Implants removal with no Reconstructions- Scared

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  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited August 2013
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013

    I think you're referring to "gummy bears" which supposedly adhere to implant when ruptured.  Still, it's a rupture of a forgeign substance in the body.  I wanted the FREEDOM of movement, vs any cosmetic "enhancement" - nothing cosmetic for me, is as important as HOW GOOD I feel without the implants.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2013

    Even the current non-gummy bear silicone implants are cohesive gels. If they rupture, the silicone doesn't run like silicone of old. My ps had one that was cut in half and it was a very solid gel. If you squeezed the "ruptured" end, it just bulged out and then retracted in to the shell when you released it.

    Caryn

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013

    Well, that's not how my Mentor 6 year old silicone cohesive gel implants were when it ruptured, stuff went all over inside the "breast pocket" and has to be washed out EXTENSIVELY with sterile saline syringes - yucky, yucky, yucky!

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2013

    Well, to be honest, I only squeezed an Allergan cohesive gel, two years ago. Don't know if there is a difference between manufacturers, but it did provide dd an I with several minutes of giggles. Sorry that you had a bad time of it.

    Caryn

  • Lezza13
    Lezza13 Member Posts: 957
    edited August 2013

    katlebbie  Thanks for the nice wishes. One more revision surgery out to do it.  I would think insurance would cover what you are going through the contracture regardless of how long its been and its up to you if you want to replace it or not. Hope you make a decision that is best for you.

    SunflowerMa.  Thanks.  Mine is "settling" too. I hope yours settles sooner than later Yes I agree! IT FEELS GREAT TO BE FLAT LIKE A GIRL BEFORE BOOBS!   I just need my PS and I to agree on the amount of tissue to be removed during the revision just for the symmetry.

    dogsandjogs: best of luck with you and do keep us updated on your decision.  Sending a cyberhug!

    Sending cyber hugs to all

  • flat13good
    flat13good Member Posts: 93
    edited November 2013


    I went with reconstruction and now I regret it so this Tuesday I'm having it removed. They feel awful and I would rather be flat or concave at this point. The PS says they will not take skin at this time because they want the body to absorb what it will and then they can clean up if needed, they don't want me to be to tight after this. I need to be comfortable in my skin and not worry about the rest of the world. Maybe I can move forward with my life after cancer.

  • Katlebbie
    Katlebbie Member Posts: 912
    edited November 2013


    I can't believe it's been so long since I posted here. I decided to go with revision reconstruction and the surgery went fine, I'm loving the new "girls" even though one is squishy and one a little more firm and not so squishy. Lezza insurance did pay for the revision surgery. Smile


    Flat13 I hope all goes well with you and you are happy with your choice. Everyone is different and reconstruction is a personal choice.


    (((HUGS))) and good wishes to all

  • jizogarden
    jizogarden Member Posts: 375
    edited January 2014

    I am going in to see my ps this morning.  I am thinking about having my implants removed and leaving them out all together.  I had a double MX 4 years ago with reconstruction.  Over the last 4 years I have had my left implant removed and replaced twice because of infections.  My right implant removed because of contracture.  The last removal on each size also reduced the size of the implant from 600cc!!! to 500cc!!!! I have a very wide chest wall and  I look like a B cup…and wear B cup bras even with these gigantic implants.  I was always small breasted and never minded it.  I have never cared to have large breasts…..my ps promised they wouldn't look large and he was right (surprisingly) but geeez they are feakin' heavy!!!!!!  I now have implants but the last one place 2 months ago is riding very high and very tight…does not budge :0(  My range of motion is not good….I know the pocket needs to be worked on to make this implant settle properly and I just can't face another surgery….sigh…..

    So I'm really over all of this and just want my body back.  I'm tired of working around my implants….I want to do yoga again with full range of motion…I want to be comfortable……..ughhhhhh……..I'm so full of mixed feelings.

