Lumpectomy scheduled for Feb 11...I'm getting nervous!

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Swissmiss
Swissmiss Member Posts: 111

Hi all!  Just need a moment to talk this out...I'm getting very nervous about my upcoming lumpectomy.  I still feel blessed that my MRI and genetic tests came back with results that allowed me to go with a lumpectomy rather than a mastectomy, but now I'm feeling some anxiety rather than blessings.  My tumor is about 1.5 cm according to the MRI.  A dear friend of mine, who has had breast cancer twice, told me to brace myself because tumors often are often much bigger than expected.  What if it's bigger?  If it's much bigger, I'm worried my cancer will be bumped up to stage 2, which my doctor told me would require chemotherapy in most cases.  I'm still holding onto the dream of getting the lump removed with clear margins, lymph nodes clear, and then treat with radiation, and be given a clean bill of health :)  I have three busy kids and a husband, vacations planned, things to do...I don't want to go through chemotherapy.  Am I worrying for nothing?  I'm telling myself to simply relax, but it's getting harder with the surgery only a week or so away.  

Even if you don't have answers for me, thank you for reading/listening to my nervous chatter!

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  • wenweb
    wenweb Member Posts: 1,107
    edited February 2014

    Dear Swissmiss,  Welcome, I know this is not the best of circumstances for you :(  There is much support to be found here from all of these lovely ladies.  Waiting, and dealing with the unknown is difficult and of course ( your main concern) there are the "what if's" while we wait.  While, there is probably not much to make you feel assured until the final results are in, know that whatever "it is", already is, and out of your control.  Try and take comfort in knowing that whatever will be, will be and that you WILL be able to handle it.  Sending best wishes and hugs!!

  • RMlulu
    RMlulu Member Posts: 1,989
    edited February 2014

    SwissMiss - breathe, ugh the waiting gives our minds time to second, third, fourth guess ourselves. You have a great team, great plan, and great family support.  Don't get ahead of yourselves and go down paths you may never have to walk.  Focus on today.  Checkout what services your BC center offers and attend a support group...it's good to here from others who have just crossed over.

    Feb 11 will be here soon ...so focus on what you do know, confirm how and when you will receive margin&node results, get your nest in order, purchase a front zip hoody & sports bra2X larger, yoga pants, medi-pedi warrior color, flip flops, than wiggle your toes in the grass, laugh with your family, soak in the things that make your heart and spirits soar:)   You will be fine brave warrior!

    Join us in the Lumpectomy Lounge!  

    We will be in your pocket {{{squeeze}}}

    Cindy

  • peggy_j
    peggy_j Member Posts: 1,700
    edited February 2014

    Swissmiss, sorry you're going through this. And I agree with others--it's best to take things one day at a time. FWIW, I'm not sure your friend is right that tumors "often are much larger" than estimated from the screening tests. I'm no expert, but based on comments here and among BC patients I know, sometimes some tumors are somewhat larger. Guess what? Sometimes they are smaller too. In my case, the final path report showed the tumor was smaller and a lower grade than estimated from the screening tests and biopsy. I think my case is unusual, but it can happen.

    You've already been through a lot, with the initial Dx, and extra screening tests (MRI and BRCA.) That's a lot of waiting for results in a short amount of time. Whew! No wonder your nerves are shot. Your surgery is next week and it may take another week to get the final path report.  So you'll know more in two weeks. It's easier said than done, but one option is to use the next two weeks to be present in each day. Enjoy time with your hubby and three wonderful kids. If you can, why not pamper yourself for all you've been through? What can you do to take care of yourself? What brings you joy? Even little things can be nice, like a walk in nature, or a bubble bath every day. ;)  I also like the idea of doing things now to make your post-surgery time easier. Maybe buy a new pair of PJs. Treat yourself to a novel or two to read while you're recovering. Also, I found it never got easier while waiting for test results so maybe you can plan some "distraction therapy" on the days before you hear the results--go out to a movie or do other fun things that might take your mind off the endless wondering.

