DIEP 2014
Comments
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So good to hear from you kat. Glad surgery went well now let's pray the healing process goes as well.
Ok Wilbur behave yourself. Hope you can get plenty of rest.
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Kelley, thank you for posting your pictures. I see what you mean by the one breast being higher than the other.... But that is just because you haven't had the lift on the other one yet. When I was heading into surgery, my surgeon said that she would do the diep breast first, then if time permitted (meaning she didn't want to keep me under general for too long) she would do the lift and reduction of the other breast. If she did not have time, then it would be done with stage 2. She ended up having time - so that is why I have uniformity now. You'll have it too - with your stage 2. When I saw her this week she said that she thinks my reconstructed breast is slightly wider than the other - I didn't notice it until she showed me. She thinks it is due to some swelling and it will not need an adjustment, but if it does - she said lipo will fix it. I was told by others that stage 1 is just to successfully transfer the tissue, stage 2 is to make it look good. I would not be worried about your breasts not matching at this stage, I think everything will be fixed with stage 2 & you will have uniformity. How is your stomach incision? Is it healed by now? I got the go ahead to begin using silicone strips for scar reduction, so that is what I am working on now. I just ordered a long one for my abdominal scar.
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Hi Ladies,
Struggling with sleep while on these stupid by SaveNewaAppz" in_rurl="http://i.txtsrving.info/click?v=Q0E6NDczNTA6MTMwNDpjaGVtbyBkcnVnczozMjJlYjA1MDFkOWUyZDc1ZWJiNzZmNjI2ZThhOGEyNTp6LTE1NDYtMjg3NjA5OmNvbW11bml0eS5icmVhc3RjYW5jZXIub3JnOjExNjc2MzowOmE5OTUwOTZkZDc3ODRjNWQ4NTJiMzQyM2JlNDYwZTk2OjA&subid=g-287609-2868c43fe0c74774887d19a8af1e14c5-" id="_GPLITA_0" href="#">chemo drugs
....alternating between a few nights of no sleep, ativan and over the counter Unisom. I just cant go down the road of getting immune to Ativan or by SaveNewaAppz" in_rurl="http://i.txtsrving.info/click?v=Q0E6NjA0NjQ6MzU4MDpzbGVlcGluZyBwaWxsczo2NGUwNDY2NmRiYzc1NmRhZDhiOGI5NGM5NzJhZGM4YTp6LTE1NDYtMjg3NjA5OmNvbW11bml0eS5icmVhc3RjYW5jZXIub3JnOjE4NTI2OTo1MGU1MzM2Zjk1OGUyNWJjMzkxZWE2NjUyMWZiMTAzYzo5NWRhYzBjMTE5OTg0ZmFmYmY1MGMwN2E0N2E4NGNlYzox&subid=g-287609-d61f8361f0f541fe9561bcae01c98f66-" id="_GPLITA_5" href="#">sleeping pills. I do take the Ativan for the three consecutive nights that I need to take the steriods each round.The past few nights I have taken nothing so my body doesnt get use to one thing...last night I went to be at 11:30 pm. and last looked at the clock at 3:00 am. as I was still awake. Pretty tired today but somehow functioning, I guess because I am on sick leave and dont have to work. The night before I took nothing and actually fell asleep within an hour of going to bed and awoke about 3-4 times which would have been my normal sleep prior to this 2nd diagnosis and chemo starting.
Tonight is over the counter Unisom night...cant wait for some zzzzzzz`s.
