Starting Chemo in March 2014

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  • jmg58
    jmg58 Member Posts: 185
    edited March 2014

    I'm back from chemo #1.  It went very well; the nurse was VERY nice.....back in the hotel after having some mac & cheese for lunch; on second bottle of water; running to the bathroom often already.  Hmm........not feeling nausea yet....but may take pill tonight depending on how it goes.  I was really pleased (as you all know!) with the smoothness of things today.  The nurse said the first time isn't too bad until day 3-5 but all in all the first time not too bad.   I did chew on ice chips during the tax but she said I should not get mouth sores the first time.  Just lying around the hotel today taking it easy (and running to the bathroom).  Tomorrow I go for my shot and then home health care is coming Saturday to show me how to take care of the PICC line and talk about changing the dressing.

    I'm glad you are starting to feel better, kiwilady!  I hope you enjoy the walk. 

    I hope all my fellow first-timers end up feeling good today after it's over!

  • Jmenchaca78
    Jmenchaca78 Member Posts: 19
    edited March 2014

    Today is day 7 for me and day 6 from the shot. So far I hadn't really had any bone pain until 3am this morning. Now my hips and back are so sore. I wasn't expecting it to happen this late. Anyone else experience this? I thought I was gonna get away with no bone pain at all, wishful thinking I guess.

  • rockinlife
    rockinlife Member Posts: 15
    edited March 2014

    Hi, all.  I'm new to this forum.  I was just on Xeloda and now have to go on Taxol and Carobplatin.  Please, someone weigh in and tell me how it is and what to bring to the treatment room.  This is my first real chemo, so I'm pretty scared.  Appointment is next Thursday.  Thanks!

  • Xrayalli
    Xrayalli Member Posts: 237
    edited March 2014

    Had #1 Taxol today. Was there from 10:00-2:30, not too bad, I thought. I got really sleepy with the Benadryl. The only strange thing that happened other than lightheadedness was at the tail end of the chemo infusion the bottoms of my feet started to itch and feel hot. Doctor said that was okay but I don't think they have heard of that one before! I figure the chemo drug was telling me "Okay, we made it all through your body to your feet, you can go home now". I took a nap when I got home, I am not a napper, and I am feeling hungry. So we will see how this goes, I guess.....

  • Lorbgoo
    Lorbgoo Member Posts: 213
    edited March 2014

    I'm glad both of your chemos went well. 

  • Lorbgoo
    Lorbgoo Member Posts: 213
    edited March 2014

    I also hope you have no or minimal SE from it! :)

  • 70charger
    70charger Member Posts: 963
    edited March 2014

    Hi Ladies.  Just popped in to see how everyone is doing.  I finished my "active" treatment Jan 3rd.  I had lumpectomy in Aug.  4 rounds of t/c then 16 rads.  My best advice for chemo is, take your anti-nausea pills starting when you get home . Continue taking for at least 4 days.  Try to eat a little something every 2 hours. I did not have any nausea throughout my entire chemo. I found the first  hard as they were a bit too strong.  Please fill out your side effect sheets, be honest, that way they can adjust for your next treatments.  Remember everyone is different.  Feel free to ask me anything :)

  • Xrayalli
    Xrayalli Member Posts: 237
    edited March 2014

    Thanks 70charger-will be taking a Compazine before bed. Welcome and thanks for the advice.

  • Lovemyboysandlabs
    Lovemyboysandlabs Member Posts: 83
    edited March 2014

    I had the Neuprogen shot which is fast acting. Started on Tuesday, had one yesterday then another today. I had no bone pain (thought I was in the clear) until today. My lower back aches terribly, but other than that nothing else really hurts.

  • Lorbgoo
    Lorbgoo Member Posts: 213
    edited March 2014

    thank you 70charger

    Lovemyboys I hope you feel better ASAP and have no other major SE. 

  • Lovemyboysandlabs
    Lovemyboysandlabs Member Posts: 83
    edited March 2014

    Rockinlife, welcome to the group. If you go back through this thread and read all of the comments, it will help you a lot. I would definitely bring a blanket, because a lot of people (including myself) get cold. Water bottle and plenty of water if they don't have a cooler. And something to entertain yourself. I would also pack light snacks to much through the treatment. Good luck and don't be scared, there is really nothing to the actual treatment except sitting in a recliner. You just have to prepare for the side effects if you have any. Some don't, some do. 

  • lgoldie
    lgoldie Member Posts: 120
    edited March 2014

    Well, I finally got home for chemo 2.  My liver enzymes are climbing steadily and my onc sent me for an abdominal ultrasound AFTER 7 hours chemo/potassium infusion.  Hey, if you have diarrhea, take the Immodium like they  tell you to.  And if they tell you to take prescription Potassium, do it.  Live and learn.  Ultrasound is ok, a little fatty liver that did not show up in Pet Scan before chemo.  No metastatic disease.  Came home, ate some soup, no nausea.  Tingled all over this time.  In nightgown, in bed...yes I took the potassium.  Am really wanting to know how first timers did today  Leah

  • lgoldie
    lgoldie Member Posts: 120
    edited March 2014

    did your liver enzymes go up?


