Starting Chemo in March 2014
Comments
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Alli - No prednisone thankfully. I had to take it once many years ago and it did not agree with me at all! Turned me into an angry beast! haha!!
Nina - you look amazing!!!!!!!!!! I have to say I am a little jealous!! I was set to get my hair buzzed this past thursday but couldnt make it to the salon as I was still feeling pretty bad. I have two short wigs and set to pick up a third longer one once I get my hair chopped which is now set for this Wednesday. I will post pictures.
I like the idea of a facebook group if others are interested. I think it may be a little easier to follow and respond to people. I will look into creating one and then if anyone wants to join they can. If not at least we can support each other here.
lalala - Good Luck tomorrow!!!!!!!!!! I hope everything goes smooth and your side effects are minimal.
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In order to create the facebook group I would like it to be a secret group that only the members can see. In order to do that I would have to have you as a freind first then add you. If anyone is interested you can find me on facebook under Dawn Vasco Raleigh, NC
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I agree, Mary, not that we knew any one before us but we're awesome! Thanks for keeping tabs on us. And Nina, whoa, you are soooo pretty and the wig looks great. I was so discouraged last week that I may not get a wig. If one falls in my lap then okay but I am not bending over backwards. Go Chemo Marchers!
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Dawn, you can find me with Alissa Walsh Noble, I like the FB group idea....
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dawn. I just requested you as a friend. I'm from raleigh too!
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Nina, Clarice looks great! I got a short pixie cut today, gonna put highlights in it tomorrow, less to fall out in a few weeks. My husband loves it, thinks I should keep this cut when it grows back.
I had pimples from age 11 to 45… oh I really hope that's not one if my side effects.
And all you other ladies, I hope you had a good weekend.
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Everyone is telling me to keep my really short cut because it makes me look a lot younger! I just hope it grows back similar. My chin keeps breaking out and it's really annoying. As if we don't have enough to worry about!
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I love the Facebook idea because we can quickly respond and vent privately. Mine is Errin Bond Steffen. Kansas
Ya, Megomendy!! One day at a time but it does get easier!!
lalala, GOOD LUCK tomorrow! (())
Alli, glad the swelling has went down a bit!! Hope tomorrow is easy for you:)
Lorbgoo, sounds like a very nice day!! The more days we can be "normal" the better! Glad you got to enjoy it!
Today I went shopping with my mom for baby. Since I will have to be induce and baby will have to come early we are trying to get everything done possible. Right now I am trying to do every thing possible to fatten up baby and get ready for chemo too. Hopefully she doesn't come as soon as I start.
Our chemo journey will be a tough battle but we will win in the end!! Here is a pic of me 2+weeks after totally done with chemo. I tried to walk all night. Had some foot pain(just finished my 4 taxols DD)
Molly and me right before my last AC DD. Mother's Day!
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cancervixen- I sent you a friend request to be added to the fb group. Thank you for setting it up. I hope you are continuing to feel better.
Kyla
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Holy cow, you people are like fertilizer for my battered ego - thank you so much for saying such nice things! Sorry the pics were so big; I need to remember to resize stuff before I bump it from my phone to the laptop. Mom2B, you and I are taking Molly and Clarice out for a drink when this is all over. Then we'll invite all the other wigs to join them as we burn them in a bonfire and laugh our heads off. Fair warning to the rest of you wiggy people that you should name your faux hair ASAP.
1Among3, sorry for the late welcome to March Madness, Chemo Edition. You and I will be toxing it up for the first time together on Wednesday. If you were sitting in the chair next to me in the chemo room, I would definitely sneak you a cookie or two because everything sucks slightly less when there are cookies involved. Let's do this thing!
Dawn, get your butt back here and post pics. I hope you're feeling better every day now, and kicking those SEs to the curb for good.
Alli, how's your arm doing? Go get yourself some fun hair. The thought of going in to a wig store creeped me out, big time, so I just bought mine online and made sure there was a decent return policy (both from the eBay seller, and from the wig site). Unless the wig store has the exact color you're looking for in the exact style you want, there's not much point, right?
Our thread is the best thread. Cancer doesn't stand a chance in here. Have a great Monday, all - and the best of luck to everyone headed for treatment tomorrow. May your infusions be quick, may your side effects be non-existent, and my your companions in the room be quiet enough for you to read/watch whatever you like while you're there!
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Dawn, I just sent you a friend request also. I am Nadia Aslami Tase. Please add me to the secret FB group for us rad Marchers!
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Hi CancerVixen I also sent a FB friend request from Laura Mayo Oka, thanks for taking the lead on this.
