Starting Chemo in March 2014

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  • mdg
    mdg Member Posts: 3,571
    edited February 2014

    I hope you don't mind me butting in - I am from the March 2011 chemo board.   I was were you all are three years ago.  I was petrified of chemo and was anticipating the worst.  Chemo was scarier than a BMX to me.   I wanted to offer hope and support.  I did TCx4 and started the first week of March in 2011.  Chemo was not as bad as I thought it would be.  It was not fun, but it was very doable for me.  I never had any nausea at all!  I was able to exercise 5 days a week all through chemo.  I went back to teaching aerobics a few weeks after chemo ended.  I had some side effects, but not anywhere near as bad as I imagined.  My biggest advice...drink lots of water to help the body get rid of the chemo, take Claritin and Aleve to avoid bone pain from Neulasta shot, be prepared for constipation, eat whatever you can tolerate, rest as you need it, exercise or keep moving on a daily basis.  I can't help with hair loss advice as I used cold caps to keep my hair, but there are lots of threads offering help with hair loss suggestions.  I just want to let you know you can get through this.  Three years later, life is normal and great.  You are still in the thick of it all and it's hard...be kind to yourself.  Have faith and look to the future!  Hugs to my BC sisters!!! :)

     

  • Xrayalli
    Xrayalli Member Posts: 237
    edited February 2014

    Thanks for the encouragement, Maria and Mary. I added that lymphadema site to my homepage to have handy, I want to do all I can to avoid problems, if possible. The back of my arm is numb today, hoping the feeling comes back but it's possible it won't from the nerves being cut. I'm having a lot of pain today with the ALND.  More pain and very different that I've had with my previous breast surgeries, this has brought me to tears. The power port site is mostly achy. 

    Yes, it is a whole new world. 

  • NatsFan
    NatsFan Member Posts: 3,745
    edited February 2014

    I'm sorry you're having pain with your ALND.  I had my ALND at the same time as my BMX, so I never had separate ALND pain - it was all one great big pain.  Take it easy and keep on those pain pills - they give you those pills for a reason.  There is no prize for the cancer patient who takes the least amount of pain pills.  Also, try to avoid lifting arm higher than your shoulder for at least 10 days to 2 weeks after your node removal surgery - there's some evidence that the lymphatic system can heal a bit right after node removal if you don't stress that area too much.  

    I also had the numbness in the back of my arm, and also in my arm pit.  They never did regain feeling.  Not an issue, except I'm super careful shaving the pit cuz I can't feel a thing! 

  • megomendy
    megomendy Member Posts: 141
    edited February 2014

    I'm getting my port put in next Tuesday. what should I expect?

  • Xrayalli
    Xrayalli Member Posts: 237
    edited February 2014

    Hi Meg, I have a good sized bruise where the port is but there isn't really any pain. For me it's all relative because I am experiencing a lot of pain where they took out the lymph nodes. But I cannot raise my arm too high on the port side, not sure how long that soreness takes to go away. 

  • megomendy
    megomendy Member Posts: 141
    edited February 2014

    I hope I can go to work the next day? Taking so many days off. Thank goodness for Family Medical Leave.

  • Xrayalli
    Xrayalli Member Posts: 237
    edited February 2014

    If that were all I had had done I probably could have gone back to work, not too bad really. :) the ALND much worse......

  • cancerisnotmyhappyplace
    cancerisnotmyhappyplace Member Posts: 49
    edited February 2014

    Great to hear everyone is getting through this week. I have my lymph dissection in the morning. I am still tender from the last drains. I won't get my port for another two weeks. Power ports are really useful. Arm veins get worn out when only one can be used after  lymph dissections. 

    I went to school yesterday. It was nice to talk about something other than cancer. Although nursing management theory and hospital organizatiinal structures can be dry. Rest well ladies.

  • Xrayalli
    Xrayalli Member Posts: 237
    edited February 2014

    Good luck tomorrow! They put my new drain through the same hole as the mastectomy drain, so far it doesn't bother me. I even had an infection around the site about 11 days after my mastectomy. I actually might be getting this drain out on Friday, though. What's hurting is the incision, wowza. I'm not being a martyr with the pain pills, taking them and ibuprofen to get through the pain. Will be thinking of you :)

  • NinaW
    NinaW Member Posts: 110
    edited February 2014

    Hi, awesome March ladies!