  • maryland
    maryland Member Posts: 1,298
    edited March 2014

    Going tomorrow for my 1st chemo, Cytoxen and Taxotere. I am confused as to whether I'm getting 4 or six rounds since my oncologist started saying 6 as per my notes and ended saying 4. I will ask her, but won't see her for 3 weeks. Is there an average, do some get 4 and others 6? I'm a bit nervous about tomorrow but I'm think I'm more nervous about the 3-5 days following.

    70charger, thanks for the tips.

  • susiem
    susiem Member Posts: 14
    edited March 2014

    Hi all. I had my first DD AC on Tuesday and am doing OK. Wednesday was better than today, but I can't complain. The nausea is under control for the most part (until I got a little cocky and sloppy with my pill schedule last night). Paid for it today with mild queasiness. I'm a bit achy from yesterday's Neulasta shot, but not constipated (hooray) or seriously nauseated. Went wig shopping on Friday and came home with something my stylist can work with. It's a good thing I took my BFF along or one of two nasty things would have happened: a curly red wig that would make me look worse than chemo will, or no wig at all and a major case of depression. As it is, we made a day of it: wig shopping, lunch, and farewell mani-pedis. 

    Does anything know anything about Friends Are by Your Side? http://friendsarebyyourside.com/  They appear to partner with salons all over the country and give wigs away. I plan to give them a call tomorrow and will report back if they're for real. 

    Taking it one day at a time. And if a day seems like too much, taking it 15 minutes at a time. Hope you're all doing well.

  • NadiaT
    NadiaT Member Posts: 13
    edited March 2014

    Susiem-

    I found 2 salons in MA that do friends are by your side, and they both happen to be near where my sister live. I called them both an it seems legit. Sounds like the salon owner purchases the wig for you. I can only imagine that it is a tax write off for them. I am going to one of the salons next week and they are going to cut my hair short...Good luck!

  • mom2Bnegativex3
    mom2Bnegativex3 Member Posts: 221
    edited March 2014

    good for you, Susie!! I am so glad things are going good (for these circumstances)!

    Rockinlife, WELCOME!! ((Hugs))) Besides preparing for boredom tx is not that bad. Def wear comfy clothes. Blanket to stay warm, gum (I chew to kill the taste), puzzles, tablet/laptop, notebook, pen, hard candies, plenty of water and I am bringing Popsicles. Good luck!!

    Good luck, Genny! ((Hugs to you to)). This time I am doing 3 tx have baby then 3 more. Last time I had 4 AC bilateral mast. Then 4 taxol. I am thinking it has to fo with dx, staging, positive lymph nodes and such. 

    Wow, lgoldie, #2 done and you are doing so good!! YAY for good news on the ultrasound!!

    Thank you so much, 70charger!

    For all that have treatment today (((hugs)) and lets go out there and kick some cancer butt!!

  • jmg58
    jmg58 Member Posts: 185
    edited March 2014

    Glad it went well for you, Susie!  YEAH!

    Lgoldie, glad that the test came back okay!!

    This is day after chemo #1  I felt great yesterday then took an Ativan like they said to sleep--didn't sleep.  Up every 2 hours.  Feel like I'm "coming down with something" -- faint feverish feeling (although I don't have a fever), achy; tired.  Have to go for my neulstra (sp?) shot...have them relook at my PICC dressing.  They change it yesterday and now it looks like it leaked a bit...hope I 'm not getting an infection.  Can't wait to get home and crash.  First I have to go to doc, come back to hotel, pack up and have boyfriend drive home 1 hour.  Seems like a lot today.  But at least I"m not nauseous yet (fingers crossed).  Hope everyone else is doing well.

    Good luck to those going today---you'll do great!

  • AKJ
    AKJ Member Posts: 190
    edited March 2014

    Genny, I think standard protocol for TC is four rounds but sometimes they do six. I also don't know for sure if I'm getting four or six. I have two different opinions from two different docs. Just make sure the options are laid out clearly and get them to explain the reasoning behind it.  I'll be talking to my doc about it this week. 

    Jmg, you sound so much better. Congratulations on making it through round one!

  • mom2Bnegativex3
    mom2Bnegativex3 Member Posts: 221
    edited March 2014

    rocknlife, I forgot to mention. I will be on the same treatment plan starting on the 24th. Taxol and Carbo triweekly x3! 

