DIEP 2014

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  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited March 2014

    does anyone know how to get to the photo site? I am starting to get anxious about surgery!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    I can only share my own experience....others will have different stories. When I first woke up from DIEP....higher than a kite mind you....I was ecstatic....so much so that I demanded to see everything and thought my flap and tummy were so beautiful....so much that I whipped my sheet off to show my mother, a person you just don't go around exposing yourself to, much less after being cut and sewn back together. God love Wilbur.

    The next thing I remember is several hours later and the swelling....massive swelling for me.....had set in....no longer beautiful. I developed big blisters underneath the flap. Everything was red and stretched.....and the black, blue and green. 

    The honest truth is that for a lot of us the immediate weeks after are not lovely. 

    Concentrate on getting through the surgery, having the tissue moved successfully and getting through the healing process, ladies. This part is not about how great you're going to look in the end.... it's a part of the process of getting there. 

    All that being said there are a few ladies here who came out of stage I looking pretty darned good very quickly. We are happy for them. Everybody hopes to be them and we all hope it for you. But don't be disappointed if it takes longer for you....that's more the norm and you are still successful. 

    Also it's hard to really judge the end result of stage I for a few months....once the swelling goes down.

    It's a process, ladies, not overnight!! I am 3 months past my stage II and although I have some issues to fix in stage III I am feeling pretty happy with where I am at. I am not symmetrical yet.....have some major fat grafting ahead of me, but I can make my rack look pretty good in clothes and that's the first time in over two years, so it feels good.

    You can do this! 

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited March 2014

    goldlining, I'm glad you were able to have your surgeries and are doing well. You have a great attitude.

    Janet, wouldn't dog ears involve a scalpel? I don't remember my incisions even hurting, but they were under that darn compression garment.

    Goldie, I forgot to say that the fitter did quickly measure my rib cage---34. I like my boobs, don't get me wrong. I would like to fluff them up on top but surgery is too big a risk to my vision at this point.

    Dvygirl, you have to pm a particular person to get added to the list. She used to be Timtam but uses a different name now? Someone will chime in and let you know. This old brain.......

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited March 2014

    Yeah Janet! I know that has been a sore point for you since the beginning.

  • Janet_M
    Janet_M Member Posts: 1,068
    edited March 2014

    Goldie - A sore point - yes. You're kind to remember. But in the greater scheme of things, it's just the tiniest little blip. I have absolutely no reasons to keep whining.

    Bailey - Love your experience, love your attitude. Mine was a bit different. I eased slowly back into reality and didn't look at my scars for a while. But when I woke up I was so happy. Firstly, I love morphine. And secondly, the relief at being on the other side overshadowed everything.  I was so friggin' happy to be done, that I just enjoyed having a calm mind for the first time in months. The anxiety was worse for me than my body image. When I saw my scars a few weeks there was a period of adjustment, but I know that was coming. I adjusted - and everything is pretty great. 

  • Sharon1942
    Sharon1942 Member Posts: 272
    edited March 2014

    Gwenny, my pants fall down, too!  What's with that?  I definitely need to buy a belt for jeans!  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    My pants are on the ground all the time....my girlfriend at work will catch me bending over  without a belt (good gravy I am supposed to remember to wear a BELT every day too!!!) And she'll whisper, "Ahem......crack kills".

     I have a very nice crack....what's wrong with showing it off at work? LMAO....human resources administrator OF THE YEAR....right here.....sign me up.

    Ay yi yi...I'm a hot mess lol.

  • Sharon1942
    Sharon1942 Member Posts: 272
    edited March 2014

    When I'm out in public, I'm always looking for a hidden corner to go pull my pants up!  Sometimes I wonder if the security cameras are watching this old lady trying not to have pants on the ground!

  • lahela
    lahela Member Posts: 515
    edited March 2014

    LMAO Bailey!

    Up and down day today - Tamoxifen and/or Femara have given me cataracts  :(  But as I was walking to the ophthalmologist's office dressed for the afternoon temperature, not the morning (curse you, spring!) it occurred to me that I don't go high beam in the cold any more! LOL!

  • Kat-ski
    Kat-ski Member Posts: 212
    edited March 2014

    PS nurse is not reccomending any scar treatment or of the like to put on inscions.  My right one beneath where it meets the chest is just red(not angry).  She just said to let it it be and it will will heal eventually.  True but I am wondering when all the scabbing is done if I can do anything with it.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited March 2014

    Lahela, sorry about the cataracts. My almost-88year old dad just had cataract surgery and is doing great, if that helps. Even with sizable new nipples, I don't really have much of a high beam problem like I thought I would. They don't have any erectile tissue in them, obviously, and my clothes just squish them. They bounce back when I take off my clothes. So far, anyway. It's been five weeks and I would say they have only shrunk a little so far. 

    My pants have a generous booty to hold them up!

