September 2013 Chemo Group

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  • simplelife4real
    simplelife4real Member Posts: 563
    edited February 2014

    Thank you everyone for your good wishes on my surgery tomorrow.

    Betterday, that great that you have some more good news.  Good luck with your sugery on Friday!

    Knightzoo, I'm sorry you have been dealing with so much pain.  I hope the exercise helps.

    I am loving everyone's creative IMRT responses!

  • PeacockGirl
    PeacockGirl Member Posts: 162
    edited February 2014

    As an aside, I got my explanation of benefits for port *removal* today. $2000. Wow. Have I ever said how thankful I am I have health insurance thru my husband's job at the State of Oregon? Crazy. Just crazy.

    simplelife: wishing quick healing for you! I fared very well with my lumpectomy surgery, vicodin gave me the itchy creepy crawly skin so I only took it for the first day, Tylenol or ibuprofen was fine after that. Ice packs worked wonders on the surgery sites (but then I had my port put in the same day). I was back at my studio teaching yoga 4 days later.

    Knightzoo: hope you are feeling better soon, sounds like everybody has good ideas to get you moving again!

  • Miss_Mama_Bear
    Miss_Mama_Bear Member Posts: 252
    edited February 2014

    Oh my you all have been busy on here. I posted a lengthy post awhile back and then saw it didn't post. I was not happy at all. GRRRR! I have no idea now what I even said besides thanking you all for your input on the guy situation. It really helped me a whole lot. That is moving on really quite nicely. It has been great to have such a wonderful distraction. If not for him I think I would be riding the Xanax train right now lol. I'm really not sure what I did to deserve someone as great as him but I am not complaining. Now that my sister is here I have a babysitter too :) He is planning some elaborate romantic evening for Saturday. It will be nice to do something before surgery Monday because it is going to be awhile before I can again. I have asked him several times if he is aware that I have cancer and just flat out "are you f'n crazy?!" lol. I think you may have been right about the secret crush thing. It's funny how things work out sometimes. 

    I have been crazy busy with trying to prepare for surgery. I just finished up my homework that is due tomorrow...so much for being two weeks ahead lol. There are more important things in life than a 4.0, though, I guess. We were supposed to get together with my other two sisters Saturday but the one (that has caused me so much grief through this) doesn't express much interest in getting together so I decided that they can come to MY house. I am not going to waste 4 hours of my day packing,getting loaded and driving. They can come to me :) Besides, I've got a date that night :) Then I can have that 4 hours to do homework, maybe. 

    LHL: thanks for posting the exercises for Knightzoo. I copied them just in case I didn't get any given to me as well. 

    And thanks everyone for the talk about lymphedema therapists. I didn't even know there was such a thing. I am wondering if I will need to see someone after surgery. I still don't have full range of motion back from my node removal and have quite a bit of pain at times. OH, and my hematoma! It was sooooo big! She took about 40cc of blood out altogether and there is at least another 20cc in there. Unreal! After getting drained yesterday it finally is feeling much better. I am hoping that I don't have a bleeding issue with my BMX. I have a cold....again...SERIOUSLY! I have until Friday to be mostly over it or they will re-schedule my surgery (NOT an option!) I managed to get on antibiotics though, so hopefully it will kick it to the curb. 

    So that is the Reader's Digest of my life right now. I hope everyone is doing just great and I just want to say that I am thankful to have you all in my life. I talk about you all often and  I don't know what I would do without you. (((HUGS!)))

  • BetterDay
    BetterDay Member Posts: 116
    edited February 2014

    LHL, thanks for posting the exercises. I copied them too.  I already have the discharge instructions for tomorrow's surgery, but there are no exercises on them. Just says get moving the next day and no major exercise or lifting until after first post op appointment with surgeon. How soon after surgery do you start them?  I'm going to ask tomorrow. I'm doing one step recon tomorrow (SS/NS) so maybe there's a difference in what I should be doing. Getting nervous about surgery, but watching you all bravely face and conquer it has helped tremendously.  

    Mama, in case I'm not back on here before Monday (though I certainly hope to be), good luck with your surgery!!!  I hope it goes perfectly. 

  • KBeee
    KBeee Member Posts: 5,109
    edited February 2014

    Simplelife, Thinking about you today and hoping all goes well!

    Mama, So glad things are progressing so well with your man!  I am glad that you have a sister here to lend a hand as well.