I am struggling with fatigue from chemo, other than that since day 8 post treatment, no by SaveNewaAppz" in_rurl="http://i.txtsrving.info/click?v=Q0E6NjAyOTY6MjEzMTpjb25zdGlwYXRpb246NTMyMzA2MmJiY2ExNWI2NWQ2ZGI1Nzc0YjgyOGM1NDQ6ei0xNTQ2LTI4NzYwOTpjb21tdW5pdHkuYnJlYXN0Y2FuY2VyLm9yZzoxODQ4OTI6M2QwZGI4MzcwYWNlOTczZTdjYjFjOGMzNjBmMDBjZTk6YWM2M2FmZjFiOTE5NDM1ZmJlMTkzNTVkMTIzYmU5NDU6MA&subid=g-287609-2868c43fe0c74774887d19a8af1e14c5-" id="_GPLITA_1" href="#">constipation
..PRAISE the LORD, have my appetite and no by SaveNewaAppz" in_rurl="http://i.txtsrving.info/click?v=Q0E6NDczNTA6MTMwNDpib25lIHBhaW46OTc4NDEyNzAzOTk4YjU0ODQ2ZWRkYTMxYzNkZmNjZmE6ei0xNTQ2LTI4NzYwOTpjb21tdW5pdHkuYnJlYXN0Y2FuY2VyLm9yZzo5MDEyMTphZjRmYmM4OTI5NjgzNGIwOTNmMzQ1MjQ1MjVjYmQ1ODo2ZWI1MDJlYWMyYTI0MWY1YWYzNTYzNjlkNmU1Zjk0ZDox&subid=g-287609-d61f8361f0f541fe9561bcae01c98f66-" id="_GPLITA_4" href="#">bone pain. If this continues for the next three rounds I will be very thrilled!! I bit the bullet and had my hubby shave my head on Saturday night because my hair was starting to come out and it`s a little less stressful when you can take some CONTROL!
My picc line is driving me around the bend, I HATE IT with a passion. It has never felt comfortable since I got it put in 3 weeks ago. I cant wait until my last treatment on April 15 (if all goes as planned) when the oncology nurses remove it after my last treatment...it will be a HAPPY, HAPPY DAY!
I have chemobrain so please forgive me if I repeat myself....my onocologist has signed me off work until August 4 2014. I have a full 3.5 months post chemo to recoup before I head back to work:)
I am still down 19 pounds since my surgery and the start of chemo two weeks ago...I imagine if things go as they did the first round I will loose more weight next week.
Its strange but the last time I was on chemo, I was extremely hungry after I started to feel better each round. Thankfully that hasnt really happened this time and I am not getting that dreaded steriod crash!
Donna - your results look really, really good!
Lemon - I had skin sparing, non nipple sparing DIEP on Dec 16 2013. I was doing my surgery as a preventative due to previous bc in 2005, 2 sisters and an aunt with bc as well. I had a large tumour (4cm) with three positive lymph nodes in 2005. My chances of reoccurance were elevated due to my family history, low and behold my pathology from surgery found a new Primary BC in my left breast again, this time Triple Negative.
I know its hard not to worry, but sometimes we have no control of this disease. I went over 8 years without a reoccurance, just seems that it happened when I had this surgery. The chances of reoccurance with a masectomy are lowered significantly, yes reoccurances happen but the risk is something like 3-5% as there is a small amount of breast tissue left behind....try not to dwell on the `what if``s....it will DRIVE you crazy!K79miller - My PS wanted me off 3 months post surgery. My return to work was complicated by a new by SaveNewaAppz" in_rurl="http://i.txtsrving.info/click?v=Q0E6NDczNTA6MTMwNDpicmVhc3QgY2FuY2VyIGRpYWdub3NpczozM2VlMDIyZThhOTMwZDliMzRkMTMxZjg3ZmZlMGFmODp6LTE1NDYtMjg3NjA5OmNvbW11bml0eS5icmVhc3RjYW5jZXIub3JnOjExNjc2MzowOjBkY2YzMGZmMzMwMDRkNGViYzNlNGZlNmJmOGU0NTAwOjA&subid=g-287609-07171d07fd5543df88f35b100151adbf-" id="_GPLITA_0" href="#">breast cancer diagnosis
from this surgery. Physically my scars had healed by 8 weeks but I was still quite fatigued, everyone is so different in how they recover so you cant really put on a timeframe on things. I thankfully had no healing issues or complications. Some do and it delays things significantly in some cases...Beebop - thinking about you my friend and hope all goes well tomorrow! How are you healing...
Georgiegirl - I would be hesitant to do DIEP 6-8 weeks after radiation. The skin is still pretty tender and I would be afraid of having complications with the radiated side. I would wait at least 6 months or longer. I had my surgery 8 years post radiation and had no issues on my radiated breast.
Jmb5 - did i read correctly that you are wearing your white velcro binder outside your clothes I think normally it is meant to be worn under your clothes, I wore a cotton tshirt under mine. The retention of fluid is common for many months following surgery, I am 10 weeks post op and still wearing a spanx. If you are quite active the fluid may accumulate more but it can do the same without activity. Patience is the name of the game I was told by my PS....