    When I had my MX I had very wide clear margins (lucky to be diagnosed very early) so I'm hoping that my chest wall was left in tact.  I need to talk to my surgeon and ps about this.  I am hoping that if my chest wall was not disturbed my chest without reconstruction will eventually look like it did before I had any boobs at all…..is this possible?

    We had been talking about doing fat transfer if these implants gave me any more trouble…but I don't know if I even have the energy to deal with another procedure.  Cancer is still taking up my life with these constant infections and re-surgeries….I think I just want to put it all behind me.  

    Am I being unrealistic….

    Looking forward to hearing your thoughts…..all the best…Laura

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited January 2014

    Hi Laura,

    One thing you can certainly do is have your implants removed (and ask your plastic surgeon to make your chest as smooth and flat as possible), and then live breast-free for a while. Some women who do this find they're just fine and either go flat or wear breast forms or a combination of the two. Other women decide that they want to try another reconstruction option. But you don't have to figure all that out right now. You've been through a lot with all the reconstruction surgeries and you sound as if you really want a break. 

    As for how your chest will look, some of that may depend upon whether your rib cage has been compressed by your implants or not. If so, your chest might be a bit concave. But that, and questions about your muscle and skin, should be something you discuss with your PS.

    Barbara

  • sandcastle
    sandcastle Member Posts: 587
    edited January 2014

    Laura.....I had a MX and Recon in 2010 after 8 weeks of an infection the implant had to be removed.....I decided then I would NOT try again and lived very well with my body.....I just have always had the thinking I am beautiful....of course I use a lot of patterns and I am confident in myself....Liz

  • jizogarden
    jizogarden Member Posts: 375
    edited February 2014

    Thank you all for your thoughts…..and thanks Liz for your thoughts about self image.  I have always felt pretty good about my self image and never worried much about boobs….I think I would be fine without boobs :)

    My ps said to try to live with the implants for another month and hope that they will settle…he said to wear a breast band to push down on the implant that is so high and to massage with a downward motion whenever possible (watching tv, etc.).

    He says that if I have them removed altogether I would most likely be smooth and not concave because I had no chest wall removed and no radiation which causes the most difficulty.

    I am at a crossroads….I'm beginning to think that no matter how many adjustments are made the bottom line is 500cc implants are just never going to feel comfortable or natural…….

    I tried to explain that my decision has nothing to do with his skills as a plastic surgeon….he is incredibly nice and very good at what he does…I'm just so tired of it all….. 

    I looked into fat transfer as an option….and he has recently done it on a patient…so far she is doing well and happy with her results….she also had multiple infections and difficulties with her implants.  He said this may be a consideration for me…..but I'm not even sure I have the commitment for fat transfers…..

    I think I'm slipping into a depression about the whole thing….I have been upbeat for 4 years…but now I'm feeling beaten…..

    I have started fantasizing about how good it would feel to have these things out of my body.  When I first had my mastectomy I remember looking down and looking at myself in my clothes and I was surprised how natural it felt to me….as I have said I was never large chested so it wasn't such a shock when I saw myself…except of course for all the surgery mess and drains.

    So I'm going to think about it for a few more weeks….if things don't begin to shift or there isn't another solution for me I think these implants will be gone this summer. 

    Need some positive thoughts…..xox Laura 

  • flat13good
    flat13good Member Posts: 93
    edited February 2014

    I hated my impants they were a pain in my chest.  To tight from readiation.  One up High one down Low could not even have nipple because it was tooooooooo tight.  I was the first person to ask for a removal but I am so much better now. I was not very smooth but will deal with the scar and lumps I just feel so much better.  Rock and ducktape was not my new normal and that was what I felt like.  Good luck with your journey but flat is fine with me.  Flatsy