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Nina I am also starting my first chemo AC on Wednesday. Will have my blood drawn tomorrow ( hope the port works) then on to finally get this show on the road. I am so grateful to have found you ladies on this site. Makes going through this a bit easier. Spent the weekend watching my daughter play her club soccer in a tournament and thought how lucky I am to experience all the good there is in life. This diagnosis has opened my eyes to what is really important, and how others are a big part of that. Hope the night goes well for everyone!
Laura
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Nina, on Carbo/tax did they tell you you will have a "crash" day so many days out from treatment? When I was on AC they said usually day 4 was(and it was), but then I bounced back. I talked to my chemo nurse and she didn't say. I was just wondering. With Taxol I didn't have a "crash" day, persay!! TIA
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Nina, beautiful wig!
Good luck to you girlies having your first treatment this week. I had my first one (AC) Friday morning and went into work after. The treatment itself was not bad at all!
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MaggieMay, that sounds fabulous that you felt good! How are you feeling today?
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NurseLaura, when I had the blood drawn the day of chemo, they still used a vein in my arm. They said they like to "save" the port for the chemo while I still have good veins. Your place may do it differently, but thought I would just let you know because I was a little surprised at that.
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I am new here, too, and also a "young" 46 yr old with breast cancer. It all happens really fast. A little over a month ago I found out about my breast cancer. Two weeks ago today, I had a bilateral mastectomy with 16 nodes removed. 5 nodes were cancerous. Today is my chemo coaching, and I start chemo (TAC) on Wed. I look forward to having people to discuss this with along the way. Lots of questions. Hopefully, some answers today. 1knightsjourney.com
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i would be interested in your facebook group. did you set it up?
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cancerjourney- wow that is fast turn around. I had my bmx 1/27 and still do not have a start date for chemo or port. My BS said 6 weeks of healing from surgery before chemo. I hope you have had heald well. Great info the ladies are sharing here as they have started or are startinbg their chemo this week.
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Good morning ladies. I'm here to tell you that there is an upswing after chemo treatment. Day 11 after. On my way to work and feel close to human. Still tired but human-tired not zombie-tired. As far as a Facebook group is concerned, I'm there as Anita Jones. And welcome Cancerjourney. Sorry you have to be here.
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Wow, Cancerjourney, that is really a quick pace. My MO told me that at 4 weeks and 4 days after surgery, I have one of the shortest healing times he allows (believe me I wanted to go ahead and start earlier!) And I just had a lumpectomy and AND. You must have a strong constitution! Good luck on your journey!
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Nina, you look fabulous! I am going to the Look Good Feel Better class at our Cancer center today and then plan to go get a wig on Wednesday. I think I'll cut my mid length bob real short on Thursday to prepare for the inevitable hair loss which will probably come with my second round of AC next Tuesday. Thank you for the inspiration.
And for those of you starting chemo this week, I was just a wreck, but my first full week hasn't been bad at all. I definitely felt tired for a few days and a tiny bit nauseous, but took my Zofran when I felt that way and used Ativan when I felt like I wasn't going to be able to sleeo. I've not felt the need for anything the past few days and I actually am eating pretty normally. I hope it continues. Do any of you know if the symptoms continue to get worse throughout? I've heard both things and am just wondering.
Have a good week. I'll be sending good energy out into the universe for all you March ladies.
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Welcome, CancerJourney!!
AKJ, how wonderful! I am so glad to hear it is going so well for you!!!
Mitzro, mine wasn't with AC. I woud know when my good days/bad days would be around the second treatment and then would plan accordingly! I am s glad your first week wasn't bad at all!
My first go around with a MX I waited 3 weeks to start my chemo back up(had 4 DD AC prior) Then started Taxol. This time I just had a lumpectomy and will start chemo in about 3 weeks from that date too. Hopefully not next Monday because that is St Patty's day and my girls' spring break!!
I hope everyone is having a great day (()) hugs to you all!
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Wow, Nina, you look terrific!! The short hair looks great and the wig is amazing! I got a free one from the ACS, it's okay...we'll have to see if I can style it. Going to get my hair buzzed next week if I feel well enough after first chemo on Thursday....still so nervous I have an upset stomach but all of your encouragement sure helps as is the knowledge that some of you are already bouncing back after first treatment and say it wasn't so bad.
Glad you had fun, Alli...that certainly sounds like a proper theme for a party!
I don't belong to FB, so I hope you all will still continue to post here...I'm getting so much out of this group's tips and friendship!
