Please talk me off the ledge - is it sciatica or mets?

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Hi everyone!

OK.  Please walk me through this. I have scans scheduled for this Wednesday. I'm very active - I run a lot, do yoga, etc.  About 10 days ago, I took a cardio kickboxing class and really tweaked my back.  I then took a yoga class, hoping it would make it better, but no dice.  Just made it worse.  Had the exact symptoms of sciatica - pain in my buttock, shooting down my leg.  I went to the chiropractor and he took X-rays and saw that my spine was really twisted and pinching right on my sciatic nerve. (He specifically said he didn't see any signs of cancer, but also said to keep my scans scheduled as they were obviously way more definitive than a chiropractor's X-ray.)  He adjusted me and I have been doing stuff like the static back press, etc from PT.  This has all helped - the sciatic pain is almost gone, although now there is a generalized ache in my lower back.  Generally, it only hurts when I am seated, especially driving.  It doesn't hurt when I am standing or walking and I sleep like a baby - it's definitely not worse at night.  Aleve and Tylenol definitely help with the pain.

Obviously, as I write all this down, it doesn't appear to be mets.  More like sciatica or a bulging disk or something.  AND YET.  I can't help going down the rabbit hole.  Can someone please throw me a line  and get me out of here?

Thanks!  (Cancer sucks.)

Comments

  • Nettie1964
    Nettie1964 Member Posts: 759
    edited March 2014

    No line from me because I'm feeling the same as you!  However, mine has not eased as much as yours!  And I've not had an X-ray, no one seems to think it's necessary!

    Hopefully someone will be along to give you some of their experiences!

    I'm trying to keep myself out of the rabbit hole!

    I'm with you - Cancer sucks!

  • pupmom
    pupmom Member Posts: 5,068
    edited March 2014

    Sweetbean, I have sciatica too, which was diagnosed through an MRI. I recently had a cortisone epidural, which has helped. I'm not 100%, but about 60 to 70% better. I don't think you should be so concerned about mets since you have a history of back injury and sciatica. I'm sure that's all it is! Oh, and sciatica also really sucks.

  • sweetbean
    sweetbean Member Posts: 1,931
    edited March 2014

    Hi Yorkiemom!  Good to see you!  Thanks for answering!  I've had sciatica before, too.  Honestly, I've hurt myself in running/yoga - twice this year.  Once in my knee and once in my arm. It was frustrating, but not scary.  Took about 3-4 weeks for both issues to resolve.  So I know that I should be patient, but it's hard when it's lower back pain.  Plus, I'm worried that this will kick up something on the bone scan that will require further testing and that will continue to freak me out.  But thank you!

  • sweetbean
    sweetbean Member Posts: 1,931
    edited March 2014

    Nettie, I'm so sorry to hear that we are hanging out in the rabbit hole together.  Do you have scans scheduled?  

  • pupmom
    pupmom Member Posts: 5,068
    edited March 2014

    Sweetbean, I understand. I suppose we all just survive from scan to scan, lol! This sciatica has really gotten me down. The pain of standing and walking was almost unbearable. As I mentioned it is better now, after the epidural, but I think I will need another shot before long. We're going to Turkey in June, and if I'm not doing better I will need a lot of help (maybe a wheelchair, sigh) going through multiple airports. My DH told me that I should probably stop PT, as sciatica is an inflammation of the nerve, and perhaps needs rest more than therapeutic movement. I don't know, but that's what I'm doing now. Resting! Best wishes sweetie!

  • Nettie1964
    Nettie1964 Member Posts: 759
    edited March 2014

    No scans scheduled for me!  All involved seem to think it is unnecessary.  I suppose I could push for one, but right now, I've decided to wait it out!  Either way, the waiting and wondering can be brutal!

    But it does help me to know that other ladies experience the same or very similar pains and are diagnosed with things other than METS!  I know this doesn't mean it will be the same for everyone, but it does help to hear!

  • sweetbean
    sweetbean Member Posts: 1,931
    edited March 2014

    Yes, I don't think they would have scheduled scans for me, either.  I'm honestly wondering about the wisdom of having them done.  I really don't think it's mets, (but what if it is? I should really decorate the rabbit hole while I'm down here) and now I'm concerned the scans will pick up on all of this  activity that is no doubt taking place and then I will need more tests.  Arrgh.

