Starting Chemo in June 2005

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  • Fi_in_oz
    Fi_in_oz Member Posts: 49
    edited July 2006
    Hi ladies,

    I'm extremely reflective at the moment, just another passing phase i guess.

    In my reflections I discovered a truly beautiful perspective, I thought I'd share it with you all.





    To feel my heart ache, is a blissful feeling, a feeling I almost want to savour, as it means there is blood still pumping through it, which in turn means I am still very much alive.


    It's amazing how just one year has changed my perspective so fundamentally.

    Anyone else feeling like an over wound rubber band that's forgotten how to cry? wondering just how strong they have to be? wondering what its going to take for them to "snap"?

    &*%$ its good to be alive, appreciating every moment, be it good or bad.

    take care ladies,

    regards

    Fi
  • rmmom
    rmmom Member Posts: 168
    edited August 2006
    Fi,
    How lovely. Yes I guess I do feel a bit over wound. But I do every year this time of year. I am for year round school. I could have sent my crew back about two weeks ago.-Think of all the fun they could have had learning all that summer stuff they miss. But I miss them greatly about October- then time for another break.
    I have been victim of my own device here. I made a strong no computer before six rule and because of all the summer reading due-oh so soon-no more TV-actually they get to pick AC or TV-just wanted to see which they'd pick. The AC won.-So no computer or TV for me either. I get to play endless board games and teach the little one to read. Which I love BUT I can only play Monopoly so many times in one day:)
    Nancy I got the box!! It is great! I loved your pictures and the stuff was wonderful. My son opened it while I was picking up DD from soccer-so he was excited but I had to get a new box(LOL). So DD and I packed up our box and sent it on to Jen. I am so excited about this. Have fun ladies.
    Got to go pick up FB playing son. DH out of town so I am paying for someone's college ed in gas money. Think their school would of made soccer and football the same time JUST FOR ME LOL LOL
    Bye
    Bev
  • Jenster
    Jenster Member Posts: 267
    edited August 2006
    How exciting!!! I can't wait to get the box!

    I know exactly what you mean about the kids and summer, etc. Our summer is two weeks longer than usual because of our move from AR to PA. Sounded great at the beginning of June. Not so now. But, like you, by October I'll be wishing for more time off school. I'm all for year round school, too!

    My mom is doing soooo good! She's bald as a baby and this disturbs her because she looks just like her brother. lol. But she's getting Neulasta shots after every treatment and it's working to keep her WBC up. So we're hoping this means she and my dad can fly up here in October.

    We're going camping this weekend for the first time in nearly two years. The last time we had our RV out was the first weekend in November 2004. We're going to Lancaster County, better known as Amish country. I'm so excited. I'm planning on doing hardly anything other than read and rest and relax!
  • kimBe
    kimBe Member Posts: 101
    edited August 2006
    I agree on the year round school...But this is my last "summer vacation" cuz Savanna will be a senior this next year and has been working in Spokane for DH's sister for a month so we are getting a sense of empty nest..shoes at the back door I don't miss. On the other hand my grandbabies are coming for the weekend so that will be fun. I just realized that I am supposed to have an onc appointment in August and I haven't scheduled it yet...oops. Take care and am excited to read about the box as well as looking forward to receiving it. And Jen do let your mom know that there are prayers from up north for her.
    KimB
  • Jenster
    Jenster Member Posts: 267
    edited August 2006
    Thanks, KimB! I told her and she's feeling a bit overwhelmed by all the caring and support from ladies she doesn't even know.

    Fi - we had an "incident" with our 14-year-old the other day. Nothing horrible, but I was so frustrated with him and it was the first time I was at a complete loss as to how to handle the situation. My husband came home from work so I wouldn't have to deal with it alone - especially since I had to deal with the kids pretty much by myself for the past year - and I broke. It was wonderful. I sobbed and then slept for about two hours. It was so cleansing. I cried for all the changes in my life that will never be returned to normal. I cried because of the surgeries I have yet to face. I cried because I'd been holding in all the negatives for so long. I was a little sorry that DH and the kids were here when the dam broke, but I wasn't able to chose my moment. lol Besides, it was nice to have him hold me instead of wishing he was at home while I was going through yet another thing. I guess it was the frustration over my son's choice that finally loosened the plug. (it was something as simple as him all of a sudden deciding he's not going to do marching band this year - AFTER practice had already begun).

    Bev - I got the box!!! I haven't even sat down to look at it yet, but that's my next step. I wanted to let you know it's here. I can't wait!!

