Pinktober Revolution

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited November 2013


    testing

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2013

    Mini---The kids in this dispute re: That bracelet has been picked up by the ACLU and may reach the Supreme Court as a Freedom of Speech issue. I agree with any Freedom of Speech Issue.

    For those that diss the ACLU, please, at least wiki their history. They really are the defenders of the Constitution.,

    Take time to read the Declaration of Independence

    Take time to read the Constitution

    How many breaches our own government makes of  both is reason to conscider.

    Me just writing that I recommend the above has put me on a watch list as a subversive. Regertfully, freedom of speech, writing, expression is NOT a reality in the land that promulgated it.

    We are in the the realm of "1984" it just took a number of years beyond the authors description to get there.


     

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  • aaoaao
    aaoaao Member Posts: 593
    edited November 2013


    I may not agree with what you say but I'll support to the death your right to say it. That's part of what our country was founded on. I may not agree with the Boobies bracelet but if someone wants to wear it they should be able to. It's called "Freedom of Speech."

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  • Mini1
    Mini1 Member Posts: 1,836
    edited November 2013


    I never said anything about freedom of speech. I was just pointing out that it was one more example of the focus being on breasts, not the disease. They are making it a sexual/free speech issue not an awareness/medical issue. IMHO, I don't think in this day and age of overreacting to pretty much everything, those bracelets went into schools without someone expecting it to get attention. I'm sure in their own way, they thought they were doing something for the cause by garnering the attention. But it still does nothing for the cause.


    I am, btw, still waiting for the bracelet that says "Save the Gonads," or "Research the Rectum," or the colon, pancreas, etc. Let's face it. If we all had rectal cancer, no one would be putting a bracelet on their kid, or putting on a pink boa and running a 5k.

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  • chabba
    chabba Member Posts: 5,065
    edited November 2013

    Story on local TV.  Some young men in the NW trying to call attention to testicular cancer.  They're calling their campaign Sacks of Love.

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  • EnglishMajor
    EnglishMajor Member Posts: 2,495
    edited November 2013


    I am late in posting this here, but here is my "Welcome November!" video: http://animoto.com/play/QjcfpNF1GF6E4iag1fRz4A

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  • NatsFan
    NatsFan Member Posts: 3,745
    edited November 2013


    BTW, never heard from RRS about my email, despite my writing a follow up email referencing my case #. I may have to snail mail to their HQ.

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  • gillyone
    gillyone Member Posts: 1,727
    edited November 2013


    Watched your video Englishmajor - much appreciated.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2013

    English major, nicely done video Thanks

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  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited November 2013


    EnglishMajor - just shared your video on my Facebook page.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2013

    EM going to repost your video post to STFU for further recirculation. Thanks again.

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  • Mini1
    Mini1 Member Posts: 1,836
    edited November 2013


    Kudos on the video. I'm sharing it on FB. As they say, a picture is worth a 1000 words.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2013

    repost from STFU :)

    2 hours ago mostlymom wrote:

    I just saw this video - it struck me that it applies to US! Even before she mentioned cancer, I was already connecting with what she was saying. It explains why I was/am so often feeling like I'm going to explode over what is essentially nothing.

    http://www.upworthy.com/a-4-year-old-girl-asked-a-lesbian-if-shes-a-boy-she-responded-the-awesomest-way-possibleSinging


     

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2013

    MostlyMom, that video has the widest, deepest, roundest definition of the hardest thing that anyone feels they are dealing with at a moment in time. Ash is talking about her experience as a lesbian, but just as you recognized, her words apply to anything. It is so evident from the way she explains it, that her insight brought her great peace. Following her train of thought and then applying it to any situation, hurt, anger and defensiveness would be immediately be diffused.  Sublime.

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  • Mini1
    Mini1 Member Posts: 1,836
    edited November 2013


    That is an awesome video. I don't know who that women is, but she did an awesome job of putting things into perspective.