  • Nettie1964
    Nettie1964 Member Posts: 759
    edited March 2014

    Yes, Sweetbean, that's one reason I don't push!  One test can lead to another to another to another before all is ruled in or out and who has the nerves for that?  I know the women on these boards get through them and I'm sure when it's finally my turn, I will also, but dang it's so hard!  Just wish there was a one stop shop to get it all done with answers in a day!  And since I'm not much of a decorator, you just fix that hole up any way that suits you!  I'm easy to please!  LOL

  • lovetodance1
    lovetodance1 Member Posts: 62
    edited March 2014

    I'm a physical therapist. Very much likely sciatica possible herniated disk. Very common. Most people have them without symptoms, then do something wrong and pain starts. I would do nothing and let is heal. I don't even like chiro adjustments but that's personal. Take a break from sports and yoga 2 weeks

  • Nettie1964
    Nettie1964 Member Posts: 759
    edited March 2014

    I must say that my son is a PT and he fully supports my chiro!!  However, my chiro does not "adjust" or "pop"!  He uses somewhat of a massage technique on the muscle, tissue or fascia.  I have scoliosis and degenerative disc in my neck so I can no longer have "adjustments", but he works wonders for me!  I wish I knew what to call it, but I don't!  And like I said, my son has his doctorate in Physical Therapy and fully supports my chiro and my chiro also tells me to follow up with my son for stretches and exercises that will compliment his therapy and until the radiation messed up an area around my curve, I was having excellent results!  So now I'm just hoping that's all it is and not mets to the spine!

  • sweetbean
    sweetbean Member Posts: 1,931
    edited March 2014

    lovetodance - thanks!   A herniated disc would definitely fit the symptoms.  

    Nettie, so the doctors are just adopting a wait-and-see approach?  How long have you  had the pain?

    Yorkiemom- I am so sorry to hear that you have so much pain!  (Pretty jealous that you are going to Turkey, though!)  Have you ever read "The Method of Health Through Motion," by Pete Egoscue?  Great book and an easy read.  Talks about our various physical dysfunctions and how to correct them.  Might help!

  • Nettie1964
    Nettie1964 Member Posts: 759
    edited March 2014

    Sweetbean, 

    Pretty much had the back pain since finishing rads. It comes and goes but is present more than absent. And it often presents with additional symptoms, hip pain, radiating leg pain, pain radiating to lower arm/wrist. Just lots of weird things. Also had rib pain that went away with therapy but is now back as of yesterday. Also I've had constant pain in affected breast from scar tissue and/or nerve damage. 

    I'm just a big mess now that treatment is done and I constantly fear that all this pain is mets. However, most nights I sleep fine unless I'm awake from fear and worry. Pain mostly goes away when I rest. But the minute I hit the floor, there it is.

    Well sorry to go on and on, guess I just needed to vent because I also fall in the category of family that thinks, ok treatment over, life is back to normal.

  • sweetbean
    sweetbean Member Posts: 1,931
    edited March 2014

    I totally had back pain after finishing rads.  Totally freaked me out.  I think it was from lying so still on the table for so long.  It went away after about 6 weeks or so.  I'm going to refer you to the book that I mentioned in my post to Yorkiemom- The Method of Health Through Motion by Pete Egoscue.  Cheap and an easy read and has really helped me every time I have had any sort of back/hip/neck/knee type issue.  

    I'm doing the two super gentle "stretches" right now and definitely seeing results.  I put "stretches" in quotes because they are both flat on the floor with either one leg up on a chair (so that the knee is at a right angle) or both.  Just gets your hips and hip flexors to relax back into the right position.  My pelvis tends to tip up, which has gotten me into trouble in the past.  Anyway, the pain is definitely less today, so I am celebrating!

  • pupmom
    pupmom Member Posts: 5,068
    edited March 2014

    Sweetbean, thanks I will definitely check out that book! Last couple of days my pain has been minimal. On my way to pick up a grandson for the afternoon. I feel up to it, yay!

  • wallycat
    wallycat Member Posts: 3,227
    edited March 2014

    How are you doing?

    I had a horrible hip pain...what I thought was sciatic pain (which I do get on and off, especially if I do yoga backbends) just did not feel the same way.  I mentioned it to my onco and she said it could be bursa pain.  Mine was so bad I hobbled at home.

    I had to allow some time off from exercise and rest; took ibuprofen a few times and waited. 
    "They" say that mets really hurts at night and intensifies---not sure if that is actual or just here-say.  

    My onco said that if the pain improved over time, my odds were it was not mets.  We did no scans.

    About 3 weeks out and the pain disappeared.