  • Jenna2014
    Jenna2014 Member Posts: 7
    edited March 2014

    Hello jiozogarden, ladies,

    Well, after this long journey from june 2013, having a bmx and reconstruction. Having had the expanders in for about 8 months then exchange feb/14. As mentioned in my other posts, it was hell and back. So tight I couldn't breathe. Seriously, whats wrong with these surgeons. I know l am not the only one that has ever complained about tightness, cant they just not stich you up so tight that you cant move. Anyway, l had them removed not even a week later. Yes, l can now breathe, thank God. But, two weeks later l feel tighness around the breast bone and my sides. I can breathe but now it feels like l am wearing a bra. Where and why is this feeling here after removal of the implants.  Will it eventually subside where l dont feel this.  and underneath, bottom where my breast were, (I asked the surgeon to leave the skin hanging and not make anything tight) I also didnt have any lymphnodes removed. Now it feels like after removal of two drains that my breasts feel plump (l have no breasts but that's what it feels like) the fluid, is this what's causing existing tightness?  I turn to my sides, left and right and feel that there is a band of something across my chest, l know its' just over two weeks and l had two surgeries in 10 days but really, when does it get better.

    Thank you for listening,

    Jenna

  • melisden
    melisden Member Posts: 18
    edited March 2014

    Hello Ladies, I just had my mastectomy 2 weeks ago with expanders placed immediately.  I've had my second fill.  Last week I felt almost panicky because of the tightness.  The chest is a really uncomfortable area in which to feel tight.  It's where you breath!!!  At this point, I feel like the expanders are exaggerating the numbness that is there as a result of mastectomy.  you just have a larger numb area that you feel all the time.  I can't lay on my sides because I have these two LARGE rocks on my chest.  I feel like I'd really like to get them removed and just be flat and free.  I almost feel that if it weren't for these stupid expanders I'd almost be healed and moving on by now.  I might be very wrong about this - but I'm telling you this reconstruction  (and I haven't even had any complications) is a bear.  If I have any complications, I won't continue.  I know that already.  there are so many mixed feelings - it's crazy!  I find myself actually looking at other women's breasts all the time now.

    I just can't imagine that I'll ever be able to move my arms across my body without running into this weird numb rock on my chest which always keeps draws my attention back to the cancer and mastectomy.  Is there anyone who has felt this way, had implants/expanders removed and now feels better?  Is there freedom across your chest?  Sometimes I wonder if your nerves have a better chance of coming back if they don't have these huge artificial things in the way.

    Any thoughts and experiences would be greatly appreciated.  Right now I'm being told to just hang in there for a bit longer.  But from what I can see, they will tell you that no matter how far along the way you are.....

  • pumpernickle
    pumpernickle Member Posts: 1
    edited March 2014

    Hi Im 55 and had my implants removed 2weeks ago surprise surprise no pain no drains all went well I was nervous also as had numerous surgeries to fix my scarring from my mastectomy. Had implants replaced once but never again too painful at the moment I have some fluid in my chest but this can be drained if it doesn't disappear on its own. I found really comfortable crop tops in Target and wear them and only them have a few different colours. If I had it all to do again I may have opted for construction the same time as mastectomy using stomach tissue but have no regrets am healthy and also had my implants out because I had suspicious lumps which I wanted removed and with having the implants it made diagnosis difficult as inplants can rupture with biopsies. Hope this reassures you also scarring is miminal.

  • Moderators
    Moderators Member Posts: 25,912
    edited March 2014

    pumpernickle, welcome to Breastcancer.org, and thank you for your reassuring message that's sure to help others!

  • Bettyboops
    Bettyboops Member Posts: 239
    edited March 2014

    Hi Pumpernickle,

    I am 56 and went thought he whole double mastectomy and tissue expander hell last May. Long story short, implants very uncomfortable ALL the time. My PS said nothing remarkable when I saw her last week. The next day I had an appointment with another PS for a second opinion. He looked at my breast with horror and annoyance. He said, not to bad mouth anyone but...he rattled off a whole bunch of things wrong. Basically, they are pulling my muscles down, not installed correctly etc...falling and failing! Geesh - my original surgeon came recommended by the hospital. Do we have to have a medical degree to get through this stuff!!

