Information please!!

Options
Smitty333
Smitty333 Member Posts: 130
edited June 2014 in Just Diagnosed

ok just finally got my results from my three excisinal biopsy's. My surgen is three hours away and his nurse was busy so she just did a quick review over the phone before my app. onThursday.  She told me ductal carcinoma. And atypical ductal hyperplasia. Than something about thickening of tissue or something. Of course I wish we had talked longer. Or I would have asked more questions. But didn't. She seemed to be pretty happy with the results, said this is nothing scary. Just wondering if someone could give me any information on these things. I am feeling relieved. I had really worked myself up over the last 2 months and was dreading the worst. Thanks in advance!!

· Share on FacebookShare on Twitter

Comments

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited February 2014

    Smitty, did she say ductal carcinoma in situ or invasive ductal carcinoma?

    · Share on FacebookShare on Twitter
  • Smitty333
    Smitty333 Member Posts: 130
    edited February 2014

    I am just about sure she said in Situ. 

    · Share on FacebookShare on Twitter
  • Beesie
    Beesie Member Posts: 12,240
    edited February 2014

    Okay, "in situ" is good, as these things go.  So that means your diagnosis is ductal carcinoma in situ, DCIS, which is Stage 0 breast cancer.  

    Here is a link to a thread that I wrote some time ago that explains most of what I've learned about DCIS:

    A layperson's guide to DCIS

    And here is a link to the breastcancer.org webpages about DCIS:

    DCIS — Ductal Carcinoma In Situ

    That's a good place to get started on getting some information about DCIS.

    As for the atypical ductal hyperplasia (ADH), that is high risk condition that can lead to the development of DCIS.  Since you already have DCIS, the ADH is really not something you need to worry about.  ADH doesn't need to be removed or treated; DCIS does.  

    Because DCIS is a pre-invasive cancer, some of what you read on this board about the tests and treatments for invasive cancer won't be relevant to you.  So I'd suggest that you come down to the DCIS forum, where many of the other women with DCIS hang out and post: 

    DCIS (Ductal Carcinoma In Situ)

    See you there!

    · Share on FacebookShare on Twitter
  • Smitty333
    Smitty333 Member Posts: 130
    edited February 2014

    Thanks so much. I have a question the nurse said I don't have your lymph node results back yet. I would think of it was dcis that wouldn't be something to worry about?? 

    · Share on FacebookShare on Twitter
  • wyo
    wyo Member Posts: 541
    edited February 2014

    Smitty-  my advice is to call her back first thing in the am with pen (or keyboard) in hand and have her read off the pathology report and you get it all down verbatim.  When you have your appt on Thursday make sure you get your own copy of the path report. Beesie is the expert on DCIS and where it is located etc.

    · Share on FacebookShare on Twitter
  • Pokemom1959
    Pokemom1959 Member Posts: 198
    edited February 2014

    You could also ask her to fax you a copy of the pathology report - that's what I did.  Once you know exactly what it says, you'll probably be able to get more information from the good ladies here.

    · Share on FacebookShare on Twitter
  • Beesie
    Beesie Member Posts: 12,240
    edited February 2014

    Smitty, it's very unusual to have lymph nodes removed during an excisional biopsy.  In fact women who are diagnosed with DCIS via a needle biopsy usually don't have nodes removed even when they have a lumpectomy. Do you know why nodes were removed?  Did you have a needle biopsy prior to the excisional biopsies that showed something more than DCIS? 

    I agree with the others that you should get yourself a copy of your pathology report.

    · Share on FacebookShare on Twitter
  • Smitty333
    Smitty333 Member Posts: 130
    edited February 2014

    thanks for the advice ladies. I do plan on getting a copy of biopsy results on Thursday. I felt like she really was not wanting to give me to much info over the phone. I did have a stereo biopsy before that showed flat atypical hyperplasia. Than had a MRI that showed a mass in a separate area from hyperplasia and micro calcifications. I was really surprised when they told me they would be doing more than one excision because I didn't know they had found anything else on the MRI. I was in shock and didn't ask any questions.  I think I will just suck it up until Thursday so I can go over it with the Dr. Glad to have people to talk to that have been in this situation before. I don't think anyone else would get it.

    · Share on FacebookShare on Twitter
  • Smitty333
    Smitty333 Member Posts: 130
    edited February 2014

    Heading to meet with my Dr to find out exactly what I am dealing with. Scared, nervous and ready....

    · Share on FacebookShare on Twitter
  • ziggypop
    ziggypop Member Posts: 1,071
    edited February 2014

    Hope it all goes very well Smitty - keeping my fingers and toes crossed for you. 

    · Share on FacebookShare on Twitter
  • Smitty333
    Smitty333 Member Posts: 130
    edited February 2014

    Thanks ziggpop! Got better news than expected. Had LCIS with necrosis. Along with some atypical ductal hyperplasia in other sample. Now to decide if I will take steps to be proactive or just step up the mammograms. I am only 35 so it worries me that these things have a long time of turning themselves into invasive cancer. Any suggestions would be welcome. 

    · Share on FacebookShare on Twitter

Categories