March 2014 Surgery
March 2014 Surgery Sisters
3/3 Melisden BMX w/TE's and Faerywings Lumpectomy....3/4 Lakegirl1 BMX w/TE's....3/5 Bobogirl Remove TE....3/6 Stfne BMX w/Perm Implants and Iwannaseeyoubebrave BMX w/TE's and Scary Right MX....3/7 FrannyM24 Right MX and SpecialK Revision of Dermal Matrix.
3/10 alisaandjoel BMX w/TE's and Luppie Left MX and Tarot Right MX w/TE and Blueberry BMX w/TE's and Jbdayton TE Removed & Bilateral DIEP Reconstruction and Juliecc BMX w/TE's....3/11 Sueal1 Lumpectomy and Lovebeingnana BMX....3/12 tir1128 BMX w/TE's....3/13 Vintagegal1111 BMX....3/14 Gramof2boys Left MX w/TE, and Fayth Left MX w/TE....3/17 Footballnut Left MX, Remove right implant and Mcbeach Exchange TE's for Perm Implants and KLJ BMX w/ TE's.
3/18 Catoklyzmk BMX and Linda505 BMX w/TE's....3/19 cinchgirl BMX w/TE's and Sandrac3 BMX w/TE's and Everforward Lumpectomy....3/21 GabriellaM BMX w/LD Flap and Sandra4611 Repairs to damaged muscles & revision of left pocket....3/24 Kitty62 BMX w/LD Flap & TE's and MakeLemonade Lumpectomy.3/25 Frostecat Mastectomy....3/26 McWill BMX w/TE's...3/27 Mnmbeck Exchange to Perm. Implants and Lovemytwinz BMX w/TE's and Wynne50 BMX w/ DIEP Reconstruction....3/31 Warrior50 LMX & R reduction and Southernbling BMX w/TE's and Everforward second surgery. We DID it!
Comments
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I'll be having my 4th surgery to continue reconstruction after my bilateral mastectomy last August.
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Hi Sandra! So far nothing scheduled, but like to visit the new boards to offer newbies encouragement!
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Good Aviva. It's so important for them to get positive encouragement, even when their situation doesn't feel very positive at the moment. I know before every one of my surgeries, I turn into an anxious mess, even though I KNOW what is happening. I can't imagine how hard it is for those women who find BC.org later in their journey.
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How did I miss this? I am scheduled for my dbl. Mastectomy on March 17th. Happy St. Patty's day!
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Welcome KLJ. Sorry to have to meet here but it is so important to have surgery sisters during this awful journey.
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Hi ladies!
I just got my surgery date for March 3rd. As of right now, just a simple lumpectomy. If my BRCA comes out positive, it *might* change that, but ATM, I am still thinking that either way, I am going to stick with the lumpectomy.
My heart goes out to all of you facing so much more than I am. (((((((((hugs))))))))
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Faerywings, your date will be here soon but I know how hard it is to wait. Some people say it's the hardest part of this whole miserable journey. Welcome surgery sister.
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My surgery date is March 10th. Bilateral mastectomy with tissue expanders. 26 days to get everything ready at work and home. I'm hoping to return to work after 4 weeks. Good luck to all of you!
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Hi Julie,
I hope everything goes ok for you and you are able to go back to work when you plan to. What kind of work do you do? When will you start chemo?
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Hi Julie! Much luck to you!
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Hi Ladies - Add me to the list sad to say. After lumpectomy 1/28 & re-excision lumpectomy 2/4, I'm scheduled for a right unilateral mastectomy on March 5th. Best of luck to us all, Franny
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Thanks. Sandra, i have no plans for chemo or radiation as long as I have clean margins and nodes. I will be doing 10 years of hormone therapy. Tonight I had a full body bone scan because I have had ongoing back issues and sciatica (I have spondylolisthesis). Also, when I take a deep breath, I get a slight pain in my back ribs. I've had that for years but had a clear chest x-ray back then.
I'm going for the bilateral because I have a history of cysts, fibrocystic disease, biopsies, etc. In 2009 I had an excisional biopsy for a radial scar. The surgeon said if I were to do a lumpectomy, the area taken would be about the size of a plum. He also said that because of my denseness, it would be very difficult to detect a recurrence. I don't want to worry about it so much. My tumor is next to my chest wall and he is going to remove some of my fascia to try to get clear margins. I always hated my droopy boobs and I don't think I'll miss them.
