DIEP 2014

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  • GwennyMD
    GwennyMD Member Posts: 147
    edited March 2014

    I saw a cancer research doc on tv this week.  He said everyone has cells that can turn into cancer.  For most people the cells continue to act normal throughout the person's life.  But for some of us, the cells go crazy and start duplicating.  He was excited about some of the current research related to factors that either prevent or decrease the cells ability to go crazy.  H also said that environmental factors such as toxins found in our food, air and water can also increase cells ability to go crazy.  My mom and sister did not take any birth control or HRT.  They both got hormonal positive bc.  I did take birth control for almost 15 yrs but had stopped for several yrs before I was dx.  By focusing so much anger and energy on the birth control or HRT pills you took for other medical reasons, you are increasing you stress level.  This will not help you heal nor will it help you fght the bc.  We all have been exposed to so much during our lives that it is probably impossible for any of us to attribute our bc to any one factor.

  • GwennyMD
    GwennyMD Member Posts: 147
    edited March 2014

    Beebop - Healing prayers

    Curly - You Rock.  Stay Strong.  You are almost finished

  • Debwarrior
    Debwarrior Member Posts: 72
    edited March 2014

    Beebop, congrats, that's great news

    BellaMomma, sorry about the Iv antibiotics and I hope you get to go home very soon.

    Annajo, thinking of you today and hope you have an uncomplicated recovery.

    I'm two weeks and two days out from my bilateral diep. Everything seems to be healing well. My radiated side didn't turn out as well as my non-radiated side, maybe no surprise there. And my flaps are a lot smaller than I thought they would be but I guess I'm onto fat grafting as a next step. It's the first time in my life that I didn't have enough fat!  I'm incredibly grateful to be past the big surgery, 14 hours for me and I don't regret going the diep route. It is nice to have something that feels natural. Now I'm just hoping I can get to a place where I like them a little more, like many of you. I'm hopeful about it.  I'm going for walks outside now but still needing a lot of rest.  

    Hope everyone has a good weekend.

    Deb

  • Janet_M
    Janet_M Member Posts: 1,068
    edited March 2014

    Deb - 'Everything seems to be healing well' is a brilliant report. Especially after all that you went through last year. But I wouldn't even worry about trying to like your new flaps just yet. They're still so new. Speaking as someone who checked her own on a daily basis - I drove myself crazy judging the poor little creatures. When I stopped thinking about it they gradually became my own, and six months later I've accepted them as part of me. I'm very hopeful for you too. And I'm really glad to  hear that you're past the big surgery, healing well, and walking outside, and sounding upbeat. Hoping for happy healing and lots and lots of rest.

  • lahela
    lahela Member Posts: 515
    edited March 2014

    Deb, having a BMX with immediate DIEP is a huge step. I can only speak from my perspective, of course, but I think it's harder for us psychologically, because we go from boobs to noobs, where delayed recon ladies go from nothing to something. We are dealing with loss first and foremost. I went through a long phase of looking at my noobs as "not my boobs" but after 6 months they have become "me". After a long time of seeing them as scars, I finally really like them! They're plump and warm and soft and I look good in a bra - I feel sexy! You'll get there, honey. {{{hugs}}}

  • TBerg
    TBerg Member Posts: 27
    edited March 2014

    Thanks Deb, Janet and Lahela for these comments. I have been thinking....I'm almost 5 weeks out and am still not loving my newflaps yet. Maybe because I had te's and had to get used to them for over a year, and now I have to get used to something else..

    they still don't feel like mine, but I guess I will get used to them.....?

  • Janet_M
    Janet_M Member Posts: 1,068
    edited March 2014

    Tberg - I think you will get used to them. I got used to mine when I stopped thinking about it. And may I say, my original boobs were pretty fantastic. For a few months after surgery I felt like I was wearing a snow suit, but now they are a part of me. One of them  (the one that had radiation) is a little bit flatter, as though it was a bundt cake that had something heavy sitting on it, but the other one is lovely, and since they're mine, and healthy, I love 'em.  You will love yours too - but don't try too hard just now.  Five weeks is a blip in the healing process and you still have a lot of healing to do.

    Janet

  • Rosebud14
    Rosebud14 Member Posts: 18
    edited March 2014

    I want to thank everyone for your supprt and prayers. I came home from hospital  last night and I am doing well. I thinkthe surgeons did a great job..more latr

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited March 2014

    So good to hear, Rosebud! Now rest, drink fluids, take little walks and don't get too constipated!

    Lahela, a SEX date was the furthest thing from my mind! I better schedule one of those....

    I loved my original boobs. These aren't quite as lovely, but I'm okay with that. I didn't even know about making boobs from belly fat when I started this whole thing a couple of years ago! I consider them a gift.

  • annajo
    annajo Member Posts: 84
    edited March 2014

    Job done and apparently a "textbook" case.  Feeling better by the minute.  Thanks to all for your good vibes!

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2014

    Great to hear such good "checkins" from the newbies....rest and heal....give yourself time, physically and emotionally....you will amaze yourself as to where you "are" in a few months!

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited March 2014

    Yeah.  Sounds like everybody is doing okay.