Lastly, love and hugs to the ladies heading into surgery.....may things go smoothly for you!
Michele
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Two weeks today I had my Stage One DIEP. A little hiccup, I have extremely sensitive skin, react to almost everything, have to wear and use cleansers and make-up for sensitive skin. So under new breast/flap I'm reacting with inflammation. Dermabond peeling? Husband had to leave today, he's been here from the 10th, had appointments he could not break.
Tomorrow they decide if I will be readmitted to hospital for IV antibiotics for the inflammation. I am so ready to go home. Sorry, I am so tired and weary of the journey. I will be better soon.
On the good side, abdominal incision great, nice flat tummy. Built nipple looks good and flap continues to survive.
They had me see MO last Friday, and want me to start Aromatase Inhibitor within 4-6 weeks. I am such not a medicine taker, allergies always been a factor. The list of side effects made me feel sad, ( and that's not me :-). How has this medication worked for you? Were you prescribed for 5 years? Did you start before Stage Two revisions?
They kept my skin, my areola, (not a risk for ductal cancer-has only skin cells- unlike nipple which ducts travel through).
Nihahi, Wow your temps are colder than Minnesota! Love the Canadian and Minnesota Walleye fish.
My Minnesota friends, the people of this state are so wonderful and caring!! Always a hello, how are you today, anything I can do for you. Thanks for letting me be a guest in your Winter Wonderland!
Kay-ski, Good for you! Welcome to the flap side.
I will post more pictures on the private picture forum when I get through this hiccup! You girls are the best!
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Kat,
Yeah!!!! You sound good. Sitting up already is great!!!! Baby steps.
When you leave the hospital are you going back to your daughter's for a while before you head home?
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Bella,
Sorry for you hiccup. It will all work out. They got this. And, Dr. Saint Cyr won't let anything bad happen to you. Keep us posted on your progress.
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Bella, I have been on my AI (anastrozole generic of Arimidex) since November. I have experienced no side effects. Have me taking 1000 Vitamin E, 1200 Calcium with D3. My biggest fear is bone loss, so I will be diligent getting my annual bone density test. I have stopped the vitamins and calcium as of last week per PS and will go off the AI 1 week prior to surgery and not sure when I will resume taking it again.
Hopefully you will not be admitted for IV tomorrow. Yea for the flat tummy I am patiently waiting to join you on the after flap side. Two more weeks.
Praying for good healing.
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kat-ski, glad the surgery went well. Hope all goes well from here. Hugs!
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Congrats Kat ski, glad ur doing well!!
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katski....wonderful to hear from you post surgery. It sounds like you are doing very good....rest, heal, rest, heal....Glad to hear Wilbur is behaving.
jmb....honestly, I will not claim to completely understand the whys and hows of post-flap tummy swelling. I do know that excess fluid (swelling) is a normal response when body tissue has been "disturbed"....and the tummy incision sure qualifies for that!!!! I think it seems to build and "linger" in the tummy area for two reasons. First, the core muscles are not as active, so they aren't "pumping, moving" fluid out of the area. Second, The very long, horizontal incision, compromises the drainage of fluid down into the lymph system in our groin area. It seems that most of us have the swelly belly scenario on and off for the first 3 to 4 months, but there is no guaranteed pattern of activity or tx that completely avoids it. It is my personal opinion that "light compression", not the intense post-lipo compression, is a good way to get through this stage, as I think supporting the skin without completely taking over the "work" of the skin helps the body adjust and compensate sooner. I also believe that gentle massage done often throughout the day, is another good fluid management technique.
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Georgie..my PS is Dr. Pisano. I was told that he does most of the surgeries for out-of-staters.
Kat-Ski..so glad to hear that you're doing good & liking PRMA.
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I'm anxious to see how I handle the recovery with this DIEP surgery. With my BMX I was off the pain pills within 3 days & was back to work within 2 wks. It took a little longer than normal to get the last 2 drains out though. Since I was feeling pretty good I may have been up & moving around too much. I also handled chemo good. My only problem with chemo was being tired after the first 4 treatments. After those first 4 it really went smoothly. I know that I was very fortunate with how good chemo went & I thank God everyday for that.
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jbdayton,
How come they want you to go off your calcium and d3 before surgery? Did they say why? I wasn't never told that before. I understand the arimidex, that is a given.