I work as a supervisor (desk job) and I really hope to go back after 4 weeks.
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Welcome Franny. Our little group is growing. So many people have reported lately that they've had to go back for a reexcision after lumpectomy and then ended up with a mastectomy anyway. You are not alone. So sorry you have more surgery ahead. This awful disease takes away all our choices sometimes.
Julie, my surgeon also took all the fascia from my chest, collarbone to ribs, across entire chest. It was good to hear from the pathologist that the fascia was clean...no stragglers anywhere. Goodness, you've had a lot of problems. Glad you made this decision since you have dense breasts. There is a huge push in this country for more states to require doctors to advise women that they have dense breasts and need an ultrasound in addition to a mammogram. I think it's up to 30 states with the law now. There's a good website called areyoudense.org and a FB page called Are You Dense, Inc.
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Juliecc,
It sounds like your surgeon really went into detail about what he was going to do during surgery. My tumor is way back against my chest wall too but my surgeon has never said anything about what exactly was going to be removed. I wonder if I should be asking more questions? I've always been the kind of person to put my care into the hands of the doctor but I don't want to come out of this with things that I should have been prepared for. Side note...I grew up in Orange County, CA! Esperanza High School.
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KLJ, I really want to avoid radiation. With the cancer being near the chest wall, radiation is even more dangerous because it can cause heart and lung issues (mine is on the left side). He said by taking the fascia, he is more likely to get a clear margin to avoid radiation. I think he just takes a small area near the tumor. Of course my nodes will need to be clear, too. You may want to ask your PS about the fascia thing. I can't wait to get the surgery over with!
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Juliecc, they talked about radiation for me too but mine is on the left side and I have already had a heart ablation so they won't risk radiation that close to my heart since mine is on the left side also. Ours is almost exactly the same. They measured my tumor at 6mm, Grade 1. Except mine is DCIS and IDC. I can't wait to get this over with as well! I wish you the best! My surgery date is 7 days after you. The waiting is the worst.
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Hi Gals- My exchange surgery is 3/17 (same as you KLJ!). So far I'm trying to keep it out of my head as much as possible.
Thanks for starting this Sandra...
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Hey there MCbeach, welcome to our little group.
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Welcome MCbeach! We are the lucky St. Patty's Day surgery sisters! I wish I was at the exchange stage instead of just beginning but I will get there! Is that an outpatient surgery for you or do you stay in the hospital. My insurance approved a 2 night stay for me. I think that's a good thing!
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Hi all.....I just got my exchange surgery on the calendar. March 26 (Thursday). I, too, am planning not to think about it. I really loathe the idea of more surgery, but am so so so hopeful about the next stage. The TE phase isn't one we can stay in forever (thank goodness!).
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Hey KLJ, a 2 night stay? My bilateral mastectomy is in the morning and they discharge you that night. I have Kaiser here in California. Both surgeons said it is safer to be sent home than stay in the hospital with all the drug resistant germs. Thankfully my mom is coming up to take care of me for 2 weeks and my boyfriend will be helping when he's not working. This is my first big surgery. They said it would be a 4 hour surgery so I'm a little freaked. My only other one was an excisional biopsy in 2009 on my "non-cancerous" breast. That was just a 30 minute one.
My plastic surgeon uses this injection called Exparel that will hopefully mean I will need less narcotics afterwards. Is anyone else getting this or have you in the past? She wrote this in my visit notes:
The Exparel is injected into your surgical incision just before the end of the
procedure. Exparel is a local analgesic that contains the local anesthetic bupivacaine. Local
anesthetics provide pain relief by numbing the tissue around the surgical site. Exparel is specifically designed to release pain medication over time and can
control pain for up to 72 hours.Good luck KLJ, Sandra, Mnbeck, MCbeach, Franny, and Faerywings.
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Hello everyone!! I just got my surgery date, March 19th. Can't wait as this is the beginning if the end for me since I started with chemo first.
