Starting Chemo in March 2014

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  • Xrayalli
    Xrayalli Member Posts: 237
    edited March 2014

    I like that suggestion, Nina.

  • lgoldie
    lgoldie Member Posts: 120
    edited March 2014

    Mine got so low...below their .5      It was .47.     Hey, guess what...it went up and chemo proceeded as usual.  I had to wear a mask out and hang around house.  I get a Neulasta shot after each chemo but he Nadir )or low point is about 2 weeks out...right when I am getting ready for my next dose dense chemo.  I notice my mouth is a wreck this time, worse than last.   Been doing everything right...think its the WBC.  I don't know about everyone else, but I WANT my chemo on time to get it over with....but God's will be done.  Ps   My liver has been CRANKY from the chemo and enzymes going UP.   Perfectly fine before chemo...(little fatty liver) cause I am 55 and a little fatty.  Ha   Leah

  • maryland
    maryland Member Posts: 1,298
    edited March 2014

    Great advice Nina for medicmom... really good idea.

  • Sinsin
    Sinsin Member Posts: 358
    edited March 2014

    I'm just really nervous. I can't believe how bad my cold has become again. I sound like a barking seal! And I still have green congestion. I think tomorrow they check my levels again. I hope so. Really nervous. Don't like what it could mean if my WBC are down. 

  • jmg58
    jmg58 Member Posts: 185
    edited March 2014

    Sinsin, thank you for your encouragement re lung issue.  I appreciate the hope...!

    On another note, home healthcare nurse just left.  1.5 weeks out and one day out of hospital (where I did not have a fever yesterday), now at 99.2 again.  She was here to change the PICC line dressing.  Pointed out to her (btw, 2 doctors, 8 nurses saw PICC line during hospital stay) I think insertion point at PICC line looks a little red.  She called doc covering (mine is in Paris) and now I have to go back downtown tomorrow to office to see if PICC is infected, maybe get it pulled.  I give UP!!!  With all these weekly IV saline things I'll need plus three more chemos are they gonna put a port in just for that?  I feel like cyring... NOTHING is going right for me...NOTHING.

  • maryland
    maryland Member Posts: 1,298
    edited March 2014

    Awww, jmg, so sorry, it's just not fair....go ahead and cry, sometimes ya gotta do that, I hope things start looking up for you.

    Sinsin, hope you get feeling better too, my husband has it, coughing and hacking dowstairs, I've moved upstairs for the time being, I'm wearing a mask when I have to go near him....uggghh... I hope he keeps it to himself. Good luck tomorrow.

    Goldie, hang in there.. hope you keep getting your chemo on time, I know I've only had it once and I've already circled the day on the calender of my last one.

    Hope all the rest of you are having a good Sunday, this is the first day that I feel like my old self, got 11 days till round 2. Anybody else getting just Taxotere and Cytoxan without the adromycin?

  • Sinsin
    Sinsin Member Posts: 358
    edited March 2014

    I'm Epirubicin and Cytoxan for 2 more cycles then 12 cycles of Taxol.

  • LLK
    LLK Member Posts: 3
    edited March 2014

    I had a lumpectomy mid February.  Two nodes removed and clear of any cells. I am getting a Mediport put in this Thursday and starting chemo TCH ( Taxotere, Carboplatin, Herceptin) Friday. I am a stage 1 with no other signs of cancer. I was told to do chemo because I was positive for Her2 in 10% of the 1.2 cm tumor removed. I will take Herceptin for one year and Tamoxifen for 5 years. I feel good about moving forward, but still nervous that this is the right path. I am hoping to do 4 cycles of chemo instead of 6. Does anyone know why 6 cycles seem to be the norm suggested?

  • NisaVilla
    NisaVilla Member Posts: 574
    edited March 2014

    SinSin - my WBC has been 3.9 post-chemo and no changes in 6 months since. MO said it should cause no troubles. Do you know differently? Never thought to look into it.

    NinaW - sweet idea. Wonder if it would work with my male children who are late teens unwilling to discuss anything personal with me, let alone my cancer.  I miss the times when they talked about everything!

    Xrayalli - have you had cancer a long time? Or you work with your German MO in a professional capacity?  I hope it is the latter. I loved the story with your son, and your response was so sweet... I would have said "pass my AK-47" LOL.  

  • AKJ
    AKJ Member Posts: 190
    edited March 2014

    LLK, actually 4 cycles of TC is standard. Some people do 6. My oncologist and I have been discussing if I should do 6 instead of 4. So far there are no studies that prove that 6 is better than 4 when you consider the added toxicity. 

  • AKJ
    AKJ Member Posts: 190
    edited March 2014

    never mind my last post. I had some chemo brain confusion.

  • Sinsin
    Sinsin Member Posts: 358
    edited March 2014

    Nisa,

    I had an slightly enlarged spleen on my ultrasound and the spleen is responsible for your WBC. So my concern is that my counts are low because it may be still enlarged and therefore indicative a bigger problem.