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Curly - Way to go with the head shave! Bit the bullet to become a bullet. Is this the second time you've shaved your head? I always loved the way my bald head felt against a freshly washed pillow case - it's one of my happier chemo memories. So glad about your 3.5 months of convalescence - jeez, August seems so far away. I hope it gives you enough time to have a fabulous summer - you deserve it.
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Curly looks cute with her shave head. I like it. Of course, when your curls grow back we will rejoice with you , but you do look cute.
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Janet - yes this is the 2nd time I have shaved my head...first time when I had bc in 2005.
Bella - I took Armidex for almost the entire 5 years, started it just before radiation. I had estrogen/progestrone positive bc first time around in 2005. It must have done something because I am 8+ years out of that first cancer. This new breast cancer is not fuelled by estrogen - Triple Negative. I had really bad hotflashes while on Armidex, sleep was interrupted and had a hard time getting up from sitting on the floor and my knees would hurt walking downstairs. I had no ill effects regarding bone loss, my bone density was well within normal range. To be truthful, I stopped taking it at 4 years, 9 months because I couldnt stand the side effects:( Everyone reacts differently to medication, so give it a heartfelt shot, it's an important weapon in the arsenal for estrogen positive bc!
Michele
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curly....I just think you are an amazing woman. Going through such "crap" yourself, yet encouraging others.....it is an honour to "know" you!
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Kat, welcome to the other side! Now rest and heal.
Bellamomma, so sorry to hear of the hiccup and that you're doing it on your own now - sending positive thoughts to you.
Gently {{{{{hugs}}}}} to both of you and all the ladies here.
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Thanks Jen Jeni and TBerg! Kat-ski and Rosebud glad you are on the other side! Let the healing begin.
Goldie/Kelley I too wonder too about the link between breast cancer and HRT. I had to have my ovaries removed at 39, and had osteopenia. My doctor strongly recommended HRT for bone health and QOL. I told him I was afraid of increased risk of getting breast cancer if I took it. I tried for 3 months after my surgery with no replacement and it was just awful. Tearful, emotional, hot flashes, decreased concentration, insomnia. I was a hot mess. I finally went back and told him I needed help so we did a low dose of bio-indenticals. I was on replacement 7 years when I got my dx. of breast cancer at age 46. I too was on the pill for a few years. I know other women though who have been on the pill, HRT for years..and no br ca. I wonder if we all carry the ability to grow cancer and if all the right things align, the fire is lit so to speak. I have to wonder about the environment (chemicals, food we eat, etc) too. I think at the end of the day we all just have to know we make the best decisions we can with the information we have at the time. I'm so glad you gals are out there to talk to! -
curly, you are amazing! I hope these next couple months go by very quickly for you.
About the binder, what my PS gave me is just a long strip of material that wraps around me with Velcro on the end. There's no way to wear it under clothes. The next thing I'm allowed to start wearing in another week does go under clothes. It's hideous. I don't even know how I'm going to get it on. It has two zipper and hooks and Velcro in the crotch. Oh my.
Nahahi, thanks for the info. I was sitting around a lot too, which maybe didn't help the swelling. If I'm on my feet a little or a lot the swelling seems the same. I'm feeling better every day and up and doing more, which feels good.
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Bella, sending you prayers. Hopefully very soon you will be going home and continue to heal at home with your family. I know it must be hard to be away from home at a time like this. Sounds like you are in a friendly place though!
I hear you about the AI meds. I just started reading about them yesterday as my MO wants to start me on Femera when I see her mid March. I am not thrilled with the idea of taking a pill with those potential side effects either, especially the decreasing of bone density and increasing of cholesterol. I wish there was more solid research out there for the long term effects and benefits (or not) of taking these meds for 10 years which is now what some of the literature is saying according to my doc. I guess in 5 years, they might be saying something different based on new research! -
Curly, just saw your post. YOU ARE AMAZING! Saying prayers for you too for restful nights and peaceful heart. I am inspired by your strength, tenacity and your kind support of others.
Georgie
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good lord, jmb.....that second garment does sound somewhat "hid...." to use your words! Actually, though, from your description, it seems like the kind of compression garment that some gals wear post lipo. Maybe you could ask you PS if you have to wear that "specific" garment and why???
