DIEP 2014

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  • J1971
    J1971 Member Posts: 18
    edited March 2014

    Hello ladies!

    I am just three weeks out from my double DIEP- reconstructed my left side (UMX and radiation) and elective mx (this surgery). It was 14.5 hours--- small vessels! So glad that all major surgeries are done! No more tamoxifen, no more MGM/MRI.....no more worry!

  • melissa2013
    melissa2013 Member Posts: 24
    edited March 2014

    I got my last drain out today!  Amazing what a difference it makes to be drain free.  

    Teacher , glad you r on the other side. Rest and recover.

    Auburn girl - Only you can decide what is right for you, and it is not an easy choice.  I did a ton of research and agonized over the decision as I am sure we all have done.  In the end, you have to pick the option that is best for you.  For me, that choice was DIEP.  If you choose DIEP, I think the key is finding a very experienced PS that you r comfortable with.  I am l less than two weeks post- op, but so far the recovery has been ok for me.   I spent 3.5 days in the hospital after surgery.   The pain was very manageable but there is not a lot of rest the first few days because they checked me every 1-2 hours.   Since I have been home, I have been sleeping well propped up on the couch or in a recliner.  There are major restrictions and I am not really allowed to do anything yet, but my husband has been a trooper and taken great care of me and our boys.   We are also lucky to have a great network of friends and family who have helped with meals and child care through all of this.  If you decide to go DIEP, just remember what the smart women on here say, it is a marathon, not a sprint. But I think it will be worth it in the long run. 

  • lahela
    lahela Member Posts: 515
    edited March 2014

    Teacher, so good to hear from you! Rest and heal {{{hugs}}}

    JB, you are absolutely not being illogical. You have made a decision and that is one that only you can make. Time to research your options so at least your PS might be able to point you to someone else with experience in other flaps if he doesn't do them.

    k79 and nnrbf - all the best for tomorrow! We'll be in your pockets {{{hugs}}}

    auburngirl, one of the ladies on these forums recommends a certain book about breast reconstruction to help you make choices, but I can't recall the name! Anyone else know it? I think it was Christina who recommended it?

    I'm excited - after getting a second opinion from DH (who is away on business so I had to wait until our skype chat) and my best friend, I'm going to cancel those appointments today and make one with another ONC. I never thought breaking up with a doctor would be so daunting! LOL!

  • Teacher64
    Teacher64 Member Posts: 840
    edited March 2014

    bp bottomed out. Dehydrated til got to drink water. Only patient in ICU great care. Best decision. Looks good, swollen but I'm no grim looking.  

  • jbdayton
    jbdayton Member Posts: 700
    edited March 2014

    So sorry to hear about the BP problem but glad it was fixed fast.

    Continue to rest and heal.  We are still in your pockets. 

    Many HUGS

  • Janet_M
    Janet_M Member Posts: 1,068
    edited March 2014

    Teacher - You did it!  Congratulations. Rest well and Happy Healing.

    jbdayton -Oh, you're last post made my blood boil. Why would your PS defer to you husband on the way out the door? This isn't a friggin' parent/teacher meeting!  I'm so glad you're healing, and your husband sounds lovely, but you are driving this bus and unless you're unconscious - all ideas and potential treatments should be presented to you. Grrrr.

  • J1971
    J1971 Member Posts: 18
    edited March 2014

    Melissa2013- I am about a week ahead of you with healing. Drains out and so wonderful! I am totally off all pain meds for several days. I am walking daily- up to 30 min. Still hurts to sneeze though! Able to sleep in my bed without a dozen pillows. Loads of restrictions but much further along than those ICU days!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    good job and continued healing to those just on this side.....hopefully the sun is shining where you are, makes every day a bit better !

  • Zenful
    Zenful Member Posts: 599
    edited March 2014

    Melissa, yay on getting the drains removed!!! What a great day!

  • lemon68
    lemon68 Member Posts: 684
    edited March 2014

    Hello

    Teacher congrats hope you are getting some rest and feeling better today.

    Melissa congrats on getting rid of your drain!

    I realized today I don't own a button down shirt, not even one. Any advice on the best type of top to wear upon coming home?