    Meeting with the first of 2 MOs tomorrow, so I'm pretty sure I'll be swimming around next to you all in the cytotoxic pool within the next few weeks. Couldn't have asked for a nicer bunch of people to compare side effects with, honestly.

    My short story: I'm Nina, and I turned 50 (gasp!) this past Sunday - I was really hoping for something a little nicer than a tumor to mark my reaching the half-century point. My sig tells the tale of my IDC, although I'll update this once I wrestle the final path report from the hands of my breast surgeon tomorrow at my post-op checkup.

    My baby sister was diagnosed with Stage IV in January 2011 (nodes, bone, and liver), so I'm probably not as "deer in headlights" about this diagnosis as I might otherwise have been. She just wakes up every morning and decides to find joy, which is pretty much my plan as well.

    Dawn, my son is a little older than yours (he turns 12 in April). I don't know how you'd feel about doing this, but I decided to tell my boy that I was making him a part of my cancer team. I figured that giving him a few easy tasks would empower him a little and let him know that neither one of us is helpless in the face of a challenge like illness. He's in charge of making sure my water jug is full and in the fridge every night before he goes to bed, and he monitors how much of it I drink over the day. I let him scold me a little if I don't make it to the 80-ounce mark :-) He'll also be in charge of cutting my hair before chemo starts, so that we can donate it to Locks of Love. If I manage the side effects well enough, I might also let him be my "trainer", and we can jump around the house to horrible pop music for exercise. 

    Now is definitely not the time to be Type-A about doing everything yourself. It's hard to ask for help, but everyone around you really, really wants to do something, so LET THEM.

    I can't wait to have treatment underway. That sounds completely insane given what this treatment involves, but I'm betting you all know what I mean! 

    Nina

  • Nurselaura
    Nurselaura Member Posts: 68
    edited February 2014

    wow Nina what a nic

  • agness
    agness Member Posts: 576
    edited February 2014

    I will start treatment in March as well. Just getting another consultation in with a leading clinic and then will start scheduling port placement, etc. Yesterday was a rough day, the tears just kept spilling out of me. I havent cried like this in years. I'm 43 and have two young boys who need their mom well. 

    My doc recommended TCHP every three weeks but I'm interested in the dose dense weekly treatments instead. I live in the center of town and have a flexible schedule and getting to treatment is a 5-10 min drive. I'm just comimg off of breastfeeding consecutively and I'm a bit tapped out. I am already working with a doctor of Chinese Medicine to boost my systems up, taking herbs, eating nutrient dense foods and cutting out almost all simple carbs. I feel that my body, which tends to be a bit sensitive anyway, would better tolerate lower and more frequent dosages. Anyone else looked into dose dense treatments?

    I would give anything to not be going through this experience but at least it is only stage 3 and the idds are still in my favor.

    Mary, I like your description of using the  "cancer card". Sheesh, my littlest is 3-1/2 and just starting to need me less and I was looking forward to getting more time to focus on myself. THIS is not quite what I had in mind.

    Ann

  • megomendy
    megomendy Member Posts: 141
    edited February 2014

    I will be getting dose dense treatments every 2 weeks; I think it's the recc for us triple negative ladies. But I thought the dose dense would be stronger and closer together, than the 3 week schedule.

  • Kris103
    Kris103 Member Posts: 57
    edited February 2014

    Hello, ladies - Another March treatment gal here. My chemo is neoadjuvant Cytoxan and Taxotere, so I haven't had the surgery experience yet. Chemo class this afternoon, and port placement isn't until March 5. I've had to go through all sorts of additional testing after I was first diagnosed in December, so I'm quite anxious to get this going and get it over with! Then on to surgery and rads.

    I'm a 58 year old single mom with a 17 year old daughter with Asperger's. I've kept her informed about what's going on the whole time, and she's been great. I've gotten tons of hugs from her the past few weeks, and that's something that's not easy for many people on the spectrum. She's also gone scarf and pin shopping with me, and has picked out some really cute fabrics that she wants to make into caps for when my hair falls out. I expect this experience will turn into quite the role reversal for us in many ways, but that's not necessarily a bad thing.  She knows that I've beaten cancer before (cervical in situ stage 0 when I was 20), and I have no doubt I'll do it again. This time it'll just take a little longer.