     He offered to either replace them or do a DIEP (8 hour surgery, 5 days in the hospital!) which sounded like a challenge since I don't have a lot of fat. I still have not recovered fully form my original surgery and tissue expansion procedure. It took a lot out of me. I said stop the madness and just take them out. I don't feel sad about losing the implants. Hated them and they never felt like a replacement for my breasts - even though I had a nipple sparing and skin sparing MX. I am, however, apprehensive about being totally flat with a big scar. I did meet with a woman today who does prosthesis options and that was helpful. I am a person who feels systemic health is more important than having breasts yet I am stylish and like to wear nice clothes etc... How are you feeling about the flatness etc...

    Thanks,

    Bettyboops

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited March 2014

    I'm wondering if I were to have my implants removed would I be more concave the ever because I have the pockets? Thoughts?

  • Bettyboops
    Bettyboops Member Posts: 239
    edited March 2014

    hi farmer Lucy,

    I'm having mine out in about 8 weeks. From what I understand, there maybe be some unevenness when implants are removed. Doc said it depends how you heal, how much muscles you have on your chest wall etc...basically, everyone is different. He said from experience, he thinks I will have some concave-ness but predicting how much and where is difficult. I'm not loving that but I think the benefits of not having discomfort with implants will be worth it. Prosthetics can help even things out under clothes and somewhere I read building up the chest muscle helps. I guess if it's a problem, doc said he could liposuction fat and put it in to fill concave spots. That is another operation after you heal. Honestly, I'm scared about the implant removal but  I know I can't live the implants or do a big , giant recon surgery. My only big, recon option is the DIEP flap but I don't have much fat in the abdomen so that means chopping up my buttocks too. Yikes-My body has been through enough.

    Best, 

  • Lonib07
    Lonib07 Member Posts: 60
    edited May 2014

    I've had my silicone implants since March 2011 and the pain is ridiculous!  I wish I never had reconstruction.  When I had the right T/E removed in June 2010 because I was somehow infected with E-coli during my BMX; if I knew I would have further complications during the reconstruction process I would have had the right T/E removed too and went flat.  My first plastic surgeon did nipple reconstruction July 2011 and that failed too.  I was sick of it and said no more trying this or that!!  For me it's just not worth the pain to keep the implants in nor try to continue with further reconstruction.  I have an appt to meet with my current plastic surgeon June 13th to discuss having the implants taken out.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited May 2014

    Betty - Sorry I missed your reply. I saw on another post that your surgery is coming up. Fingers crossed for no complications and that you are thrilled with the results. Please let me know how everything goes. I am seriously considering it. Thanks again for the reply.

    Lonib07 - Best of luck. Let us know how your appointment goes.

  • Lonib07
    Lonib07 Member Posts: 60
    edited May 2014

    Thank you farmerlucy!  I will let you all know how the appointment goes.  I wish I could have seen the doctor sooner but need to have a 5cm mass removed near my ovaries & my ovaries removed too June 3rd.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited May 2014

    Oh no! When it rains it pours! Thinking of you!

  • Bettyboops
    Bettyboops Member Posts: 239
    edited May 2014

    hi lonib and farmer Lucy and all you lovely ladies!

    5 days until my implant removal surgery. I'm going to chronicle this for those who might benefit. I talked to PS office today about my fear of DogEars, and they assured me that I would be flat and sewn up tight. Never thought hearing that would be a relief! Ha ha. I'm getting a little anxious about anesthesia and hospital stay over night but it's way less than the double mastectomy and tissue expanders....some of you know that drill. I will have 2 drains. I am still sure I am making the right decision. I keep asking myself, do I want different implants- no, do I want a big invasive DIEP surgery- no -so flat is my alternative for systemic health. 

