Spring 2014 Rads

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Pam358
Pam358 Member Posts: 294

A supportive place for all those starting and continuing rads in Spring 2014.

A place to share your story & experiences (good/bad), ask questions, and give & receive encouragement. We are in this together! We can do this!

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  • Pam358
    Pam358 Member Posts: 294
    edited February 2014

    I am scheduled for my radiation simulation on 2/26 and will start rads in March.

  • Moderators
    Moderators Member Posts: 25,912
    edited February 2014


    Hi Pam358 and thanks for starting the Spring 2014 thread!


    For you, and all who join you throughout the season, here's some helpful info on the main Breastcancer.org site on Radiation Therapy, includinginfo on types of radiation therapy, what to expect during the process, and how to manage side effects.

    Also, the Treatment Side Effects section is a great resource for tips to help manage any side effects you may experience.

    You may also find it helpful to read the Winter 2013 - 2014 Radiation thread, for more tips and tricks from others who've been there!


    Hope this helps!


    --Your Mods

  • ROAREUS
    ROAREUS Member Posts: 51
    edited February 2014

    Thanks for starting this group Pam.  

    Not sure if I should sign up with the winter RAD
    group or the spring RAD group. I start on 2/24/14. I will sign up for
    both.... :)

  • Pam358
    Pam358 Member Posts: 294
    edited February 2014

    Welcome Roareus! I plan on still reading Winter Rads as well.

  • TB90
    TB90 Member Posts: 992
    edited February 2014

    I will cover both as well.  This thread may end up being the actively receiving rads group while the other one can become the recovering from rads group.  I start on the 20th. 

  • smrlvr
    smrlvr Member Posts: 422
    edited February 2014

    thanks for starting this, Pam!  I have my set up appointment on 2/28.

  • sunnyside70
    sunnyside70 Member Posts: 12
    edited February 2014

    Looking forward to getting simulation tomorrow, then starting rads shortly - let's get this done and kick it to the curb already!!  Currently still out on short term disability, anyone else out on disability of some sort?

  • smrlvr
    smrlvr Member Posts: 422
    edited February 2014

    Sunny, I have been using sick time since September.  I am planning g on going back to work during rads.  I hope it will not be too much for me.  I hear rads is easier than chemo, so I am hoping.

  • sunnyside70
    sunnyside70 Member Posts: 12
    edited February 2014

    I've been out since 12/27 (date of 1st surgery), considering going back full time - but I'm a little concerned about doing that since full time for me is 16hour days.  I'm worried that it will be way too much, then I won't be able to go back out on STD if I need to.  Here's to hoping that rads go smoothly for all of us!!

  • TB90
    TB90 Member Posts: 992
    edited February 2014

    Hi guys:  I am on short-term disability as my dr has decided that it is time to take care of myself.  I was totally ready to go back to work post surgery and work part-time through rads (I have quite a commute).  But she insists that I not work.  It is very doable for many women to work through rads.     

  • TB90
    TB90 Member Posts: 992
    edited February 2014

    Sunnyside:  You may be the exception.  Most women that I have heard from work part-time.  A 16 hr shift just may be too much.   

  • smrlvr
    smrlvr Member Posts: 422
    edited February 2014

    I am a teacher, which is pretty high energy.  I start at 7 am and can be out of,there by 230, head to rads.  I can be home by 4 and stay on the couch for, the rest of the night, have DH make dinner.  That is how I envision it. I hope it works. 

  • sunnyside70
    sunnyside70 Member Posts: 12
    edited February 2014

    TB90:  My oncologist is not in favor of me working my 16hr days, however - where I work, we are not allowed to work "part-time" and still be out on STD - we would lose the STD benefits and therefore reducing your check to just "part-time" income.  This should prove to be interesting as to what my doctor decides is best - I know in my heart that I should stay out and focus on myself and my health - just hate to seem like a baby for doing it though.

  • sunnyside70
    sunnyside70 Member Posts: 12
    edited February 2014

    smrlvr:  Fingers crossed that it works out for you!

  • smrlvr
    smrlvr Member Posts: 422
    edited February 2014

    Suj my, if your doctor says stay home, then you should.  I have been home resting and taking care of myself during chemo and I am sure it is why I have tolerated it so well.  I am just bored and I hear rads is easier.  I don't want to just be sitting at home waiting for the appointment every day; I enjoy my job and I need to not be thinking about cancer so much.  I am going to verify all this with my doctors, of course, and make sure I have their blessing. 

  • lonnie713
    lonnie713 Member Posts: 236
    edited February 2014

    sunnyside, stay home. 16 hrs is long.  You don't know yet how you will tolerate rads. I'd say wait at least 2-3 weeks in and then decide.  I've been home since September. Currently on long term disability.  I don't want to go back until I'm done with everything.  I've got Rads, hysterectomy/ooph and exchange and don't want to go back to work now to only have to take time off again.  I can't deal with the paperwork, plus my doctor said relax and has signed all forms.  He has indicated to the disability team that I will likely be out at least until Sept. which is tentative based on SE's and surgeries etc.  Good luck in your decision.   

    My last taxol is 3/21 so I will not start rads until April.  I am joining this thread and also on the winter.

  • Pam358
    Pam358 Member Posts: 294
    edited February 2014

    Welcome TB90, Sunnyside and Smrlvr!

    I am out on medical leave this school year so I can focus on treatments and being well.  My commute to rads will be about 1hr10mins each way if the weather is good so that's going to eat into the day.

    My simulation appointment was changed today - It is now Monday 2/24.

  • Pam358
    Pam358 Member Posts: 294
    edited February 2014

    Welcome Lonnie!

  • lonnie713
    lonnie713 Member Posts: 236
    edited February 2014
  • TB90
    TB90 Member Posts: 992
    edited February 2014

    Pam, our commute is similar.

