in their beds each night.

    I hope you all have it as good as I do.  Prayers to whatever god you may or may not believe in go out tonight. Think that covers everyone 

    Tony

  • MedicMom2
    MedicMom2 Member Posts: 26
    edited March 2014

    good morning chemo marchers!!!  Officially I join you in 3 hours. 

    Got a super short haircut yesterday (and it's now magenta courtesy of the hairdresser). Didn't sleep so well last night (assuming decadron competes w the Ativan) but def ready for chemo 1 this morning. thanks for all the advice on what to expect!!!  

    Medical people...I think for work I've decided on scrub caps from blue sky in tx. They have a snug one for short hair, and a pony style like some scarves but not as much pouf in the back, but cotton blend so super easy to wash!  A new beautician at my hairdressers is pushing 5 years this May and she said she had peach fuzz 3 months  after 4 rounds Of TC so I will be wearing these for a while it sounds. Plus at $20-25 each I can get several of their dozens of great patterns. :-) there are advantages to waking at 4am. Maybe next time I should do my taxes tho.

    Hope you all have a great day. I plan to!!!

    Keeping you all in my prayers. Where 2 or more are gathered together ....

    Deb

  • maryland
    maryland Member Posts: 1,298
    edited March 2014

    Good luck medicmom.. gotta go to work now, all you ladies... and men have a great day

  • NinaW
    NinaW Member Posts: 110
    edited March 2014

    Good morning, people!!!

    Medicmom, as the resident cheerleader, I'm shaking my pom-poms in your direction today - go get 'em! Chemo is mostly boring, but by all means feel free to take advantage of the time to read trashy novels, watch those last six episodes of "Breaking Bad", hang out on a celebrity gossip site so you can leave snarky comments about Gwyneth Paltrow's "conscious uncoupling" from Chris Martin (what the heck is this navel-gazing speak), or Facebook-stalk that old crush of yours from high school. BUT WHATEVER YOU DO, DO NOT DO YOUR TAXES. You're already doing your taxanes, and that needs to be close enough for you.

    As for me, I had a cup full of Herceptin yesterday, and go for my second helping of TCH next Wednesday. Also, please note that waiting for your hair to start falling out is a lot like waiting for a pot of water to boil, but this morning (day 15, for people who count these things) I started to shed like a pomeranian puppy. As I was driving my son to school today, I told him that my hair was starting to exit stage left, and then gave him permission to break our iron-clad rule about lying to me by feeling free to tell me what a beautiful bald girl I am. Honestly, the fact that he has my permission to lie about this made him totally forget the hair thing, and we laughed like idiots while we waited our turn at the drop-off circle.

    I hope everyone has a terrific day xoxo

  • Kazzy115
    Kazzy115 Member Posts: 122
    edited March 2014

    NinaW - thanks for the smile and laugh this morning!  Truly inspirational! 

  • lgoldie
    lgoldie Member Posts: 120
    edited March 2014

    Leaving in a few minutes for labs, doctor visit and AC 3.   That's 6 weeks of chemo so far.  I more AC and then Taxol x4.  Less nervous today....I think.   Went and bought my staples..bottles of water, toilet paper and Chicken noodle soup.  I am hoping not to be bumped up a week due to cranky liver, but will accept God's will   Hope all of us going today have a great ride.   Leah

  • lgoldie
    lgoldie Member Posts: 120
    edited March 2014

    Hey, I read not to put Clearasil on those bumps, makes em worse.   Better ask onc

  • lgoldie
    lgoldie Member Posts: 120
    edited March 2014

    Found it.   Can they just pull it?  Nah.   If they premedicate you, you will be fine.   I have to also

  • babyduck
    babyduck Member Posts: 63
    edited March 2014


    I have the bumps on my head too.... And have a swollen lymph nodes on my neck. Have #5 weekly Taxol tomorrow. See the MO too. Hoping the lymps are just a reaction to the scalp. Most of the bumps are at the base of my neck.... I haven't shaved it. Why??? Don't know just wearing a hat.... May shave tonight or the weekend.... I read where someone had the swollen lymphs and it was nothing. Anybody else had this? I don't feel sick. A tad sniffly, blood nose every morning... yuck.. All in all I have felt good. Praying for the same for all of us!!

  • oddducklady
    oddducklady Member Posts: 58
    edited March 2014

    Nothing like starting here at the end of the month, but I have been reading all of the posts like crazy the last few days. I have learned a lot of good tips that I am going to try and I thank all of you for the info. My heart goes out to all of you and I am the odd one. My husband has Stage 3 C breast cancer, was first dx in mid Feb-was quite a shock to us and the Drs too. We made the decision to go out of state for treatment to a place that has treated male breast cancer, has had left masectomy and ALND (13 of 24 nodes positive) and started TAC chemo Mar 21. He breezed through all the tests and surgeries altho he still has a drain in (going on 4 weeks now with no signs of slowing) so it has been a shock and heartbreaking for me to see how bad he has felt this past week. I can't help but feel that this should be me going thru this. I know he is getting the benefit of all the women with breast cancer before him and I have hope we will get through this. But I just had to write and thank all of you. I believe some of your tips will help him, and help me take better care of him. I am grateful, but now crying so can't see to type any more.

  • jmg58
    jmg58 Member Posts: 185
    edited March 2014

    oddducklady, I am so sorry for your husband's news, but welcome to the boards.  I hope we will continue to be able to help you and encourage you.  We are all here for you!!

