Help - terrible sadness

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awnie1301
awnie1301 Member Posts: 59
edited August 2014 in Stage III Breast Cancer

Hi,

I have just come through 6 months of chemotherapy after a mastectomy and lymph node dissection for stage 3a IDC.  Last Wed I had a prophylactic mastectomy of other side and a bilateral reconstruction (5 days after last chemo).  I am scheduled to start rads next week. 

I am feeling totally overwhelmed and incredibly sad. I also just found out that not omly was my mammogram that I had 6 weeks prior to my finding the lump was misread but so was the one the year before. If it had been found the year earlier I probably wouldn't be stage 3.  

I'm not sure I can keep going. I am taking meds for anxiety and depression but I don't really see the point. I don't want to spend the rest of my life worrying...always wondering when this will come back.  I  have a young family and I think this is taking a toll on everyone. 

Any support would be appreciated.  

In sadness,

A

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Comments

  • mary625
    mary625 Member Posts: 1,056
    edited February 2014

    Dear Awnie:  You've had a lot of procedures in a short time.  In fact, I've never heard of surgery 5 days after chemo and then starting rads so soon.  All of this has taken a toll on your body and mind.  

    Rads is much easier on the body...you're nearly at the finish line!  There are many medications for depression and anxiety, so if the current ones are not working, maybe try some others.

    Most of all, please know that it does get easier after treatment.  You have just finished the hardest parts of treatment.  

    I think it takes time to get one's mind around a Stage III DX.  It must make it all the more difficult that you have been told the mammos were misread.  But, it is very possible to get back into your daily life right after rads--I did--and start to feel more normal soon.  All of a sudden you will realize that you don't think of cancer all of the time. 

  • peacestrength
    peacestrength Member Posts: 690
    edited April 2015

    A - I echo mary's words.  You have been through so much but keep putting one foot in front of the other.  One day at a time.  You can do it.

    I was dx the day before my 43rd b-day.  Mammos missed my cancer due to dense breasts.  I was faithful on yearly mammos and even had a thermogram - all missed my bc.  I've had to work through much anger.  You have a right to feel the way you do.  

    Keep coming back to these boards and reaching out.  I encourage you to visit "Success Stories" on bco.  

  • ziggypop
    ziggypop Member Posts: 1,071
    edited February 2014

    Oh sweetie - you have been through so much and with very little time to even process what has happened. That chemo is still in your system - and that alone can make you tired and depressed and like things are just not going to get better. Things are going to get better. You are past the hardest parts of treatment and radiation really is nothing compared to chemo and surgery. As far as being scared about this for the rest of your life - there's no doubt that there are times when fear will grab you, but everybody I know says that it lessens with time (a bit like grief, I suppose).

    Wishing you a very long and peaceful sleep tonight with soft and wonderful dreams. 

  • awnie1301
    awnie1301 Member Posts: 59
    edited February 2014

    Thank you all for your encouraging words and reassurance.  I will work at taking just one step t a time, putting one foot in front of the other and most importantly getting a good nights sleep...thanks Ziggy!

    A

  • lindacam
    lindacam Member Posts: 161
    edited February 2014

    Awnie..I get it, I just finished 6 months of chemo, 7 weeks rads, tamoxifen, DMX with immediate reconstruction in 2 weeks!  I am so sad and anxious going into the surgery...everytjing else feels invisible but the mastectomy will leave scars...The recovery period makes me feel so helpless...I have 6 boys and a husband and they dont get my sadness...I am so tired of being strong and brave.

  • YATCOMW
    YATCOMW Member Posts: 664
    edited February 2014

    Honestly I felt the same way in the beginning....it is tough not to spiral down to a dark place.....I think having young kids just makes it that more difficult.

    My cancer was missed twice as well.....it's even more difficult when you can't turn the clock back and find the cancer when it should have been caught.

    All I can tell you is that you need to take baby steps....don't get too far ahead of yourself.  Plan events with the family to distract you....keep yourself busy.  Create moments.

    I had some great stories of survivors on my mirror that I read each morning........I put some fight songs on my ipod and listened to them on my way to work each day.

    the next thing you'll see is days turn into weeks into months and into years....

    I had the worst possible stage III cancer and I will be ten years out in May.......it is doable.  You just need more time on your side.