    Thanks so much

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2014

    lemon....do you have a lightweight top that has a full length zipper??? That's what I wore. Failing that, a really loose fitting top might work too. Last choice..go to somewhere like Walmart or Target and pick up a couple cheap tops. Get stuff in colours you really like, but don't worry too much about style or fit....likely you won't need them long. But...if you HATE brown, for example, wearing a brown top isn't going to help you feel perky, imo.

  • Wynne50
    Wynne50 Member Posts: 67
    edited March 2014

    lemon... I am in the same boat.  I went to Target yesterday and found a couple of Mossimo button down shirts fairly cheap.  They are 100% cotton but feel very soft not like the ones that feel starchy or stiff.  Good luck to you.

  • lemon68
    lemon68 Member Posts: 684
    edited March 2014

    nihahi- zippers, geez I am not sure why I didn't think of that, I still have way to much time to be so scattered. Thank you, I can make that work. I will go and get some cheap tops. I am really hoping for some 'warm' weather when its my time.  Thank you

    Wynne-  I see you only have 1 week to wait. How are you feeling, anxious? I don't know what I will be like with only a week left, a bit crazy I think!

  • bdavis
    bdavis Member Posts: 6,201
    edited March 2014

    Jeannine... I am sorry you are having to worry about the "what next" conversation... just concentrate on healing for now. And have faith that there are indeed other flaps out there that you can do for the other side. It may not be with your current surgeon though. Very few surgeons have adequate experience in a variety of flaps, but you do have a few to choose from: GAP, PAP, TUG...  its also true that a lat flap (which takes muscle) is not a stand alone flap. But is supplemented with an implant. I had a tdap flap (which is no muscle), but is similar to the lat flap. My tdap was used to supplement my left breast where I had some necrotic tissue removed. So I am a walking example of someone with many flaps. My left breast is GAP (buttock) and then later supplemented with the Tdap. And my right breast is a stacked DIEP.  All of my scars are under a bikini, and not very obvious when naked as well.

    I think its fabulous your husband is so supportive and is glad to just have YOU... but do try to think how you'll feel down the road, after the feeling of gratitude wears off. Don't rush any decisions, and try to think outside the box - and realize you may need to travel to a bigger known surgeon to get a lesser used flap.

  • Wynne50
    Wynne50 Member Posts: 67
    edited March 2014

    lemon... It's hard to explain how I'm feeling.  Mostly ok with spurts of fear.  I'll be fine and then out if the blue just tear up for a minute.  I've done all the pre-op stuff which scared me to no end and I don't even know why.  Guess just Keep thinking what other bad news is out there.  I am starting to have a harder time sleeping even with meds to help.  And I'm obsessing over stupid stuff like my hair (which doesn't do well without a blow dryer and flat iron) and if I have enough of the right kind of comfortable cloths to wear when I can get out, should I take makeup to the hospital.  Crazy stuff like that.  Weird because I'm really not vain at all about my appearance.  

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2014

    Wynne...I don't think any of your "thoughts" are about vanity, I think it's trying to hold on to or figure out how to maintain "normal", in the face of something that feels so HUGE and ABNORMAL and UNKNOWN. Try to remember that the "issues" of things like dealing with your hair are truly pretty short-lived, and if you are like me....became a non-issue for the first week or so anyway. If makeup helps you feel better...take it with you...you can choose to use it (or not), later...you don't have to make that decision now.  Do you have some anti-anxiety med like Ativan?? If so....take it....if not.....try to get some. It helps those final days of fears and tears....ALOT. You're going to be ok, and we all "get" those feelings you're dealing with. XXOO

  • tlbradyful
    tlbradyful Member Posts: 134
    edited March 2014

    Stay strong Wynne50. Your mind is just filling itself with details it can deal with. Makeup, I didn't feel up to it or care about it. I cycled through several favorite outfits even though I had plenty of clothes so whatever you have is going to be fine. My hair bothered me and I didn't sleep well even with help so I have no advice there.