I think swelling to some degree, and unexplained fluctuations, is just the "norm"....remember that like every phase of this recovery, it's a passing thing. Glad to hear you are feeling better and enjoying doing a bit more....you're healing lady!
georgiegirl.....I absolutely agree...we are, after all, a bunch of "cells stuck together", biologically speaking, so yes, we all have the "ability" to grow cancer. The way through life is to make the best choices we can, with the information we currently have, as often as we can. No one will ever live a perfectly "healthy" lifestyle, and information is always changing, so ........ do the best you can each day and look forward, not backward.
have good days, everyone!
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Goldie, Georgiegirl, everyone who weighed in on the HRT issue--I completely agree with Nihahi. It's like the Swiss cheese analogy. When all the "holes" line up, something can happen. For myself, I took birth control pills for a few years, took clomid to get pregnant, and because I had intractable insomnia with menopause, was on a very low dose of HRT for only 13 months. I was diagnosed with ER-positive Stage III BC only 4 months after a normal mammogram, so do I think my HRT contributed to this? You betcha.
But then again, my mom and sister had BC and neither one of them every touched a pharmaceutical hormone. So I will not blame myself. My radiologist son said, "Mom, there is no smoking gun."
I'll eat my kale and exercise and enjoy life. In the meantime, nobody better publish a scientific study proving that dark leafy greens cause eyeball cancer or something.
Curly, you're an amazing woman. Strong, funny, resolute. We love you so much!
It's going to RAIN in California! It's all lovely and cool and overcast this morning--all of you come over and I'll make tea.
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in agreement with the hrt opinions of everyone... Briefly, here is my story - I was on birth control pills for 3 yrs, stopped to get pregnant ( at age 26). My cycle never resumed and I had extreme menopausal symptoms - wicked hot flashes (literally sweat running down my body)! Desperate to get pregnant - went to infertility specialists & did 9 rounds of pergonal & iui. (I considered this the lowest point in my life, before getting bc!). Became pregnant & delivered healthy twins - cycle still did not resume, wicked menopausal symptoms again. Went back on a different pill continuously (a 4 week pack would last me 3 weeks, since I would never take the "blanks") - never had a period ever again. We only wanted 2 children & got a boy & a girl - so never had a desire to get pregnant again. So, the story "had" a happy ending - until the diagnosis of bc. Each annual exam with the gyn I questioned whether being on the pill continuously for this length of time was safe - I was assured "yes". I was fairly young & healthy, non-smoker, blah blah blah.... I have no family history & do I think the continuous use of birth control pills contributed to my diagnosis? Yes I do. As soon as I was diagnosed I stopped the pill & strangely my menopausal symptoms did not return. I am not in menopause - had my fsh level checked. I am fertile but do not have a period (99% sure I cannot get pregnant - but not taking any chances). I now take tamoxifen & have very mild hot flashes, definitely manageable.
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MAY 8TH - FINALLY HAVE A DATE!! I am scheduled for prophy mx on left side and immediate bilateral DIEP at SCCA with Dr's Calhoun and Dr. Louie. Anyone have any experience with either? Would love to hear good or bad. I'm pretty comfortable with them, but only did 1 consult coming from AK so... Anyway - excited to be getting this show on the road!!
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Dyvgrl, congrats! It's worth the wait and the work!
Donna, thanks for sharing your story, and from one mom of twins to another--aren't they fun (most of the time)?! And thank God (literally) your IBC was node-negative. You must have caught it very early. My sister's IBC was node-positive, but she marched through all the treatments and is doing very well.
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sbelizabeth, your sister that had ibc node-positive.... Was she node-positive after chemo or before? I call myself node-negative, but the nodes were removed after chemo. I always wonder if I would have been node-positive if they were taken before.
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I had an early hysterectomy and took premarin for 20 years. Went through surgical menopause then, had the whole hotflash thing again when I stopped premarin and then again when I took the aromatase inhibitors. However my sibs that have BC didn't take it and my mom did. So whose to say if it did or didn't contribute to my dx.
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Good question, Donna! I'm basing my understanding on what she said about her PET/CT scan after her biopsy but before chemo or surgery; it lit up several nodes, although she wasn't specific about how many. I don't think she knows. I don't know what her path report showed after her BMX. I'll ask and let you know.
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