Spring 2014 Rads

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  • Mirka
    Mirka Member Posts: 9
    edited March 2014

    thanks for responding Girlstrong,  my Mom had a partial mastectomy in November and then another surgery to remove another 5cm tumor under the arm ...lymph nodes were clear.  Due to her age the MO did not feel she'd fare well with chemo so her team has decided that the 30 shots of rads would be proactive...I'm very worried about her though - she's a pretty tough cookie but I don't know how she'll deal with the fatigue...I mean she's 87 after all.  

    How's everything going with you? 

  • Mirka
    Mirka Member Posts: 9
    edited March 2014

    Girlstrong how's everything going with youb

  • TB90
    TB90 Member Posts: 992
    edited March 2014

    Mirka:  I do not know what to say as your mom is much older than me and I cannot imagine what it may be like for her.  She might just breeze through it, who knows.  Having your support, both emotionally and physically should help.  I see some very elderly women and men receiving radiation and they have their family there to help.  They often appear to be in better spirits than all the others.  I am sure your mom will just be so grateful to have you by her side.

    For me, I have not experienced any fatigue so far and I have finished 16/25.

  • Mirka
    Mirka Member Posts: 9
    edited March 2014

    Thanks for the comments TB I'm grateful for all the good wishes coming her way.  How are you? 

  • flagirl
    flagirl Member Posts: 144
    edited March 2014

    Anyone continuing to take hormone therapy while having RADs? Just wondered, I never see it mentioned. I am taking Anastrozole and my ONC said to continue with rads, take a multi vitamin and 300 UI D3.

  • Pam358
    Pam358 Member Posts: 294
    edited March 2014

    My MO said he will start me on my hormone therapy once I am done with radiation.

  • Phebe38
    Phebe38 Member Posts: 197
    edited March 2014

    what do you do on Hormone therapy?

  • LDN48
    LDN48 Member Posts: 4
    edited March 2014

    Hi, Mirka,

    Your Mom's situation sounds about like my Mom's.  Mine is 86, had her markings/CT on Friday, now the wait until they call to schedule the rads.  She will have 16 treatments plus the one the day before where it will just be films.  I, too, worry seriously about her fatigue - she already has little energy due to her age and her (mild) multiple sclerosis.  This has been a tough go - three surgeries:  a lumpectomy, a reexcision for margins, and then an evacuation of a hematoma the size of a mandarin orange.  No one told her not to sweep the porch or take her aspirin.....  She's using the exercise bike, using aloe (from the plant out front) on her breast, and eating healthy.  She declined chemo (2 cm IDC, DCIS, grade 3, stage 1a, hormone receptors negative).

    Stay in touch!  Laura

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited March 2014

    My MO said HT after rads also...she said I could start now if I was in a hurry, but she prefers after, so it is easier to decipher the cause of  any SE's that may come up.

    Mirka, I hope your Mom does okay with rads. If it's any help, my 83 yr old aunt was Dx'd with lymphoma about the same time I was, with BC. She did chemo and rads and is now recovering. She had a rough time with chemo, but not so much with rads. I know everyone is different, but I hope she recovers okay.

    Have a great week, ladies!

    I'm still on the look out for my new hair....please hurry!:)

     


     

  • AndreaJ50
    AndreaJ50 Member Posts: 889
    edited March 2014

    sitting in the waiting room now waiting for Rads. 

    This will be number 6 out of 28 (plus five boosts).

    I am very lucky that my drive is only ten minutes!!  I wish everyone's drive could be so short!!!

  • muska
    muska Member Posts: 1,195
    edited March 2014

    To flagirl: I just started Anastrozole a week ago. Will begin radiation treatment - 30 sessions - in a week. My MO recommended I start HT now and continue through radiation.

  • BigDBeatingBigC
    BigDBeatingBigC Member Posts: 292
    edited March 2014

    Yes, same for me.  I actually started my HT a month ago, had my first zap today, No. 1 of 16 whole, with 5 boosts at the end for a total of 21.  I am lucky with the commute as well, only 10 mins. away, just like you Andrea.  I go to work from the hospital, that takes only about 30 mins.  Wishing you all lots of good luck -- it's St. Patrick's Day, after all.  I had the rad tech draw a green shamrock on me today.  At least I got him to laugh!

  • TB90
    TB90 Member Posts: 992
    edited March 2014

    I just finished #17/25 and am starting to get seriously red with a lot of very tiny red spots.  A bit itchy, otherwise, looks worse than it feels at this point.  No fatigue and I hope to start work at the end of next week when I finish rads.  Sometimes I feel a bit run down . . .hard to describe.  Like I am about to come down with something, but never do. Wonder if this is from the treatment.  

