Wardell Fights, Overcomes Stage 4 Breast Cancer

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http://spacecoastdaily.com/2014/02/wardell-fights-overcomes-stage-4-breast-cancer/

I recognized this person as someone sitting with myself and others in the Oncologist's waiting room!  I remember her mother there and talking about Linda's dx!  WOW!! 

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Comments

  • Momine
    Momine Member Posts: 7,859
    edited February 2014

    I am really, really, really happy that she is well. That said, I twitched several times while reading the article from the vaguely misleading statements scattered throughout.

  • pipers_dream
    pipers_dream Member Posts: 618
    edited February 2014

    Great article, but I was amused by the big pink ribbon in the corner of her picture, b/c it sounds like she mainly went alternative with only a small amount of chemo.  

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited February 2014

    She had abraxane, zometa & avastin from 2009-2011. How is that "mainly alternative" with a small amount of chemo?

  • ziggypop
    ziggypop Member Posts: 1,071
    edited February 2014

    I agree with Momine, but I started twitching at the headline - the word 'overcame' shouldn't be used in relationship with stage IV & docs can't say there's no cancer in you're body - the can only say that with the tools we have available there's no evidence of cancer in your body. 

  • pipers_dream
    pipers_dream Member Posts: 618
    edited February 2014

    Actually she did say that at the end ziggy, but I missed the part about abraxane, zometa, and avstin Melissa.  

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited February 2014

    I am always thrilled when someone reaches NED. Two years on chemo hardly seems mainly alternative, however. Don't want to split hairs and hope she remains NED for a long, long time.

  • Momine
    Momine Member Posts: 7,859
    edited February 2014

    Piper, all I find is that she nixed an "additional round" of chemo (obviously on top of what she had already received).

  • curveball
    curveball Member Posts: 3,040
    edited February 2014

    Based on the dates in the article, Ms Wardell actually had four years of standard treatment (from dx "around Halloween" in 2009 until October 2013), but as I read, it almost seemed to me as if the article was written to create the impression that she had mainly had complementary/alternative treatments, or to give credit for her NED status to the supplements etc, rather than the standard medications she received. 

  • cp418
    cp418 Member Posts: 7,079
    edited February 2014

    We have to keep in mind that the reporter has no medical background and wrote this article for their local newspaper - - to attract readers.  However, Linda did say

    “I really believe there is no cure, but a combination of faith, attitude, western and eastern medicines and homeopathics can do wonders,” she said.

    So like many of us here she is using multiple treatment options.  I so distinctly remembered her because while we were waiting for our appts, she was describing how she had been misdiagnosed for months with a cough and was treated for bronchitis.  Scared

  • Momine
    Momine Member Posts: 7,859
    edited February 2014

    cp418, the misdiagnosis really is rather horrific, and thanks for pointing that out.

  • lightandwind
    lightandwind Member Posts: 754
    edited February 2014

    Inspirational story CP. Thanks for posting. Very glad to hear this news. Maybe eastern and western should get together and stop bickering like children and denigrating one another and start saving some lives.

  • peacestrength
    peacestrength Member Posts: 690
    edited February 2014

    Saving lives is right, lightandwind. 

  • pipers_dream
    pipers_dream Member Posts: 618
    edited February 2014

    I'm with you lightandwind, and I certainly did rush thru reading that article!  Must have read the 1st and last paragraph lol.

  • Momine
    Momine Member Posts: 7,859
    edited February 2014

    Light, I think anyone reading about this woman ought to be completely delighted that she achieved NED and is still around. It is great. 

    However, the wobbly info in the article is exactly the sort of stuff that leads newly DXed patients, scared as we all are, to think that chemo kills and that they can treat cancer with mushroom powder and homeopathy (apparently one of Wardell's modalities).

  • Heidihill
    Heidihill Member Posts: 5,476
    edited February 2014

    Love her story! She had western treatment modes until October 2013. So about four years!  She also had tons of support, which counts for a lot. Wishing her more of the same... 

  • curveball
    curveball Member Posts: 3,040
    edited February 2014

    @momine, I'm also curious to know whether there is any evidence to back up Ms Wardell's statement that more people die from side effects of chemo than from cancer. I join in wishing her a long time at NED. 

    @lightandwind, I also wish that there was more cooperation between standard and complementary practitioners. I am receiving standard treatment but would like to know if there are vitamins, herbs or supplements I can take to help it work better, or relieve side effects, or any that I should avoid for the opposite reason, and I don't think my MO is at all knowledgeable about that side of things. Fortunately I can get a referral to be seen by a naturopath, and the visit is covered, but it would result in better coordination of care, I think, if one doctor could recommend and follow both standard and complementary treatments for any given patient.