    If you need something to dwell on. . . one of the worst problems I had post mastectomy was reaching the toilet paper. No matter where yours is located, you probably won't be able to reach it. :)

  • annajo
    annajo Member Posts: 84
    edited March 2014

    want to mention something to those about to have surgery or have just done...  I didn't realize the full effect of the steri strips on the appearance of the incisions.  Earlier this week I saw my PS and she took the steri strips off and cleaned off a bunch of glue and it looks soooo much better!  I feel kinda dumb that I didn't know about this and thought my incisions were much wider and darker than they actually were.  So don't believe everything you see. :)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    Tbrady .....yup yup.....move the TP, ladies.....don't worry about it being off the roll....it's not for forever!

    A nice, wide headband did the hair trick for me! Some people use dry shampoo, too. 

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited March 2014

    Wow, I stay away a day and I miss a lot. 

    Teacher, you sound good.  Glad to hear that.  Keep up the good work.  Glad they got that BP under control.

    Lemon, after my BMX which was in the Spring, and it's warm in Texas, I bought some button up soft cotton nightgowns from Kohls.  I will use them again for my diep since they will not hurt my tummy.  Also, I think pulling up a light nightie to go potty, instead of pulling down a pair of pants might be easier in the beginning.  If you have your mx with your diep it makes it hard to raise your arms.  I am not anticipating an a big issue with that this time around, or so I have been told.

    Lahela, glad you are changing docs.  Winking

    Hair is an issue if are use to blow drying and styling.  But, guess what?  You won't care the first couple of weeks, and when you do, you will be able to do it again.  As a matter of fact, I contribute my ROM coming back fairly quickly to blowing out my layered bob. That's a good 10 minute routine!!! 

    Toilet paper issue.  I started using the personal wipes you can buy by the gross at Costco.  They keep you cleaner, since who wants to shower everyday when you aren't up to it, and you can keep them right where you want them.  They are so nice and gentle I used them for quick fresh me ups on all areas of my body, except face and neck. This way, you can keep your shower's down to every other day, or so until you feel up to taking them more often. I can't live without those wipes now.  Toilet paper just isn't enough anymore...lol.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014
    all the potty talk....I second the wipes, Goldie....they were my real best friend during the big D from chemo!
  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited March 2014

    finally got to look at the photos on the forum. Oy! Not sure I'm up for this now. Just looks downright painful and has me questioning maybe just getting implants. The fear of necrosis and scarring (I don't heal real well) has me freaked out.... Anyone else have 2nd thoughts??

  • annajo
    annajo Member Posts: 84
    edited March 2014

    Dvygirl,  no advice other than there is no "just getting implants."  Either method is a process fraught with potential issues.  Look at some images of capsular contracture as well.  Yikes!  

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited March 2014

    Dyvgrl, I, for one, and there are plenty of others, had no necrosis issues and my scars are healing. Like Annajo said, plenty of people have had issues with implants, too. You have to find an experienced doctor you trust and jump, whichever way you decide. I am still happy with my decision. 

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited March 2014

    I know that in the long run it will be the right choice for me. I just want my own soft tissue, scarred or not. Just really freaked out about how invasive it is in the beginning and am probably more scared of losing my one "good" boob. Logically it's the right choice to remove it before it tries to kill me but I'm sad just the same. I like having sensation there and worry how it will affect my sex life by losing that too. I've donated enough body parts already!!!

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited March 2014

    I get it. I miss the sensation. (Don't miss fbc, though!)

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2014

    Yeah, I miss the sensation too, although I can tell that a little bit is gradually coming back.

    I thought what an interesting project it would be to get a Sharpie marker, and stand in front of the mirror to outline the borders of where I have sensation on my chest and abdomen.  Then take a photo (DON'T post it on FB!!!  LOL!!!) and do it again in another year.  

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited March 2014

    image

    Here is the Beltaway!!!! It is so comfortable and doesn't show under clothes.  And, my pants haven't moved.
  • nihahi
    nihahi Member Posts: 3,841
    edited March 2014

    Goldie.....EXACTLY WHAT IS WRONG WITH YOUR HIP TO WAIST RATIO????? You look awesome!  oh yeah, the belt is good too!

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited March 2014

    Goldie, you're adorable.

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