  • Xrayalli
    Xrayalli Member Posts: 237
    edited February 2014

    Good evening, March chemo chicks! I get to see my surgeon tomorrow and I think he will be able to take out my drain, it is not putting out too much, hopefully it's not clogged or something. I'm getting used to the idea of having my port, since it will be there for quite some time. It's helping the reality of upcoming chemo set in, which I have scheduled to start one month from today on the first day of spring-also my niece's birthday. I am also hoping my surgeon will be able to report to me tomorrow that all the lymph nodes he took out are negative. 

    Welcome to some new ladies, Nina, Ann and Kris. Nina, I love your idea of your son being a helper, I think I will do the same with my 7 yr old. I'll have him help shave my head when the time comes and be my water regulator, lol. Ann-we are about the same age and I am very emotional these days. I think we have good reason to shed some tears, they do help cope with whatever ails us. Kris-I think you have a great partner in crime with your daughter! She sounds like she'll be awesome for you in your time of need. 

    Have a great night, so glad we have each other. 

  • CancerVixen
    CancerVixen Member Posts: 28
    edited February 2014

    I dont have much time to write as I have family in from out of town but I have read all of your posts and of course can relate to all of them.  Lots of great ideas and support and I am so happy I found you ladies!! I wanted to let you all know that after close to 4 weeks since diagnosis I found out yesterday that the cancer has NOT spread to my bones as they suspected!!!!!!!!!!!!!!!  Yeah!!!!!!  They did find however that is has spread to the lymph nodes which means I will now have to go for radiation after chemo and surgery.

    Xrayalli I am really hoping for good news for you!!  Why is it taking them so long to get your results?  Also when I had my first mastectomy 7 years ago I had the drain in for 3 weeks!  Not sure why but my body was putting out alot of fluid.  I actually didnt mind it as I would rather get that bad stuff out.  Ok well I will write more later.

  • Xrayalli
    Xrayalli Member Posts: 237
    edited February 2014

    Oh what wonderful news that there is no cancer in your bones, CancerVixen! What a relief you must feel. I had the dissection on Tuesday so finding out tomorrow isn't too long of a wait for me, not after waiting 12 days for them to find the invasive tumor they knew I must have had because I surprised them with a positive sentinel node. 

    With my mastectomy I had the drain 3 weeks, too, it was horrible!  Now to have one again after 5 days of drain freedom, sigh. 

  • megomendy
    megomendy Member Posts: 141
    edited February 2014

    Alli, or anyone else with a port,

    I read that during chemo, if you have a port you should wear a button down shirt so it is easier to access. Would you say that is true? I dont have too many of that style so might go shopping for a couple tomorrow. I just pictured myself wearing tshirts.

  • jbdayton
    jbdayton Member Posts: 700
    edited February 2014

    I wore scooped neck or v-necked soft tops and they worked fine.  As long as the opening can be pulled sideways and expose the port it will work.  Once the needle is in the port they will cover it with tape to secure it during treatment.  Good luck.

  • NatsFan
    NatsFan Member Posts: 3,745
    edited February 2014

    CancerVixen - woohoo!!!! 

  • Kris103
    Kris103 Member Posts: 57
    edited February 2014

    CancerVixen - Awesome result!

    Alli - Crossing my fingers for your dissection news!

    Meg - I'm a t-shirt person, too. From what Jeannine says, that should be OK, but I decided to pick up a couple of thrift shop button down shirts just for chemo days. Partly because my favorite thrift shop supports kids with learning disabilities like my kid, and partly because I want to feel no regret when I burn them after chemo is done.

  • Xrayalli
    Xrayalli Member Posts: 237
    edited February 2014

    14 NODES CAME BACK CANCER FREE!! Happy Dance, no radiation for me! My one little sentinel node took one for the team, she went down and sacrificed for the rest of them, she did her job.  My little warrior node, brings tears to my eyes :)

  • Nurselaura
    Nurselaura Member Posts: 68
    edited February 2014

    I am so happy for you Alli! After this BC diagnosis we learn to recognize and appreciate the little  tings in life are really what matters, enjoy the good feelings!!

    Laura

  • megomendy
    megomendy Member Posts: 141
    edited February 2014

    Great news, Alli!!!!