    Jacqueline

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    Oh Awnie, I so remember the kind of feelings you are having right now.  As someone else said, the chemo can cause deep depression.  Add to that, being thrown into chemopause with our hormones completely turned topsy turvey, it is no wonder you are experiencing this emotional upheaval.  It is a normal reaction to the assault your body has taken.  Be sure and tell your docs about how bad you feel.  Don't just live with it.

    I want to offer you hope.  IT DOES GET BETTER.  You will move past this and feel so much better.  It takes time.  You are in the hardest part of this journey right now.  Hang in there.

  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited February 2014

    oh awnie. I am sorry u r having such a hard time. U have had so much to deal with all in a very short period of time it's no wonder u r feeling like this. Hang in there. U r close to getting life back to normal or possibly even way better than before.  It is incredibly scary but time heals ALOT and u learn to deal with it  better.  Before u know it u will be finishef with treatments, surgeries etc. one month will go by then 6 months then a year snd so on. Before u know it you will start to forget so many of these hard details u r dealing with. Scars fade slowly. Maybe make some short term and long term goals with pics and  post them where u can see them everyday. It helps when u can see and read reasons to continue. In the meantime keep getting these feeling out - dont bottle them up.  U can so do this !!!

  • sandcastle
    sandcastle Member Posts: 587
    edited February 2014

    Awnie.....Sorry....VERY Sorry this happened to you.....I had a situation where I picked the wrong Doctor....took a Level 6 Mamo and Sono to a Breast Doctor that was to be the BEST??!!  Girls were coming from NYC to go to this Doctor in Livingston, NJ.........My husband and Daughter were at that appointment I went to.......she suggested a needle Biopsy......well it came back B9 which really meant NOTHING.....I needed to be taken into the operating room for an excisional biopsy......I stayed with her for about a year UNTIL the Radiolgy Dept told me it was CANCER......of course I was coming to her because I was already told this.....Finally I fired her and when to another......Ended up with a MX ......Now, I always kept up with my Mamos.....and it took a LONG time to get over this....kept thinking if I had chosen another Doctor I would of had my breast.........it was not easy to get over....Liz

  • Holeinone
    Holeinone Member Posts: 2,478
    edited February 2014

    Awnie, 

    Thinking of you, quality sleep is so important now. I hit the wall a month ago, much better now. Still obsessed with it, but starting to be able to think about the future.

    Keep posting, it helps to unload our fears..

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    Dear awnie1301,

    I just want you to know that all here can feel what you are going thru.  You are going thru a grieving process right now.  I do remember the intense sadness.  There were also feelings of anger that came later, and there are just so many emotions that figure into this disease and the fight we go thru.  Much of it comes also from medication side effects. I hope you have a go to person for every one of the emotions you are feeling and who helps you.  Keep coming hear and remember, tomorrow is always another day!Happy 

    Oceana

    marvelous-nicole-rodriguez.jpg (180×119)

  • awnie1301
    awnie1301 Member Posts: 59
    edited February 2014

    Thank you all for your kind words.  It means a lot to me. I find it funny how you can at times be surrounded by family and friends, all offering to help, but you can feel so incredibly sad, alone and scared.  I really hope that with time I will be able to tell someone "it will get better". 

    A

  • hopefour
    hopefour Member Posts: 459
    edited February 2014

    awnie1301...many have had mammograms and their readings failed them. I felt something 'weird" and went for a mammogram and was told all clear. I should have pushed, asked, fought more, but I didn't.  I let it go for too long and than demanded more testing, only than did they found it. Due to it being a grade 1 cancer ( slow growing) they believe it was missed on at least 2 mammograms. Anger was huge for me in the beginning...I still have waves of sadness at how different it all could have been. But time does soften the shock, anger and starts to move you away from the total world of BC and back into and more normal life that has less time to focus on BC. Time will prove me true and you will find one day the darkness, anger and sadness just isn't there as strongly as before! Please, keep coming here as we know where you are.

  • LKSHER
    LKSHER Member Posts: 209
    edited February 2014

    Awnie,

    I just wanted you to know that you put into words how I feel much of the time and for some reason that helped me.  

    I feel less alone when others admit that they feel blue, too.

    Bet you didn't know you were already helping others.  