    Peacock, Amen on the insurance thing...wowzers when I look at these bills!

    Knightzoo, Hope you are feeling better each day.  If you don't want PS to fill; just say so.  They will typically do it at your pace.  Or have them fill only a tiny bit.  I am the opposite with pain meds.  I hate how they make me feel, so I stop taking them the second I can sort of tolerate the pain without them.

    LHL, Hope all goes well with your drive to the PS and your fill today.

    I went to the store and to an appointment with just a ball cap on yesterday.  Before that, it was always either a stocking cap (winter hat) or my wig when I was in public.  Baby steps!

     


     

  • lighthouselady
    lighthouselady Member Posts: 752
    edited February 2014

    On the exercises.... My BS said not to do them until my drains were out. My PS (who was in charge of the drains) said to do them whenever I could... which was a good thing since i had drains for 3 weeks!  LOL. So ask your Dr how soon they want you to do them after surgery. 

  • audra67
    audra67 Member Posts: 521
    edited February 2014

    Good luck today surgery girls!  You will find it's way easier than the chemo and effects!  I think the exercises and lymphedema person is critical!  My BS and PS didn't really tell me anything about lymphedema except I wouldn't have it since they only removed my sentinel node...so some might not think they are important...

      I am seeing a Lymphedema specialist as I have 'congestion' in my back of axillary area and that foob goes numb back and forth...she said it's all fluid build up and needs re routed until it can figure out how to drain on it's own...so I'm going 3x/week and it is helping tremendously!  Plus just having her watch my exercises makes me do them..

    Tired of my hair being gone too...it is growing but just too slow...when you're done with chemo and treatment I guess I'm ready to be me again and that means hair!  

    Going to MO today for 4 week apt and guessing to get Tamoxifen...and blood work ugh...


  • 70charger
    70charger Member Posts: 963
    edited February 2014

    I May Respond Tomorrow

    Good luck surgery girls, you will all do just fine.  Big pocket parties!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    Good luck with surgery today, SimpleLife and tomorrow, Better Day and the following day, MamaBear. I hope you all have an easy and painless recovery!

    Kelly

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    I Miss Regular Times!

    I can't deal with shoveling with a sore arm! My kids (12 and 16) are unhelpful and unsympathetic! Neither my surgeon or my MO will call me back to give me a referral to physical therapy! I think I have axillary web cording!  I have to work full time + as a single parent!  I've started having hot flashes! 

    I'm Maximizing Ranting Today

    Its harder than I thought to return to "regular life" after BC treatment!  I'm glad you are all in my virtual world, as you all have your own bad days and good days and know what this is like!

    Betterday!  It will be a better day once your get through surgery and recovery!  MamaBear!  Thinking of you too! Wishing for a smooth surgery for you and smooth sailing at home while you are in the hospital and recovering! 

  • kjsimpson
    kjsimpson Member Posts: 445
    edited February 2014

    you guys are so good with the IMRT Acronyms!!

    3 down and 27 to go. 

    Interesting Memories Rush Through as I lay there on the table listening to the buzz of the machine.  

    Good luck and prayers for those with surgery this week. 

    Knightzoo,

    You are only 10 days post surgery, woman!!  Give yourself a break. ;-)

  • kjsimpson
    kjsimpson Member Posts: 445
    edited February 2014

    Runningfromcancer,

    I am having an unusually bad day today. After gaining ground for weeks, the past 24 hours have been awful. It is so frustrating!!

    I miss my "regular" life!! I want it back!!  

    Sometimes this just sucks. I try to look at the positive, but today is a rare day when I am finding that very difficult. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    KJ  - - Only 10 hours left in this "bad day". Hold on, sister!!! You've finished 3 radiation treatments that you'll never have to go through again!

    I LOVE " Interesting Memories Rush Through"!   I don't like tequila but I also love the concept of "I Might Require Tequila"!

    I slid past an exit ramp on my way to work but got to work safely.  I was ahead of a 20-car pile up in a tunnel!   So that's something to be glad about, if one wants to play the GLAD game!   

    But cancer does suck, and it sucks that we got it!  Some days we just need to acknowledge it and wallow in the suckiness!

  • KBeee
    KBeee Member Posts: 5,109
    edited February 2014

    A couple weeks ago I could have said I Model Reinflatable Tits...now I Model Rebuilt Tits.