    Jen
  • rmmom
    rmmom Member Posts: 168
    edited August 2006
    Jen I am not sure which is harder- teenagers or preschoolers. Jeff has been traveling alot which never went well with the 16 year old-now is even worse. After traveling an average of 30 miles a day back and forth -taking him to football practice and picking him up-he still can't find it in himself to treat me with respect. Now he is crying he was mentally abused because we TAUGHT HIM TO READ-HUH??? It is too insane to take seriously. 14 days until our abuse continues through hours at school:) Imagine teaching him to read! WHAT WERE WE THINKING!
    Many hugs,
    Bev
  • Jenster
    Jenster Member Posts: 267
    edited August 2006
    You taught him to read??? What kind of parents are you?? lol. You only have 14 days left until school starts? You're so lucky! School doesn't start here until the 28th. **sigh**
    hugs back,
    Jen
  • kimBe
    kimBe Member Posts: 101
    edited August 2006
    One thing I have to admit to you guys (and probably no one else except DH) is that I have used the BC as an excuse when I am overly emotional with my "totally reasonable 17 year old".....Having raised two boys I have realized with DD that I don't get nearly as wound up about the little things.....but I do empathize with you all dealing with them...
    KimB
  • Jenster
    Jenster Member Posts: 267
    edited August 2006
    Hi Ladies,

    How is the weather where you're at treating you? We had a gorgeous weekend and it's starting to get a little too warm again, but nothing horrible.

    I have one more Zoladex injection next week and I'm so glad. I had lost 15 of the 30 pounds I'd gained when I went through chemo, but I've put them all back on. It's so frustrating! I watch what I eat (mostly) and I'm getting quite a bit of exercise, but it won't budge. I guess I should be happy I'm not still gaining. My onc said this would happen, but I'm so uncomfortable at this weight.

    Well, that's my Monday morning whine for you all. I mostly just wanted to bump this thread up. lol

    Jen
  • rmmom
    rmmom Member Posts: 168
    edited August 2006
    Hey Jen
    It is beautiful here too.
    I haven't posted because my ds is leaving for college tomorrow. I will miss him so much-the only one that has any kindness. Told dh if his money dried up(as if he had any) the middle two would turn on him as well. They're mean not stupid. Only my baby on Friday then he is back on the 23rd. Guess I know where #2 gets his problem dealing with changes in routine. But give me week and I won't even remember why I was going to miss them all LOL
    Must be a Monday for WHINE and cheese.
    Bev
  • Jenster
    Jenster Member Posts: 267
    edited August 2006
    Aw Bev -

    I fantasize about and dread college all at the same time. lol.

    Just a quick note to let you ladies know my mom had chemo #4 today and she's doing great. Half way through. The onc is probably going to start her on Herceptin a week or two after her first Taxol treatment, just to see how she tolerates the Taxol.

    I do have a question. For those of you who had reconstruction, how long from expanders to exchange did it take you? I've been reading about it and some ladies are saying it took about 4 months for the complete fill and then some PS wait three months after that before the exchange. We're set to go to Hawaii in June of next year and I'd like to have the girls settled before then. I don't meet with my PS until the end of September so it will be at the very least October before things get going. Just curious to know what your experiences were.

    Thanks in advance!

    Jen
  • NancyM
    NancyM Member Posts: 289
    edited August 2006
    Hi Junies,

    I hope any of you still having surgeries, etc. are doing WONDERFULLY and I want you to know you are never far from my thoughts and wishes for a speedy recovery.

    I'm sorry I haven't really been keeping up with who is doing what - I had to really stay away for a while because I didn't feel like I was moving on yet. I finally found some books that deal with survivorship issues, so that was very helpful. I think I was kind of "stuck" in the process of finding the "new normal."

    I manned the Komen booth at a health fair recently, and I had many women tell me they will start being more careful about doing self exams after hearing my story. That made me feel I was making a difference, and that was a great feeling.

    Does anyone know where the box is? I hope that's turning out to be a fun project.

    Love, Nancy
  • Jenster
    Jenster Member Posts: 267
    edited August 2006
    I still have the box. The kids are starting school on Monday so I'm planning on getting it shipped on to the next Junester next week.

    BTW - I've started blogging. It's called Jenster's Musings, but it would be more appropriate to be Jenster's Mundane Musings. lol. I may once in a while reference breast cancer, but it's more about what's going on right now. I'm finding it enjoyable and extremely "normal". If you're bored and are looking for another place to play on the web, come see me! It's http://jenstersmusings.blogspot.com/ I'm sure you'll still leave bored, but at least it will have wasted a minute or two of your time. )

    Jen
  • Analemma
    Analemma Member Posts: 1,622
    edited September 2006
    Hi, ladies, I'm just stopping by. It's been a really busy time this spring and summer, first I babysat the new granddaughter 3 days a week April through mid-June. Then I've had shows nearly every weekend. Finally it's starting to wind down.

