Starting Chemo January 6, 2014

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  • Warrior_Woman
    Warrior_Woman Member Posts: 1,274
    edited February 2014

    Rabitvelvet - What you have may be more than dry skin.  It is one of the possible SEs.  I may be wrong but it sounds like Hand Foot Syndrome.  http://www.oncologynurseadvisor.com/prevention-and-management-of-hand-foot-syndromes/article/174390/ Tell your MO.  Dry skin is common and I'm using some heavy duty moisturizers.  Hand Foot Syndrome is more than dry skin.  

  • rabbitvelvet
    rabbitvelvet Member Posts: 88
    edited February 2014

    Warrior Woman.....thanks for the link and yes I definitely have hand/ foot syndrome.  I am calling my mo now

  • tekwriter
    tekwriter Member Posts: 216
    edited February 2014

    I am scheduled for this coming Thursday a week late at the usual time.  They had Wednesday starting at 2pm but that would end so late I picked the Thursday starting at 10am.  This will be my last AC and then on to TAXOL.  I have tons of questions for the PA this week.

  • RHGSR
    RHGSR Member Posts: 774
    edited February 2014

    Hey tekwtiter. We will be in the chair together for our last AC. I go Thursday morning too. I will be glad to get that red devil over with!!

    Holli 

  • CarpeVinum
    CarpeVinum Member Posts: 116
    edited February 2014

    Wow tekwriter your last treatment is Thursday? Yay!

    I hope your side effects are mild (or non-existent).

  • Warrior_Woman
    Warrior_Woman Member Posts: 1,274
    edited February 2014

    It's great to see the January ladies starting to come out the other side!

  • 2ndtime4me
    2ndtime4me Member Posts: 88
    edited February 2014

    Ladies

    Been in the hospital since Thursday with Febrile Neutropenia, translation, (high fever & no WBC's)

    I felt and was VERY sick until today. Do not ignore chills with no fever. Mine turned into chills with fever and no WBC 's fast. I was not getting Neulasta after my Chemo but will be getting it now. I think I am still here for a couple days. My count is not high enough for their liking yet. getting 3 different IV. Antibiotics.  I don't want to scare any of you but this was only my 2nd round. Dr. Said  I now have to have Neulasta for all rounds. I will be scared thru all my next rounds geezze.. Nurses on Oncology are Awesome!!  I actually have enjoyed talking to them. 

  • Diamond_lil
    Diamond_lil Member Posts: 76
    edited February 2014

    Hi 2ndtime4me, I too have had very high temps this weekend. Got up to 38.9 (don't know what that is in American) but high enough to send me to the hospital. Blood cultures, urine test etc, neutrophils 9 so not febrile neutropenia, so I could go home on oral AB's. Probably a touch of cellulitis in my mastectomy wound. I think I'll have a couple of days of work ' cause I have chemo this Tuesday.

    Hope every one is well

    LIL

  • Asb
    Asb Member Posts: 99
    edited February 2014

    2ndtime that is very scary. I am glad you are doing better. I am glad you will be getting the nuelasta. I go for my third round on Thursday. Each round seems to hit a little harder. 

    Diamond I hope you get a few good days before chemo. 

  • RHGSR
    RHGSR Member Posts: 774
    edited February 2014

    2 ndtime-  I went to hospital about  2 weeks after round one.   I think I caught something from one of my kids.  They pumped me full of antibiotics for four days. I had had the Neulasta and MO said it had worked cause my WBCs were over 14 so my body was fighting whatever infection I had. It sucks to be in hospital.  Sorry you are having to experience it. Be sure to use the Claritin with the Nuelasta. Many ladies in here (myself included) testify to it helping with any pain associated with it. 

  • Warrior_Woman
    Warrior_Woman Member Posts: 1,274
    edited February 2014

    I had a fever of 102.5 after TC # 1 and requested the Neulasta after TC # 2.  I feel much better this time around.  Take Claritin before and after the Neulasta.  It has made a huge difference for me.  I feel fine and I don't have to live in a bubble.

  • 2ndtime4me
    2ndtime4me Member Posts: 88
    edited February 2014

    Thx for the well wishes everyone. I am home from the hospital. Going to be taking it easy for awhile. Wishing everyone minimal SE 's.