  • Mirka
    Mirka Member Posts: 9
    edited March 2014

    Hi Laura, sounds like your Mom is quite the fighter - my mom is not that energetic it's a chore to get her out of the house I could never see her on a bike...lol - good for your Mom.  Well she made it through the first treatment with just shy of - flying colours - it took quite a while to set her up properly - not to mention they decide to use my mother to train a newbie technician they started the rads and then had to stop because my mother was in pain she told them she wanted to go home - they ended up having to reset her up again. All in all she did much better then I had expected - bless her. Going to slather her up with some Glaxo right now...keep in touch

  • queerbychoice
    queerbychoice Member Posts: 5
    edited March 2014

    I just had my fourth of 33 radiation treatments. My breast has been very inflamed and painful over the past weekend - not the skin but all the internal tissues. My radiation oncologist says this will probably clear up in about a week though.

    My drive for radiation treatment is an hour each way, so for that reason alone, I'll be extremely relieved when this is all over with.

  • BigDBeatingBigC
    BigDBeatingBigC Member Posts: 292
    edited March 2014

    Queerbychoice:  Welcome to this thread!  Sorry you have to travel 2 hours each day, but it is for a good reason.  I am happy to have all you ladies here with me as we go through the process together.

    Mirka, sounds like you have quite an amazing mother.  I know she appreciates having you around to help her through this and I am praying she tolerates the procedures well with minimal or better yet NO SE's!

  • Dogsneverlie
    Dogsneverlie Member Posts: 278
    edited March 2014

    Hi all - well, tomorrow is my "fitting and tattoo" day - not entirely sure what to expect with the "fitting" part.....I'm sure this is quite normal but I am scheduled for a CT scan - they want to see how close my heart is to my chest wall since this is on my left breast so they don't radiate my heart - I agreed, thought that was a good idea!!!!!  Really like my rads oncologist - he treated my dad when he had lung cancer (very sadly, dad did not make it) so I feel like dad is around!

     Happy

    I feel lucky - recovery from my second lumpectomy was a little easier this time than the first and I think that's because I did not have to do the needle placement before surgery - what a "mother load" of pain that was!  I did notice though that the skin around the incision area and nipple are really dry so using bath oil - that did not happen last time.

    Hugs,

    Donna

  • BigDBeatingBigC
    BigDBeatingBigC Member Posts: 292
    edited March 2014

    Donna, I had a CT scan two days before I started.  It was last Friday.  Before the CT scan I went into the room where the CT machine was and two techs had me lie on some blue material, not sure what it was made of.  And once they had me positioned right, they got on either side of me and squeezed the air out of the material and made a mold of my upper back, shoulders, and neck.  They made some marks on me with a marker that is not permanent, and then placed pieces of water-proof tape on top of the marks, then I had the scan.

    When I came back for my first zap yesterday, two rad techs took me into the room where the rad machine is, and put a white sheet on the bed of the table, and they had the mold that was created on Friday for me, and you lie in that mold and it positions you.  Then I was asked to grab the bar in back of my head (I did that for the CT scan, too) and the techs did not want me to move.  They tugged the sheet this way and that, and one of the techs started making final marks on me.  Then they took a chest x-ray, which they said they will do once per week.  After that I had the first treatment.  The machine went from one side to the other, zapping me on both sides of the area that is marked out.  They explained that in the old days, they just zapped the whole breast from one angle, the top, and that is why people had issues with lung damage and heart damage.  That no longer happens.  You actually get less radiation than you used to and they zap you from each side.  That way, the heart is not involved but there is one small piece of lung that they cannot get around hitting.  My RO's nurse told me that unless you start to have a serious cough or some pain, it should be just fine.  She said it has been several years since anyone in their care had any issue with the small area of lung that is zapped, but just be aware of that.

    When I was done with the first session, one tech came back in and put tape on the other marks he had made and I was done.  It takes a little longer that first time, but today for my second treatment, I was in and out so fast.  10 minutes from getting there and changing to getting out.  Nurse gave me a prescription creme that the RO likes called Radiagel.  I was told to put it on twice per day and she showed me exactly how far out to use it.  She said skin changes will probably start to hit me after 10 days, fatigue closer to the end of my treatment, if it happens at all, but they expect it to be quite tolerable.  She told me to eat a high protein diet and get some walking in.  Oh, and to avoid the pieces of tape with washing and with applying the creme, and to use cornstarch for deodorant if I want to.  And to keep the shower to 5 minutes to help protect the marker as long as possible.  Everyone is different as we all know, but that is what was told to me

    I wish you much good luck during your treatments!