    Anna, you sound good already!!!  Awesome

    Today is my wedding anniversary, and my cancer anniversary.  It was an emotional day.  I hope I get to a point where I don't remember this time of the year as the worst time of my life.

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2014

    goldie.....congrats on the years of marriage, how long has it been for you???......hope you find ways to build up many more "wonderful" emotions in the future, and leave the difficult ones in the past.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited March 2014

    Oh, Goldie, that's rough. I hope it gets better and better from here on.

  • lahela
    lahela Member Posts: 515
    edited March 2014

    Goldie, I'm so sorry that those two things had to coincide! Congrats on your wedding anniversary - you and your DH sound like quite a team!

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2014

    lahela!!!!  Stage 2 tomorrow??? Goodness, so many of us will be in your pockets! Hoping for an easier time of it for you....no complications, gentle and total healing....you're getting there!

  • Zenful
    Zenful Member Posts: 599
    edited March 2014

    Good luck tomorrow, Lahela. I will be thinking about you. Sending positive energy and healing vibes your way.  

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited March 2014

    Lahela, big hugs for a great stage II!

  • kelleyb
    kelleyb Member Posts: 94
    edited March 2014

    Lahela - good luck tomorrow!  Becky, I'm happy to email you a couple photos if you can't get to the picture forum.

  • Janet_M
    Janet_M Member Posts: 1,068
    edited March 2014

    Lahela - Best wishes tomorrow - you're heading for the Finish Line! 

    I picture your finish line being surrounded by gorgeous mountains and chocolate. And if that's not the case, I hope your day is equally as beautiful. 

  • Donna2012
    Donna2012 Member Posts: 201
    edited March 2014

    jmb5 - please add me on the list for stage 2, 4/24/14.  Thank you!  

  • jbdayton
    jbdayton Member Posts: 700
    edited March 2014

    Lahela - best of luck tomorrow; praying for great results and quick healing for you.  

  • annajo
    annajo Member Posts: 84
    edited March 2014

    best of luck, lahela. 

  • lemon68
    lemon68 Member Posts: 684
    edited March 2014

    Hello

    Happy healing to those who already have had their surgeries and those about to have them.

    I keep reading on sites about the drains still being in once home. Did your have someone in your family empty them or did a nurse come to do this for you? Or did you do it yourself? Wanting to know how difficult it was to monitor them and care for them once home. I see lots of comments that they are bothersome, are they painful too? They look like they may be.

    Thanks so much for answering all my questions.

  • Beebop
    Beebop Member Posts: 206
    edited March 2014

    kelly - Thank you!  I think I am in, I am just waiting for the final authorization.

  • Ridley
    Ridley Member Posts: 634
    edited March 2014

    Lahela - good luck tomorrow. You are so close to being finished!

    Lemon - I think most come home with drains.  I had four.  I could empty them and measure the contents myself with no problem by the time I was released. Would be easy for someone else to do as well.   I had a home care nurse that came every second day to change dressings and she removed all but one (which was removed at my post op appointment).  

    I didn't have any pain with them, except two stung when being removed (for seconds and then it was gone.). I did worry about pulling on the tubes, but used safety pins and attached them to my clothes.  I had a surgical bra with pouches for the breast ones and had concocted a belt with Velcro pouches for the abdo ones, and didn't use either.  Safety pinning them to my pjs or clothes ended up being easier for me.

    For the most part, I was sleeping in a recliner while I had them in, so I didn't have to worry about rolling on them.  I used a nametag lanyard around my neck and safety pinned the drains to that while having a shower.  I have heard of others using a clean shoelace or a thin scarf.  Overall, they were a bit of hassle, and I was very happy when the last one was removed, but based on my experience, nothing to worry too much about.  I know that's easier to say from where I'm sitting:)

    Ridley

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited March 2014

    Good luck tomorrow, Lahela!  I will be in your pockets, along with everyone else.....(AND Wilbur, too!)

    (((Hugs)))

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2014

    beebop..... I apologize.....I've lost track of what "authorization" you're waiting for????

    lemon....I came home with one drain. I had it for 4 days, before it slowed enough to have it pulled. I could empty it myself, and hubby and I were "taught" drain care pre-discharge. Hubby was the keeper of the drain for me though, as I wouldn't have been able to strip it very well, and quite honestly, just "having it come out of my body" was enough for me. Caring for it.....not interested. It was "uncomfortable", but I wouldn't say it was painful. Everyone feels them differently though.

  • lemon68
    lemon68 Member Posts: 684
    edited March 2014

    thanks Ridley and Nihahi for your experiences with the drains.

    now I really need to know who or what is Wilbur???

  • jazlaumir
    jazlaumir Member Posts: 91
    edited March 2014

    best wishes lahela! My thoughts and prayers for a successful stage 2!! 

    Lemon68: drains are uncomfortable. My daughters take care if draining them and keeping them clean around the opening. The frequency depends in how much fluid you're releasing, for me 2-3 times per day on avg. they are not necessarily painful as uncomfortable but I did get a slight infection so a mix of hydrogen peroxide and water to keep it clean helps. I found that placing a dressing around the wound helps. Each doctor has their own preference , so this is just what works for me best.  Hope that helps. 

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