    Sunny, like you I was determined to be a trooper and work through this.  Then my wonderful dr asked me why it was so hard to take care of myself instead of others (I am a social worker). Thought it was time to walk the walk.  Do not be so hard on yourself.  I too am a bit bored but every closet in my house in organized.

    I think we should build in little rewards each day or week that we get through rads.  Any ideas for yourselves?

    I am thinking flowers for myself as I live in Manitoba and like many others, our winter has been brutal.  One lady bought 25 Cherry Blossom chocolate bars and ate one after each treatment :)  Loved her idea, but personally hate Cherry Blossoms Lol

  • Pam358
    Pam358 Member Posts: 294
    edited February 2014

    TB90 - As a counselor, I too needed to do some soul searching about taking time off. I think the unpredictable weather will be the worst part of the commute to rads. :-(

  • tonilee2
    tonilee2 Member Posts: 91
    edited February 2014

    Thank you, Pam for caring to start this and thanks to the Moderators, too!

    Hi & welcome to everyone.

    I am having the 5th of 6 Taxotere & Cytoxan infusions tomorrow.  I am scheduled to start radiation sometime within the next 8 weeks or so.  I had an awful pre-chemotherapy clearance evaluation exam today.  I am thinking of possibly getting a second opinion about radiation, ie: where, when, how often, type, etc.

    Called the Cancer Treatment Centers of America today and they are attempting to get insurance clearance from MiBCN HMO, which is NOT gonna happen.  CTCA told me "I possibly have the option of jumping to Blue Cross PPO option starting March 1, 2014" as they are covered by the PPO but not the HMO.

    Not sure if I can put myself through all of it.

    I told my research nurse, Cesar today that "if it were a viable option, if given the choice, I'd do another 6-10 cycles of chemo versus 35 radiation treatments."  Don't know why I am feeling this way.  Of course, it is not an option.

    So, please count me in and THANK YOU AGAIN, Pam for starting the thread because I'm dreading radiation therapy.

    But that's just me...most say it's a breeze compared to chemotherapy.

  • Pam358
    Pam358 Member Posts: 294
    edited February 2014

    Welcome Tonilee! I think getting a second opinion is a great idea if it would make you more comfortable. Having confidence in your medical team and the treatment plan is important.  We'll be here to help get you through radiation!

    My RO wanted a chest CT before my simulation so I got that done today. I wish he had told me before I got my port out - oh well!

  • travlmom
    travlmom Member Posts: 90
    edited February 2014

    I will be starting RADS in March. I had my last TCH on 1/22 and today start my every 3 weeks Herceptin infusion until October.  I go for my mammo on the 6th and followup with my RO on the 12th. Then I go on a cruise for Spring Break / Going to Start Living for a week.  I expect to start Rads as soon as I get back. I am lucky that my facility is right across the street from my neighborhood.  I have had a bout of depression post chemo - I think it is because I no longer had to fret over the next round and all of my fears could no longer be held back. Looking forward to this last big phase in the processes to Kick Cancer and find the "new" me. 

  • sunnyside70
    sunnyside70 Member Posts: 12
    edited February 2014

    Thank you sweetie - had my simulation appointment yesterday (in the middle of a snowstorm!!) decided to go with my doctor's recommendation - I'll be staying out for the duration.  Rads start 3/04, let's get going with it I say!

  • sunnyside70
    sunnyside70 Member Posts: 12
    edited February 2014

    TB90 - I think that little weekly rewards are a fantastic idea - I think that I'll do something simple like, a new packet of seeds for the garden, or a package of summer bulbs - something that will make me think ahead to not only warmer weather, but bright and fun flowers (I love gardening).  Than you for the great idea, I think that we should all give ourselves that little "boost reward" each week, it will be that little thing to look forward to each week.

  • TB90
    TB90 Member Posts: 992
    edited February 2014

    Sunny:  I start tomorrow and already have the vases out to fill with tulips, daffodils, etc. after tomorrows treatment.  We have a famous seed company in Winnipeg (T&T seeds) and I also thought about a trip there as a treat once I have my vases filled.  I already planned the garden based on what worked so well last summer.  Zucchini grow wonderfully throughout rock where bits of soil settles in spaces.  Our home is lakefront and to prevent erosion, we have lots of rock to reinforce our property.  Last summer I threw seeds at the rock and had the most beautiful display of zucchini flowers and then veggies.  And they attracted so many bees.  It will be a way to give back to the bees that are busy making my bolus for rads.

    Anyone else getting a bolus for their chest?  Mine will be made from bees wax. I kinda like that. buzzzzz  

  • TB90
    TB90 Member Posts: 992
    edited February 2014

    Travlmom:  Well isn't that the best name for you.  Off on a cruise.  Promise yourself that you will live breastcancer free for that time and will save all the worries and challenges for when you return.  They will wait for you and you will gain nothing worrying ahead of time.    

  • TB90
    TB90 Member Posts: 992
    edited February 2014

    Pam:  Another counselor.  We all have so much in common don't we?  I start doing the commute tomorrow and of course, it is supposed to snow.  DH will be my driver and we have a 4wheel drive vehicle, so it will happen, just perhaps slowly. 

  • redlessi
    redlessi Member Posts: 27
    edited February 2014

    Hi ladies, I had my first radiation treatment today. It went smoothly. It was not as bad as I anticipated. Other than my breast feeling a little warm (not sure if thats just my imagination or not) it was a piece of cake.  Prayerfully I will tolerate all of my visits like today.  I have 33 more treatments to go.  I work at the hospital where Im receiving treatment so I am scheduled for 7:40am monday thru friday. That way I can go upstairs to my work following my appointments.

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