  • Anneb1149
    Anneb1149 Member Posts: 960
    edited March 2014

    Hi Donna

    I just had my fitting and markings a few weeks ago. "Fitting" for me was when they laid me on the ct table, I was laying on a bag filled with small beads or something. When they had me positioned exactly how they wanted, they vacuumed the air out of that bag and then had a perfect mold for me to use to insure that each time I was in the exact same position. I was slightly uncomfortable with the position ( having both hands above my head because I had a dbl mastectomy about 4 weeks earlier), but the bag was not uncomfortable at all.  Hope this helps

  • MaryFox
    MaryFox Member Posts: 121
    edited March 2014

    Had my fitting/marking CT this morning. Was scheduled to start rads next week, but there's a small snag:  I've been running a slight fever for a few days and feeling generally crappy.  Hope to get that resolved in a few days and then get started.

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited March 2014

    It looks like a lot of us will be starting close to the same time! I should be hearing from my RO to schedule my first TX...hopefully next week. I am anxious to get this started and over with, as I am sure you all are, too. 

    BigD, thanks for the details on what we might expect.

    Maryfox, I hope your fever subsides and you can start soon.

    Have a great week, ladies~

     

  • lonnie713
    lonnie713 Member Posts: 236
    edited March 2014

    I had my simulation today.  I must say that you ladies are on point, it went exactly like most of you described. It wasn't too bad.  My RO only wants me to use aquaphor or miaderm for the SE's from the radiation.   I will get samples of the miaderm when I go back on 4/15 for a trial run and start on the 16th.  I get 28 total.  

    My last taxol is Friday.  I can't wait for the three week break in between treatments. I'm seeing a light at the end if the tunnel.  

    Hugs to you all.

  • BigDBeatingBigC
    BigDBeatingBigC Member Posts: 292
    edited March 2014

    Yep, we will all get through this and it will be fine.  I look forward to hearing about all of your experiences during our Txs and will share mine as well.  Got you all in my pockets!

  • Pam358
    Pam358 Member Posts: 294
    edited March 2014

    Welcome Mirka, Pegg, LDN, Muska and QuueerbyChoice!!

    I have 6/33 completed, no SE's yet. I actually stayed in a hotel last night and staying again tonight in the city where I have my treatment because of a snow storm. Darn Winter - I'm really kind of tired of it!  I've started to wear my own robe instead of the hospital gown.  It's a short one and wrap around so it's similar to their hospital gowns but much more comfortable.  I'm tall and that gown just didn't fit right so it was uncomfortable every day....decided to take ownership and I feel much better.  One of the technicians said she wished everyone could have a VIP robe!

  • flagirl
    flagirl Member Posts: 144
    edited March 2014

    Just got the phone call starting RADs Monday, dry run Friday afternoon.  Total 33 treatments.  Nervous, ready to get this over with.   Friday should only take 15-20 minutes for marking and simulation.  Ready to kick BC's butt! Gonna start moisturizing that left breast now...



  • Pam358
    Pam358 Member Posts: 294
    edited March 2014

    Flagirl - good luck on Friday!  Glad you got the call and can start and get done!!

  • tonilee2
    tonilee2 Member Posts: 91
    edited March 2014

    Hi again everyone...I just posted in another thread.  I am tired & worn out, ladies...I really really am.  Had my last T&C last Tuesday and I saw my Radiation Oncologist on Monday, the 17th of March.

    Still feeling the effects of Taxotere and Cytoxan and Neulasta. I look and feel like a freak, I really do.  No hair, no eyebrows, most of eyelashes gone, skin looks gray, a few nails are gone, others are discolored, etc. 

    So...there will be no SAVI, no hypo-fractionated anything...no reduced this or that...full speed ahead with whole breast, supra-clavicle, sub-clavicle, axilla, etc, etc. external beam radiation.  RO frightened me 'cause she said "she has placed me in the 'under-treated' category because my positive sentinel node and one additional negative node put me at 50% positive nodes...she would have done an Axillary Node Dissection, etc."  Under-treated?  Really?

    I am so frightened and tired of everything.  I look & feel awful.  Do NOT want this sorry beast called breast-cancer to return but what can we do if it does?  This is just part of life for me moving forward.  Trying not to get crazy (again) about recurrence because the only thing I can do is seek appropriate treatment now. 

    Thank you for being here everyone.  I have my Simulation Session on April 10th, 2014.  Seeing my Medical Oncologist on March 31, 2014 and will likely start on Femara or Arimidex.  Also have my first post-breast cancer mammogram on April 10th, 2014, which I'm not concerned about.  Nothing will shock me.  I feel I have no emotions left.

    Looking forward to meeting others out here!  Hang in there everyone!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    tonilee, hang in there - it does get better! I was so overwhelmed before starting radiation. You'll start to feel better soon from your chemo. You can do this!! :)

  • tonilee2
    tonilee2 Member Posts: 91
    edited March 2014

    Thank you for taking the time to reply, SlowDeepBreaths.  I probably sound like a real whiner, I really do!   Thank you!

  • Pam358
    Pam358 Member Posts: 294
    edited March 2014

    Tonilee - you are entitled to whine, rant, rave, complain, etc. here - we get it !

    Hang in there!

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