    Nancy, I've kind of felt the same way about the boards. Every time I would come on I would accidently happen on to some sad news and be upset for days. I still have days where I obsess because of some ache I have developed. I've emailed Jo and she's kind of the same way. Maybe it's scarier when you were stage III, and harder to get past. But, every day is a joy, and I've done so much more in my gardens this year! I've put in a new shade garden and been dividing perennials. I'm still battling the weight gain - 25 pounds and they are stuck like glue! You ladies may remeber I developed knee issues and had to give up Jazzercise. Well, I finally joined the local fitness club and I'm doing a water aerobics class. It's great! The freedom of movement with the water supporting a lot of my body weight is just incredible, there's a lot of jumping and I can really get some elevation without the pounding on my joints. So, I recommend it to any of you who are heavy and have a hard time with high- impact exercise. I'm really happy that you ladies are all doing well. I'll stop by from time to time, but I just can't spend too much time here.

    Brenda
  • danahollis
    danahollis Member Posts: 161
    edited September 2006
    Hi Junies!

    It's been a while since I checked in here. I think I have some reading to do to get myself updated. I think of you all often, though!

    I recently did the ACS Ramble & Amble Walk in my town. It was really lovely, but always brings me to tears to see the names of so many who have had cancer.

    How are you all??? I am doing great... as far as I can tell. LOL!

    I just started a Blog if you ever want to check in and say hello. Just Some Stuff...

    Do any of you have a Blog?

    Well... I'm going to try to read up here and see what's been going on... I'll check back in a little bit.

    HUGS!
    Dana
  • rmmom
    rmmom Member Posts: 168
    edited September 2006
    Dana! How are you?
    Hey how does one start a blog?? I want one for mothers of teenage sons! LOL.
    Everyone sounds great. Brenda- the water exercise sounds wonderful, maybe I'll have to find one after next week. My preschool starts again with 14 kids! I am so excited. And afraid. I could tell them all a story about how Mrs. Norris couldn't sleep for three weeks because maybe they wouldn't like her!! I wake up in the middle of the night thinking what if...add whatever you want here.
    Insert screaming here. Now that I am throughly a five year old again maybe it won't be so bad.
    Bev
  • rmmom
    rmmom Member Posts: 168
    edited September 2006

    HAPPY BIRTHDAY DANA

  • Fi_in_oz
    Fi_in_oz Member Posts: 49
    edited September 2006
    Just a quick hello to you all, I don't seem to come by much anymore, life is becoming all to hectic again, didn't I learn anything in my "time out"??

    All's progressing as it should be here, I wish I could relax more at each bumpy change in my chest / armpit region, however I'm fortunate that my medical team take each and every one seriously and investigate as required.

    I finally have my travel "wings" back, it was such an awesome experience, a quick trip to canada for work last week. It was exhausting, jetlag seems 10 times worse, but..... worth every second for the elation of being "normal" again.
    (there's some pictures of me having pots of fun up on
    www.fionas.bigblog.com.au )


    Hope life is being kind to you all

    regards

    Fi
  • kimBe
    kimBe Member Posts: 101
    edited September 2006
    Just popped in quick....I'm really busy with school, spending lots of time on the computer and my "real world" job is taking more time than I'd like....DH, son and d-i-l and I drove to Las Vegas to see our oldest and his wife and attend a wedding. Great to get away but lots to catch up on this weekend. Am doing great other than high blood pressure now (which I have a strong family history of that). Will try to post more frequently.
    KimB
  • RebeccaH
    RebeccaH Member Posts: 72
    edited September 2006
    Hi Gang!
    The last time I stopped by, the June05 thread was so far down I never found it. Glad to see it's popped back up a little closer in the list of threads.

    I was asked to join an amazing support group at my hospital. The funding came as a result of raising money at the Ogden Days Rodeo. The theme of the rodeo was 'tough enough to wear pink.' The group is being facilitated by the head of behavorial medicine and the bc nurse liaision. The group will meet for 12 weeks, and then it's up to us to decide if we want to continue on a more 'social' level.

