Grieving!

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Shepherdgirl
Shepherdgirl Member Posts: 3
edited June 2014 in Just Diagnosed

Recently diagnosed in October of last year. I found a lump in the left breast. After a mammogram it was determined that I had a lump in each breast. Following biopsies, both were cancer but found early so I opted for a lumpectomy both sides. During surgery, the lymph nodes looked clear on initial pathology....no radical node removal, only sentinel nodes. Seemed like I could be really optimistic until...the nuclear bone scenography results. The cancer spread to my sternum and spine. On my initial CAT scan, the organs look clear. 

The tumor in the T-6 fractured the vertebrae. Because of the pain, I went forward with a stereotactic radiation procedure. In the meantime, I have left my job as a hospital chaplain and now seem to just wait. Wait for the next test, an MRI on Monday to determine if cancer destroyed by radiation. Wait for healing. Wait for the next bad news or good news, my luck has run the bad course though. Waiting to get "strong" enough to resume physical activity. Wondering about the next pain...waiting. Waiting...for death? Waiting...and grief has crept in.

From someone who has always been so active...and tried to help others...I don't seem able to help myself right now.

Seeking advice from those who know...been there!

Thank you,

Shepherd Girl

Comments

  • Moiralf
    Moiralf Member Posts: 1,056
    edited March 2014

    Hi Sherpard girl,

    Yes, most definitely you are grieving. It is a sad and difficult time. The sudden and unexpected drastic turn our lives take is one kind of death and we must find the way forward. That takes time and often outside help. Getting counselling saved my sanity when I was first dx.

    I had one lump and chose a mastectomy due to size of lump and my breast size. My lymph nodes did show cancer but there was no indication that I had mets in my spine. It caused me no pain but I did do radiation on it. Like you that put me stage 4 from dx. that is a huge dx. Most women at least have the early stage level to go through before ever finding themselves stage 4. The small percentage that go straight to stage 4 from dx is about 6%. Lucky us, But we have to go straight to shock and awe with no warning.

    You will find a way to get past this stage and move onto the more positive parts of life again. Playing the waiting game is part of what we all do now. Sorry to say that but it is true but we get busy with living too. It takes time to deal with and that is where you are right now but once you get over the shock and stop reeling from one docs appt to the next you can find your feet again and get some balance back. Get that help that you would be offering to others. Use it, fight back and get some life back. But be kind to yourself as well. It wouldn't be achieved all at once but one day at a time you can take back some degree of control. Remember that you are right at the beginning and with all the drugs and treatments we have there can be lots of very good life ahead. I'm over 6 years out now and in many ways my life is "normal", I've done heaps of things that have made me very happy.  I've had a chance to reevaluate my life and make some damn good choices to enjoy my life and the people around me. BUT it took quite some time, a really good counsellor that I  saw for about 6 months in the beginning and again whenever I needed to, and the knowledge that I was getting treatment and it was working. I've had progression but I still working  and mostly I'm the same as I was before, physically at least. There are bumps in the road but there are in any life so these are just mine to deal with. But it can be done, life does go on and it can be very good if you are determined enough to fight for it. That is the only fight I ever see with cancer, the fight to live in the moment and not let cancer take away my life through fear and worry.

    IT TAKES TIME so give yourself time, and be kind to yourself and get help. You say you have been there to give help well now be strong and reach out and get that help for yourself. That will be your first step in not waiting but taking control and stepping forward.

    Come here when you need to and I hope you know that on the stage 4 forum there is a lot of very positive and strong women who can help, just by being there to listen. But they have lots of very good knowledge and advice too.

    Stay strong.

    Moira

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited March 2014

    Shepherd Girl - I am so sorry about the devastating news. I wish I could tell you how to feel better. My diagnosis was too much for me and I fell off the emotional cliff. (Until then I was always the strong one, the one others leaned on) My brother is a gynonc and recognize my symptoms of acute anxiety and depression - it took meds, counseling and time to pull me out. Have you heard of Stephen Ministers? I was assigned a SM through my church (United Methodist). She just so happened to be a cancer social worker in her real job. You might consider something like this. Even those who help others sometimes need the help. Moira is right - The stage 4 ladies are amazing, supportive, and uplifting. I hope you will check that out.  Gentle hug.

  • Jaxzgirl
    Jaxzgirl Member Posts: 14
    edited March 2014

    I haven't been in this battle long... just about 34 hours to be exact. 

    I just want to say that it's OK to grieve.... it's OK to cry. It's OK to even be ticked off at God. He has big shoulders. He can take it.

    You're not alone in your battle. Accept the support and comfort of those on here that are waging the same war.

    You can still be a blessing to others as you fight your fight.

    I'm also going bright and early Monday morning for a MRI to see if the cancer is localized to my left breast or not. I imagine that I will have a bone scan done soon.

    It's scary.... but I am also living with HIV. I got it from my 1st (now deceased) husband. He got it from his IV clotting factor.

    If I have learned anything over the past 20+years is that God is in control. He can see the big picture that I can't. 

    (((HUGS))) and prayers. Hang in there. 

  • car2tenn
    car2tenn Member Posts: 515
    edited April 2014

    Dear Shepherd girl,

         I send you greetings and strength.  You are joining a group of strong gals although it is not a group any of us wish to be in.  I got here more directly than you did.  In Dec. 2013, it went from initial dx breast ca to stage 4 in 3 short weeks.  Does not make for a joyful Christmas to be in shock from the total diagnosis.  What I would like to tell you is that in the ensuing 3.5 months,  I have been blessed by prayers, friends, on line contacts  and inner strength that I did not know that I had...Being a chaplain, you have inner training that will stand you in good stead.  Be strong and be your own advocate....I cannot say that enough...You have to be the one to take notes of what the various doctors say and pursue it until you understand it.  Come to this website any and every time...You will find your way as hard as it seems now, you will find your sense of equilibrium.  Carolyn from Tn/Fl

  • car2tenn
    car2tenn Member Posts: 515
    edited April 2014

    Dear Moira,

         You have articulated the challenges better than I but I too am part of the 6% that went straight to stage 4.  It seemed so cruel since I am in the medical profession and had had a clear mammogram 8 weeks before I felt a lump.  Yep, it was a huge shock at Christmas.  It seems as if this web site is one of the few place where one of us can hear feedback that reflects the reality of  the live we lead.   And yet there is joy and there is strength and a little angst that we have no choice but to be brave.  Stay strong and keep up the good reports to those of us who need to hear your advice.  thanks Carolyn from Tn/Fl

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