34 and venting..

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KismetButterfly
KismetButterfly Member Posts: 2
edited June 2014 in Just Diagnosed

I've been lurking here since Feb 13 after my mammo and US and an unscheduled biopsy. Clicking from one topic to another. Reading stories about different people who are worried about their biopsy.. and each time I pray that their results will be negative. I prayed that mine was also negative. But on Feb 20 as I sat in the waiting room of Kaiser's 3rd floor specialty building I knew. I knew what I was about to face. As I sat there staring at the different breast cancer quilts that they had displaying on their walls something inside me still did not believe in what's about to happen. But it happened. I was told that indeed it was cancerous. From there on all I heard from my dr.'s mouth was cancer this cancer that. lumpectomy.. ..lymph nodes..mastectomy.. radiation... Chemo.. genetic.. Angelina Jolie... ..reconstruction.. cancer..  I just turned 34 ten days ago doctor. I'm not suppose to be here. I don't have any kids and I'd like to have some one day. I wish he would just shut up.. I wish this wasn't the start of my new year. I know this is not a death sentence.. but it feels like it. I'm sorry about this vent. But for some reason it's easier to tell my story to strangers then to families and friends at this moment. I don't even know where to start.. or how to tell them. I've always been the one where people can count on and lean on when they need a shoulder. 

I guess my question is how do you ladies do it?

Comments

  • AZ85048
    AZ85048 Member Posts: 2,613
    edited February 2014

    KismetButterfly - Hi and welcome!  Vent away, girl.  You've earned it.  There is no easy answer to your question.  But somehow, somewhere we all find within ourselves the sheer determination and grit to move forward step by step, day by day.  You have to make peace with the beast and the choices that you'll soon be faced with.  Early on it's very difficult because so much is unknown, but once you start meeting with the various doctors and you all decide on a course of treatment (whatever that might entail), it does get easier and things start to fall into place.  Not to say there won't be ups and downs, because there will.  This is like a giant emotional roller coaster ride and sometimes you wish you could just get off and go back in time.  But you can't.  This is your new reality and we're all here to help you through it.

    You never said exactly what your diagnosis is, so I'm kind of flying blind here.  But in most cases, you have some time to decide what you need to do going forward.  Don't let anyone push you into something you're not comfortable with.  And remember that those doctors with the alphabet soup behind their names work for you, not the other way around.  Winking 

    A couple of things.  First of all, stay away from Dr. Google - he really sucks as a diagnostician.  All you'll find there is outdated information and a lot of horror stories.  Stick with the information on this sight and it will guide you through almost anything.  The Search button on the left side of your screen is very useful.



    And also, I learned early on that it is an excellent idea to take someone with you
    to these first few appointments because (at least for me) my brain went into
    overload and there were things they said that I missed, but my friend was able
    catch - and she was taking notes the whole time, which really helped when we discussed it later.  Good luck and try not to worry too much.  Let us know if you have any questions or need anything.  Sending you a hug and a prayer...  And remember: You can do this! 

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited February 2014

    Kismet  - So sorry you find yourself here especially at your young age. It totally sucks. How do you get through it? Day by day, hour by hour if you have to. If you find the anxiety is too much ask your doctor for meds. Anti-anxiety meds and antidepressants were made for times like these. Also check out the "Young with Breast Cancer" thread towards the bottom of the list. Taking someone with you to appointments is excellent advice. Some things on this site are scary for newbies, but try and stay with us, join the threads pertinent to your diagnosis, surgery, and so forth.  We all have unique ways of dealing with it. Vent away my dear.



  • annika12
    annika12 Member Posts: 433
    edited February 2014

    im also so sorry you had to join us !! Like said before day by day , hour by hour or even minute by minute !! When you and your team had a plan it gets easier , roller coaster mode turn into fighter warrior mode. I agree bring a friend to appointments , I brought a nurse friend not super close to me I also couldn't handle there pain . My very close friends and family was way harder to be around...... You can do it girl, you will surprise yourself the power your mind body and spirit have!! 

  • Nan54
    Nan54 Member Posts: 93
    edited February 2014

    Hi Kismet.  So sorry that you find yourself here, where you probably never expected to be! I'm 37, so I understand all too well the unique challenges of facing this in your 30's. It is life-changing for sure, but you can do it. There will be a lot coming at you in the next few weeks and months and a lot of decisions to make. Ask a lot of questions, trust your gut, and breathe. You will get through this! Sending you gentle hugs and prayers to find your strength.

  • mdg
    mdg Member Posts: 3,571
    edited February 2014

    We all felt like you do.  We are not strong....we are just doing what we HAVE to do.    My analogy is "if a huge tiger was chasing you, what would you do???"  I would run - and run fast!  That is merely what we are doing.....running from the beast.  I am sorry you find yourself here.....Hugs

  • MrsHerrera80
    MrsHerrera80 Member Posts: 12
    edited February 2014

    honey, we are in the same boat right now. I'm 33, and was just diagnosed with stage 1 triple negative. I meet with my doctors for the full treatment plan on Monday. I am BRCA1 positive, have known for a few years. If you need anything, even to vent, please call me. 619 - 971 - 9627

  • wyo
    wyo Member Posts: 541
    edited February 2014

    Kismet- it does seem weird that you keep hoping you won't hear the words Cancer and surgery and chemo- but when they come out a little part of you is not surprised after the biopsies and the waiting.  I rejoice when I hear the B9 posters on here because the anxiety leading up to the results is the same regardless of the outcome. 