  • rabbitvelvet
    rabbitvelvet Member Posts: 88
    edited February 2014

    2ndtime4me;  I had febrile neutropenia after my first chemo and was hospitalized for 3 days....it was awful!! This 2nd chemo I was given neulasta and had minimal pain.  What I have is skin (hands) damage from one of the drugs....blistering and bright red skin.  Feels like a chemical burn.  Thank goodness for Udder cream and Lidocaine 5% ointment.  After 3 days I feel it's slowly getting better.. Next week(25th) is my 3rd chemo.....so I'll be HALF DONE and I plan on celebrating with a good lunch while I still have an appetite. 

    what was the old saying?..   when you get to the end of your rope, tie a knot and hang on!!    I'm getting there:) 

  • Diamond_lil
    Diamond_lil Member Posts: 76
    edited February 2014

    Off for A/C # 3. No dex for me today, hope I don't regret this decision! 

    Good luck to all having treatment

    LIL

  • Sam2U
    Sam2U Member Posts: 233
    edited February 2014

    As I thought, the mo overruled the nurse on skipping chemo--I just got home from A/C #3.

    Hoping everyone is having a day with minimal side effects!

  • Asb
    Asb Member Posts: 99
    edited February 2014

    I am trying to enjoy the last few days of feeling good before round 3 of THC/perjeta on Thursday. MO said this is when the fatigue will really set in. I am not looking forward to that.

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited February 2014

    Been lurking but haven't posted in forever and I'm still a newbie here. It's time for me to share again.

    I also have (had) curly hair. I just got a curly hair wig from vivica fox wigs. I am not African American but these curly hair wigs are more like my hair and they are not tight curls but soft. I got the oprah 2! take a look for those who are stressing over curly hair issues. i know i was. It was also "poofy" but you can have the wig trimmed or thinned and that helped. I've been 3 weeks hairless and a hairdresser that teaches the LGFB classes shaved my head (2weeks after first AC) and also just fixed my wig today. I have been wearing scarves prior and doing a great job fixing them and everyone says I look "beautiful" but I still feel like a cancer pt. No one said i looked beautiful before. doesn't  that bother some of you?  I'm going to try wearing my wig more now and see how I feel. I also look at people's heads, and boobs! There's a girl that I know that had a breast enhancement purely for cosmetic reasons, she's in my yoga class and seems to flaunt it. It makes me so mad, right? Some of us need it for real reasons like cancer!

    Went to LGFB class today and lots of great free makeup and stuff. 

    Also I have been going to yoga class 1xwk and its been great. The mindfulness, meditation and mind body connection, slow stretching and "strength" poses feel so good. Makes me feel in control of something. I have a yoga DVD but the guidance of an instructor is better.

    I have also ordered dr Weil cd sound mind, sound body, music for healing. Will see if its good.

    Also warrior ladies who are in to meditation and yoga, try web site www.doyogawithme.com and look at the meditations. There is a 15 min meditation for breastcancer 

    I'm heading for my 4th and last ac on 2/24, then taxol. First week after ac is crappy but second week is better.

    Also look at "warriors in pink" web site. Some great stories

    Ok lots to say but felt good to share

  • myra104
    myra104 Member Posts: 102
    edited February 2014

    Hi ladies!  Sorry to hear a couple of you ended up in the hospital recently,  yuck!  Hope you are on the mend as best you can I suppose.

    My 3rd ac sucked...ended up finally going for fluids on 7th day.  I have the 4th and final ac this upcoming thursday then plan to get nausea meds and iv fluids Friday and saturday to help me recover.

    After that 3 mths of weekly taxol...I am hearing mixed reviews about se's for that and really trying to stay in the day but a little scared.

    I am still having port discomfort, achy and sore but I did take the kids to the pool today!  Also, chewing ice during Adriamycin push helped prevent mouth sores this round...also I have added a multivitamin and daily prilosec which has helped quite a bit.  If I dont do these little things my body is not bouncing back like #1 or 2.

    Have a great week and kick some cancer butt!!

    PS-Carol, my onco is in Sarasota, FL now.


  • tekwriter
    tekwriter Member Posts: 216
    edited February 2014

    I had an extra week off due to the snow and I thought I would just continue to get better but I am just as fatigued as always. What a bummer.  My port hurts this week also and my neck and collar bone.