    It's been great hearing everyone's story. The common bond, like we have on this thread, is bc. But, at the same time all of stories are a little different. The ages of the gals run from 35 to early 60s. It's just nice to sit around an talk about whatever comes to mind. The facilitator is a little miffed at our attitudes. I think he was expecting this group to be mad and depressed. Instead, he got a group of amazing women who have taken control of their diagnosis and are facing the world with vitality, humor, and a sense of well-being. He got a little defensive tonight when we told him we are being open and honest about our feelings. He was wanting to see angry, bitter women, and he got anything but that! There are two other gals who are bc.org members! What a small world!

    My hair continues to grow, and I've rediscovered the joys of color in a bottle. I'm still wondering how I managed to gain 15 pounds. Still trying to get motivated to exercise. That was a problem LONG before BC.

    I'm glad to hear the group is continuing to do well. Each day is such a blessing, and hopefully, we'll all continue to celebrate each day, because it truly is a gift!

    Happy Fall!!!
  • 4Kit
    4Kit Member Posts: 1
    edited September 2006
    Hi, I see you are from Utah. We are moving to southern Utah next year, we presently live in northern Calif. I am looking for a good doctor. The one I have now is great he is also a assistant professor at UC Davis, this is the only difficult part about moving finding a good doctor you feel comfortable with. Any suggestions would appreciated.
    I had gained weight on 5FU. The only side effect I had was the terrible taste of the pills. Sweets masked the taste. But, when I started exercising I lost the weight. Kit
  • NancyM
    NancyM Member Posts: 289
    edited September 2006
    Hey Rebecca! I've been meaning to call you!! I've been busy with the school year starting again and family drama (again). Maybe I'm the kind of person the counselor was looking for - somewhat agitated lately! LOL!

    Kit - I hope you have a pleasant move to southern Utah! It is so beautiful there! Rebecca and I are way up north. I'll ask my oncologist if he recommends anyone for you. Will you be in St. George?

    KimB, do you go through Salt Lake often?

    Dana, it's good to see you again!! Don't make it so long between visits!!

    Fi, I loved your photos!! I'll bet you had a great time on your trip. That must have been amazing!!

    Bev, I hope your preschool is going well. I teach special and regular ed kids in a school district. The kids just crack me up sometimes. They all want to "pet" my compression sleeve when I come into the classroom. It's cute because they always want to make sure I don't have on the world's biggest bandaid!

    I saw my onc Tuesday, and he said my recurrance rate went from 30% to 20% since I made it a year post chemo. Then I started asking the "what if" questions about mets. He told me that if it comes back, it will probably be treatable, but not cureable (being that it usually goes to the liver, lungs, bones, etc.). When will I learn to stop asking questions??

    I hope everyone else is doing well, Love ya guys!
  • Fi_in_oz
    Fi_in_oz Member Posts: 49
    edited September 2006
    Hey Nancy.....

    congrats on the 1 year mark btw.... I don't think we'll ever stop asking questions.... but eventually we will relax more.. as new things grab our focus.

    Yes the trip was an absolute blast, do you like the picture of me having a little nap on the rock? I eventually confessed to the group I was with that I was recovering from cancer treatment.. and we turned it into fun.

    I would go back and do it all again tomorrow, if the opportunity came my way again....

    take care

    Fi
  • Jenster
    Jenster Member Posts: 267
    edited September 2006
    Hey ladies!

    I'm a little frustrated right now because I was supposed to meet with my plastic surgeon yesterday about reconstruction. Because I've decided to have a prophylactic right mastectomy, I also have to meet with a surgical oncologist. Originally that appointment was set for two weeks ago, but Todd wants to go with me and he had a business trip that week. So I rescheduled the S.O. appointment for next week.

    Two days ago the P.S. office called and said they couldn't see me until AFTER I'd seen the S.O. Nobody told me that to begin with. If I'd have known I wouldn't have cancelled.

    So now I see the S.O. next week and the P.S. the week after. I don't think it's going to push me farther because I wouldn't have scheduled the first surgery until Novemeber anyway. It's just that I've been waiting for 17 months to be whole again and the waiting/not knowing when it will all be over is getting frustrating!

    On a happy note, though, my best friend from Arkansas is going to be here tonight. She and I are going to New York City tomorrow morning and staying the night. We're going to see "The Producers" on Broadway tomorrow night and just play until we decide to come back on Friday.

    How are all you ladies doing??

    Jen
  • Watson
    Watson Member Posts: 1,490
    edited September 2006
    Hello Ladies!
    Remember me? lol
    I come in and read comments about once a week. I've just had nothing to add.

