Well hell, that wasn't good news

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  • Momine
    Momine Member Posts: 7,859
    edited March 2014

    Roses, it totally stinks. I am sorry. This disease is really just too annoying. 

  • Holeinone
    Holeinone Member Posts: 2,478
    edited March 2014

    Roses,

    So, so sorry....it is a flipping nightmare. 

  • RosesToeses
    RosesToeses Member Posts: 721
    edited March 2014

    Thank you, everyone, for the good wishes and hugs.  I'm doing a little better now, getting used to the new reality.  

    I had my second opinion and it was exactly the same as my first.  The doctor at Dana Farber also said they would have done exactly the same as my treatment at Lahey and while she didn't know my oncologist, she had great things to say about my radiation oncologist and plastic surgeon.  I guess that's neither here nor there at this point, but I think I always have it in the back of my mind to wonder if things would have been different if I had just done something different somehow and somewhere.  So it's good to at least have that put to rest in this one area.

    Hugs back to all of you.  And here's hoping we all are able to post here in 2024 to talk about all the advances in treatment, and still in 2034, and in 2044...  :)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    ((((Roses))))), 

    I'm so sorry you are going thru this nightmare that each one of us fear that will happen with this disease.  We all live with the fear of progression, and yet don't know the reality you are going thru right now.  You are in my prayers as you travel this new and unfamiliar road.

    Oceana

    marvelous-nicole-rodriguez.jpg (180×119)

  • Holeinone
    Holeinone Member Posts: 2,478
    edited March 2014

    Roses, 

    Wish this was easier, or magically go away. I think being stage 3, makes us mentally prepare for mets, but it still has to be a shock for you & your family. I am guessing you were just starting to feel normal again.  thinking of you.....

  • katyand4
    katyand4 Member Posts: 171
    edited March 2014

    Roses sorry to hear about the mets.  Cancer sucks..thinking of you and wishing you well with your treatment.

  • RosesToeses
    RosesToeses Member Posts: 721
    edited March 2014

    Thanks, everyone.  Yeah, cancer really does suck, big time, and I agree that at stage III there's always been a lot less ability not to worry about it anymore.  

    But still, wishing you all excellent and cancer free health!

  • ziggypop
    ziggypop Member Posts: 1,071
    edited March 2014

    Roses, 

    I'm sure that you have been reading the stage IV boards - I read them a lot 'just in case'. What surprises me is that life goes on. The little things, the big things, the things that happen to other people, the silly things. I don't mean to minimize anything - any of the stress, pain, fear ... It just surprises me & somehow relieves my own fear. I really wanted to just stop in and say that I have been thinking of you and will continue to hold you (gently) in my thoughts.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited March 2014

    ziggypop,

    It surprises me too, and I'm living it! Yes, many of our sisters struggle with pain and all of the other crap that comes with metastatic disease and never ending tx, but many of us live surprisingly normal lives. I think that we just go on living as well as we can, until we can't.

    Caryn

  • Gitane
    Gitane Member Posts: 1,885
    edited March 2014

    I read your blog tonight, RosesToeses.  It's beautiful.  I am thinking that each day will bring you the understanding and strength you need to live your life the way you want.  Lots of Hugs,  G.

  • RosesToeses
    RosesToeses Member Posts: 721
    edited March 2014

    Thanks, Ziggy, Exbrxgrl, and Gitane.  

    I agree about the stage IV posters and the examples of living life well and for years with mets.  I started reading there from time to time when I went through my first "let's just take a look to rule it out" MRI and I find it really helps to not just hear that it's possible but to see it in action.  And Caryn, your posts have absolutely been among the ones that have been helpful to me.

    Gitane, thanks for the kind words about my blog (and the kind supportive words, too)!

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited March 2014
  • hopefour
    hopefour Member Posts: 459
    edited March 2014

    Rosestoeses..thank you for up-dating us. Totally understand needing to find your footing in your new reality. But, I think once you do you'll find that life will go on, just a bit more doc visits, and you'll find the joy in each new day! Please, keep visiting us and letting us know how you are doing!!

    ali68..hope your scans came back clear and your doing well.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    Roses:  You are so strong - believe it !  We all do... and I for one will be cheering for you whatever treatment is up ahead in the road-- Hugzzzz

  • RosesToeses
    RosesToeses Member Posts: 721
    edited March 2014

    Thanks, Caryn, hopefour, Shelly, it means a lot to me to have this support. :)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    Stopping in to wish you a good day today  Roses!

    Oceana

    marvelous-nicole-rodriguez.jpg (180×119)

  • RosesToeses
    RosesToeses Member Posts: 721
    edited March 2014

    Thanks, Oceana, that's so kind of you!  I'm seeing my RO today to talk about doing something about the pain and I'm starting to adjust to the diagnosis and doing pretty well.

  • Momine
    Momine Member Posts: 7,859
    edited March 2014

    Roses, I am glad to hear that and once again floored by how resilient we really are.

  • Elizabeth1959
    Elizabeth1959 Member Posts: 346
    edited March 2014

    Roses

    I'm thinking about you too.  I hope you get the pain under control and continue to do well.

    Elizabeth

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2014

    Roses...just wanted you to know how much I'm enjoying your very well-written blog.  It's very insightful.  Thanks for writing, and blessings to you as you find your path through this new wilderness.

  • RosesToeses
    RosesToeses Member Posts: 721
    edited March 2014

    Thank you, Momine, Elizabeth1959, and Sbelizabeth.

    Momine, it is amazing what we can adjust to and even thrive under.  Thank goodness for the resilience.

    And Elizabeth1959, the pain is ok with meds, but I also saw my rad onc last week and we have a plan to start radiation therapy on the spots that are causing me pain.  She thinks it will make a big difference fairly quickly.  At first I thought I'd just wait till the med treatments started to help, but now I'm thinking about not thinking about my hip and I'm really looking forward to that!

    Sbelizabeth, thank you for your kind words about my blog.  I've been reading your blog on and off since I found it from your sig line here.  It's great, plus a flight nurse and you met Joni Erikson Tada--very, very cool!

  • juneping
    juneping Member Posts: 1,594
    edited March 2014

    roese - (((Hugs)))

  • Gitane
    Gitane Member Posts: 1,885
    edited March 2014

    Just checking on you, RosesToeses.  I don't know when your rads are but I hope you are doing well and get great results.  

  • RosesToeses
    RosesToeses Member Posts: 721
    edited March 2014

    Thanks, juneping and Gitane!  Rads start this morning and I'm really excited at the thought of soon not feeling this in my hip anymore--really, really excited!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    (((Roses))), I'm just stopping in to check on you. Sounds like you have a good plan, and I'm glad to see you are upbeat! I do hope you get relief from the pain from the Rads!!

     Momine, Yes it's so true about how resilient we can be in the face of this disease.

    Oceana

    marvelous-nicole-rodriguez.jpg (180×119)

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