  • Stenokim
    Stenokim Member Posts: 172
    edited February 2014

    I just joined tonight.  I had a mastectomy and lymph node dissection the week before Christmas. I had a lump for years, was told several times it was a fibrous cyst.  Never got a mammo until this past December.  My bad, but the way I look at it, I was going to end up with BC anyway.  Can't go back in time, can only start from today.  I wish you the very best and it's nice to come here and know we are not alone in our battle.  God bless

  • sandcastle
    sandcastle Member Posts: 587
    edited February 2014

    I think this happens MORE often then not......It just drives me crazy when I hear from another that the Doctor is Watching!!  Watching WHAT??  Just take the person into the operating room and FIND OUT!!  Liz

  • Janetanned
    Janetanned Member Posts: 532
    edited February 2014

    Awnie - I found that as my active treatment came to an end my 'dark places' got bigger and I was going there more frequently.  I went into counseling which helped tremendously.  You might need to talk to someone now to help put everything into perspective.  There are counselors who deal with cancer patients and support groups that are very helpful.  They 'get it'.  Most importantly, you should know that you are not alone.

  • Enerva
    Enerva Member Posts: 3,162
    edited February 2014

    Hi Awnie, I just want to say, hang in there, i am still very sad inside. I finally made an appointment to talk to a professional regarding depression cuz i find that one day i am ok but the next i just want to cry.

    Jacqueline thanks for been here, it give me hope to heard from people stage III that are well.

      

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    awnie, -  My BC diagnosis was a shock to me because I had literally gone for regular mammograms my entire adult life, and the year prior I had actually been back 3 times for calcifications they were watching in the other breast, and cleared finally in August of 2008.  Suddenly 2 months later in December I noticed a lump and an inverted nipple in the opposite breast, went to my doc in a few weeks later who sent me for a diagnostic mam and core biopsy, which diagnosed a 4.2 cm cancer that day.  After surgeries finally diagnosed with stage III 5.2 tumor with nodes positive.  I was shocked because I had been so pro active and cleared by the breast center months earliar.  I went thru those emotions you speak of even tho I had the best support from my DH and rest of family, I still felt lonely and sad.  I wasn't alone but yet I felt lonely.

    Oceana

    marvelous-nicole-rodriguez.jpg (180×119)

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited February 2014

    OK, First thing is, you are right to be freaked out.  We all were at your point. Secondly,  YOU CAN DO THIS!!!!!  It's a tough road ahead, but NOT a death sentence!  Keep believing YOU WILL be here for your kids and you WILL!  I never thought I'd be this far out, but I am.  I had mutlitcentric disease, 13//15 positive nodes with extracapular extension,  and here I am 4+ years to tell the tale. Please feel free to PM me if I can help you in any way!

    Sharon

  • jennyboog
    jennyboog Member Posts: 1,322
    edited February 2014

    Awnie, you have a right to feel overwhelmed, it's a lot on you, I felt the same way after doing the same tx plan.  I think most of us did and remember chemo affects our emotions.  It will get better I promise.  There are so many on here that are many years out, never give up!  Once chemo is over and starts getting out of your system you will notice you will start feeling better each day.  Sending you hugs, come here often I did and it helps.

  • LovingGod
    LovingGod Member Posts: 4
    edited February 2014

    Hi sweetie,

    Same and worse happened to me. You are not alone. I am going to met with members of my church now. I will ask to pray for you and all the new ladies here. Please, do not be afraid, I will make a post here so you can relate to me and if I can be of help, that will be a blessing to me. DO NOT FEAR, FEAR CAUSES STRADIOL PRODUCTION, IT FEEDS CANCER. ASK YOUR DOCTOR TO GIVE YOU EFFEXOR, IT WA STHE ONLY THING THAT ALLOWED ME TO FUNCTION. It didn't make me feel confused, sleepy or numb, I was able to stay calm, objective and  without feeling crazy and drugged up like toher meds had made me feel.TIME RELEASE IF POSSIBLE. THEN I WA SGIVEN TRAZODONE. Went to MD Anderson after severe negligence in Arkansas.

    God is with you , do not dismay, light will come and you will feel relief. Trust Him. Time to relax, sit back, forgive others and yourself. I will post resources I just found for you.

    Please, if you haven't done chemo and radiation, take time to look at what I will post. I regret making the decision of chemo, surgery and chemo. There are other ways. You need to read, and take charge. Not telling you what to do, just take time and inform yourself, that will empower you and soon you will see the light. 

