Starting Chemo in March 2014

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  • megomendy
    megomendy Member Posts: 141
    edited March 2014

    AKJ, I'm a School Psychologist, so my job is similar to yours. I plan to do the same. If a child is obviously sick, I wont take them in my office, maybe do a push in during an activity. They all seem to have colds though. I'll have to get better with the hand washing and purell. And we are a small school, 8 classrooms, so if I needed to do more push ins, the teachers all know and will be fine with it.

  • NinaW
    NinaW Member Posts: 110
    edited March 2014

    Laughing about your tales of transvaginal ultrasounds; from the age of 39 through 44, I underwent five extremely grueling years of almost constant infertility treatments in the pursuit of a second child. I had 21 intra-uterine inseminations and 13 (count 'em, 13) cycles of IVF before finally accepting that my body just wasn't going to cough up another viable egg. I took all kinds of genuinely scary drugs to manipulate my hormones over those five years, and as a result was monitored on what felt like a daily basis with transvaginal ultrasounds.

    I used to joke with other ladies undergoing infertility treatment that I was having a date with "Rod".  The whole experience pretty much eliminated every trace of shame I have, because the treatments were so invasive. At this point, I don't even care if they close the exam room door while I'm slipping into a gown. 

  • AKJ
    AKJ Member Posts: 190
    edited March 2014

    Hey, megomendy!  Yes, a similar job for sure.  Already this school year I was getting obsessive about sanitizing and I was so proud that I hadn't gotten a cold all school year.  I was feeling super healthy!  Then dum dum dum dum.......the big C strikes.  Crap.  Anyway now I'm completely wacky at work with the infection control.  Hope it works.  One of my coworkers has a dad who went through some really intense cancer treatment and she knows all about it.  She said to me yesterday, "I can't believe they're letting you work!  Kids are so germy!"  But I think it'll be ok.  Her dad's treatments sounded way worse than mine, which I tried to explain to her. 

  • maryland
    maryland Member Posts: 1,298
    edited March 2014

    Lorbgoo, I cut hair in a retirement home, my clients are 80-104, they will get their hair done when they are sick and head back to their apartments to go back to bed. I am going to try to keep working, I'm going to keep masks handy but kids would probably get scared by that. I'm also going to try and make my clients understand that they can't come down if they are sick. We'll see how it goes, I like my job, afraid if i'm not there for 4 months I will lose it.

  • Lorbgoo
    Lorbgoo Member Posts: 213
    edited March 2014

    I'm hoping I dont loose mine either but it's just preschool. I will keep in touch with my boss though. It would be hard to believe that they wouldn't keep me. It's not my fault I got this stupid disease. I hope you do ok during your job and don't catch anything. It's harder with little kids. I would be around infants to 5 years of age. 

  • NadiaT
    NadiaT Member Posts: 13
    edited March 2014

    I think I missed it, but what is the icing for? is it to prevent neuropathy? I asked my doc about it, and she said it wasn't really an issue for AC, but more of an issue for TCH....any thoughts?

  • Jenwith4kids
    Jenwith4kids Member Posts: 635
    edited March 2014

    hi Nadia,  I could have written your post, right down to the dates and diagnosis...what started as clinical stage I pre surgery ended up as stage III, 2.3 cm tumor and 5 positive nodes.  I had my BMX with expanders on 2/14. Have had one fill so far. Two MO appointments/interviews next week and I am starting PT.  I assume chemo plan will be decided late next week or early the week after, likely starting in late March or early April. Let's be in touch.

    Jen

  • Generation3
    Generation3 Member Posts: 45
    edited March 2014

    NadiaT, 

    Taxol and Taxotere can cause neuropathy of hands and feet. I am an RN and at work I'm on my feet all day long. I really need to have feeling in my hands to start IVs and such. I hope the icing works. With AC you shouldn't have a problem. Wendy

  • agness
    agness Member Posts: 576
    edited March 2014

    Thanks for sharing the icing of hands and feet tips.

    Taking a probiotic is a good idea. When you deplete your healthy and beneficial flora sometimes you can end up with a real imbalance which could result in conditions such as vaginal yeast infections, small intestine bacterial overgrowth, urinary tract infections.

    My naturopath recommended this probiotic formula:

    http://m.professionalsupplementcenter.com/moreinfo...

    You can look up the bacterial strains it contains and then find a similar formula at Whole Foods or another health food or vitamin store. There are lots of women's formulas available.

  • NinaW
    NinaW Member Posts: 110
    edited March 2014

    For those of you who are icing, just picked this up at Target today:

    Pack-it Freezable Cooler

    The neat thing about this one is that it has ice packs actually built in to the cooler itself - you can just fold the cooler up and stick it in your freezer. I'll probably use extra ice packs in it, but it's nice that it has the added benefit of built-in ones.