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited March 2014

    Sounds like I'll have to invest in some boyfriend jeans. I've never had a curvy waist - been kinda squarish and wear low rise jeans cuz they sit properly on my hips. Wonder how that's gonna work out with scarring and swelling and such. Might have to opt for mom jeans for awhile. Ugh!!

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited March 2014

    dvy, I missed my jeans for several weeks after surgery. They do sit right on my hip scars which is annoying even now at times. Yoga pants, sweatpants, Target lounge pants, dresses are some of the options.

  • Ridley
    Ridley Member Posts: 634
    edited March 2014

    Umm.. my pants are not falling down -- the PS would have needed to take some from the rear to enable that to happen:)    Some of them do fit a bit funny now though.  A good reason to shop for new pants!

    Goldlining -- you definitely deserve to be symmetrical!  When you said calming and brilliant as relating to your PS after having mentioned Toronto, I thought you might be a Dr. H patient as well.  Janet_M confirmed it.  Love him.

    Lahela -- sorry about the cataracts -- that sucks. 

    It's Friday afternoon and I have almost finished one week of half days.  Not bad at all.  Concentration is OK -- except for this afteroon, but then again, I often struggled with Friday afternoons even before all of this started.Happy

    Ridley

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited March 2014

    I was afraid of that. I get dirty at work so will need some type of jean/dungaree type pant. I do have some fairly stretchy jeans tucked away somewhere. I am taking 6 weeks off then back at it. Hope my swelling is down by then.

  • etoile
    etoile Member Posts: 9
    edited March 2014

    Hi

    I saw my plastic micro-surgeon yesterday in Halifax. He told me he is performing the DIEP flap surgery 1/month and he had lost 1 in 7 years. I'm so glad, he told me that I have enough skin to cover my open wound and make one breast. I will probably have to change my left implant for a smaller size down the road. Can't wait to return to my regular routine after 1.5 year with an open wound: do sports, travel, bathing, showering without wrapping myself.......etc. I'm scare and hope the flap will survive. He was so comprehensive, he said "Can you come for your surgery in 2 weeks (April 1)" . I look at him like he was joking and my husband ask him if it was a April fool joke. lol! He said " I can't leave you like that any longer, you have been through hell already"

    Any advise to prepare myself before and after the big day in 2 weeks? he told me that he will keep me in hospital a few day more than normal because I'm traveling from another province.

    So exited but nervous!

  • Teacher64
    Teacher64 Member Posts: 840
    edited March 2014

    Laughed out loud about  crack killing and the "saggy" pant stories.

    Lahela, my ophthalmologist also said my cataracts are ready. I decided to let my husband go first. That way he will have good eyes to see my new boobs better! 

    My trainer said I'd be ready for DIEP and today he said I have full ROM and I get to work out one more time! Physically I'm ready, otherwise, not sure.

  • lemon68
    lemon68 Member Posts: 684
    edited March 2014

    Bailey- Thanks for sharing your experience. I don't know if I will be more like you showing everyone or more like Janet waiting to look. I know that I will be thrilled that I woke up after being under for such a long time. That is still scaring me. I am looking forward to it and feel brave right now and excited. I am sure my roller coaster ride of emotions is going to continue right up until I am out!

    Teacher- Glad your trainer said you are ready, will be thinking about you this Tuesday. And awaiting your post to see how you are doing.

    Its so kind of all of you to share you belly and behind info. I have this inner tube that goes around me, I am sure my pants will stay up due to that bulge above my behind. But happy the bulge in the front will be going North! I imagine I will look fairly odd but just know those cells are gone, I think I am good!

  • Donna2012
    Donna2012 Member Posts: 201
    edited March 2014

    I have had a very good experience with diep.  My results are great after stage 1 & the recovery has not been as bad as I anticipated.  However, I am a planner and researcher with everything, so I think I really knew exactly what to expect - and to my surprise, it was a little easier.  I even watched many youtube videos of the surgery being done, before my surgery.  I feel better knowing EVERYTHING!  My family members were horrified that I could watch it!  I was never drugged up and did not have much pain - just Tylenol when I was home.  I had stronger painkillers if needed, on hand.  I was on my ipad and texting family members just a couple hours afterwards.  I know I am lucky and my experience may be better than average, but I wanted to tell the people heading in for surgery what my experience was.  Here are a few things that I did NOT expect that happened to me:

    1.  The skin on the flap had a weird "plastic" look and when I first saw it - I thought it was a covering, and not the actual skin itself.

    2.  On day 2 - I had the catheter removed and than sat in a chair.  After a few hours, when I stood up, urine streamed down my legs with absolutely no control.  This never happened again, just right after the catheter was removed.

    3.  I was allowed no liquids or food for 48 hours after (even ice chips were not allowed).  This was just in case I needed to go back to the OR quickly, even though everything looked good.