    Hoping you have the same.

  • sweetbean
    sweetbean Member Posts: 1,931
    edited March 2014

    Hi Wallycat,

    It is markedly better today!  YAY!  I still have my scans tomorrow, but I'm feeling much more confident.  I've heard that about mets hurting more at night, but I also know that the pain is consistent.  Someone described it as feeling like it was a cigarette burn on your bone.  Mine feels like muscular back pain with maybe a slightly pinched nerve thrown in.  But like I said, it has gotten much better in the past 24 hours.  Glad to hear your pain went away, too!

  • sandilee
    sandilee Member Posts: 1,843
    edited March 2014

    Good to hear you're feeling better, sweetbean.  The fact that the pain is helped by Tylenol and Aleve lead me to think this isn't mets, either.   Mine felt like muscle pain, but pain over the counter meds didn't do much to alleviate it.  If I had to guess from your symptoms, I'd think you have some spinal stenosis in your lower back. You might also just have some achy muscles from the previous sciatica that your chiro worked on.

      I  also don't think it's normal for spine mets to get "much better in 24 hours" without rads or some other kind of treatment.  What kind of scan are you getting?  Bone scan or MRI?

      

  • sweetbean
    sweetbean Member Posts: 1,931
    edited March 2014

    Hi Sandilee,

    I'm getting a bone scan, no MRI.  This was all scheduled as a precaution before that dumb kickboxing class where I hurt my back.  (Before that class, I felt like a rock star.)  I talked to my oncologist's assistant and she told me to tell the bone scan technician, so that he is aware of it when he looks at my scan.  

    Thank you so much for weighing in.  I'm so sorry to hear about your mets!  Arrgh - cancer sucks. 

  • sweetbean
    sweetbean Member Posts: 1,931
    edited March 2014

    OK, I had my scans yesterday and my oncologist called me with the results.  She said some new stuff popped up - she said she honestly didn't think it was cancer, but since it couldn't be completely ruled out, she wanted to get a second opinion from another radiologist.  So that might take up to another week.  

    The two things she saw were a small thing on my liver that could have just been the dye not taking.  She said it didn't look like cancer and she was not worried.  The other was a bit of uptake in my left tibia.  She also didn't think that was cancer, for a variety of reasons, one of which being the fact that she had never seen BC metastasize below the knees or elbows without being somewhere else first.  Basically, she said, "These results make me say, 'Shit, why did we do these tests?' because this just going to cause a lot of anxiety for nothing."    She asked me if I had injured myself and I told her about kicking the bag in kickboxing.  It's hard to believe something like that would cause increased uptake, but maybe.  I also walk into stuff all the time, so who knows.  She said that the scan said that it didn't look like cancer, but it couldn't be completely excluded, either.  Aargh.

    *sigh*  Even though I'm not that worried - my back is feeling much better (the reason I posted in the first place!), I was really hoping for the "ALL CLEAR!"  

    Thanks for the support.  Any insight or wisdom would be amazing!

  • sweetbean
    sweetbean Member Posts: 1,931
    edited March 2014

    Ironically, my back looks just fine.  So yay for that!

  • GrumpyCat
    GrumpyCat Member Posts: 24
    edited March 2014

    Sweetbean, I'm in sort of the same boat.  Had a CT of the abdomen b/c of high liver enzymes (thanks, Tamoxifen) and they saw something in the lower part of my lung which just happened to be visible.  Now I'm scheduled for a PET on Monday and I'm freaking out.  Trying to stay out of the dark what-if place, but it's hard!

  • sweetbean
    sweetbean Member Posts: 1,931
    edited March 2014

    Yikes!  That is scary, but try not to freak out.  It's very likely nothing!  Sending you a big hug!

  • encyclias
    encyclias Member Posts: 302
    edited March 2014

    Sweetbean, I can verify what your onc said about never seeing cancer below the knees.  My RO told me the same thing months ago when I asked him which bones I most needed to pay attention to for mets; after all, we have lots of bones in our body to watch.  He told me ribs and pelvis, and went on to say in his long career he had never seen cancer below the knees or in the lower arms.

    Wishing you the best.

    Carol

  • sweetbean
    sweetbean Member Posts: 1,931
    edited March 2014

    Thanks, encyclias!  This morning, I had the disturbing thought "What if it is a new primary bone cancer?" But I don't think it is.  All of these aches and pains started with that kickboxing class, so I'm convinced that is all it is.  But arrgh.  Cancer sucks.

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