Rockin' flatness like a bada$s

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  • jsjherman
    jsjherman Member Posts: 170
    edited March 2014

    Hey now!I am willing to share him but no stealing!  WinkingI have put 25 years into training him and if he couldn't trade me in for two twenty's when I turned forty, I guess I will stick with him. LOL... My dad simply told him he wasn't wired for 220 and he thought about it and agreed. This journey has been hard on him and we have come to realize even our own ignorance's about everything with the more knowledge we attain.  There is a lot of shock and fear that goes along with this and I know we are just beginning. I remember the journey with my back fusion and it wasn't easy, but he was insistent that he would take care of me and that our parents could step back and wait to help until he had to go back to work. He and our son took shifts staying up at night in case I needed help. Now that is family love and that is what I know will happen again. He has already told the folks the same thing this time. He is watching videos and reading articles on FORCE just trying to figure it all out.

    Badger~ I agree with Grammab, you and your mom are amazing and I place you in the category I hold dear for my mom (31 year uni)... I have come to love you ladies and am so thankful you are here. I love the sarcasm and wit, the laughter and the support. You all ROCK!

  • jsjherman
    jsjherman Member Posts: 170
    edited March 2014

    Ariom.... I did also want to add that you may only be "one brick shy of a load" but uni status is the same as flatness to me.. You live with the hand you are dealt and I pray that you never have to worry about the other side...

  • badger
    badger Member Posts: 34,614
    edited March 2014

    sailman, maybe you could do something like a caring bridge page? 

    http://www.caringbridge.org/

    You update as you are able and people get the info on your terms.

  • Morwenna
    Morwenna Member Posts: 1,063
    edited March 2014

    Hmmmm. 

    My original intention, or hope anyway, was to have a TRAM/DIEP recon after my uni Mx.

    Then fear of future cancer in the "good" breast led me to decided what I wanted was a prophylactic Mx, and bilat autologous recon. My remaining boob is DD/E, and I'd be happy to see a reduction in size, as well as feeling that the chance of a new bc was much reduced.

    Now I'm facing biopsy of a lump nr my mastectomy scar, presumed benign, but we need to make sure, right. And it suddenly struck me today that the best course might be to have the prophylactic, and then simply go flat, at least for five years when my chance of recurrence will diminish. By then I might decide I like being flat anyway! I'm suddenly worried at the thought of a recon making it hard to detect a new or recurring cancer! Dammit.

    Oh dear, now I'm just swinging wildly from one opinion to another!! 

    I see a ps in May, so hopefully I will get my head straight by then!!

  • jsjherman
    jsjherman Member Posts: 170
    edited March 2014

    Morwenna the only advice I can give you is what I did. Make a list of pros/cons for each recon or flat and see where you stand. That really helped me a lot. Stay strong  and (((huggz)))

  • Morwenna
    Morwenna Member Posts: 1,063
    edited March 2014

    Thanks js, 

    I think the first step is to get past this biopsy, and hope for b9! 

    Then after that it will be just one thing at a time .... 

  • bobogirl
    bobogirl Member Posts: 2,777
    edited March 2014

    Welcome Morwenna!  We have all been there with the pros and cons!  It's so difficult.

    Sailman, you are so sweet.  Wanting to educate people, especially loved ones who care.  Too sweet.  I might submit that you could let yourself give up that job, if you wanted.  You might find people you're trying to educate hear what they want to hear anyway.  You might find it isn't worth it to you, and your feelings might be hurt in the process.  I would hate for you to go through all that.  It isn't your job to educate anyone, or the whole world, or selected people.  They  can read a book about it.

    If you want to do it, then by all means do it.  And please excuse me for extending this suggestion.  I am just a nasty bad-as$ with a great deal of experience!  You are a sweet ingenue and we are all going to steal you.  :)

  • badger
    badger Member Posts: 34,614
    edited March 2014

    My DH just didn't talk about it.  He'd say (badger's) OK and then clam up.  I'd asked him to please not talk about it and he didn't, except to his mom but I told him that was all right.  He was frightened and had to talk to someone.

