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Lovemyboysandlabs
Lovemyboysandlabs Member Posts: 83
edited June 2014 in Just Diagnosed

I got my pathology report today, the 3 tested areas all positive. I was upset but  i was prepared because of the radiologist report last week. Guess I was still hopeful that at least one of the areas was not positive. One node was checked. Report is confusing because each area says something different. One says ducal carcinoma in situ. One says high grade mammary carcinoma. Not sure what it all means exactly. I have a breast care navigator that I met with today--I hope everyone is lucky enough to have one. She really helped and is making appointments for me, there to talk and will meet with me regularly throughout this. I think she will be a Godsend.

I just hope this isn't found anywhere else--7 months since my clear mammo, so I can only hope.

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  • AZ85048
    AZ85048 Member Posts: 2,613
    edited February 2014

    Lovemyboysandlabs - Damn it!  I wanted you to be one of the lucky ones!  Well, at least you've found BCO and the women (and) men who can make this journey bearable for you.  You sound calmer and that's good.  The breast care navigator sounds awesome!  I'm so glad you have her.  You'll find that it actually gets a little easier when you have a plan in place.  Will you let us know what's next for you and how you're doing with it?  Welcome to the sisterhood....

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  • juneping
    juneping Member Posts: 1,594
    edited February 2014

    yes, my nurse navigator was also a God sent. i actually saw her today when i stopped by for the paper work. i love my BS, i was told she hand picked her whole team, and boy i love her team. everyone was excellent.

    i hope you'll have a smooth surgery and recovery.

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  • vbishop
    vbishop Member Posts: 616
    edited February 2014

    Love -

    I am so sorry that you are now a member of our special club.  On a positive note, we are a great bunch of guys and gals here, ready and willing to help.  You are so blessed to have a patient navigator in your corner already.

    There are other ladies that I know will chime in soon that know their way around here far better than I do.  You may want to check out the IDC forum,  There is also a just diagnosed forum that is very helpful.

    The next few weeks will move fast and furious.  Let us know how we can help!

    Hang tuff! 

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  • Lovemyboysandlabs
    Lovemyboysandlabs Member Posts: 83
    edited February 2014

    what is IDC forum? I am confused because I seem to have 3 different diagnoses. I should have asked the doctor but of course I didn't think of it. I just hope breast cancer is all I am dealing with. Thank you all for the support so far.

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  • pupmom
    pupmom Member Posts: 5,068
    edited February 2014

    Love, really sorry you had to join the "club," but welcome. You can have more than one type of bc going on in the breast. I had IDC (with ILC features) and DCIS. They will diagnosis you based on the largest, if more than one, invasive tumor.

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  • Lovemyboysandlabs
    Lovemyboysandlabs Member Posts: 83
    edited February 2014

    thank you yorkiemom mine look all to be grade 3 which if course terrifies me. If anyone out there had similar dx let me know. I just hope that since I had clean mammo 7 months ago I nipped this early enough. Doing okay with the fact I have this but not so much with the aggressive aspect. 

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited February 2014

    lovemyboys, 

    It is confusing, I have been living this for 7 months, and still have a lot to learn. In situ, means it is encased, or has not spread. That is the best of the breast cancer diagnosis. Mammary carcinoma should mean breast cancer. Bottom line, until they get in there and take it out, they don't know 100% what they are dealing with. Your navigator sounds like a great plan, they do not have those at my center. 

    IDC means invasive ductual cancer....I hope your appt. with the surgeon is soon. Look around on the topics for the newly diagnosed, lots of good info...

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  • ziggypop
    ziggypop Member Posts: 1,071
    edited February 2014

    Hi Love, 

    Sorry that your results were what they were. Once you talk to your BS and he or she explains your pathology, you will have a better idea of what is going on. You seem to have a level head on your shoulders and that's good - although even those of us who are normally very level headed often need some anxiety meds to get us through this. 

    Don't worry too much about terms like DCIS or IDC for now. Basically, what my oncologist said to me is that this would better be termed breast cancerS rather than breast cancer, because the types are very different - the treatments are different, and the prognosis are different. Generally speaking, they will have an 'idea' of what you have from your biopsy results, and pretty much the general course of things is that you will have some kind of surgery first (a lumpectomy - which is sometimes not much more than a biopsy, but is sometimes more extensive - or a mastectomy). When this surgery is done they will be able to confirm whether what they found in the pathology for the biopsy is correct or if it's different based on the larger tissue sample. 

    Do not worry at this point that the cancer has spread - there is nothing that you have said that would indicate that, in fact they may not even do a body scan based on your findings. I don't know that, just saying that it might not be necessary. 

    Whatever happens, you have a network of support and information here & that's a really good thing. One last thing - if you need some anti-anxiety meds, ask for them. That's what they are for. 

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  • vbishop
    vbishop Member Posts: 616
    edited February 2014

    Love -

    Something else...the biopsies are not always accurate.  They thought I might be a stage II or III based on my biopsy report, but after surgery, they downgraded the stage to a 1.  They also said I had a 2 cm tumor...in reality, my largest was 17mm.  Bottom line, they really don't know for sure until surgery. 

    You'll get through this.  You have lots of virtual friends to help you!!  Keep us posted!

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