New diagnosis Stage III

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Nurselaura
Nurselaura Member Posts: 68

Hello, my name is Laura and I am new to this site asI have recently been diagnosed with IDC stage 3A 6.1 cm breast tumor T3, N1 4/19 nodes positive largest node 2.2, High grade, ER + HER2+ Wow that's a mouthful. I had a right modified mastectomy with lymph node dissection last Monday so I am Day 5 post op. Can not wait to get the 2 drains out. I am happy to have found this site, filled with lots of good info, support and tips. I am also a Registered Nurse of many years and now find my self on the "other"side. I believe I will be getting a port soon and then starting aggressive chemo. Feeling positive as I am a realist, but I know I have a difficult year ahead, glad to take this journey with you all!

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  • wintersocks
    wintersocks Member Posts: 922
    edited February 2014

    Nurselaura,

    Hi and welcome to stage lll. Saying hi from another stage iii also. Yes, you do have a tough year ahead, but this site is a great comfort when the going gets tough, so be sure to come on here often for any support/help/info you might need. It has been a lifesaver for me.

    I am nearly 2 years dx (20/2/12), but not celebrating anything, just sorta sitting quietly on this.  

    Best Wishes

        

  • TectonicShift
    TectonicShift Member Posts: 752
    edited July 2020
  • Nurselaura
    Nurselaura Member Posts: 68
    edited February 2014

    Thank you TectonicShift for the encourgmant, we are very similar in our diagnosis, I will be grateful to be on the other side of treatment as you are. Good to have the support. I will keep you all updated on my progress!

  • Nurselaura
    Nurselaura Member Posts: 68
    edited February 2014

    so nice to hear from you wintersocks, we have similar diagnosis. I can understand your hesitation in not wanting to celebrate as yet. I will probably feel the same way. This cancer is so insidious in that it comes out of nowhere, so we tend to be leery. I am at the point now of taking every day/week as a gift, because you never know. I see and have seen so much suffering and death from my many years working as a critical care nurse that I am comfortable around sick people, but appreciate being well. 

  • ziggypop
    ziggypop Member Posts: 1,071
    edited February 2014

    Hi Laura, 

    Sorry that you have been diagnosed with this, but I'm glad that you have found this site. I'm glad that you are done with the MX - each 'treatment' completed is a step in the right direction. Chemo is different for everybody - I did six rounds of TAC, the first was fine - lost my hair after two weeks but nothing else really, second round made me tired and a little dizzy, third round put in in bed and I began having every SE in the book, shortly after the 5th round they put me in the hospital as my blood work was so out of whack and I really could almost not stand up, they had to cut my last dose in half. 

    I'm saying all this not to scare you, but to let you know that it really is very different. it depends on what type of chemo you get and just how your body responds to it. It is a good idea to prepare yourself for the worst - i.e. have frozen meals prepared, have your bed set up in the most comfortable way as possible. ake SURE to take a stool softener during hemo & drink lots of fluids. But really, go to the chemo threads - there are lots of good suggestions & it's better to be safe than sorry. 

  • Nurselaura
    Nurselaura Member Posts: 68
    edited February 2014

    thank you Ziggypop for the priceless info you gave me, I realize everyone is unique in how they respond to the treatment, but as you say it is better to know the possibilities and be prepared. I will look to the chemo board for specifics, but like this board so I can establish friends who are going through this at the same time. Wish me luck! 

  • Holeinone
    Holeinone Member Posts: 2,478
    edited February 2014

    nurselaura, 

    Sorry you are here, but welcome! 

    I assume we all are shocked in the beginning, being dx with stage 3.  This website is a lifesaver, I did not find it until I was almost done with chemo. There will be a March chemo group, or you can start one or join the group that just got started. 

    The treatments are difficult, I had dose dense A/C & dose dense Taxol. Very common for stage 3. I think Ziggys advice about stool softener is so important. The anti nausea meds cause constipation & headaches. I hope you can adjust your schedule and not have the stress of working, although alot of ladies do, and report it is ok. I took a medical leave of absence..