    Knightzoo and Running, I hope that your days get better and brighter. 

    Running, if your kids are like mine, they probably want rides everywhere...if they want rides, they shovel the driveway so you can get out.  No shovel, then taxi service is out of business for the day.  I am a mean mom!

    Audra, I hear you on the hair.  I don't just want it...I want it to be long again...like NOW.  I was OK losing it and liked my wig, but it is at hte point where it is almost too long for the wig and too short to go without a hat...kind of like that phase in pregnancy where your clothes don't fit but you are too small for maternity clothes.  Uuuugh.

    I am actually having a pretty good day.  The temperature is about 40 degrees, so I actually got out for a 3 mile walk.  Walks rejuvinate me.  The puddles were huge and it was icy in spots, so I didn't run, but at least getting out to walk is a step in the right direction...no pun intended!  Tomorrow is my first shift back at work after this last surgery, so I am looking forward to that.  Not sure if I am going to wear my wig or a hat...decisions, decisions.  I am thankful that by summer we should all have a decent enough covering on our head to not need sunscreen on our scalps.  At least, I hope so.  Anyone have that Play doh set when you were little, where the little person sits in the barber chair, you fill the body with Play Doh, sit the person on the chair and the hair comes squeezing out the head and instantly grows to its feet?  I want to be that person in the Play Doh chair, and that's how fast I want my hair to grow.  Happy

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    Kbee - - OMG!!!! Your acronyms totally improved my day!!!!!  Thanks for the opportunity to laugh out loud!!

    And Fuzzy Pumper Barbershop???  Great memory!!!! My sister and I loved to play with that. Wish I could turn the crank a bit.  My wig got way to itchy with my stubby hair, so I go around with the concentration camp look now... and put on a hat when my head gets cold!   

  • audra67
    audra67 Member Posts: 521
    edited February 2014

    I Miss Real Toughness...seems I cry at anything...and have fear and get sad so much more...

    All of your comments made me smile though!  You all are great!

    Kbee- LOVED the playdoh thing I want to have it work that way for us!

    KJ- We all have our times...and EVERYONE says it takes a year or so to get better emotionally and physically so give YOURSELF a break!  You always say that to us :)  We are going to have tough days..

    Running- I agree with Kbee you need to have them do some work to earn your things you do for them!  It will help you and make them productive members of society!  We do seem concentration camp looking --!  I so LOVE wearing nothing on my head though, the wig hurts, hats hurt, beanies get hot...scarves hurt as I tied them too tight...

    Good luck surgery sisters!  Get that crap out of you! 

    We are STRONG and we WILL RECOVER and be BETTER THAN WE WERE BEFORE!

  • knightzoo
    knightzoo Member Posts: 171
    edited February 2014

    Feeling much better today, think I was having a pity party yesterday. Went to PS today and everything is healing nicely, she added 75cc to cancer side only to minimize the discomfort, we can do the other side during rads, so I'll just be lopsided! 

    Hugs and prayers for everyone getting surgery today and tomorrow! And love to you ALL. I don't know what  I'd do without you!

  • alfranco
    alfranco Member Posts: 200
    edited February 2014

    Best of luck in surgeries, Simplelife,Betterday, Mammabear and anyone else I might have missed.

    Knightzoo I hope you are feeling better.

    I have done 23 out of 33. Ten more sessions to go. Sometimes I feel very tired. Some days I do feel sad. I cry a little and keep on going. Every single one of you is an inspiration to me. I am thankful to have met you. 

    Mamma, so happy things are working out with your man.

    I am looking forward to meet you in Las Vegas. Don't care when or what we do, just want HUGS, and lots of laughs.

  • kjsimpson
    kjsimpson Member Posts: 445
    edited February 2014

    it is hard to have a bad day when you all make me laugh!!  Thank you. :-)

  • knightzoo
    knightzoo Member Posts: 171
    edited February 2014

    Oh, I just found exercises that were sent home after surgery! Clearly I was kind of out of it! And I'm super bloated, is that a normal post op thing? I look 6 months pregnant!

  • Art123
    Art123 Member Posts: 115
    edited February 2014

    better day: you made me chuckle," hello ladies & Art".

    Simple life; good luck tomorrow.

    Nat's pcp sent preclearance yesterday for surgery but BS office closed early due to snow today.

    I'll nag them tomorrow for surgery date.