    Both feet fit comfortably inside. Way cheaper than the $125 booties they sell on Amazon, at any rate.

  • NadiaT
    NadiaT Member Posts: 13
    edited March 2014

    Jennwith4kids - yes, let's be in touch. Sounds like we are on a similar path...

    Generation - thanks for the info - I will be doing taxol, but not right away, so I will remember these icing tips for that stage. I am a Forester and hike 6-8 hours a day for work, so I definitely need my feet to be in top shape too.

  • agness
    agness Member Posts: 576
    edited March 2014

    Nadia - what a cool job :)

    Nina - I know what you mean about those booties on Amazon. When there are cheap options like dish pans or coolers and ice or ice packs it can't be justified.

  • megomendy
    megomendy Member Posts: 141
    edited March 2014

    Day 3 after AC. So far so good. Trying to stay positive and keep my mind off any upcoming symptoms, but it's hard. I feel very picky about what I eat, wanting comfort food, and kind of bland food. Last nite we went to dinner with friends for Italian food and I had a salad with grilled shrimp. Didnt want to risk any sauces. I have a little headache some of the time, but I think most of this is just worrying/anxiety. I think the Ativan at night helps a lot because it works on any overnight nausea and also it relaxes you, so I've been waking up nicely. My plan is to get up and go to work tomorrow, barring any symptoms. And then I'll sleep at my sisters, 10 minutes away, instead of driving an hour home. But you know how plans go, I may be home......

    Hope you all have a great day!!!

  • lalala
    lalala Member Posts: 13
    edited March 2014

    Hi ladies.  Chemo Day 1 for me tomorrow and although quite anxious I am ready to kill c-cells.  My 1st three rounds of 5-fluo, epirubicin & cytoxan will be accompanied by self-injected shots of neupogen.  My antiemetics for these three rounds will be aprepitant, zofran, maxeran and decadron and my onc nurse said those should keep the nausea under control.  Chemo Day 1 should be @ 3 hours long with the first hour getting set up and on a drip for hydration. I am having a PICC line inserted to stay in during all 6 rounds (the final three will be taxatore, with decadron).  Have stocked up on senokot-s, immodium, tylenol; aleve, hand sanitizers, face masks if needed, and wipes to use instead of toilet paper.  My nurse said ok to keep taking the probiotic I've been taking for a year or so but to put the other vitamins, supplements away for a while.  I tried on some wigs yesterday but thought I looked hideous in them so not sure what I'll do about the head and will have to make some decision on that real soon ... lol. 

    I am hoping to continue working throughout even if limited time in office - I luckily can remote access into our work server and print off documents in the office so that on days that I won't be wanting to pretty-up for work I'll go in after hours.  Going to keep setting my alarm clock for regular 6:30 wake up and trying to keep everything as regular as can be in this topsy-turvey BC treatment world. 

    THANK YOU is not near enough to express my gratitute to all of you for sharing your experiences ... it is making this sooo much easier to bear.  Hope to log on when I get home from clinic tomorrow to share my experience.  LOTS OF LOVE TO ALL.

  • AKJ
    AKJ Member Posts: 190
    edited March 2014

    Sounds like you're ready to roll, lalala. Keep us posted. 

  • NinaW
    NinaW Member Posts: 110
    edited March 2014

    Go get 'em, lalala!! I hope your infusion is a breeze, and that no side effects follow you home :-)

  • CaliKiwi
    CaliKiwi Member Posts: 98
    edited March 2014

    Good luck lalala. You're going to do just fine. Sounds like you're well prepared.

  • Lovemyboysandlabs
    Lovemyboysandlabs Member Posts: 83
    edited March 2014

    Good luck to you lalala! And here's hoping everyone else has minimal symptoms going forward!

  • 1among3
    1among3 Member Posts: 5
    edited March 2014

    Hello ladies! I'm so glad I have found this board! My first round of chemo is start on Wednesday, March 12th.  While I am scared because of the unknown, it has been so helpful to read all the posts about all the great ideas and it definitely makes me feel better knowing that I'm not alone on this crazy ride! So ready to get this started and be done with! 

  • BCMardiGras
    BCMardiGras Member Posts: 4
    edited March 2014

    Lots of posts here on what to expect during chemo.  First, everyone's experience is different and please know that you are not alone.  Your doctors and nurses will help guide you through the process and there are a ton of resources to help you navigate through the next few weeks/months. You've started on the right path by reaching out to this discussion board and searching for answers!

    Hang in there and good luck!