  • Nurselaura
    Nurselaura Member Posts: 68
    edited February 2014

    hi Holeinone, thanks for the info. What does dose dense mean? I am on a leave as it I would not be able to continue my work as a bedside nurse working in critical care. I may be able to come back latter for modified desk work I hope.

  • Holeinone
    Holeinone Member Posts: 2,478
    edited February 2014

    Dose Dense is the protocol of getting the chemo every 14 days instead of 21 days. It seems that I see alot of the 21 day schedule for stage 1 or 2. It is easier on your body, but statistics show that the dose dense has better results. More likely that you will need a Neulasta shot for blood counts. I had one 24 hours after each chemo. 

    I was glad that I was able to do the dose dense. Sped things up, I did find some study that said it gave you another 2% survival. ( my surgeon said the same ). So many decisions, I hope you are comfortable with your MO.

  • Nurselaura
    Nurselaura Member Posts: 68
    edited February 2014

    so much to learn huh? Thank you for the info.

  • TectonicShift
    TectonicShift Member Posts: 752
    edited July 2020
  • Elizabeth1959
    Elizabeth1959 Member Posts: 346
    edited February 2014

    I just wanted to say hello.  You have a difficult journey in front of you.  Because I have my own practice, I had to work through much of chemo.  I also did dose dense chemo.  If you can afford not to work, I would recommend not working.  I was able to work through radiation without too much difficultly.  You will surprise yourself with your strength.  I tried to break it into manageable increments.  A/C was the worst, taxol was bad but not as bad as A/C.  Radiation was much easier than any of the chemo.

  • lkc
    lkc Member Posts: 1,203
    edited February 2014

    Hi Laura, Welcome to the group. It's an awesome place to log on and connect with other Stage III ladies. You are in the early days which for me was the hardest. I am a nurse as well and  was dxed with Stage IIIC;mega nodes 12/14 extracapsulated and actually both axillary and sentinel nodes were totally replaced by tumor, lymph/vascular invasion, ducts, lobes and even Pagets of nipple i'd

    HER 2 pos, and after final surgery  small dirty margins on chest wall.  This was all in 2005. I am well and although BC is always in the recesses of my mind, it  pops up only occasionally as a memory.

    I wish you a gentle ride. We've all been there. Come here often. It will help.

  • Bugs
    Bugs Member Posts: 1,719
    edited February 2014

    Hi Laura,

    You've come to the best place to vent, get answers, and talk with people who "get it."   It's what got me through this crap and it will get you through, also.  Drains are the worst, you will feel like a brand new woman when those get out!  I am 8 years out and doing great.  

  • Michele2013
    Michele2013 Member Posts: 350
    edited February 2014

    Hi Laura,

    Just wanted to welcome you. The port is a blessing and before you know it, you will be done with chemo.

    Hugs,

    Michele

  • ziggypop
    ziggypop Member Posts: 1,071
    edited February 2014

    Hi Laura, Just checking in to see how you're doing. Also, I wanted to add one thing which as a nurse you are probably very aware of. Chemo can really do a number on our immune systems and it makes us prone to some things (mouth sores - yuck! sooooooo nasty), gargle with baking soda mixed with water everyday, but also do the basic things to make your house more hygenic - paper towels rather than hand towels in the bathroom, clorox wipes in the car for the steering wheel, etc. Stay away from anyone with chicken pox or shingles. 

  • Nurselaura
    Nurselaura Member Posts: 68
    edited February 2014

    thank you all so much. I find I look forward to coming back to this discussion to check on the updates and priceless info you ladies are giving me. Feeling blessed!

  • Nurselaura
    Nurselaura Member Posts: 68
    edited February 2014

    thank you for sharing ikc, your encouragement means so much!  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    Hi Nurselaura, 

    Take one day at a time during treatment.  You are healing and are at the very beginning of this journey.  I know you are in the right place for encouragement.  Here on the stageIII forum the ladies are all great, and have always been very encouraging.  I lurked here a long time before posting. 

