Starting my chemotherapy on with Taxotere&Cytoxan.

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I just had a bilateral mastectomy on December 12,2013.  Pathologist found a .06mm of micro metastasis in one of the three sentinel lymph nodes. My reconstruction is underway and I am happy with the amount of saline in my expanders.  I am very scared of the side effects of the chemotherapy.

I am trying my best to be positive. But I am scared to lose my hair and of permanent damage. 

Can you share your experience with me, 

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  • Moderators
    Moderators Member Posts: 25,912
    edited February 2014

    Hi Msguera, and welcome to Breastcancer.org.

    Until members post with their own experiences, you may want to join the February 2014 Starting Chemo Club here in this forum, to connect with others who are at the same stage of treatment. Reading previous months' threads can also give you some insight on what members experienced as they went through chemo.

    You can also learn more about what to expect from chemotherapy at the main Breastcancer.org site, in the extensive Chemotherapy section.

    Best wishes!

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited February 2014

    Welcome.... please join the Cytoxan/Taxotere February/March 2013 chemo thread which is still active even though one would think that those gals there should already be finished chemo.  This thread is open to anyone no matter when they start this chemo regimen.  There are some who just finished this chemo regimen and some who are still receiving chemo.  Here is the link: http://community.breastcancer.org/forum/69/topic/800978?page=93#idx_2767.  You can also join a chemo thread for the month that you begin chemo.

    I had 6 rounds of Cytoxan/ Taxotere chemo regimen plus received Herceptin through a clinical trial.  I had my chemo on Tuesdays and felt fine on Wednesday and Thursday.  Friday was the day that I would start to feel the downward slide.  i would rest/stay in bed on Saturday and Sunday and was feeling fine on Monday.  With the approval of my oncologist, I  iced my fingernails and toe nails to help prevent nail damage and also used clear nail polish to help keep the nails strong.

    As for the hair situation, yes.... I lost most of my hair.  I had waist length hair at diagnosis, then cut it to short bob when I had my UMX and then right before my 2nd round of chemo, I cut my hair into a very very short boy hair cut.  Since I wanted to see exactly what the chemo would do to my hair, I did not shave or buzz my head.  In fact, the last time I had a hair cut was May 2012 and fortunately it has grown back evenly and looks like a layered haircut.  There is no right way or wrong way to handle the hair situation; you just need to do what is comfortable for you.  I wore bandanas, woolly hats, baseball caps and other hats I got at Marshall's, TJMaxx, Target, Ross.  I had a free wig through the American Cancer Society Look Good Feel Good program that I opted not to wear.  I had chemo during the summer months and the idea of putting something on my head wasn't for me.  Yes, I did lose my eyebrows and my bottom eyelashes by the end of 6 rounds of chemo but those returned rapidly.  The eyebrows and eyelashes are on a different growth cycle than the head hair.  I know that when hair leaves, it is an outward indication to the rest of the world that you are probably being treated with chemotherapy.  Always try to remember that no matter what, you are still beautiful.  Just hold that head up high and know that you are doing your best to get healthy.

    If you have questions, please post or private message me.  Just remember you are not alone here and you can get through chemoland with others.

  • Carren-LB-at-2-0-clock
    Carren-LB-at-2-0-clock Member Posts: 116
    edited February 2014

    I made a choice and cut my hair and donated to Locks of Love - about 11 inches of it. Then after the 2nd treatment I had a friend shave it down. I am now considering this new look as a possible hair style of choice - much to my husbands dismay! SillyHeart

    NOT EVERYONE looses their hair but with these drugs the possibiliy is high. So, take control of this situation and you will feel so much better. I found getting my hair cut shorter was a shock to people but by the time I was wearing scarves and wigs; no one really noticed anymore.

    I have had 2 (out of 4) chemo treatments with the same drugs. I have had a few SE's with the Taxotere but none with the Cytoxan.  The SE's of the drugs will be explained to you and there will be some. So make sure you ask LOTS of questions, make lots of phone calls when you don't know what is going on and be assertive in your treatments. When we are in control it is easier to be more positive. When we have the answers we need, it is easier to remain positive. I have found that humour goes a long way. I figured this is my life -Chemo- for the next few months; so get into it, learn about it, vent (on this forum) about it and you will get through it with flying colours. We understand when others may not.

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