  • Xrayalli
    Xrayalli Member Posts: 237
    edited March 2014

    Wishing you all a great Monday, not sure mine is going to be all that good, going on fourth night of insomnia.

    NisaVilla-the latter, I work in the same hospital as my MO, I'm the imaging supervisor and lead mammographer. I've seen him work real hard for his patients in the last 12 years I've been there. 

  • MedicMom2
    MedicMom2 Member Posts: 26
    edited March 2014

    Nina and Alli - Thank You. My 17-yr is such opposite of the 13-yr old that I forget at times that she will come when ready. She came in and slept w me each night of my hubby's work rotation last week but didn't want to talk. Just said she likes my mattress more. :-)  and the journal is an awesome idea. Pretty perfect. Going to go find one ... or I will when the stores are awake!!!  

  • babyduck
    babyduck Member Posts: 63
    edited March 2014

    Alli.I am doing the 12 Taxol first then AC. Then surgery. I did #4 Friday. I can tell a difference in the breast and the enlarged nod under the arm Smile. A little issue with sleep the first nights but I can sleep. Holding out to work too. I feel very fortunate right now. It's weird how it affects everyone different.

    As for the kids and hubby...mine are very involved at times a little competitive between hubs and 19yo daughter. 16yo son....he's a 16yo boy...concerned with prom...(haha)

     I think all do different. It's alot of changens in our home! They will be worried at times, quiet at times, laugh at times, cry and times and talk when they are ready and feel the need. This is a chapter in our stories and theirs that none of us were expecting. 

    I pray all of you ladies do wonderfully!!!

  • lgoldie
    lgoldie Member Posts: 120
    edited March 2014

    I live in Arizona...since 1970...the skin cancer capitol of the World..literally.  I have been having pre-cancerous lesions burned.cut.frozen off since I was 27.   I am amazed at how many have popped out since chemo started.  Asked my onc if I can go to dermatologist  before Thursday (to get some looked at/frozen off and she said Yes, as long as no cutting)  Surprised.  I hope they heal or I will look like a meth addict.  PS That is my birthday.   Sigh.

  • maryland
    maryland Member Posts: 1,298
    edited March 2014

    image

    Whoop...whoop!!! Happy Birthday lgoldie!!..  Hope next year's is way better, but enjoy as much as you can. Now blow out the candles and make a wish!

  • TxPlanner
    TxPlanner Member Posts: 29
    edited March 2014

    Hi and HUGS to everybody--

    Had an insurance snafu which, for the purpose of not wanting to get my blood pressure up, I will not detail right now. However, after some delays I'm back on track. I'm getting my "power port" tomorrow at noon, and chemo will start next Wednesday. I begged to start it this coming Thursday, but they said my port site needs to heal. But the problem is that I realized "Oh no- that's officially April, and I like the fun folks on the March Chemo discussion board!" Gosh.. can I stay here? I'm starting April 2nd, so that's still pretty close. 

    If anyone can tell me what the whole power port thing will be like, go for it. But I realize it's late, at least for east coasters, and heck- I will certainly find out soon enough.

    Hope everyone had an decent, fairly okay or even GOOD weekend. I'm teaching my daughter how to drive, so some of my weekend involved scary moments.. In fact, once or twice I found myself thinking "Chemo will not be as scary as this." Seriously. She drifted over into a right lane on the interstate, without signaling, then over-corrected back across two lanes. I wanted to kiss the ground when we got home, and after surviving that, I at least had a couple hours of not worrying about upcoming chemo- It can't possibly be as bad as teaching a teenager how to drive!  

    Take care everybody.

  • WifeWBC
    WifeWBC Member Posts: 53
    edited March 2014

    TxPlanner - my wife is a nurse and she swears by the port.  Best thing she says.  There is a risk of damaging veins with the chemo drugs.  They have to poke and prod you each time.  She says the port is just easier to access, they plug the IV directly to the port, and you are good to go.  She also says both your hands are free throughout the treatment, so you can move pretty freely for the 3 to maybe 6 hours of treatment.

    On my wife's first treatment, it seemed she was well into her meds while a lady across the way was still having her nurse fool around with an IV in her arm.

  • CaliKiwi
    CaliKiwi Member Posts: 98
    edited March 2014

    Txplanner, I have a power port. The first week after it was inserted it was pretty uncomfortable and sore. But it was very manageable. It definitely made chemo easy.  I actually had chemo the day after it was inserted. My surgeon made it accessible so that they didn't have to insert the needle, just use it and remove it. It was pretty painless all around.

    And of course you can stay here! April be damned! ;)

  • maryland
    maryland Member Posts: 1,298
    edited March 2014

    txplanner, good luck today with the power port. I hope it goes in without a hitch. Sounds like a piece of cake next to teaching your daughter to drive and dealing with your insurance company, Since it's being put in while it's still March I think it overrides the claus that says you must leave the Starting chemo in March thread. Plus I do not have a port and have had only 1 chemo and won't be getting my next 1 till April so I think we're about even.  Right? So good luck

    Hope everyone else has a good day, I get to babysit my sweetie today so I'm feeling happy. I have been getting headaches tho, thinking I need up up my h20 intake. 