    It's hard on us but maybe worse for our men because they're on the sidelines, feeling helpless. ♥

  • aunt_paula
    aunt_paula Member Posts: 271
    edited March 2014

    I am hoping not to have to fire him--I'd be in the same place as you, bobogirl, trying to figure out who to get instead. His practice has the reputation of being the best in the state, as far as the doctors and the quality of their work, and his partner is retiring, so I don't think that would be an option even if I thought it would be better. I can handle some degree of condescension (by handle I mean address it directly and give him the option of reining it in--at our initial consult visit he said something like, "What people don't understand about this surgery [mastectomies/reconstruction] is that it hurts." I said, "Really? So should I cancel my lunch plans for that day?" and he got it and reined it in), but there's a limit. He did spend a very long time answering my questions/giving me lots of information about different options, and not pushing reconstruction, which definitely makes a difference.

    I had colon cancer 15 years ago, and my mother died a few months ago after a 13-year battle with colon cancer. We have spent a lot of time in doctor's offices and I am very comfortable letting them know my expectations (that they listen and address my questions/concerns--disagreeing is fine, but they have to listen) and have fired a couple. The first time I fired one it was after I realized that he could afford to be cavalier because his life was not going to change if I died/had serious complications/etc.; it was just going to be another day at the office for him. That helped me tremendously, and now I have an awesome team of doctors. 

    I am not sure I want to pursue reconstruction, but if I decide to, I really would like to do it this year since my out-of-pocket maximum has quadrupled--once that's met, I'd really like to use my 100% benefits if I am going to do this. (That's probably a pretty bad reason overall to make a decision, but it's something I definitely have to think about.)

    Paula

  • aunt_paula
    aunt_paula Member Posts: 271
    edited March 2014

    I did see the PS again, and wasn't really satisfied with how it went, and I'm not sure I can even specify why. I have been struggling with the decision about the surgery, and yesterday a good friend pointed out that I clearly really don't want to do it, but for some reason I keep trying to talk myself into it despite my gut telling me not to. I think I needed to hear it put that way. I am on the surgical schedule for May, but am calling to have them take me off. I appear to have developed/be developing LE, and I think that helped put it over the edge; I don't want anything to complicate that. 

    I got my mastectomy bras and forms yesterday, and wore one of the bras today. It was hilarious to me--I could hardly keep a straight face, and when I was teaching and gesturing, I kept hitting them. It was nice to have affirmation that flat is fine with me--I'm glad to have options, but I don't really see wearing them normally. I have a wedding to go to in a couple of months, and I'll wear them then because my dress won't fit if I don't, but I am looking forward to a summer of rocking the flatness. :)

  • grammaB
    grammaB Member Posts: 1,172
    edited March 2014

    aunt_paula, that's exactly how I felt the couple of times I tried my foobs and bras and I only wore them around the house!!  I don't see me ever wearing them anywhere!!  Sorry about the LE, I hope it is manageable.

  • aunt_paula
    aunt_paula Member Posts: 271
    edited March 2014

    So far so good with the LE. Mornings are not so bad, but by night I feel it more, and when I'm driving a longer distance than usual I notice it. I am waiting for the lymphedema clinic to call with an appointment, and have a lot of questions for them. 

    I am enjoying not having to deal with a bra, but it feels a bit strange to get dressed and not have one on (not the foobs lol ). I think it's more a mental thing than anything. At the same time, I love having the ability to be flat. I bought some camisoles I really like (no foob pockets, just cotton), and it's so nice to be able to wear them--but then I'm back to feeling like I didn't finish getting dressed. I can't win with myself! LOL

  • Wren44
    Wren44 Member Posts: 8,585
    edited March 2014

    Aunt Paula, I remember long ago when I didn't feel dressed without my girdle, hose and high heels. I would feel like I was in costume to wear those now.

  • BikerLee
    BikerLee Member Posts: 355
    edited March 2014

    great thread!!! love it!  

    i love rockin the flatness.... i love going bra free! i love sleeping and rolling over without boobs... i love jumping up out of my chair without a second thought about my boobs... i love going for a run. i love riding my bike - potholes are much less sucky now!  and more....

    have a flatabulous day!

