Starting Chemo in December 2013

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  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited March 2014

    Dam it , despite B6, B12 and L Glutamine I am getting neuropathy in my feet. Finished 4 weeks now of Taxol.  Started with just a vague tingle in the base of the Rt toes after the first treatment. MOs nurse said it was too early to be from taxol when I mentioned it the second week.  Well, it has slowly progressed.  Now about half the rt foot is funny feeling and a bit of tingling starting in the left toes.  I went for a walk today and the first 1/2 mile the neuropathy actually felt better, the second half mile I was getting funny feelings up my calves. Now after resting it is just the Rt foot tingling mostly.  Maybe I will bring some ice packs for my feet on Thurs. -

    I would gladly give up my eyelashes and eyebrows not to get the neuropathy.  Hopefully it will be temporary and go away after taxol done. Wonder if the MO will reduce the dose next time?

    Wishing things are going better for all you other Dec sisters, envious of those who finished their chemo already

    Barbara

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited March 2014

    ^^This is why I got attitude at MDA I guess.  Grade 3 and node involvement meant chemo first to them.  But, my doctors didn't offer MRI or anything before surgery to see what nodes if any were involved.  They said they would know everything after the surgery in the pathology report.  Doesn't matter now lol!  It is what it is ladies and I think we will be fine either way.  But- my immediate reAction was get this off my body.  I did both and MDA onco and BS gave me attitude about that too!  My first days there were awful!  Lots of tears thinking I screwed myself before I even got started. I know better now.  Pisses me off they were like that.  Too intellectual and not social at all- nerds lol!  But those nerds will make me better.  I love my radiologist onco though!  At least one of them is smart with personality;). I have a local reconstruction dr so I won't have to go back for that!!  

    So so so nervous about FAC y'all!  I'll be fine just gotta suck it up.  Wonder if I will get different meds for nausea since taxol meds aren't strong.  Just thoughts:). Keep me up lol!

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited March 2014

    my response was to SouthernBling's explanation lol.  Not Crazywabbit's post sorry;). southernBling are you at MDA too??

  • SouthernBling
    SouthernBling Member Posts: 63
    edited March 2014

    Jodi, I'm not at MDA. My BS and MO are affiliated with a local hospital abut 25 miles away. My MO was one of the founders of a rather large cancer center here, but decided that he didn't want to be part of such a large center. He has 3 other oncologists practicing with him so it's a smaller practice. He's a really smart guy and has done a ton of research, been published in several journals, etc. but still a pretty down-to-earth guy. He probably thinks I'm crazy with my binder that I bring with me every time. At least I have my SEs summarized for each cycle, and I try to keep my questions at 10 per visit. He just smiles and looks at my husband as if to ask, "Is she like this at home, too?" Yes, I am. So he goes over all of my numbers, checks me and asks if I am having this SE, that SE, etc. and waits for my questions. At least he always remembers to pat me on the knee and smile at my husband again before he leaves!

    I could travel 100 miles either way for a large university hospital, but I really like my BS, and he referred me to this MO. My PS works a lot with my BS so I hope I'm where I should be.

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited March 2014

    southernBling-that sound so nice!!  I had no option in Northeast Louisiana lol:). Had to make the trip, so MDA was 6 hours.  Close enough but still a pain;). 

  • Leealice
    Leealice Member Posts: 87
    edited March 2014

    southernbling-my nails are tender to the touch and feel like they are pulling apart from nail but can't see it. MO told me to put tea tree oil on them. That is a strong smell. I keep glossy clear/tinted polish on fingernails and they are growing and look good. I read somewhere that polish helps. My big toenails are turning black, Mo said I would probably lose them. I painted them red and decided to not see it and be in denial

    Jodi- You will feel better after your first FAC and know what to expect. I'm doing TAC and I was so nervous about adrymician but most of my se have come from taxotere. no se from cytoxen

    Sorry about you girls suffering with neuropathy. Cancer sucks

    I go for TAC #5 tomorrow. I so dread it but will be glad to check it off the calendar. My last chemo will be 3/31. This is my last month of chemo!!!! 4-6 weeks of rads after that

  • jackieak
    jackieak Member Posts: 169
    edited March 2014

    Barbara, sorry to hear about the feet and the neuropathy.  After first Taxol I had a tingly hand, have been icing hands since and have not had it again.  I haven't been icing feet but haven't had any issues there.  Try the icing, I think it will help and it's not bad because I only ice during taxol infusion.  No nail issues, do have the eyebrow and eyelash issues which makes me crazy...I'm not looking forward to drawing on my brows, at this point one brow, the other has enough hair for both...there are times I laugh at all of this, laugh, cry, laugh, cry..  I tell the family I look like uncle Festor from the Adams family.