  • Momine
    Momine Member Posts: 7,859
    edited February 2014

    Curveball, I do not know stats, but it may technically be true in the following sense (hypothetical):

    Patient develops stage 4 cancer. Let's say the patient has extensive mets, including lungs and liver. There are large tumors in the lung, and they make breathing really hard. So, palliative chemo is given to shrink them and make the patient more comfortable. If you don't shrink the tumors, they will eventually obstruct breathing and the patient will die, but the chemo shrinks them and patient carries on for a bit. But the liver is not doing well, in part because liver function is already impaired by mets, and can't recover from the round of chemo. Patient dies of liver failure. 

    It is just that when people throw out this kind of thing, it can easily sound like chemo kills all the time and that even people at stage 1-3 have a greater chance of dying from chemo than from the cancer, which of course is not true. What is meant is that people who die with stage 4 cancer often technically die from treatment complications and not directly from the cancer.

  • Momine
    Momine Member Posts: 7,859
    edited February 2014

    Curveball, here is an article from a British newspaper about this issue, and it says in part:

    "Lord Howe said statistics were collected for when cancer was the cause of death but not when treatment of cancer was the cause of death.

    He agreed it was "important to have more information about the effect of cancer treatments on mortality" but added that "new data collections" were under way to provide more detail.

    He said new figures would provide better information about deaths following the delivery of chemotherapy while others statistics would give information about death after surgical treatment.

    But he warned: "It can be very hard to identify the precise cause or sequence of progression of factors resulting in death, particularly for those with end-stage cancer or who are particularly frail and are experiencing physical deterioration.

    "So this can never I think be a precise science."" Telegraph Article

    This article looks at survival rates in early stage (1-3) breast cancers, comparing those who got conventional treatment to those who did not: CAM vs Chemo

  • lightandwind
    lightandwind Member Posts: 754
    edited February 2014

    Thanks Momine, what if the chemo doesn't cause regression of the cancer as was intended though? For instance, many women report no or very little shrinkage in tumors after certain chemos, particularly after TAC. Sometimes people experience progression rather than regression following chemo. If this is the case, what is someone to do? Are they wrong for incorporating some alternative treatment and believing the evidence based research that supports it?  If stable on chemo, is it wrong to take researched based supplements in addition to try to experience some regression instead of just stability?

    What if someone is too ill to take the chemo? or they can't tolerate hormonals? or have watched loved ones and friends die mercilessly following chemo? or they don't want to spend the last of their very long lives on chemo? or they have other very personal reasons...How is it right for someone to judge and ridicule another person with this disease for taking another course of action?

    What constitutes as evidence is always up to the interpreter. So why is it necessary to gang up and ridicule others not following your same path? Why limit ourselves and our choices out of stubborn righteousness and idiocracy? You nor I know what will happen as a result of any choice.

    Why should anyone be challenged and ridiculed for their choices when everyone is just doing their best? Everyone dealing with this disease deserves sensitivity and compassion. Why do people using alternatives have to do all the research and post it, supporting their choices for other people who just want to criticize them and ridicule them for it? 

    Why do we have to divide ourselves into separate camps when we basically are all in this together?

  • Momine
    Momine Member Posts: 7,859
    edited February 2014

    Light, I was not challenging, ridiculing or judging anyone. Reasonable discussion is none of those things.

  • curveball
    curveball Member Posts: 3,040
    edited February 2014

    I didn't see any judging or ridiculing of Ms Wardell on this thread. I think the article is perhaps somewhat slanted in tone, and could have used some more or better editing (for example, the names of some of the medications are misspelled) but that's a criticism of the reporter's writing skills, not of people who use complementary treatments.

  • hopefour
    hopefour Member Posts: 459
    edited February 2014

    Thank you for posting this cp418...I found it encouraging. Always thankful for the time you take to post all of your interesting, informative and helpful articles!

  • lightandwind
    lightandwind Member Posts: 754
    edited February 2014

    Momine, in the spirit of reasonable discussion, I was wondering if you or anyone else can answer why "anyone" would ridicule someone who's tx choices are different, challenge someone to support their treatment choices, or judge another person facing the same disease, or if you or anyone else could answer any of my other questions that I've already posted.

  • curveball
    curveball Member Posts: 3,040
    edited February 2014

    @lightandwind, why are you asking those questions here? There hasn't been any ridiculing or challenging of anyone's treatment choices on this thread. There has been some (IMO justifiable) criticism of the article, but I've seen none of Ms Wardell's choice to use supplements and so forth in addition to chemotherapy.