  • bobogirl
    bobogirl Member Posts: 2,777
    edited March 2014

    Bikerlee, you rock!

    Sorry I have not been on the thread lately.  This third sx has me dragging a little bit.  Figuring out what to wear seems like an uphill challenge.  Hoping to bounce back soon. I want to be at 'bikerlee stage,' but right now I'm pretty tight and sore.

    Rock on, flat sisters!  XXXX

  • lgoldie
    lgoldie Member Posts: 120
    edited March 2014

    Right on.  I am 55 and enough will be enough

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    Just noticed your "new to me" thread, and if we could change our avatars for one thread, on this one, I'd call myself Cute&Concave.

    Have written on several other threads about my explantation process, and the JOY of Deeeeeeep Breathing now with the small silicone poached eggs ( one ruptured & I didn't even know it) being sent Not to Heaven ( where the other parts are waiting for me, if I decide to ever go There) and hope our experiences, and our words, are helping other women to be WHOLE and Wappy, oops, Happy however they are.

    C&C - a subset of the Flat&Fabulous Group

  • Bettyboops
    Bettyboops Member Posts: 239
    edited March 2014

    Good for you Sunflowers! I am waiting for a surgery date to have my implants removed. They were put in last year about this time after TEs and you know the drill. They are basically failing and falling and darn uncomfortable. Went to new PS for an opinion and he was horrified at the job that was done by my first PS and wanted to replace them. I said I'm done with the implants. I ended up not liking how they feel and also I don't like having something unnatural inside my body. Any other options for recon are so scary that I said "no, stop the madness!" I'm still trying to get my head around being "flat" but I know that my body will be healthier and I can finally move on emotionally.  My body is not happy right now with these darn implants. I know what you mean about enjoying deep breathing. I can't do anything without feeling the pull of my muscles in front of the implants - even something very easy like tai chi - so unnatural and uncomfortable. Your post has helped me feel more acceptance about the explantation. Thanks.

  • Bettyboops
    Bettyboops Member Posts: 239
    edited March 2014

    Ha ha ha bluetail! I was thinking the same thing the other day ! I am waiting for a date to have my implants removed with no recon. It's so funny that as we sit emotionally overwrought in the PS office, other women are tweaking their nose or lifting their eyelids. I am 56 and had the same thought process as you about -heck - I'd rather have a face lift than DIEP or more implants!

     My implants are falling and failing and ruining my chest muscles. they must come out to either be replaced or not. I'm choosing to get rid of them and saying "no" to any more recon. Very debilitating. I'm glad that they have to come out - a blessing in disguise but I'm having a hard time getting my head around being "flat." It helps so much to be part of this discussion. I know my body will be happier in the end! Although recon can be a great option for some women, some of us have bodies that just don't want reconstructed breasts.

    Best,

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    bettyboops - i sent you a PM.  The M after sunflowers is really MA, but too long for it to show, I guess.

    POTHOLES - ROTFLMAO.  Truly.  Just how I feel with my original long, pendulous ( TMI?) originals which I harnessed with an Olga Minimizer, and then, after surgery, chemotherapy, an feeling better except for the phuquing TE's, then implants, I CUT UP all my old bras, and saved the underwires.

    No, not coat hangers, MOBILES for my friends, who have been SO good to me thru this whole process: acrylic paint, swarovski (sp?) crystals, hanging strands of beads, glue, feathers, CELEBRATION.  So good not to have to wear a bra.  NO FLOMPING.  NO sportsbra squooshing.

    potholes - how timely given what we're dealing with in western MA, and yes, it is STILL snowing. 6 degrees tonight, windchill supposed to be below minus 5.  So, guess I should mention how WONDERFUL Lanz flannel nightgowns now feel on my chest, and yes, still laughing, rolling over is so much easier.

    What a great group of women y'all are.