    Dawn Bontempo

    Author: Breast Cancer Mardi Gras: Surviving the Emotional Hurricane and Showing my Boobs to Strangers

    • Diagnosed 10/12/2012, IDC, ER+/PR+, HER2- at Age 41
    • Chemotherapy December 2012- March 2013 Adriamycin, Cytoxan, Taxol (one round of Taxotere)
    • Radiation Therapy April 2013 - June 2013
  • Lorbgoo
    Lorbgoo Member Posts: 213
    edited March 2014

    good luck lalala. Best of luck to everyone starting this week. We'll actually best of luck to anyone reading this post!!! I find out Tuesday when I start. I have a ton of questions to ask. 

    My stomach is already hurting and a little upset. Ugh. 

    Lori

  • NadiaT
    NadiaT Member Posts: 13
    edited March 2014

    Good luck lalala. sounds like you are well prepared! 

    Lorbgoo - it feels better once you have a plan, promise.

  • Xrayalli
    Xrayalli Member Posts: 237
    edited March 2014

    CancerVixen - are you on Prednisone, by any chance? That is how I reacted when I took that.

    So I just got back from my girls getaway, got a chance to relax and have fun. We stayed at a themed hotel, our room was the Wine Cellar.  

    Tomorrow I go back to work, first day since Jan. 22.  I usually work Mon-Fri but I'm gonna shoot for 3 days a week, I am still recovering from the ALND.  Swelling is slightly better, hypersensitive arm is not better.  I might be starting chemo Thursday. Have a great week, everyone!

  • NinaW
    NinaW Member Posts: 110
    edited March 2014

    Hey!

    So for our record of hair things, I chopped all of mine off today. Here is the before:

    image

    Here's Nina - The Chopped Version:

    image

    And a few shots of me with Clarice the Wig:

    image

    image

    My stylist cut some bangs into Clarice the wig, and took a razor to the hair that framed my face so that it would look a little less "wiggy". Based on this experience, I would absolutely recommend that you make the time to visit your hairstylist so he/she can futz with it a bit and make it right for you. 

  • mom2Bnegativex3
    mom2Bnegativex3 Member Posts: 221
    edited March 2014

    I am loving it, Nina! My wigs name is Molly!

  • megomendy
    megomendy Member Posts: 141
    edited March 2014

    Ooooh, I have to name mine....I brought her to the hair stylist for a touching up too. Nina, yours looks amazing. So real. I think I am deciding to get my hair cut real short, like inches or buzzed,  right before treatment 2. That way I won't be caught in the shower before work, have all my hair fall out, and then have to  be upset AND figure out what to put on my head.

  • lalala
    lalala Member Posts: 13
    edited March 2014

    Nina W:  Awesome wig; good to know about getting it styled.  Maybe that's why I hated the first 2 I tried on. 

    Lorbgoo:  I know, my stomach has been acting up to, but I'm pretty sure it's the stress and anxiety of not knowing what's going to happen next.  Once you have a plan and get going on it everyone here will chime in with tips, suggestions and awesome best wishes.

    1among3:  You are certainly not alone .. we're all here for you and rooting for you.

    Thank you everyone for your best wishes for chemo tomorrow; it certainly gives one the strengh to face it head on.  That's what is so wonderful about these discussion boards.  It's almost like ancient tribal womens' groups where knoweldge and experience is shared and passed along.

    My post name "lalala" is what my grandchildren called me when they were very young so I've kept using it for important matters to remind me of who I am and what's important to me.  Lots of love to everyone ... sunny day here in eastern British Columbia and with the time-change it will be that way through early evening.

  • Lorbgoo
    Lorbgoo Member Posts: 213
    edited March 2014

    Nina I love it!!! It looks wonderful. You are so pretty. I wish I knew how to post pictures. 

    It was nice and hot today. High was around 65 and sunny. I took my dog for a walk with my daughter. I also took my daughter shopping. It sure did get my mind off of things. 

  • lgoldie
    lgoldie Member Posts: 120
    edited March 2014

    Hey, our stats look similar.  Triple negative, size of tumor .8 centimeter, sentinel node biopsy-negative   lumpectomy

  • NatsFan
    NatsFan Member Posts: 3,745
    edited March 2014

    CancerVixen - re the pimples - YES!  I had tons of them during chemo - I think I could have given any 14 year old boy in the state a run for his money in the pimple department!  I ended up using a salicylic acid face wash - Neutrogena makes one that worked well for me.

    I must say, I'm really impressed with this March 2014 group.  I've been posting encouragement in all the March groups since my chemo in 2008, and this group has formed a solid support group very quickly.  It's great to see.  Go Chemo Marchers!

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