  • kjsimpson
    kjsimpson Member Posts: 445
    edited February 2014

    4 down. 26 to go. 

    I Might Require Therapy after this. ;-)

  • lighthouselady
    lighthouselady Member Posts: 752
    edited February 2014

    simplelife - Hope you are doing well after your surgery! Thinking of you...

    mama - I was told that anyone who has lymph nodes removed should see a lymphedema specialist, but all doctors are different. Glad things are going well with your guy.

    Betterday - Good luck tomorrow! {{Hugs}} a successful surgery and a comfortable recovery.

    Runningfromcancer - I don't think there IS a "regular life" after cancer. We have to just find a new normal. Rant away!! That's what we're here for. "wallow in the suckiness" is GREAT.... I'm going to use that line. LOL

    KJ - Four rads down now... woohoo! Hope you're feeling better.

    Kbeee - I want play doh hair too!! I'm with you.... I want it to grow NOW. I know it's growing, but it's growing at a microscopic rate. I don't want to have "barely there" hair for months. I don't want to have a crew cut for months. I don't want to have short hair for years. <sigh>

    Audra - {{{Hugs}}} Fear and sadness seem to go hand in hand with us on this journey. It stinks. I thank God for this group because it helps SO much to have you all to laugh with, cry with, complain to, etc.

    Alfranco - 10 more... the countdown is on!! How is your skin holding up?

    Saw my PS again today & got another fill.  Up to 200... really don't see how I could go to 500 (what my TEs will hold).  That will be too big for me I think.  Had a session with my lymphadema therapist, too.  She spent the entire hour working on and massaging the cording under my arm.  It hurt so bad but felt so good.  I'll go back to both of them same time next week.  I'm really sore tonight.... I feel some pressure from my fill and definitely feeling the pain from her massage, so I see pain meds in my future tonight.

    Anybody have Valentine's Day plans?  Well, Betterday has surgery.... I think she deserves flowers more than anyone.  

  • BetterDay
    BetterDay Member Posts: 116
    edited February 2014

    You all are awesome!!!

  • Viji
    Viji Member Posts: 195
    edited February 2014

    I am 11 weeks PFC and have given up on all head gear. I have had many comments on my cool haircut. Going back to full time work has been very tiring. Does anyone else have problems with their memory post chemo? I am having embarrassing moments like not remembering people's names and also saying one thing and then doing the opposite. The Biotin seems to be helping with the hair growth and I am going to add Gingko Biloba to see if it improves my memory. 

    To all suffering, tomorrow will bring sunshine!

  • hockeymommy
    hockeymommy Member Posts: 77
    edited February 2014

    hello ladies, well back to reality...boo...it was really nice having a little getaway with my hubby! While in Florida we decided to go kayaking in the ocean(I am scared of everything) , as we started kayaking I noticed the water in front of kind of swirling around. I instantly started getting freaked out yelling at my husband to paddle faster...next thing you know two dolphins come up beside the kayak and blow their water spouts at us.. I yelled so loud that the boats around us were laughing at me. But other than that embarrassing mishap we had a blast. It was 84 everyday we were there. I decided to not wear anything on my head while I was there, and I have to say that no one gave me the cancer look(aw I feel sorry for you look). Maybe because I am not completely bald anymore, but whatever it is it felt nice.

    To everyone who is having surgery, gentle hugs!

    Thank you everyone for being awesome chemo sisters!

    image

     Cheers!

  • Art123
    Art123 Member Posts: 115
    edited February 2014

    surgery date is 3/13. That's like 8 weeks post chemo, is that too long? Plastic surgeon is away first week march:

  • hockeymommy
    hockeymommy Member Posts: 77
    edited February 2014

    oh by the way, it is so flipping cold here I thought I should get a couple more scarves....😤

    image

  • lighthouselady
    lighthouselady Member Posts: 752
    edited February 2014

    hockeymommy - I loved seeing your pics on Facebook.  Looks like you did so many fun things, and enjoyed the warm weather!!!  Did you go with friends, or did you know someone down there?  LOL @ the scarf.  Love it!!

    Art - My BS said she prefers to do surgery within 6 weeks of the end of chemo.  However, when you're having to coordinate schedules with more than one doctor, you can't always work it out.  Did your surgeon's office schedule it?  If so, I would say they're ok with it.  You can always call and talk with them to voice your concerns.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    Hockeymom- those scarves are hysterical. Thanks for the laugh.

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