  • lgoldie
    lgoldie Member Posts: 120
    edited March 2014

    I am glad to hear you are doing well.   WATER is your best friend, or just fluids.  do not get dehydrated.   Watch for diarrhea.  Even a little several times.  Send me a message if you have any problems.   Im going for a head shave and Neulasta at 11


  • lgoldie
    lgoldie Member Posts: 120
    edited March 2014

    Yes, I experienced it that late and of course decided it was something awful.  It was gone the next day.  

  • lgoldie
    lgoldie Member Posts: 120
    edited March 2014

    Keep me informed on your Taxol.  That is next for me and I will be glad to get off the AC.   Leah

  • WifeWBC
    WifeWBC Member Posts: 53
    edited March 2014

    New in this thread.  Hope all you brave people are doing well.  My wife had her first TAC session last Friday.  The weekend was pretty much a write off, and this week has been a series of ok and miserable days.  Today, 1 week later is a decent day.  She feels crappy, but much better than yesterday which was spent in bed.  We have managed to get out and walk about 3 times, which is good.  Hoping for a return to normality for the next two weeks, but have grown so used to crap news with this disease, that we'll just wait and see what is thrown her way.  Is anyone taking Aleve or Claritin to help the neulasta pain.  Wife seems to feel that her neulasta injection has been the cause of most her discomfort, but I think the combo of all the drugs and halting effect of chemo, is causing an overall lousy feeling with her.  

    Wife is just 40. We have 4 kids under 12.  Wife wants to be there for the kids, but sometimes I think she'd be better on a nice warm island.  Thankfully, spring is on the way.

  • CaliKiwi
    CaliKiwi Member Posts: 98
    edited March 2014

    Congrats on getting #2 done, lgoldie!

    Rockinlife, welcome to the group, there's lots of great info in here. Let us know if there's anything else we can advise on. Another month or so and we'll all be pro's at this - something I never thought I'd say!

  • Mitzro
    Mitzro Member Posts: 48
    edited March 2014

    Yes, this happened to me around day 4 and 5 I believe....I am now at day 10.  It hurt so much right around the middle of my back and at my sides.  I felt almost out of breath and had to lie down...actually felt like I couldn't support my weight.  I only took Claritin and 2 Aleve the night before the Neulasta shot.  So, have you all heard that we should continue taking for several days after the shot as well?

  • NinaW
    NinaW Member Posts: 110
    edited March 2014

    Hellloooooooo all you beautiful Marchers!!!

    Whoa, yesterday (first day following chemo #1) was a total waste. I felt so, so icky. Tired, nauseous, zero focus, zero appetite. I finally called it a day at about 7 pm and just went to sleep. Still wobbly this morning, but at least I can sit up and focus, which is a definite improvement!

    What have I missed? Hello and welcome to all the newbies - WifeWBC, you're lovely to be here and supporting your wife. With regard to the Neulasta, my chemo nurse and I had a little chat about it when I went to get my shot yesterday. She said that if bone pain occurs, it will occur about 7 - 10 days AFTER chemo, because that's when the white blood cell count tanks and the neulasta starts screaming at the bones to produce more of it in a hurry. So there's no real sense in taking Claritin or Benadryl or Aleve before that point. She said that the pain generally occurs in the big bones first - the thigh, the hips, and the sternum. One of her patients said it felt like there was a volcano in the middle of her chest, and a lot of people are afraid they're having a heart attack when they feel it there. It's all normal, apparently (whatever "normal" means in our current circumstances, lol). So that's the word from my nurse. She also said you should definitely be taking Vitamin D, because it helps support the bones. 

    Susie, definitely go check out the friendsarebyyourside salons! The guy who started the program is the guy who developed the Coppola Keratin Complex line, which is awesome (I've been using that shampoo and conditioner for about seven years now). He's incredibly involved in the program and is constantly fundraising to make sure that women get the support they need to feel good about themselves during the chemo process.

    Congrats to you, lgoldie!!! Two down!!!

    To everyone going for treatment today, pack my best wishes for an easy day into your bag to take with you. And for everyone in various stages of post-chemo funk, I feel you. I do. We'll survive it, so just do what you can and leave the rest for another day. xoxo

  • Mitzro
    Mitzro Member Posts: 48
    edited March 2014

    Oh you sound like a wonderful man and husband.  I just entered some info about how I felt after my Neulasta shot.  I cannot imagine having 4 young children and going through this.  I hope you have help.  I am so glad you have joined in.  I think I will copy and paste your post into a doc for my husband.  Sometimes I think it is harder for you spouses who are kind of helpless in all of this.  Just know your love and support is so very important!

  • Mitzro
    Mitzro Member Posts: 48
    edited March 2014

    Sorry, my last post was for WifeWBC :)

  • Mitzro
    Mitzro Member Posts: 48
    edited March 2014

    Hi Nina, so your nurse says take it 7 - 10 days after.  My back pain actually started a little earlier than that.   Just wondering what my best course of action is.  I will definitely ask my friend who is an Oncology Nurse where I am having my treatments.

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