  • LovingGod
    LovingGod Member Posts: 4
    edited February 2014

    Hi again,

    Please check YOU TUBE FOR CHRIS BEAT CANCER VIDEOS, THIS GUY SURVIVED STAE III COLON CANCER. HE HAS A TON OF INFO IN HIS WEB SITE TOO.

    I will post more sites for you.

    You are not alone, we are in this together. We are a sisterhood, and even if we never see each other's faces, thru our pains and sufferings we are united. Big hug for you.


  • Momine
    Momine Member Posts: 7,859
    edited February 2014

    LovingGod, I hope it is OK to post this, but the "Chris Beat Cancer" guy survived stage 3 colon cancer mainly because he had surgery that was successful.

  • peacestrength
    peacestrength Member Posts: 690
    edited February 2014

    LovingGod - there are alternative and complimentary threads on bco to discuss "Chris Beat Cancer" claims.  

    Are you new to bco?  If so, welcome to stage 3 forum - this is a place where we can find support for our specific and unique decisions regarding bc.  

    It would be helpful and crediable to include your type of bc and the details in your signature line.

  • edwards750
    edwards750 Member Posts: 3,761
    edited February 2014

    Awnie - there is no place like this forum where everyone is here for the same reason except in varying stages and grades. People can say they know how you feel but we truly do know how you feel and have felt or still feel that way ourselves. All of us have been on that emotional roller coaster...why us, why did the doctor find it, and why didn't I have annual mammograms and on and on. One of the good things about this forum is there is no finger pointing or the blame game. Frankly we all just got unlucky draws. I am 3 years out from Stage 2, Grade 1 IDC but my sister has the same kind of BC you have and she faithfully had her mammograms every year until...don't think for a second we are even suggesting you get over it because you are entitled to your anger, grief and feelings of despair but these feelings too shall pass...not right away but in time. Meanwhile, you will realize you have courage you didn't know you had...just like the rest of us. Personally I didn't allow myself to grieve I just went through the process in a fog and it wasn't until I got my Oncotype results, which were good thank God, that I allowed myself to take off my game face and break down so I did by myself and home. We are all so busy protecting our loved ones from freaking out that we forget we are ones with the BC.

    This forum is my lifeline and it will be yours too. Venting, complaining, etc. are all permitted here. So keep the faith and keep us posted. You and your family are worth it. Diane

  • lkc
    lkc Member Posts: 1,203
    edited February 2014

    Hi Awnie, I echo what all the other ladies have said. It is perfectly normal to feel sad. It does get better . However if you find yourself having more and more dark days, perhaps an adjustment/or change in your meds can help. Talk to your doc about this.

    Come here often for support. We've all been there and someday, you too will be logging on to encourage a newbie

    I wish you many many better days.

    BTW I was dxed with a stage IIIC  in 2005 and am  fine now. BC is a distant memory.

  • awnie1301
    awnie1301 Member Posts: 59
    edited February 2014

    Thank you all again for your incredible support.  I have good days and bad days.  I am seeing a counselor and I am taking Effexor.  I have yet to start the radiation (should be starting in the next week) and then I most likely will take Tamoxifen.  I have wonderful family support and some great friends but I have to say that I often feel very lonely.  It is in those moments that I start to falter and feel my worst.  My mind tends to head to those darker places. 

    I will try to stay out of the dark places...keeping busy certainly helps. 

    A

  • jennyboog
    jennyboog Member Posts: 1,322
    edited February 2014

    Glad to hear from you A.  You sound like you're experiencing just what I did at the beginning.  I think a lot of us have felt the loneliness, I sure did.  Family and friends are wonderful but many don't understand unless they've been there....I speak from experience   I'm on Effexor too and wish I would have started it earlier, it helps with my hot flashes too (due to the Aromasin).  Rads are much easier than chemo, it made me feel tired and made my armpit pretty nasty but was still better.   It's ok to have those bad days, they will come....just make sure they go because you are going to be ok and it will get better.  Staying busy helped me loads....."idle hands are the devils playground".  Hang in there sweetie.

  • Enerva
    Enerva Member Posts: 3,162
    edited August 2014

    Hi ladies,  I just wanted to drop by and let you know I just finished my recon and it's as if a happy drug was given to me.  I am so happy with my results that i am smiling and just content. 

    I hope you are all feeling better and that this journey ends well for all of us.

    image

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