    As for me, I am also crying at the moment.  Went to endodontist for re-do of root canal today (she did 1/2).  I am now in worse pain than when I went in. I mean, unbearable.  AM laying in bed crying with ice pack and it's doing little good.  I've had crowns and root canals before but never anything like this.  I can't bear the pain. Tomorrow I'm going downtown to get another blood test and getting this tooth pulled even if it means putting off my chemo for a week which really upsets me, but I'm telling you, this pain is horrendous.  I'm nauseous from it (and I never was from chemo or operation) and I can't even close my mouth on the tooth.  The gum is also so sore when she stuck me with the needle I thought I'd pass out.  I've been told before when it comes to medical stuff I'm not a baby at all, and I've never been a baby at dental things...but I feel like I'm gonna die.  Also twice as worried about infection now.  Sorry for all the bad news....I'm just so miserable and so down I can't stop crying.  This is the week I was feeling good.

  • NinaW
    NinaW Member Posts: 110
    edited March 2014

    {{{{{oddducklady}}}}} Welcome to the Seventh Circle of Hell that is March chemo. The good news is that our circle of Hell has lots of windows with a lovely view of Purgatory, and we've put duct tape over the mouths of the sinners in the next circle over because they were super, super annoying. 

    I'm so sorry to hear about your husband. It's true that when you think of "breast cancer", you almost automatically think of women only, but each of us has a spot on our bodies where nipples like to hang out. My eldest male cousin had breast cancer (at the time, we were sure it was inherited through his mother's side, who was not blood to me, but since my side of the family tree is now bearing cancer fruit as well, who knows). I don't know about your husband, by my cousin was mortified that he developed a "woman's" disease. Really, Mr. Macho? Would prostate cancer have made you happier? 

    Also? NOBODY should be going through this. Not you, not your husband, not me, not my sister, not any of the women on this thread, not either of the wives of the two awesome husbands who hang out with us here. Nobody. And while the chemo drugs will do their thing with the cells inside your husband's body, your love and support are an even more important medicine. It'll keep his heart strong and his optimism stoked. You've got just as much work to do here as he does :-)

    Please let him know he's welcome to join us if he likes. We promise not to talk about fashion or reality tv. I'm not saying we'll talk about bass fishing or golf, either, but we'll try to tone down the girly stuff if it helps him feel more at home!

  • NinaW
    NinaW Member Posts: 110
    edited March 2014

    Ugh, jmg, you poor girl :-( I officially nominate you for the "person on this thread who most deserves a break already". Do you maybe have some Ambien or something? Perhaps if you can just sleep for a while, the rest will help. 

    I hate that you're having such a rough go of it lately. Postpone chemo if you must; a week is NOTHING, and it'll be worth it if you can get your dental situation sorted out. I'm sending you a truckload of hugs and a firm command to your nerve endings to just take a vacation for a few days so you can heal xoxo

  • jmg58
    jmg58 Member Posts: 185
    edited March 2014

    Thank you, Nina.  I feel like I'm the debbie downer of this thread....I don't mean to be, it's just been a bad run of luck the last week and a half, and living with and 82-year-old invalid mother, I don't have many people to talk to or places to vent.  I just took a Vicodine and hope that will help.  Maybe two will help more.

    I want all you ladies and gentlemen to know that I cheer for your victories, big and small, and hold you in my heart at any setbacks....I hope to be more cheery when I next post and I'm sorry I've been so self-involved here trying to get over.. 

  • NinaW
    NinaW Member Posts: 110
    edited March 2014

    Um, chemo means never having to say "I'm sorry", jmg. Did you not get the memo on this? Our gang is your safe place - you go right ahead and let it all out here. It's ridiculous that on top of everything else involved in this icky situation, you're also dealing with tooth pain. That's like a maraschino turd on a cow-pie sundae. 

    Vicodin is lovely stuff. If the Vicodin is 5mg, go right ahead and take two of them unless your doctor's told you not to - their website says 1-2 pills every 4-6 hours up to 8 pills/day. You've earned 'em.

    My mom passed away last year shortly before her 86th birthday; she'd suffered a series of increasingly debilitating strokes, and the one before the stroke that took her left her paralyzed on her left side and wheelchair-bound. My dad is 87, and has never written a check or done a load of laundry or used an oven in his entire life, so I totally get where you're coming from, because I've been the designated hitter for all the day-to-day stuff since the stroke that paralyzed my mom. We actually had her funeral on my birthday last year. OMG this sounds like the worst kind of soap opera, but it's all true. There are days when it's a real struggle to find joy, but I really do believe that it's the most helpful thing. Be kind to yourself, and see if you can find a little bit of joy somewhere. If all else fails, eat some chocolate xoxo

  • CaliKiwi
    CaliKiwi Member Posts: 98
    edited March 2014

    Jmg - go right ahead and vent.  You're not the Debbie downer, you're just keeping it real.  I personally want this to be a place where we can all feel free to say what is 'real'.  I'm so sorry about the tooth pain. It's something that on its own would be enough to cause major strife. It just seems unfair that you have to deal with this now. I'll be keeping you in my thoughts and hoping that things start sorting themselves out!

    Oddducklady, welcome. As awful as it is to have this disease ourselves I think there is a whole other kind of torture that our caregivers and loved ones are put through.  The one thing I do know is that this shouldn't be wished on anyone, as much as it hurts to see your husband go through this I am sure that he does not feel in any way that this should be you. I wish you both all the best and hope that you can continue to find some support and good advice from our little group.

    Medicmom - hope your chemo went well and your side effects stay absent!

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