70 yr old stage 1 grade 3 cancer her 2 pos please help

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helenelv1944
helenelv1944 Member Posts: 26
edited June 2014 in Just Diagnosed

if getting the call that i have cancer was not bad enough it got worse as i got told the news in December right on Friday the 13th 2013. that made me feel like i was doomed and ready to die. i am a 70 year old mother with Stage 1 or stage 2 i forgot now...i keep getting told its on its way to 2. but im thinking its still stage one....BUT Grade 3 Breast Cancer. further more i am HER-2 Positive as well....i am trying not to get grade and stage mixed up. this is so much to take in right now esp for my age. i am under the impression that i have to have the very aggressive breast cancer that can spread very quickly.

the thing i am very confused about is that i feel fine. no symptoms from the cancer yet, what does this mean? the tumor i assume is small because i can't feel it and neither can any of my doctors, only tests shows i had a growth. is this a good thing that i am not sick because of the cancer?

however i have went through a battery of tests since the day i was Diagnosed and so far it would appear that my cancer is still ONLY contained in my breast. so far the plan is for me to have chemo 1st, then surgery and finally radiation. i will be put on the following during chemo

( Herceptin,perjeta,carboplatin & docetaxel) is that a good combo? is this a good way to kill the cancer i have? are all these FDA and proven to work?

i just want to know if there is anybody else who is going through the same thing or something similar to what i am ? i have since quit drinking all together. and is there any information on the survival rate? am i doomed? should i start to plan my will? what should i have to face at this point? what should i do? i have two sons and i have to be here for them both. i am very scared. i never in my wildest dreams would of heard i would be one of the many who got breast cancer. 

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    You are not doomed! I'm almost at 10 years since a diagnosis of stage III, grade 3, Her2+, with involvement in 5 lymph nodes. So there is definitely hope for your future! No spread beyond the breast is very good. 

    To try to answer some of your questions:

    Most breast cancers do not have any pain or other symptoms (beyond possibly finding a lump) & patients feel perfectly fine. This makes it even more difficult to believe that it's true. (Exceptions include rarer cancers like inflammatory BC). I had a 2.7cm tumor that was not palpable, even to my breast surgeon. I never had any pain or other symptoms of the cancer.

    I can't tell you anything about the chemo drugs because some of them are more recent than when I went through chemotherapy. However, I have heard of all of them being used. You should talk more to your oncologist if you have questions about these drugs. Of course, they are "proven" or they wouldn't be allowed. But remember, none of these treatments will absolutely give a 100% cure to everyone. I'm also sure your doctor wouldn't be using non-FDA approved meds.

    I did have Herceptin and Taxol (which is similar to Docetaxel), in addition to some other chemotherapy drugs that were much harder to deal with (Adriamycin and Cytoxan). I had absolutely no side effects to the Herceptin over the 12 months that I was on it. The other chemos were much shorter time. My chemotherapy came after surgery, but more & more, doctors are choosing to administer it prior to surgery. Chemo often shrinks the tumor a lot. I also still take a daily pill of Arimidex (almost 9 years now), essentially an estrogen blocker. No side effects from that for me, either. If you are also estrogen positive, your doctor will probably want you on something similar when you have completed all your other treatments. 

    For surgery, I had a lumpectomy instead of mastectomy. With that choice, radiation is necessary, too. With mastectomy, sometimes radiation is also recommended, but not always. Which type of surgery you decide on is again something for you & your doctor to discuss. Sometimes, mastectomy is necessary, but often it's a choice.

    You should make a list of your questions and then take them to your doctors. You will probably have different questions for your oncologist and your breast surgeon. 

    Remember, many of us have been where you are now, and many of us are still around many years later. I for one, plan to die of something else when I'm very, very old (like 95) -- after wringing all the juice out of this life I can! So don't despair -- and know that this forum is here for you!