    On a brighter note, I was in TGMax today and saw a ton of "bra tops." They are sports bras and camisoles with removable bra inserts! Wow, they were marketing them to younger gals (I'm 56) so I guess that's a style? I was so happy to see that! Am I that out of touch?  Ladies, set me straight...did I just not notice this stuff before or are clothing companies banking on lots of mastectomy buyers? I didn't buy anything but I know there will be hope for me to find plenty of options after. 

    Best,

  • Bettyboops
    Bettyboops Member Posts: 239
    edited May 2014

    lonib

    Yes, I totally understand. You have had more complications than me so I get your frustration. The bottom line for me is that all these complications cant be good for my body. I'm a little ahead of you with the removal process so if you have any questions, fire away. I hate the implants. Mine were not installed correctly and they are falling. I got a new PS and he said they have to come out so that decision was made for me. He would love to put new, better ones in and do a better job but I said no. I feel like I have no pectoral muscle strength. I'm not an athlete but I do like to work out and stay fit- not possible with implants - for me anyway. The other option was DIEP surgery, no way I say. For me that kind of surgery is scary to think about what a toll it must take on your body. I totally understand if you are a young woman and strong- it may be better than having foreign objects installed in your pec muscles. I think for me it is too invasive of a surgery and I think why tear up yet another part of your body? Just my opinion- I know these are all impossible decisions for everyone.

    Best,

  • Ariom
    Ariom Member Posts: 6,197
    edited May 2014

    Hi Bettyboops, I wish you all the best for the upcoming surgery.

    I have been wearing these Sports Bras, Camis and Tanks with the little "Modesty Pads" in them since I had my Umx. I find them super comfortable, but because I am a Uni with a "D" on the other side I have to use a lighter weight Foob inside them. The silicone Prosthesis I would wear in a Mx bra, is too heavy for these and will pull them down.

    I discovered a company called Marika which is a yoga and Active wear company. They have the best sales, with their Clearance area often offering a further 50% off, so a $60.00 sports crop with pockets can often cost just $9.00. These were never intended for Mx prosthesis, and you need to be sure the one you like is not too low cut, but I remove the pads and insert my own foob. They also have work out tops that have the same pockets at fantastic prices. Either of these types of tops with an active wear zip jacket and a pair of either yoga pants or capri pant makes for a very smart, comfortable, casual outfit.   

    Fortunately, for you, the size you want to be, is entirely up to you after this surgery, so you can wear these tops with just the pads provided, or if you want a small size you can use either little chicken filets, micro bead foobs or my favorite, the light weighted Foam form. You may even decide to remain flat. It is all up to you. These are all very inexpensive options.

  • Bettyboops
    Bettyboops Member Posts: 239
    edited May 2014

    hi Ariom,

    Yes, here is a picture of what I found!

    image

    The white one is photographed from the front and the beige one shows the underside where you can see the little pockets for the modesty pads which I have pulled out a little so they show. I'm excited to find these! I will check out Marika too- thanks. I'm so glad that these little sport bras with modesty pads are around! They will be perfect for around the house and beyond. I wear fitted clothes for my work so I'll probably wear a foob of sorts for the office. 

    3 days until my surgery! Feeling anxious but in a good way that I just want it over and to move on! I'm feeling a little happy about getting the implants out. Wish it could happen without anesthesia and drains....

    Best,

  • Slappy-Squirrel
    Slappy-Squirrel Member Posts: 296
    edited May 2014

    Thinking about you and sending good thoughts and prayers your way Bettyboops! Best of luck!

    Shirley

  • Jennie93
    Jennie93 Member Posts: 1,018
    edited May 2014

    Bettyboops - I found some just like that too. They were great!  Lightweight and soft, and just the right amount of "shape" for me.  I wore them all through radiation, didn't hurt my burned skin.  

    Unfortunately after I developed truncal LE I found that those bras (like every other one I've tried) dig in right over the painful spot. Ouch. Bummer.  

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