     I also like to scan thru the Active topics, as well as All topics listed above on the left.  There are a lot of helpful topics that may interest you, also.

    Oceana

    marvelous-nicole-rodriguez.jpg (180×119)

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited February 2014

    Hi Laura and Welcome, but sorry you have to be here.  You definitely have a great attitude and that is going to help you A LOT along the way.  And we will answer any questions you may have.  You have found a great group of ladies here!  (and the occasional man :).

    Take care,

    Sharon

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    Nurselaura - your pathology & mine are just so similar !  I am 5 year survivor and probably your treatments will be close to what mine were.  Will you be getting an oncotype score -?  Maybe not since they already know you had pos nodes and will need chemo.  Stay strong !!  Shelly

  • Nurselaura
    Nurselaura Member Posts: 68
    edited February 2014

    Hi Shelly, thanks for checking in, yes we have a similar diagnosis, I asked about the oncotype at my posrt op appointment and she said because I am already lymph positive they would not do this test. I see my MO tomorrow the find out the next steps. Feeling good at this point!

    Laura

  • Nurselaura
    Nurselaura Member Posts: 68
    edited February 2014

    Thanks Sharon, I am in a good place right now so I feel positive about what ever comes my way. Fight On!

  • Nurselaura
    Nurselaura Member Posts: 68
    edited February 2014

    Thanks so much Oceana, I am trying to take it one day/week at a time and that seems to help. So glad I found this site and all the support. ;)

    Laura

  • jennyboog
    jennyboog Member Posts: 1,322
    edited February 2014

    Welcome Nurselaura!  I hate you had to join us here in "BC city".  I hope you find the same love and support I did here.  There are so many caring people who have been there done that & understand the rollercoaster ride that is BC...many are several years out of tx.  Treatment is not always easy but managable and you will get through it.  Please come here often, we're always here with hugs and opinions :)  Hugs and prayers coming your way sweetie.   

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    Nurselaura -- sounds like you have great positive energy which is FANTABULOUS !  We continually kick BC's butt to the curb!   I had the onco test before any surgery but could as well have thrown that number out the window because of pos nodes "after" mast surgery. Plus had all "grades" in tumor which I don't know how common that is and I guess never have asked.... Smile
     

  • cancerisnotmyhappyplace
    cancerisnotmyhappyplace Member Posts: 49
    edited February 2014

    Laura I followed you here!  Today I got my patho report and graduated to stage 3 with you. 

    To everyone, hello my name is Kyla.  I am also a nurse but in the emergency department. I am currently on leave trying to decide if I can work at all or should let the job go. In the midst of this cancer commotion, I am finishing my lastcourse for my masters program, and prepaaring to move this summer.  I am feeling overwhelmed and cry at random thoughts and moments.   My next steps are scans and echo in prep for chemo. Am so hoping for clear scans. Briefly met my MO and felt he was calm and confident.  

  • Holeinone
    Holeinone Member Posts: 2,478
    edited February 2014

    cancerisnotfun, 

    Kyla, sorry that we had to meet this way. Holy smokes you are one busy girl, and now this. 

    Chemo generally lasts around 4 months. Do you have a date to start? I bet your armpit is sore from the sentinel biopsy. The scan now are terrifying because of the positive nodes. I have no idea how I got through that. Actually, I cleaned like a possessed women. I hate to clean. It really is easier once treatment starts, because you have a plan. Keep posting, helps with anxiety.

  • cancerisnotmyhappyplace
    cancerisnotmyhappyplace Member Posts: 49
    edited February 2014

    Thank you Holeinone, I am still recovering from both surgeries and one drain left. BS said they like to let healing after drain removal before chemo. No date yet but getting myscans and echo done in next 2 weeks and then meet with MO. Hoping to get it started before end of March. 

  • TectonicShift
    TectonicShift Member Posts: 752
    edited July 2020

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