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  • bnowak101
    bnowak101 Member Posts: 6
    edited November 2013


    I'm Brenda. Stage 1, low grade DCIS in two spots, one slightly invasive. Lymph nodes were negative. It was diagnosed via mamogram. There was no palpatable lump. Had a lumpectomy, savi device radiation. Took tamoxifen for almost two yrs. Had large polyp come down into my vagina. Ended up having a D&C. I'm told I have a 7% chance of reoccurence if I don't take adjunct therapy. I know I'm one of the lucky ones, but I read way too many books.... My gut instict tells me to go with a natural approach (curcummin, flaxseed, enzymes, etc.) for prevention and healthy eating. Yet, I fear the reoccurence thing. The whole "October" breast cancer awareness thing makes me want to Barf! For thirty some years, we are still practically in the same place regarding cures. Prevention is a bad word in the cancer industry. Imagine if they actually cured it! All those fancy machines would have to be phased out...let alone all the people who wouldn't have a job anymore. There will never be a cure for cancer, as it is too big of an industry. The sooner they can diagnose a person, the better it is for the money making machine to start rolling. Also, it is interesting how the maker of Tamoxifen also funds this October breast cancer awareness month. Of course, my OC wants me to take the Arimidex even though I feel strange on it. Of course, he tells me that it won't make me age (vaginally, brain wise, bone wise, etc.)! After what Tamoxifen did to me, they had the nerve to tell me the Tamoxifen had nothing to do with it. Now I should just get on the Arimidex bandwagon and not worry about my bones? We need some estrogens in our brains and other parts of our bodies, so depleting it completely scares me. Im 53 and not sure what to think about all of this. Plus, the stacks of books I've read.....No doctor cares about alternative treatments because they could probably lose their license if they even talked about it.

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  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited November 2013

    Many doctors care about alternative treatments - my surgeon is a huge supportor of cannibis oil - but they are also aware that - because there is very little science behind alternative treatments - that they have to present the treatments that have been scientifically proven to have a clinical effect.  Many will discuss complementatry therapies with you, but they would be unethical if they told you to not pursue the standard of care and go wholly alternative without the science to back it up.

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  • Mini1
    Mini1 Member Posts: 1,836
    edited November 2013


    My MO won't even glance out of the box. My regular doc is great but my onco doc will only recommend standard protocol. He tells me that he can only recommend things, and shakes his head when I refuse something. He's nice enough, but he's old school.

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  • bnowak101
    bnowak101 Member Posts: 6
    edited November 2013


    Same thing with me. My family doctor of 15 yrs. understands why I'm so skeptical about things. It's hard to take a drug to prevent something, yet it will cause problems elsewhere. She (doctor) says everything is a trade-off.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2013

    BNO Hi welcome here :) yes the trade off.....I took Celebrex and traded off part of my colin......4 docs approved me taking it. Yet I had a hx of diverticulitis. ----Black box warning in PDR " Not to be used with patient with a history of ulcers, diverticulosis, diverticulitis, has been known to cause spontaneous gastrointestional rupture". Trade off--synthroid and generics s.e. osteopenia/osteoporosis. Trade off:----- aromatase inhihibitors -unlimited--brain, bones, muscles, joints. Trade off--chemo drugs--permanent neuropathy, permanent hair loss, permanent nail changes, permanent organ changes that need to be monitored for cancer caused by the curing chemo. Trade off---Antibx's given to often --permanent change in immune system. Trade off---SSRI's/SSNRI's unknown change long term in brain chemistry.

    All chemicals have consequenses. As she sips her wine. and thinks "Fuck'em".

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  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited November 2013

    Sas-schatzi... LOL!


     

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  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited November 2013


    Sas, YESSSSS!!!!!!!!! I TOTALLY agree!! EtOH is one of the best!


    Tried a new Merlot this week, expected a nice robust red wine flavor, got a watered-down taste. Calling it "Merlot Lite" and won't get this one again - Yalumba 2009 Merlot. Have had other wine from Yalumba that was fine, but not this batch.

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  • fredntan
    fredntan Member Posts: 1,821
    edited November 2013

    my new mo just okayed me to drink wine while on chemo. hubby got bottle. will get corkscrew today

    update on me. have been mia. not exactly sure where i belong.

    went down to get scans and TM  in texas. he found some early bone mets. started chemo few weeks ago. had to relocate to texas as MO s back in va just suck. they would tell me to get my affairs in order.not my new guy. he said yest "I am a shark, but dont call FBI, I kill cancer cells, not people"

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  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited November 2013


    Fran, glad to see you again, sorry about the mets and MO issues and all the stuff that brought you back here. Join some of the stage IV boards - we are very supportive and you can get a lot of info on the chemo and other treatments, much like the earlier stage boards, but with an understanding that we will never be cured but it is just another chronic disease we have to deal with. Hugs!!!

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2013

    Fran glad you're back. Know you will be very busy with your treatment plan. Drop in when you can.