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So excited about the facebook group. My name there is Meg O'Brien Mendelson. But we need a cool name for the group. Any suggestions? Something with March in it? I keep thinking of that expressison "going in like a lion and out like a lamb?So I am almost done with my first day of work AC (after chemo) with AC. lol I was more nervous all day than anything. I took a quarter of a xanax before I left the house. I havent been nauseous, just particular about what I eat. Of course I'm tired now, but who isnt at the end of the work day along with losing an hour from daylight savings time? I am so worried thought that this can change at any moment. I'm staying at my sister's house tonight as she lives 10 minutes from my job, as opposed to my normal hour drive home.
Mitzro, I guess we are a few days apart in treatment, so hope I continue in your pace. My oncologist said if I am so tired I couldnt get out of bed to call them right away because that would be unusual. That made me feel better because that's sort of what I expected. And they said if I'm nauseous that there are plenty of other meds to try.
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My scan was clear today. First good news report since this started. I'll take it!
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Hi everyone, seems like we all had a decent weekend. Love the pics that were posted.
I'm feeling a bit like a chemo failure. 6 days after my infusion and today I really just feel ick. Nausea is hanging around and I've got this constant dizzy feeling and mild headache. I'm meant to go to a work presentation tomorrow and I just don't think I have it in me to drive the 1 hour trip safely, with the dizziness.
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Hi, everyone!
Thanks again for saying such nice things to me about my wig. I worked so hard to grow my hair out over the past seven years or so, and while I realize that it's such an insignificant part of the whole cancer picture, I also think we deserve this one thing - a wig we like and can wear with some degree of confidence - if we choose to go with a wig as a head covering. Hey, there's not a whole lot of spoiling we can give ourselves right now. Might as well do whatever we can to lift our moods, and if hair does that for you, power on!
Mom2B, nobody said anything to me about a specific "crash" day, but I'm doing the carboplatin and taxotere, not the cytoxan and taxol. Maybe there's a difference with how long it will be before I can expect to feel icky? It seems to vary so much based on what I'm reading from other people, but of course everyone has different tolerances and is in different shape when they go into treatment. I'm trying not to talk myself into expecting anything at all, but getting any and all pre-meds for known side effects ready in case I end up needing them. Ah, Colace or Immodium. These are our choices? Our choices suck, to be honest :-)
NurseLaura, yay for the Wednesday girls! I'm every bit as grateful for you as you could ever be for me. I hear the first time they access the port is scary because you don't know what it will feel like, but literally EVERYONE I've ever spoken to with a port has said it's as easy as pie and nowhere near as nerve-wracking as getting a traditional IV. Did your oncologist give you EMLA cream to numb the access site? If not, or if you don't want to use it for whatever reason, I hear icing the site for a few minutes works great, too. You'll come through it like the champ you are.
Maggiemay, thanks again for making me feel good about how the wig is working.- I'm so glad for you that you sailed through your first AC with flying colors!!
Hi there, cancerjourney :-) I absolutely hate that you have to join us, but this is the best group of women and we intend to harass you with our love and concern and support. Pull up a chair, and welcome, welcome, welcome.
Yay AKJ!!! The fog is lifting and you're moving out from under the bad weather! So glad the side effects are easing, and I hope you do something really nice for yourself as a reward for not murdering anyone while you were feeling low :-)
Hey, Mitzro - gosh, I hope I can say the same thing about side effects when I'm on the other side of my first treatment. Sounds like you had very few things slowing you down! Despite the little nausea, was your appetite pretty normal?
{{{{{jmg58}}}}} I know you're nervous about Thursday. Listen, make sure all the nurses and your oncologist are WELL aware of your concerns, and maybe ask that they keep a very close eye on you that day to make sure that they catch it immediately if something doesn't feel right to you. They are there to help, but sometimes you need to make it very, very clear that you need more than a casual glance. It might also be a good idea to see if you can be monitored after treatment is done for a while before you go home. I'm crossing everything I've got that all of your fears will be for nothing, and that treatment will just be a long, pretty boring afternoon in a reclining chair for you :-)
I hope the rest of you Marchers are having a great Monday! All of your amazing feedback on my wig inspired me - I started a new topic here in the Chemo forum about wigs, because I didn't see any other thread like that, and I feel like everyone who is considering wearing a wig has a lot of questions about them. If you feel like contributing anything at all to it, please head over there to share your story! xoxo
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thanks Macintx, I went and had my blood drawn this morning, first time. They like to do it 2 days before treatment. Port worked great and it seems I am all set to start on Wedensday. There was very little pain involved.
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