Sandra
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Wow Juliecc, You are way ahead of me. I need to write all of this down and ask my surgeon. She didn't say anything about this to me. Seems like she didn't get very "technical" with me. I am sure we will have at least one more appt. before surgery. Mine is so far off because she is having a surgery of her own. More time for me to make my lists of questions. Did she actually describe your surgery to you in detail?
And yes, it says I am approved for a 2 night stay. Really surprised me. My daughter was sent home after about 20 hrs. I feel the same way about the bugs in the hospital and will probably be asking to go home.
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Welcome to the group Sandra...now there are 2 Sandra's so I guess we'll use the whole ID name of Sandrac3 for you. OK?
Re: Leaving the hospital - I would not have been able to leave the hospital on the day of surgery for any of the 3 breast surgeries I've had so far. The 1st one Aug. 23 - double mastectomy (4 hrs) and the permanent implants (4+ hrs) plus recovery room time - meant it was 8 pm before I got to my room. I was miserable from nausea/vomiting due to the general anesthesia. They got me up an hour or so later to go to the bathroom and it was difficult to get up, then drag an IV pole with me but I took it slow and did it. The whole next day I was still dopey as the anesthesia wore off. I probably could have gone home except that I had a complication and had to stay.
The second surgery Sept. 6, was only 4 hours plus recovery room time so I was in my room around 3 p.m.. The anesthesia was changed to IV sedation so I had no nausea/vomiting afterwards and wasn't out of it for over a day like the first time. Still, I couldn't have gone home the same day. I had a lot of muscle cramping and of course had the IV pole so getting to the bathroom alone was a challenge. By the next afternoon I could have gone home, but stayed the second night as well until the muscle cramping was under control.
The third surgery Dec. 6 was another 4 hour one but I had general anesthesia again so I stayed a couple of days. My husband spent the night the first night which was SO helpful. I was ready to go home after two nights.
So from my experience, I'd say the two night stay is about right for an uncomplicated surgery.
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Yikes! I guess I better be nervous about them kicking me out of the hospital that night. I really hope I'm not nauseous and throwing up. I thought they could avoid that these days. My brother is an anesthesiologist so I think I'll ask him.
As for appointments, the week I was told the news, I met with 4 doctors on one day. The doctors rotated with about 4 of us women in separate rooms.. I met with a geneticist for about 30 minutes and he determined I didn't have enough family history for gene testing. Then I met with an oncologist. He said I'd be doing 10 years of hormone therapy, first Tamoxifen for 5 years. I didn't really like the guy. I'll ask for a different one at the Kaiser by my house. He didn't even know if I should take my Mirena IUD out or not. I'm getting it out anyways on the 26th. Then I met with the surgeon and plastic surgeon for over an hour each. I liked them both and got a million questions answered. Since then, I've come up with a lot more. I keep a word document of questions and add them as I think of them. I meet with both surgeons for pre-ops and post-ops.
Sandra4611, I'm surprised all 3 of your surgeries were 4 hours long!
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Juliecc, Your post is making by brain whirl! I know I will have more appts. before my surgery and I need to get busy with my lists. Have they told you that "for sure" you won't need chemo? If so, did they do some sort of test that told them already without testing your lymph nodes? They really moved you quickly to all of your doctors. Mine seem to be working at a snails pace. Also, about the surgery being 4 hours, that's what I was told mine would be too.
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Hi Everyone, I was diagnosed with my breast cancer while I was enroute between California and Miami. Wanting to see my family. That was Jan. 21. I'm now scheduled for a lumpectomy March 11. Am trying to get the scheduling nurse to have the surgery sooner. Not having an easy time with her. Want to get this awfulness over as soon as possible. Am full of anxiety. I keep taking deep breaths.
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welcome sueal1, but sorry youre with us. The waiting for appointments, results and surgeries is the hardest! The initial inclination is cut it out asap, and its hard to wait ... dont despair if they cant move it up, but I hope you can.
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Sueal1, I was diagnosed in Orlando on Dec. 12th and moved to CA on Dec. 18th. I am having the same problems because of starting over in CA. Not scheduled for BMX until Mar. 17th. Moving cross country definitely adds to the stress of all of this. Hang in there. I keep telling myself that March is right around the corner.
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At least you went from warm to warm! Just think of moving from Fla to up here in Chicago...brrr... less stress for you already!
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