    This thread gets quiet from now till about August. If someone whans to discuss something , PM those active members.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2014

    Hi , back in Oct/Nov, I worked on contacting the KayYow cancer fund. I had email issues. Sarah Womack has responded. It's a wonderful letter , but doesn't quite answer the questions of the "list organizations etc companion thread to this thread. At the time I thought it might work out as a mechanism to reduce work in evaluating different funds, but that won't be the case. 

    Here's the letter with my name deleted.

    "Thanks so much for your email and questions. Our staff and Board of Directors believes wholeheartedly in the mission and vision that Coach Kay Yow impressed upon her Foundation, so we are always happy to answer any questions or concerns that our donors and supporters may have. We also feel that what you are doing serves a very important role in helping women and their families make decisions.

    The questions you provided, from Think Before You Pink, seem to be drafted for companies trying to sell a product and claiming that a portion of the proceeds will benefit a breast cancer charity. The Kay Yow Cancer Fund is not selling a product or service for profit. Our mission is strictly to raise funding to be used for scientific research, assisting the underserved and unifying people for a common cause.

    First, a bit of general information to clarify a few of our partnerships. Because of Coach Yow's great friendship with her coaching colleagues nationwide, it made sense for the Kay Yow Cancer Fund to partner with the Women's Basketball Coaches Association (WBCA). The Kay Yow Cancer Fund is the official charity of the WBCA, which provides a lot of support, especially during our largest initiative, Play 4Kay.

    The V Foundation for Cancer Research is another partner organization. Our relationship with The V Foundation stems from Coach Yow's friendship with her NC State coaching colleague, the late Jim Valvano. One of the best aspects of our partnership with The V Foundation is that we are able to use their scientific advisory committee in our grant allocation process. The scientific advisory committee is comprised of some of the top oncologists and research doctors in the country. They review all of our research proposals and grade them based on merit, recommending the top projects to our Board for funding.

    Of the $8 million dollars that we have raised, $2.615 million has been awarded to women's cancer research and we will be announcing another $1.215 million in grants this Spring, with future projects under consideration. You asked about Charity Navigator, this is a site that requires 5 years worth of IRS filings in order to be listed. Once the 2013 Financial Statements and Form 990 are finalized, we will have completed our 4th year of filing. We look forward to the opportunity to be evaluated by Charity Navigator and will strive to meet the highest standards.

    In response to your questions regarding breast cancer, I want to be clear to specify that our organization provides funding for scientific research in all areas of women's cancer, not just breast cancer. I encourage you to check out the institutions and projects that we have funded in the past and hope that you will continue to check back on our website as we announce research grants this Spring and in the future. http://kayyow.com/the-fund/research-and-grants/

    Thank you so much for your questions and concern. I hope that you will not hesitate to contact our office if you have additional questions.

    Sincerely,

    Sarah Womack"

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2014

    Hi reposting this on some threads, may be old news to some, but to good of info not to pass this on,Sassy

    Cam00205Bluebird144…NJJoined: Apr 2013Posts: 393

    13 hours agoBluebird144 wrote:

    Knitted Knockers Charities is a non-profit that exists to provide free patterns for knitters and crocheters to be able to make knockers and help mastectomy patients get freeKnitted Knockers made by volunteers.

    I love my Knitted Knockers! They are light and soft and warm. Unlike my silicone prosthetic which is heavy and cold when first worn, then it later causes me to sweat.

    I wear my knitted knockers inside a regular bra or tucked in the pocket of a mastectomy bra. They are beautiful, and a godsend to those of us with an uneven mastectomy scar.

    image

    Knitted knockers website:

    http://www.knittedknockers.info/

    Fall down seven times, stand up eight.

    Surgery 09/09/2009 Prophylactic Ovary Removal (Both)Chemotherapy 02/06/2013 Adriamycin, Cytoxan, TaxolSurgery 07/19/2013 Mastectomy (Both); Lymph Node Removal: Sentinel Lymph Node Dissection, Axillary Lymph Node Dissection (Left); Reconstruction: DIEP flap (Both)Surgery 08/20/2013 Reconstruction (Right)Surgery 08/28/2013 Mastectomy (Right)Radiation Therapy 10/14/2013 3-D conformal external beam radiationSurgery 01/24/2014 Reconstruction: Tissue expander placement (Right)

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2014

    Seen in Ft Meyers Fl in front of Saks 5th Ave March 6, 2014.  There was a ca walk in the area March 8. It's a Bentley. 

    image

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  • kathindc
    kathindc Member Posts: 2,042
    edited March 2014

    How tacky!!!!  

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  • Mini1
    Mini1 Member Posts: 1,836
    edited March 2014

    That is wrong on so many levels.

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