    4.  I only stayed in the hospital for 3 nights, instead of the usual 4.  I begged them to let me leave!

    5.  I was hunched over for 6 full weeks!  Not fun.  

    6.  I did fine sleeping in my own bed, even though I had a recliner ready.

    7.  I found the surgery and recovery an absolute relief from cancer treatment.  This was the last step of my journey - already did chemo, rads & mastectomy.  So for me it was great to just think about this medical procedure as "restorative" and not cancer related.  (Even though it was, but it made me feel better not focusing on the cancer part).

    8.  Can't say I looked great immediately after - swelling, bruising & incisions.  However, I was not surprised - I guess all of my youtube watching prepared me well! 

  • bdavis
    bdavis Member Posts: 6,201
    edited March 2014

    dvygirl... PM nowheregirl or Lilah for the picture forum.

  • lemon68
    lemon68 Member Posts: 684
    edited March 2014

    Dyvgrl- send a private message to nowheregirl to get into the photos.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited March 2014

    I am not liking the pants falling down thing...lol.  I will be the one walking through the grocery and my pants just fall to the ground.  I wonder why that happens? All the before and after pics I have seen of some of you, and others, everybody looks more curvy after surgery. So, I wonder why the pants problem? 

    Jeannie, that makes sense that she would measure the rib cage.  I forget, did you tell what size she ended up giving you?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    My pants fall down because I have no junk in my trunk.....flat butted....and no waist....just straight....but not at all willowy lol....more spongebobby...with boobs lol

  • Donna2012
    Donna2012 Member Posts: 201
    edited March 2014

    my pants fall down too!  When I lost weight in the 6 mos before diep I donated most of my bigger sized things to goodwill.  However, I kept a few pairs of jeans and am wearing them now.  They are 2 sizes too big and easily fall down, but they are the only thing I can wear with my incision.  Glad I kept them!

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2014

    I'm just amazed to hear of all of us who've experienced gravity issues with our trousers.  I thought it was just me.  I really hate it when my pants, that seem to fit just fine when I put them on, gradually slide down my hips and make me feel like I've got Plumber's Butt.  I think it's because my torso is shaped differently after my DIEP, but it's very disconcerting to feel the crotch of my pants heading south.

    My DIEP experience was fairly uneventful too, thanks be to the Lord.  I wanted to look as soon as I could pry my eyes open, but when I did, my brain had trouble taking in the sight.  It's not that it was so terrible--it wasn't bad at all--but I'd been flat on one side for a year, and suddenly there was a flesh-colored hamburger bun that seemed to have been installed right under my chin, a little to the left.  Between the unfamiliar territory and the morphine, it took a bit to take it all in.

    What I wasn't expecting was to be swathed in a heating blanket for 24 hours.  Not every PS orders this, but it's not uncommon.  The goal is to keep the newly-connected vessels relaxed and flowing, and warmth helps, so I sweated it out and just resolved to be hot for a cause. 

    For me, it was SO worth it.  I got back a sense of wholeness and recovery--even beauty.

  • Stix
    Stix Member Posts: 723
    edited March 2014

    I had cording. Cording sucks. I couldn't reach very high when I needed to.  I did exercises at the gym and it gradually went away. If you read about it - there is a lot of stretching exercise. I got on a machine at the gym where the bar is above me and I let it stretch my arms out - with 10 pounds of weight on it. It did wonders. It is best to read and try to remedy cording yourself before letting a doctor do their interventions- that's good old fashion medicine. But, every case is different- check with your surgeon first.... 

  • Teacher64
    Teacher64 Member Posts: 840
    edited March 2014

    A heating blanket doesn't sound bad because I woke up freezing previously. Don't know if Wilbur will be with me because I can't take morphine. Guess there are other meds that will bring a visit from him.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited March 2014

    http://www.invisibelt.com/TheBelt.aspx?utm_source=google&utm_medium=ppc

    I think I might have found the pants falling down remedy.  A girl on another thread told me about these belts.  Hope this link works.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited March 2014

    Donna, I totally relate the catheter thing.  I get sleepy bladder from the anesthesia from every surgery I have ever had, and I was really scared after my bmx.  Like you, just once incident. I had to go home with a catheter in after my hysterectomy.

    Lahela, I can't believe cataracts now!!!!  Geez.  Do they really believe it was the meds? Well, take heart. I have a friend who is 50 who had them, and she had a fairly easy surgery, and she is back in business.  I just hate for you to go through any more s..t!!!!

  • Sharon1942
    Sharon1942 Member Posts: 272
    edited March 2014

    I might try that belt, Goldie. I wonder how fast it comes undone when I am running cross legged to go pee? Lol!  I looked at belts at Kohls but they weren't on sale so I passed them up.  I need to go to Target. It doesn't matter what it looks like because I wear all my tops on the outside. 

    Hope you start feeling better soon, Bailey!

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