    I believe you will get excellent coordinated treatment without having to search and find a navigator, medical oncologist,surgeon, radiation oncologist- whatever- you indicate you are part of Kaiser which has an integrated model i.e "one stop shopping" I had my care through Kaiser as well so PM if you would like to discuss further

  • KismetButterfly
    KismetButterfly Member Posts: 2
    edited February 2014

    AZ805.. Dr.Google <--- Hate him. But at the same time he brought me here. And that I am thankful for.

    For the past few days it sucks. I just cried and looked in the mirror and I just can't believe that I am diagnosed with breast cancer. It doesn't feel real. And last Saturday for most of the day I forgot about it.. kept myself busy and then when I got to relax, it hits me again. I'm going to see my doctor tomorrow and in the middle of writing down some questions to ask him. I'm also seeing the Breast care coordinator..so it will be a busy day. Then on Wednesday I'm seeing my Oncologist. I know I didn't absorb much or remember much that day. So, I will be getting a report of my pathology. And any notes that he has. I do remember him saying that they know that I am at stage II, about a 2" lump on my left breast, that they will remove some lymph nodes, and that I am something positive. I think it's HER2+ that I've read people posted about on here. But I will know more details tomorrow. 

    I am lucky enough to have my boyfriend who has been there for me.. it was hard to watch him take it. And it was him who pushed me to make the appointment and get my lump checked. For the past three months I wanted to believe that it was just my scar tissues that was getting bigger. Because back in 2006 I did have it looked at and that's what was told to me. Now I'm wondering could it have been cancer all this time. I don't know. 

    There are so much information on this site and I am so glad I am here. And the differ topics and stories are helping so much in coping. MDG, I like that.. "We are not strong.. we are just doing what we HAVE to do." (exhale) I'm not ready.. but I have no choice but to be ready. Like everyone say.. take it day by day, minutes by minute.. and second by second. AAAAHHHHHHHH I hate this. Mrs. Herrera.. I don't like this boat that we are on :( btw how did your appointment go? 


    AZ805; WYO; MrsHerrera; MDG; NAN54; Annika; and FarmerLucy thank you sooooooo much for responding!! 

  • AZ85048
    AZ85048 Member Posts: 2,613
    edited February 2014

    KismetButterfly - So nice to hear from you!  Yes, it sounds as though you'll soon be a very busy and popular gal.  Winking  It is all very surreal.  Nothing seems real or makes much sense at the beginning.  A few meltdowns are to be expected - heck, I'll bet you'd be hard pressed to find anyone on these boards who hasn't had one in the past day / week / month.  Amazingly enough, it gets easier when you and your doctors make some decisions and you agree on a treatment plan.  Then it's one foot in front of the other until you get all the way through to the other side.  Remember that there are legions of us in your pocket every time you head out your door to another appointment.   Please let us know how it goes tomorrow and the next day, but above all else be kind to yourself.  And give that boyfriend a big old hug from all of us!  He sounds like a keeper!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    KismetButterfly, I'm so sorry to hear of your diagnosis. I'm glad you found BCO. You will receive great support on this website, along with a wealth of information. You are not alone is this. You will have people here that will help you every step of the way. If you can't bring someone with you to appointments, you may want to bring a small tape recorder, because all of the information can be a bit overwhelming in the beginning. You've gotten good advice on this thread. As stated, once you have your treatment plan in place, it does get easier. Please keep us updated on your progress. Feel free to PM me if I can be of any help. Best wishes to you. {{{{gentle hugs}}}}

  • Camillia
    Camillia Member Posts: 185
    edited February 2014

    I am so sorry that you had to find yourself here but glad that you found this site as it will be great support throughout your journey. I was 37 at diagnosis. There was no apparent reason for me to have breast cancer; I was healthy, I ran, ate well, etc. It was a very scary time of my life. Here I am 19 months later, feeling stronger than ever. Yes, I did need chemo, and although it was not a walk in the park, it was very doable. I originally had a MX without construction and eventually changed my mind; I now had a mastectomy on my healthy side as well and am in the process of reconstruction. 

    It does get better. You will be scared, you will cry but then you will also discover a strength in you that you didn't know you had. You will get through this and discover wonderful people around you; ones you already had and other that will surprise you with their love and support. Give it time.

  • Holeinone
    Holeinone Member Posts: 2,478
    edited February 2014

    kismet, 

    So sorry, not fair at your age to have to go thru this scary disease. I loved your line about wanting the Dr. to shut up. 

    It is a long slow process, depending on your lymph node status & what surgery you decide on. I had a lumpectomy, which is the easier route. You will need to listen to your Drs. & make that decision at some point. It's possible you won't need chemo but if you do it's no picnic but we do get through it.

    Your friends, I am sure are wonderful, but there is no way they can "get it". So be prepared to become irritated, annoyed, frustrated and down right angry at times. People try to be helpful, but the "just stay positive" mantra wears down quickly. I did not find this website until I was almost done with chemo. It has helped me  to be open & honest. I have a very supportive family, which is great, but they are not living this, I am....keep posting...

  • lintrollerderby
    lintrollerderby Member Posts: 483
    edited February 2014

    Kismet, so sorry you're here. I can relate; I also was diagnosed at 34, completely out of the blue. It's a life-changing experience, to say the least.

    Come here often for support. Best of luck to you.

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