    Goldie, hope your b-day was good under the circumstances.

    Nina, how's the sleeping? I take a 0.5 Xanax at 10 at night but I find myself wide awake at 3or 4 every morning, then I'm ready to sleep at 5 when it's almost time to get up. Have you started to lose your hair yet?

    Well... Have a good one everybody.. I'll ck in later

  • Lovemysons
    Lovemysons Member Posts: 31
    edited March 2014

    Today is my first day of chemo! Ready to kick cancer's butt and get to work on getting rid of this!

  • maryland
    maryland Member Posts: 1,298
    edited March 2014

    wishing u the best lovemysons we're all in your pocket!

  • Mitzro
    Mitzro Member Posts: 48
    edited March 2014

    NINA...you are AMAZING. I have a 16 year old daughter who is having a hard time talking about this whole Breast Cancer thing.  I am going to try this journal idea!  The maybe even 2-3 times a week idea is superb.  THANK YOU!  It also might be really nice to have down the road.  LOVE IT!

    I am on day #6 after second round of ACT and yesterday my mouth started feeling sore on the left side.  I was near my MO's office and she prescriped something they call the Stanford Mouthwash that you swish and spit.  Kind of numbs and heals the area.  Another friend recommended L-Glutamine that you swish and SWALLOW to coat your mouth and throat and gut before you eat.  My MO said that was all good as long as I take B6 with it.  So I am going to try both.   I am not feeling terrible just not great.  She says that is very normal considering where I am in the cycle.  Not really looking forward to round #3 of ACT one week from today.

    Hugs to all of you that are having treatment today!  Go get em!!

  • Sandydoc
    Sandydoc Member Posts: 14
    edited March 2014

    hi march chemo ladies! Started chemo march 18, dose dense AC x 4, then taxol every 2 weeks x 4.  I pretended  the power port was my way of being plugged into the Matrix.  Download Kung Fu, weapons, and chemo!  As a family doctor, I may have a different take on some of the treatment and alternatives, but I did use  glutamine for mucositis prophylaxis.  So far so good.  How have you been doing regarding side effects, fatigue, etc?

    Sandy

  • Sandydoc
    Sandydoc Member Posts: 14
    edited March 2014

    It works best taking glutamine before mucositis develops, on the day before receiving chemo, 5-10 grams, swish and swallow, three times daily for 2 weeks.  If you don't not wish to swallow the glutamine, you may try holding it in your mouth for as long as possible to allow for local absorption.  You may try following that with a table spoon of coconut oil.  Hold on mouth for 20 minutes and swish, then expectorate. 

    Hope this helps,

    Sandy 

  • maryland
    maryland Member Posts: 1,298
    edited March 2014

    Thanks Sandy, I've only had 1 round of chemo and did not get mouth sores but I will try this before my next time. Sorry you have to be here but nice to have a Dr on our chemo thread.

  • lgoldie
    lgoldie Member Posts: 120
    edited March 2014

    I am a medical assistant for a family practice/OB doc and I miss him and my job!   Tomorrow is my 56th birthday and Thursday is AC #3.  I found 2 to be much easier than 1.  Keep diarrhea under strict control, swish baking soda/salt water a million times a day and I use Nystatin, too.   I had no pain from Neulasta, but got a cranky liver from a  bit of fatty liver.  Oh, new SE rash on face and arms and hands. Been out walking around neighborhood and live in sunny Az.   Seeing derm tomorrow.  Never got constipated   Leah

  • maryland
    maryland Member Posts: 1,298
    edited March 2014

    I am getting acne, fought with it my whole life until well into my 40's, now I'm 56 and thought I was finally done with the Clearasil. And I have little zit like things on my scalp and in my ears. Other than that I feel pretty normal 11 days post chemo. lgoldie, I'm jealous, wish I could go out and walk, it snowed here again in Ohio today, I am babysitting my new grandbaby and I was hoping to take her out for a walk, not gonna happen, it's only in the 20's here. Maybe next week, could be 20, could be 60....

  • Summerwheat
    Summerwheat Member Posts: 86
    edited March 2014

    Day 5 post 2nd TCH: I am glad to report that Tylenol in combination with the Claritin really helped against the Neulasta bone pain. My crash was not as deep as the first time, but seems to linger longer. Today, I have a hard time just getting up, and I had a 2 hour nap after a 10 hour night, perhaps it's the RBC that was already low prior to the chemo? Not sure, but this does not feel good. Having nose bleeds, too (yuck). My MO gave me Iron to take once per day, starting tomorrow, to increase the RBC. Does anyone have any experience if that helps with the fatigue? Thank you.

    Alexandra

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