  • Bluetail
    Bluetail Member Posts: 52
    edited March 2014

    Good to see some recent activity on this thread!

    Cute and Concave!  Perfect!  And i know exactly what you mean by the 'potholes' where they used to be and that term may slip into everyday speech soon...

    There is only one time and place where i feel a bit awkward about my otherwise bada$$ flatness (concaveness?) and that's the gym, after a shower when i'm getting dressed i find that i'm kind of cowering in the corner, facing in, and waiting until no one's around before i put on a top.  How do the rest of you handle situations like that?  

  • Sunny_Girl
    Sunny_Girl Member Posts: 111
    edited March 2014

    Bluetail - i haven't started going to the gym yet, but plan on doing so, so I can start exercising in the water. I'm overweight, so a bathing suit & a dressing room are a bit overwhelming for me.  

    I still love being flat and will figure out how to get over my modesty!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    bluetail - exercise with free weights at home ;)  I think, if I were in public with my C&C chest, I'd be kind of "on guard" for questions, and have to talk about bc, which I don't like to do.  UNLESS, I'm with a group of bc women...think it may be more of that...IMHO.

  • Tomboy
    Tomboy Member Posts: 3,945
    edited March 2014

    sunnygirl, modesty is a quality that is sorely lacking in this world, please don't ever lose that! i think it just takes time for us to be able to reveal our bodies in all their scarred up glory, no matter what we have done. as you can see, i only had lumpy, but i have seven scars(collapsed lung scar,n others) you know what helped me is showing my girlfriends. because like me, they really were uneducated about the real facts of what bc does to one.

  • Wren44
    Wren44 Member Posts: 8,585
    edited March 2014

    I have to say that the prospect of stripping off my suit and showering nude has kept me from going back to the pool. It's one communal shower in the middle of the room. There are a few dressing rooms off to the side, but not nearly enough for the number of people. I'm only half flat, so that may be even more noticeable.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    Wren -  I hear you....even in time, I think there's always a sensitivity when with women who aren't good friends, AND who don't know about bc.

  • Bettyboops
    Bettyboops Member Posts: 239
    edited March 2014

    Sunflower, You sound so creative!! I would never have thought about underwire mobiles! Too funny. Sounds like a business in the making...I'll ship you all my old underwires! 

  • Bettyboops
    Bettyboops Member Posts: 239
    edited March 2014

    Wren, I met with a prosthetics gal last week and she showed me inserts for bathing suit or for working out made of tiny, tiny plastic beads that don't hold water. Have you seen these or tried them? Since I haven't had my explanation yet, waiting for the date, I'm checking out all the prosthetic stuff. Any comments about bathing suits and swimming? I thought I'd wear a small prosthetic In my suit but maybe I won't. Not sure yet.

  • Wren44
    Wren44 Member Posts: 8,585
    edited March 2014

    If you wear the microbeads in your suit, be sure to have them in a pocket because they float. I made a foob for my swimsuit out of nylon net and used it for a year. This year I bought a swim top from Lands End and I'm very pleased with it. Their mastectomy tops are cut higher in the neck and underarm and come with pockets. My authorization letter says I can have a silicone form every 2 years or a swim form every 6 mos. I'm going to have to ask what a swim form looks like. If you get a Lands End catalog, the little M in a circle means that top has a mastectomy version. It seemed like the majority do.

    I ordered forms made out of the micro beads from mastectomysolutions.com, but ordered a larger size than needed. I made a smaller one and used the beads in it. I would get another, but I have no idea what size to order. The website has instructions for making your own and other ideas for clothing. Mary is a member here.

    I think I would just go flat if I could. Or a very very small form sewn in the suit maybe.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    LOL - Bettyboop, just answered your PM and mentioned the prosthetics ( which I can never spell? or pronounce, for that matter!) for a bathing suit...and then came to read this thread.  This will be my first summer C&C, but I'll probably still stay flat.  There was a thread way back when, about how to MAKE them with those microbeads....

    The only time I tired to make a pillow years ago out of those beads, it was a JOKE - they stick to everything, and make a HUGE mess.

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