  • kimie06
    kimie06 Member Posts: 215
    edited March 2014

    Jodi- I was given different meds for AC,  for me it was a totally different experience, I felt much worse but still had good days on the tail end of treatment, they really are completely different.  Lots of different meds for nausea, oh I feel for you going into this journey, and you know what you may be just fine, a lot of the gals on here tolerated it well, they reduced my dose after the first treatment because I was so sick. like didn't get out of bed for 11 days, I knew I wouldn't survive chemo if that's what is was going to be.  we all had different experiences..you should read back in the posts, most of us had ac first.  hang tuff girl you got this

  • charusa
    charusa Member Posts: 107
    edited March 2014

    I had my first round of 4 Taxol on Thursday, then my naulasta shot on Friday, all weekend and this morning I am in so much pain. My legs feel like they are going to buckle under me and nothing is taking the edge off the pain....it is almost unbearable....any suggestions????

  • Leealice
    Leealice Member Posts: 87
    edited March 2014

    When I get the muscle pain from neulasta, I take 3 advil every 6 hours around the clock and tramadol helps alot. Heating pad helps also and if all that doesn't work. Take something and try and sleep thru it

    Finally figured out how to get a pic on here. Wearing a Rachel Welch wig in that one. I have 4 wigs now that I alternate.

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited March 2014

    oooh-la-la, LOVE the wig Leealice!

  • joanmj58
    joanmj58 Member Posts: 68
    edited March 2014

    just an update. I am receiving my 5th treatment of TC right now--1 more to go and then finished! When does one get a PET scan after treatment? A couple months? How do they assess the treatment success? Thanks!

    Joan

  • kimie06
    kimie06 Member Posts: 215
    edited March 2014

    Charusa - the taxol causes bone and muscle pain... I take Tylenol and alot of hot baths.  It always hits me on about day 4 and lasts a couple days.  I know exactly how you feel my legs feel like they have 20lb weights on them. 

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited March 2014

    Charusa - did you take Claritin before and after the neulasta? It really seems to help a lot of women reduce the bony pain that it gives.  The taxol pain is different doubt the Claritin helps that. 

    Hope you find some relief. 

    Barbara 

  • charusa
    charusa Member Posts: 107
    edited March 2014

    Thank you all for your suggestions. I can not take claritin for the same reason I can't take benedryl and have always managed through the pain from the nualastra during my 4 doses of AC with just some tylenol and sleep but this pain is so different and seems to radiate from my lower abdomen which concerns me. It seems to be lessoning up some now, I sure hope so.

  • Leealice
    Leealice Member Posts: 87
    edited March 2014

    joan- My MO says since my nodes were clear and I saw yours are too. They do a mammo between chemo and radiation only

    Nails and tea tree oil. My MO said the nails get damaged under the skin so put tea trea oil on your cuticles. It helps them as they grow out. It's a taxotere thing

    Feeling fine after chemo today!

  • kjfromca
    kjfromca Member Posts: 283
    edited March 2014

    Leealice - Love the wig, you look so pretty.  Glad to hear that your chemo went well today.  Hoping you have an easy time with the SEs.

    Charusa - Taxol bothers my legs as well.  After the first treatment, it felt like my ovaries were going to explode.  Bad cramps, upper thighs hurt.  I recommend that you ask your MO before you take any ibuprofen if you haven't taken it during chemo so far.  My MO didn't want me taking it, but I had to when I had a blood clot.  I ended up taking tylenol with codeine on my bad days with Taxol #1 & #2 and it helped.   Also, try a heating pad.  I use mine all of the time.   Sorry you are feeling so bad.

    Kimie - I know what you mean about the 20lb weights on your legs.  I just went for a mile walk and my legs hurt like crazy. 

    Ladies - If all goes well with my bloodwork on Weds.  Thurs is my last chemo.... Then a break and on to rads.

    Kim

  • RobinLK
    RobinLK Member Posts: 840
    edited March 2014

    Congrats to all who are finishing/finished!! You made it!!! Time for whatever your next steps may be. 

    My legs feel heavy on the Taxol too. Just walking up the stairs feels like I have done squats or lunges all day. They are shaky by stair #16. Guess that is why handrails were invented. The extra 10 pounds I have gained is not going to come off anytime soon. Every time I put on shoes, sometimes just standing up, brings on the stupid neuropathy. I just keep saying "when the chemo is done......"

  • kimie06
    kimie06 Member Posts: 215
    edited March 2014

    can we talk about noses for a minute or 2.... does anyone else have the dry bleeding nose?.......Im not getting full on nose bleeds just when I blow my nose especially in the morning,..??? its super sore been putting stuff in there, and my throat too its really dry and sore......anyone?

  • Leealice
    Leealice Member Posts: 87
    edited March 2014

    Kim-I hope you get your last chemo this week. Check it off the list!

    Kimmie-I get blood every time I blow my nose which I blow several times a day but haven't had any full on nose bleeds

    Feeling good day after chemo. Thinking of going to a yoga class but worried it may make me sick at my stomach by getting that chemo flowing thru my blood.

  • RHGSR
    RHGSR Member Posts: 774
    edited March 2014

    okay ladies. Getting my first of 4 dose dense Taxol tomorrow morning. I'm pretty nervous...

