Another newly dx'd DCIS here :)

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  • LPBoston
    LPBoston Member Posts: 89
    edited February 2014

    Vbishop and strongerthanithought - I too was told I was fortunate I had breast cancer - mind you I had breast cancer in 2005 - dcis with a lumptectomy and was diagnosed with TNBC in April 2013 - with a double mastectomy and tram flap reconstruction.  Reason being is because this person's mother has lung cancer and there are more options for breast cancer than lung cancer.  I keep being reminded her mother is going through her bucket list as if I don't have one myself - god help those who just don't  get it.

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  • faerywings
    faerywings Member Posts: 173
    edited February 2014

    Well, I have good news and bad news on the Lyme side of my life. What else is new? hahah!! My llmd is very concerned about my immune system bottoming out more than it already has after surgery and tx. I (mistakenly) thought that my new insurance would cover IV abx so I mentioned that to her and she jumped on that. Told me that if I could get everything approved that very day, she would want that. But yeah. Insurance. The abx is not covered, however my totally incredible parents want to pay for the meds.(about $1000 for three months, grrrr!). That was step one. Then to make the appt for the PICC insertion- I called for the appt, but the hospital needs the dr to call it all in Of course, here in NJ we are covered with snow and ice and the drs office has been closed. 

    But to focus on the good, the woman at the hospital called, had seen my med records and set up a temporary appt for the PICC on the 19th. She also had Lyme and understood why this was so important.

    So now, I wait and focus on baby steps forward!

    Hope that all of you are having a good day and if on the East Coast, staying warm!

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  • faerywings
    faerywings Member Posts: 173
    edited February 2014

    (((((((((hugs)))))))))) to you LPBoston. I think people think that they are helping, sometimes, to make us feel better. I know with Lyme in my family, it sometime would become a "pissing match" at the dinner table. If one of us had knee pain, the next had knee and back pian, and so on. It was always in the guise of Be thankful, you could have it worse.

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  • carla53
    carla53 Member Posts: 264
    edited February 2014

    Gosh faerywings. So glad your parents are able and willing to help out. And your llmd and the woman at the hospital sound like God sends.  Not sure if you've ever had a PIC line.  Ended up needing one for chemo.  There was no problem with the insert nor any problems with it while it was in me.  It was during the summer and I was wearing short sleeves.   I picked up different colored socks and cut the toes out (actually can't remember exactly where I cut them).  Slipped a modified sock on my arm and covered the PICC line. That way I had color coordination and the PICC didn't show.

    LPBoston never considered myself lucky to have bc.  But goodness, as you pointed out, at least we have more options.   

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