  • Susie123
    Susie123 Member Posts: 804
    edited February 2014

    I too had no symptoms at all. I felt perfectly fine, the Dr didn't feel a lump during my routine physical, the mammogram that went along with that physical found it. I was shocked, worried for my kids ( sons also), and felt like my life was over. That was 4 years ago and after the initial treatment, life went back to normal. I know it's hard to believe right now that life will ever be normal again, but it will. Just get your mind set that you are going to do what you have to, get through it, and come out the other side. I know you are worried about being grade 3. People who are her 2 positive are grade 3. Years ago that was a really bad thing, but now they have a drug to treat that, herceptin. Lots of women have successful outcomes with that. Try not to worry about the Friday the 13th thing being a bad sign. My 2 sons were both born on the 13th. We had to go through fertility tests and treatments to get them. The oldest was born on the 13th, at 8:13, when we were married for 13 years. They have been a blessing. 13's can be good too.  ((Hugs))

  • flaviarose
    flaviarose Member Posts: 442
    edited February 2014

    I will echo what the others have said - you do not have a death sentence.  It won't be fun.  It will be a year out of your life that you have to go through and deal with all the treatments that you will have.   And chemo will probably make you lose your hair and make you feel sick.   But it ends.  Good for you to stop drinking.   There are also a lot of other lifestyle things that you can do to reduce your risk of recurrence - eating more vegetables, less sugar - and exercising.  You will be ok.

  • juneping
    juneping Member Posts: 1,594
    edited February 2014

    when you in doubts, you can ask for a second opinion to ease your mind.

    it seems like chemo before surgery is getting very popular/standard nowadays because chemo can melt the tumor away. but i've read someone had chemo first which didn't shrink the tumor. it's something you should bring up to your MO if it's a concern.

    it's not a death sentence but it's just something we need to change our life style, to live more healthy

  • Kicks
    Kicks Member Posts: 4,131
    edited February 2014

    You are not 'DOOMED'!  And Dec 13 is a good date - our oldest sone was born n Dec. 13 (1977). Dec. 13, 2013 is also a good day because it is the day that you learned that there is 'monster'  that was unknown before that date but it waas there anyway - silently invading.   Now that know  - you (with the help of your Drs, family and the strength within you) are ready to battle and DEFEAT it!

    I'm 67 yrs young  and was DXd with IBC (inflammatory Breast Cancer) in Aug '09 and as far as I know I am still NED (No Evidence of Disease).   I never had any pain or 'felt bad' at all.   I had had my annual mammo in late ju  ne andeverything was as it's been for years - no issues.  I found an enlarged node under arm and my PA was on vacation so it took me a week to get into see her - didn't want to see anyone else.  I saw her at 11 on Thurs, she had at raiology at 1 for a new mammo, sono rapidly followed as did biopsies that afternoon.  Dr called me at 8 the next morning (Fri) with the path. report that was exactly what we expected - IBC.  Mon, I saw surgeon, Wed the rads Dr and Thurs, chemo Dr.  Lots of scans, tests, port implant, etc and 18 days after DX I started neoadjuvant (before surgery) chemo.

    Neoaduvant chemo has long been the standard for IBC as it does not form 'lumps' but in 'nests' or 'bands', to get it to form a 'lump' so surgeon can get it all. It is becoming more 'popular' with other types of BC to shrink it.  For some of us, chemo can be done both neoaduvant and adjuvant before rads - I did 4 DD A/C neoadjuvant and 12 weekly Taxol.  (A/C was easy - Taxol was NASTY but it's different for others.)

    Should you have a Will? - OF COURSE!  WE should all have wills no matter the age or health.  I also have Living Wills on file at several places.

    "Stats" - I dont put any 'faith' in them.   The 'stats' cover everyone with a particular DX.  We are each so unique and there is so much that goes into how we each handle any issues.  I went into IBC basically very healthy - osteo arthritis in upper back (probably from all the sports injuries over many years) and ostoepenia (huge family history).  I now have minor hypothyroid and now osteoporosis - would have happened anyway with my ancestery.

    Ask lots of questions - make sure your Dr explains everytbing in a way that you  can understand.  Take a notepad or better yet a tape recorder to all appts so you can review what was said later.  Get copies of ALL tests/scan/reports/ everything  (even routine blood work) and keep them in a file just in case you need them.  You'll get a lot - I have 'tubs' of paperwork.  Do not expect to have the same reactions to anything that someone else has had - you might have similar and you might not - we are each SO unique so there is no "One Size Fits All".  Let your family/friends help you in ways YOU need - not what they 'need'.  If you need something ask.

    You have to  be fighter to have made it to 70 yrs young - so this is just anohter battle that your life has prepared you for.  Winyan - The Power Within

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