  • Curlyq1974
    Curlyq1974 Member Posts: 144
    edited February 2014

    Hi everyone!  I am so grateful to read about port pain.  I thought I was going thru something major, so to see I am not alone was a great relief.  I hope everyone has a great week, minimumal se's and great counts!

  • RHGSR
    RHGSR Member Posts: 774
    edited February 2014

    Myra- I will be in the chair with you this Thursday for final AC!! Then on to Taxol for me too. Will be so happy to say goodbye to the red devil. 

  • tekwriter
    tekwriter Member Posts: 216
    edited February 2014

    I think I am more afraid of the taxol than the red devil.

  • birdlover23
    birdlover23 Member Posts: 54
    edited February 2014

    Ugh!  My taste buds are gone.  All I want to eat is soup, pasta sauce and salt.  Does anyone have any suggestions for more food for me?  Everything else tastes so bland and honestly almost upsets my stomach.

    My hair is coming out in clumps now, but I have it in a pony tail.  That keeps it from falling out all over the house, plus I still have hair on my head.  It is helping my psychologically.

    Hope you are all doing OK today.  Thanks :)

  • Mor
    Mor Member Posts: 30
    edited February 2014

    bird lover....I also have  taste problems....eggs scrambled (in butter) and breakfast sausage works for me.  Also instant oatmeal...I get the variety pack.  Not as good, but at least don't have to toss it, is a grilled American cheese sandwich, once again with butter. And peanut butter on saltines.  

    I even have trouble with all the water we must drink.  Hard to swallow it.  Taste is horrible and it feels slimy! I have my second chemo tomorrow, and the water started to taste better about 3 days ago.  

    Almost forgot...husband had fish sticks last night and I tried them.  Could not believe they tasted normal. Ketchup was good, but my cocktail sauce of ketchup, lemon juice and horseradish ended up in the garbage.

  • Diamond_lil
    Diamond_lil Member Posts: 76
    edited February 2014

    morning all!

    My taste buds have been unaffected, but I just am not too hungry. Still eating regular meals and snacks but really only cause I have to, it's good that I cook for the family otherwise I would be in danger of not eating at all. 

    Mor, I just had A/C #3 yesterday and I probably didn't drink enough h2o afterwards.... I think this is why my appetite is poor today, the chemo isn't cleared from my system. So important to drink! 

    I'm still on antibiotics for a suspected case of mild cellulitis that is resolving nicely. Apart from that all good in the diamond lil house!

    One more A/C, ya gotta love that .

    All the best to you all

    LIL

  • tekwriter
    tekwriter Member Posts: 216
    edited February 2014

    Try club soda for the water or make sure it is icy.  I cannot do the room temperature as suggested but icy is good.  Soup is good.  Also pickled foods. Eggs are good. I have been hungry third week out of chemo, don't know why.  lightly sweet things taste good to me and lightly sour foods. Strange. Well also my youngest son makes the best hamburger in the whole world and he made that last night it was so good. yum!

  • Mor
    Mor Member Posts: 30
    edited February 2014

    tekwriter....a juicy burger sounds marvelous, I can just see it in front of me!  However, beef, chicken and pork are not on my menu these days.  Make me gag and then I have to toss them.  

    On my last post here I mentioned fish sticks.  That brings back to mind a recent meal that was perhaps a 6 on a scale of 1 to 10.  It was not great, but okay.  Angel hair pasta with sautéed garlic in olive oil and frozen shrimp.

    Bird lover....hope one of my suggestions works for you.

    Woke up at 3:00 AM today.  2nd chemo is at 11 AM.  Very curious and anxious to see if it will be similar to my 1st session or if the side effects will be different.  Seems to me, if you get the same cocktail, SE's should be similar.   But will it be cumulative?  Meaning more severe?    Any thoughts?

  • Diamond_lil
    Diamond_lil Member Posts: 76
    edited February 2014

    Speaking of food, again, I've just returned home from a lovely restaurant and I'm proud to say a managed a whole meal! Grilled chicken, avocado and prawn side, and salad. Delicious.

    Even had a lovely glass of New Zealand savigioun blanc.

    Hope all is well

    LIL

  • babyduck
    babyduck Member Posts: 63
    edited February 2014


    Any of you ladies working while taking AC?

  • tekwriter
    tekwriter Member Posts: 216
    edited February 2014

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