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited March 2014

    Heavy legs were an issue for me after TX #3. They still bother me sometimes, but mostly when I walk for a while. I am one month PFC today. I had a dream last night that I had a full head of hair...and it was brown! Wishful thinkingSmile

    I had some nose bleed issues, too, but also have allergies, so that didn't help. Never enough to be concerned about. I think the low platelets are the culprit.

    Kim, good luck on your LAST chemo!

    Holli, I hope all goes well with your Taxol TX.

    RO appt on Friday.

     


     

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited March 2014

    Kim. I have the same problems with my nose.  Even sleeping with a cool mist humidifier in the bedroom evey morning I blow small chunks of bloody mucus. On Sunday I had a full blown nose bleed that dripped down my chin before I realized it. I am using bactroban (antibiotic ointment) on a Q-Tip twice a day. I have literally ulcerated areas on the inside of the nasal septum on both sides.  I really try not to blow my nose in the morning but it is so stuffy , the. The rest of the day it just runs clear.  Can not even count the number of boxes of tissues I have gone through the past few months.  Keeping wishing for my nose hairs to regrow. 

    Holli good luck with the taxol tomorrow. 

    Barbara

  • DJJ
    DJJ Member Posts: 229
    edited March 2014

    Kimmie,  I have the same problem.  MO said I have Ulcerated areas from all the dripping. I try to keep it moist with a humidifier and petroleum Jelly.  Nothing works.  I'm going to buy stock in Kleenex!

    RHGSR, Good luck on first Taxol.  You can do it!

    Leealice, I work out regularly.  Spin, extreme pump (minus extreme these days), yoga and walks.  It never makes me feel worse but always makes me feel better.  It wakes me up for a few hours too!

    Kim, Last chemo.  Woohoo!!!!! I have 38 days until my last!

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited March 2014

    in hotel room now, which means chemo tomorrow!  My first FAC.  And I also have a chest wall ultrasound!  Nervous too;). I'll be at appointments all day tomorrow, but I will have 2 weeks away!!!  So happy about that!  Hope everyone has a great week!!

  • Mikesgirl17
    Mikesgirl17 Member Posts: 260
    edited March 2014

    Kimmie, I have a dry nose these days .  Mostly.  Not so drippy, but it has dried blood as well.  Jodi, good luck to you.  You to Hollie.  try not to overthink this new process.  It is a necessary evil that will pass before you know it.  Sending you both peace and hug.  You will both do great.  The unknown will soon be known and much less scary.  My mo office called today and said they wanted to change my last chemo appointment to Tuesday instead of Monday because my mo wouldn't be there.  I told them that I couldn't do Tuesday.  My sister was taking the day off to take me on Mon.  They switched me from seeing my mo to the nurse practitioner.  Monday is my "Yay day." not Tuesday.  I have it on my calendar.  That got me all frazzled.  Do they have any idea how much we look forward to putting this behind us? Now I will be starting 3 hours earlier so it will be over even sooner. :)  Good luck and be strong everyone.

  • RHGSR
    RHGSR Member Posts: 774
    edited March 2014

    thank you everyone for the well wishes 

    Jodi- I'll be thinking about you tomorrow

  • J4DC
    J4DC Member Posts: 80
    edited March 2014

    Jodi and holli, thinking of you and good luck for tomorrow. The first one is always nerve breaking, but soon you will have all these behind you. You can do it! Mikesgirl, completely understand what you mean, great that you will be done earlier next week. Take care.

    Kimmie, my nose is also dry and stuffed in the morning. There is dry mucus with some blood, but no more than that. 

    Does anyone experience problem with eyesight? I wear glasses. My eyesight just got bad quickly in the last a couple of months. It gets worse when I am tired - chemo or aging?  I am not sure if I should get new glasses if this could get better after chemo. 

  • jackieak
    jackieak Member Posts: 169
    edited March 2014

    I have the same nose issues, I use saline spray to keep it moist and blow out the crap, always blood.  Saw MO today, neutrophils keep dropping, at 1200 last week she expects me to need the damn neupogen shot....I hate that, was hoping to get through this Taxol without it.  We will see what tomorrow's blood draw comes back with.  Red count down as well, but I'm eating allot more iron to help that.  Can this all be over with already?  Good luck to all this week, thinking of you.

  • kjfromca
    kjfromca Member Posts: 283
    edited March 2014

    RHGSR & Jodi - Hugs to you both and I hope that you two have an easy time with any SE's.

    Leealice - I hear yoga helps with SE's.  I ordered a BC yoga cd online, just came in the mail today.  I am hoping the stretching will help with my sore muscles.

    Keepthefaith - Hope your RO appt. goes well.  Keep us posted.  

    Mikesgirl - Good for you for making them keep your last chemo date.  Will you be doing rads?

    J4DC - My eye sight has gotten worse on chemo.  I use reading glasses, but think that I probably could wear glasses all of the time now.  

    jackieak - What number Taxol are you on?   I am sorry you're counts are down, so frustrating.  I hope you get good news tomorrow.  

    Kim

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