Just found out I am HER2

Hi monkeygirl: So sorry you had to find us, but this is a great place for education and companionship (and a place to occasionally vent when needed.) I was diagnosed with Her2+ cancer six years ago - had six rounds of chemo plus Herceptin and then Herceptin only every 3 weeks (total of 18.) 

My point here is that that was six years ago! I am doing well now, and my next onc appointment is February 2015. So many advances have come about in the treatment of Her2+ that I have seen many women here report that their oncs were actually glad to see the diagnosis. 

Just wanted to reassure you that many of us are living and thriving after a Her2+ diagnosis. Best wishes to you.  

Hi Monkeygirl

Another HER2+ lady diagnosed June 2007, had similar treatment to Sue, also had a 4-5cm lump and spread to lymph nodes - one of which was huge! Like Sue, that was 6 1/2 years ago and I'm doing well and just had my check up with the oncologist.

Hope this provides a bit more reassurance too.  Hope all goes well for you.

Hi tat2monkeygirl - good idea to stay off the internet and when you do search things, doing what you are doing now and looking for the positive stuff instead I'm not as far out from diagnosis as some of the ladies who have already replied. I was diagnosed in June 2013 and I had three small tumours close together and lymph node involvement. The lymph node looked suspicious during my ultrasound and was biopsied too. We don't know how many lymph nodes where involved as I did chemo before surgery. They tested the biopsy samples for the receptors and I'm triple positive.

I did three rounds of FEC and three rounds of taxotere and started Herceptin with my second taxotere treatment. I could feel my tumour shrink with every treatment. I could feel my tumour before my first Herceptin treatment. I went for an MRI five days (in preparation for surgery) later and they could not see any evidence of cancer. When I had surgery, the tissue they took out came back from pathology with a complete pathological response, meaning that they could not find any evidence of cancer in what was taken out.

Everyone has different results to treatment but wanted to share one more positive story. Wishing you all the best with your treatment.

Here is some more hope for you. I'm also HER2+ and NED 6 yrs after my initial dx. Lots of good newer drugs for us HER2 gals!

Thanks for your post, needed to hear that. I will finish Herceptin in June, Her2+ stage III a    Already had 6 chemo, dbl masectomy and 33 radiation. So ready to be done with this treatment.