    Jenster, got the box!!! And it came at an amazing time. I've been having some bone pain, etc that was taking me to some dark places. Sooooo unlike me. My onc visit was yesterday and I'm having a bone scan Thursday. So, we'll see.
    It's awful being 43 years old and praying that it's 'only' arthritis. lol

    Anyhoo, the box came smack dab in the middle of one of my "what if" thoughts. It was great looking at the pictures, etc. Oh, Jen, your coffee mug didn't quite make it. Well, it made it, just in 300 pieces~! Sorry. You'd think with all that packing you had to do recently, you would have done a better job! ha ha

    I'll be sending it out this weekend. My 7 yr old Alex and and I doing the local Susan Komen walk this Saturday. I'll try to include some pics of that.

    Take care and I'll report my scan findings.

    Watson
  • Jenster
    Jenster Member Posts: 267
    edited September 2006
    Oh Watson. I'm so sorry about this fright you're going through. I'll be waiting to hear the good news.

    I can't believe the mug didn't make it! lol I knew I should have invested in bubble wrap!!

    Good luck with the SGK walk! Have fun with it.

    Jen
  • NancyM
    NancyM Member Posts: 289
    edited September 2006
    Watson, I'm sorry to hear that you are having bone pain, and I hope the scan shows that you are OK!! I hope it's just a Taxol flashback or something that will GO AWAY!!! Jen had good timing sending the box, so that's very cool it came when you needed it. Cosmically we are still connected!

    Jen, I hope all goes well with your appointments and upcoming surgery! You deserve to go have a blast in New York!

    My hubby is 45 today! I keep joking that he's half way to 90. Sometimes I feel like I've had my turn being 90 already. I'll be grateful for the day I wake up and feel "only" 48!

    I'm looking forward to Halloween - last year I was Uncle Fester, so this year I want to be ultra-feminine, like Marilyn Monroe. Last night my BIL thought I was talking about being Marilyn Manson! I don't look THAT bad.....YEESH!
  • Watson
    Watson Member Posts: 1,490
    edited September 2006
    Nancy,
    I remember your Uncle Fester picture. I loved it.

    I swiped a brand new hospital gown from my radiation days. I'm wearing it open in the back with one of those fake plastic butts. I'm having my husband wear surgical scrubs. I guess I'm going backwards putting myself as a patient, but it was just too funny to pass up.

    Later!

    watson
  • rmmom
    rmmom Member Posts: 168
    edited September 2006
    Hi Ladies
    I've been busy. Preschool is going great. I only have a morning class which may be a blessing. I love being back!
    Good kids- without the special concerns that I sometimes have so it is almost restful EXCEPT for the new aide. My aide retired and because preschool pays so much we got two whole responses to our ad. The lady we ended up with wanted to be lead teacher and then adminstrator-these are MY roles. She will say things like "I am taking my 45 hours to get my CDA then I can be adminstrator." (like where am I going??) or to another teacher "So how long until you got to be head teacher." Plus she does things like not let the kids play because they have to write in her letter book-FOR TWO HOURS!!! I keep throwing out manipulative toys and calling children over to play, PRESCHOOL!! learn through play. LOL I tell everyone I won't eat anything she hands me. Plus now I am parnoid- I think what if the committee wants to get rid of me because they think I might sick again or what if they know something I don't know and this is a way to get someone that will take over....LOL just too crazy... LOL but it will work out. I told committee leader I waas going to hang up my degree so this lady gets it that I know what I am doing.
    ON a sad note, could everyone pray for my friend Alice who is joining our sisterhood. She is stage 0 but E positive. Her surgery is the last week-end in October. I wish we could stop adding to our ranks here. Please include her in your prayers.
    Take care.
    thinking of you Watson-hope all goes well for you.
    Jen I got your gift-thank you so much.
    Oh last thing-I did a DUMB thing-I mowed the lawn. Bad move-had swelling. I will obey the rules from now on.
    Bev
  • Watson
    Watson Member Posts: 1,490
    edited September 2006
    How do you spell relief?

    F R I C K I N' C L E A N B O N E S C A N!!!!

    Woo hoo for me~!!!!!! Walking in that Susan G Komen tomorrow is going to be extra special.

    I had the scan yesterday, then I called my onc nurse and told her I was going to be one of 'those' patients about this. I rode her like a pony! I called three times this morning and they finally called me back with results at 9:30am! I was at a garage sale and told every single stranger there. I got one congrats and a lot of weirdo stares. Who cares!

    Bev, don't let the paranoia in. It sounds like you're a great teacher. Can I come play? lol

    Thanks so much for all your thoughts!

    Watson

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