  • lightandwind
    lightandwind Member Posts: 754
    edited February 2014

    Curveball, I just don't see how standard and alternative can ever merge as a collaborative entity when the patients themselves keep them separate and there is such judgement, and ridicule towards alternative treatment and the people using it.

    I feel bad for the people that have to keep experiencing that from other people on these boards.

    I think the article provides the opportunity to envision a world without the separation and have a reasonable discussion about it. Start by understanding and getting past the barriers, so we can  address them and begin to see things more eye to eye.  If I am ever diagnosed w/ stage 4, hearing of her success, I would consider having what she's having.

    So does anyone want to answer any of my questions?

  • ziggypop
    ziggypop Member Posts: 1,071
    edited February 2014

    Lightandwind - (nice handle BTW) Maybe, just maybe you are being a little defensive here because of discussions and or what you think are challenges to your beliefs in the past? Would you do me a favor (this is a sincere request). Could you go back and read through the thread & note specifically which comments you thought ridiculed or challenged someone to support their treatment choices. Maybe one of us said something that needs further explanation.. but let us know what comments you are talking about so that we at least have the chance to explain them. (please)

  • lightandwind
    lightandwind Member Posts: 754
    edited February 2014

    Ziggy, I am speaking generally here. Threads such as the vain thread are polluted with unkind, ridiculing  comments towards the alt thread and other bco members and their choices. Several times someone has come to the alt threads to challenge someone to support their alternative choices. People who aren't open to alternative choices completely occupied the alternative thread at one time, demanding others post evidence to their choices. The alt people are all huddled up in the corner trying to get some support and instead they get the opposite by someone challenging them and their treatment.  This has occurred on these boards in some fashion or another for as long as I can remember. Has it not? I find it both interesting and bothersome that it keeps happening. I'm curious about it as well as hurt by it.

    So, now, I've explained myself, 2 times so I'm just going to wait to see if anyone can give me a reasonable response to any of my questions. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    lightandwind said:

    "This has occurred on these boards in some fashion or another for as long as I can remember. Has it not?"

    No it has not.  And I suggest, before denigrating other threads on this website, you remember the suggestion/request of the Moderators at BCO- "IF YOU DON'T LIKE IT, DON'T READ IT."  Often shortened to "don't like, don't read" unless of course, larry says it.

    The Complementary Forum was created to give individuals who choose chemotherapy, radiation, surgery, herceptin, aromatase inhibitors, and also want information on holistic health ( David Servan-Shrieber ) information a place to post.  This is not the "Alternative" Forum.

  • lightandwind
    lightandwind Member Posts: 754
    edited February 2014

    Sunflowers, I thought the community rules regarding other members, included making them feel welcome, remaining respectful, and that bullying on these boards was not allowed. The alt thread has it's own rules too, but some of you still come there to insist people post support for their choices, because you can't seem to let them do what they can to stay alive in peace. 

    I don't like it and I will not ignore it. 

    No matter how much evidence is posted, this continues. 

    If you don't like my posts, you don't have to respond. Am I writing anything that might be hurtful to another human being? Am I ganging up with others to laugh hysterically about another sick member? 

    btw- This is the complimentary AND holistic forum. I have used standard
    treatment w/ supportive therapies so therefore I have had complimentary
    treatment. "Holistic medicine is a term used to describe
    therapies that attempt to treat the patient as a whole person."

    Don't you think it's interesting that this keeps happening? I guess you don't want to answer my questions? huh?

  • wyo
    wyo Member Posts: 541
    edited February 2014

    okay I will no longer stay on the sidelines-. I have read everything on all threads noted and have posted myself.  Even when someone tries to post something evidence-based, reasonable or supportive in the complimentary or heaven forbid the alternative thread (given the dire warnings why would anyone enter) it can not seem to be taken at face value and the accusations begin. 

     What I see is--  those claiming to be the huddled minority being bullied in the corner are often the ones who will argue about anything including the color of the sky just because someone else said it (metaphorically speaking of course). I don't see people on any threads asking to be defended or even needing their choices defended so why do people put themselves in the position of the defender or speaking on behalf of others. 

    What we have is something that  appears to be just like US politics my breast cancer colleagues- you believe what you believe and your mind is made up and while you may acknowledge people have other beliefs and even have friends whose beliefs are diametrically opposed to yours- you believe you are right and are not apt to change.  

    There is significant difference of opinion for treatment on the "traditional" or uninformed (as some call them) threads as well- people new to cancer don't have the courage of their convictions, significant experience with treatment and have often just started doing research which includes any/all options. 

    Lets tone down the rhetoric and own your own decisions because the only person's behavior anyone can change is theirs- all done now.

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