  • Nurselaura
    Nurselaura Member Posts: 68
    edited February 2014

    had my appointment with MO today and the plan will be Adrimycin and Cytoxin every 2weeks for 4 doses, then Taxol and Herceptin weekly X12 weeks. Then Rads X 6 weeks 5 days /week. Continue  Herceptin every 3 weeks for a total of a year. WoW just WoW. Will have the port for a year I guess.

  • Xrayalli
    Xrayalli Member Posts: 237
    edited February 2014

    Hi Laura, it takes some time for it all to sink in, doesn't it?  I'm sorry you have to have EVERYTHING. I see my MO Tuesday, I think I find out if I get Herceptin or not, he hadn't gotten all the labs back to know that before. I'm heading back to work in 2 weeks and I'll start chemo the same week, I guess I'm a glutton for punishment. Well, life goes on and bills need to be paid.

    When will all this start for you? Have you got your port in yet? I'm not sure who was asking but mine is far enough up that any shirt will do as far as access goes. It's just below the collarbone. 

  • agness
    agness Member Posts: 576
    edited February 2014

    when a friend checked in with me on Facebook last night I suddenly realized that there is a countdown on. I only have so many days left of this before period when I'm not scarred, ill, losing hair, or otherwise damaged in an attempt to stop the spread of these malignant cells. Damn! 

    I feel fine, in fact better than Ihave in a while as I was depleted from breastfeeding and caring for my boys. Now that I'm eating better and Chinese medicine is treating some if my imbalances I'm going to shove poison into my body?

    This is what we have to accept is the best they have to offer to us right now. I sure hope that things get a lot better in the future for other women.

    On a positive note my tongue looks better than it has in months. Tongue diagnosis is still used in Chinese medicine, and also by dentist somewhat -- and I had a doc in France use it also when I got sick with Salmonella while traveling. Our US docs don't use observation anymore, they are trained to order and read tests solely it seems.

    I heard from one oncologist that young women on TCHP can experience permanent, negative changes in their hair and she advised me to use the Penguin cold caps. Have you heard anything about this from your docs?

    I am also applying heat to my tumor before treatment. Cancer cells are supposedly sensitive to heat damage, studies of castor oil packs show increased lymphocyte activity in the skin when used abdominally. So, if my tumor is low and accessible in my breast to be vulnerable to topical heat - why not make my malignant cells miserable? I'm going to ask about use of topical heat during chemo as well. Check out this article about hyperthermic treatment:

    http://m.annonc.oxfordjournals.org/content/13/8/11...

    Ann

  • CancerVixen
    CancerVixen Member Posts: 28
    edited February 2014

    Congratulations Alli!!!!!!!!!!!!!!!!!!  So happy to see the results of your lymph node biopsy!!!!!  What a relief!!!!!

  • CancerVixen
    CancerVixen Member Posts: 28
    edited February 2014

    Good Morning Agness,  My countdown has started too.  I have 4 days until chemo.  I also see an acupuncturist and take herbs so I can certainly relate to your post.  I too felt completely fine and healthy when I received my diagnosis last month probably due to the healthy eating, supplements, herbs, acupuncture and exercise I have been doing.  This is very different from what I felt the first time when I was diagnosed in 2006.  The first time I was diagnosed I was very ill for months before my diagnosis and I just could not get better even with the acupuncture herbs etc.  When I was diagnosed the first time it made sense to me since I knew my immune system was really down.  I refused chemo the first time.  I am struggling with having to put this poison in my body and I have considered the cold caps but my doctor doesn't recommend it especially for women with HER2+ because HER2+ is know to spread to the brain.  They are afraid if the chemo doesn't get to the scalp there is a chance for a recurrence there.  Since this is my second diagnosis in 7 years that scared me enough to just let them do it their way.  Just something to think about.  I just got 2 wigs and they are very pretty!!  With all of the beautiful choices they have if I had to wear one for the rest of my life it may not be so bad considering the alternative.
     

  • agness
    agness Member Posts: 576
    edited February 2014

    It must be hard to be here again Vixen. I know you aren't the only one as I've read through posts on the board. I hope treatment goes really well for you and that this time you kick BC for good.

    I am hoping for the best for myself as well, but it still seems like a bad dream. Where once I imagined living into my 90s like my great aunts and uncles, now I'm just worried about being around for getting my kids through elementary school and I have no idea what comes after that. 

    Breast cancer is such a fatal flaw in our human design. That it can take mothers from children is even more cruel.

    Ann

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