    You can do this. I'll be thinking of you on Feb 11. It happens to be 3 years from the date I was diagnosed. I remember a lot of what you are feeling. I'll send you good vibes for a successful surgery and smooth recovery. (((hugs)))

  • edwards750
    edwards750 Member Posts: 3,761
    edited February 2014

    Swissmiss - we all so feel your pain...the pain of waiting. It is brutal but as trite as it sounds it will be over before you know it. Just so you know I had a lumpectomy and was dx Stage 1 before the surgery. When the Path report came back they found a micromet in my SN so it bumped me up to Stage 2. I also had to have a second surgery to even the margins. Not a big deal. My BS said that would get me chemo; it didn't. It is no longer the automatic treatment plan it once was. My Oncologist ordered a test called Oncotype which tests your particular tumor only - no family history, etc., enters into their finding at all. It takes 10 days-2 weeks to get the test results back. Mine came back in 10 days - I had a score of 11 which is low and the tumor was determined to be non-aggressive - also good. I have an 8% chance of recurrence with taking Tamoxifen for 5 years - which I do. So, bottom line is even if your stage changes it doesn't mean chemo. Typically chemo was the treatment of choice when the nodes are involved. That is no longer the case. Every case is different of course but my Oncologist said they had been overtreating women for years so they use the Oncotype test to help decide a treatment plan. My final Stage 2, Grade 1. So you do have options. Do try to keep busy and enjoy your family and keep in mind the treatment of BC has come a long way...keep us posted. Diane

  • edwards750
    edwards750 Member Posts: 3,761
    edited February 2014

    Sorry I forgot to add - cant believe I did....I also had 33 RADS treatments instead of chemo. They were a piece of cake. Bit burning and fatigue - that's it...diane

  • Rlchall
    Rlchall Member Posts: 10
    edited February 2014

    I am waiting on the same thing.  Have been told lumpectomy with IORT unless they find something different when they get in there.  Praying for you!!

  • flagirl
    flagirl Member Posts: 144
    edited February 2014

    Swissmiss

    I just had a lumpectomy and sentinel node biopsy. I am IDC 1.3 mm stage1, type 2 located at 11 o'clock.  Yesterday was my surgery.  The best advise I can give you is to just take one step at a time, and breathe.  My MRI showed no node involvement before surgery, and my surgeon suggested that I probably won't need chemo, only some pinpointed radiation.  I had my tumor removed yesterday and three lymph nodes under the arm.  My scars are minimal.  The lumpectomy scar is at the edge of the nipple line and follows the shape of the nipple 1-1/2" long.  The armpit scar is in the fold and is only about 2" long.  Everyone is different so don't take your friends story to heart.  It's just like when you go on vacation somewhere and if someone had a bad experience there they are surely gonna tell you about it. You never hear the good stories.  My pain is minimal, no swelling and I can use my arm (course if I over do it, I know).  Reports come back next week.  Don't know what they are going to say, but one step at a time.  Glad the surgery is behind me, and now onto the next....step.

    Good luck-your bc friends are here to answer your questions.  Learn much, read and stay informed so you can guide your own path. Your surgeon will help guide you along the way. Let us know how it goes.

  • edwards750
    edwards750 Member Posts: 3,761
    edited February 2014

    flagirl....that dog is just adorable...I am a big time dog lover!

  • rilady
    rilady Member Posts: 5
    edited February 2014

    Hi Swiss Miss,

    I had a lumpectomy rt br and Sentinel node excision plus one on Jan. 10. The day of surgery I had  dye inserted, then the clip wire, then surgery, arrived at hospital @7:45 am and home in my bed at 5 pm,  Had little pain after, just soreness and tightness, only had to take a total of 2.5 percocet for one day.  I found the waiting was worse than the surgery . I received my bx. results within 7 days. Had  Grade I, stage I , 0.4mm lobular, tubular cancer with neg. nodes. her2Neg, ER+/PR+ , clean margins.  Prior to surgery I was told my tumor was 0.4x0.3 mm, after surgery it was 0.6mm. 

     I am over 65 and new criteria since this past December states no radiation needed for my age group with the above results . Apparently there was little difference in recurrence with those that did have radiation vs those that did not. I only need to take arimidex(anastrozole) for 5 yrs. I did not have oncotype dx done as both surgeon and medical oncologist felt it was not necessary. I am comfortable with that. I am a retired nurse and have done much research. I highly recommend doing so if not already done. This site is excellent in answering many questions. Be sure to send for or download the Pathology info for questions for your doctor. 

     I am finally feeling like myself after 3.5 wks. I think I was just mentally exhausted with all the anxiety prior to surgery and waiting for results. My incisions are well healed and I was outdoors shoveling snow yesterday, not for very long though. I am doing my excersizes, be sure to ask your doctor what activity you should be doing after surgery. 

    Remember , also, we are all unique and will have unique results . Your friend had hers and you will have your own. Good luck with all. Let us know how you do. 

  • LizzieK
    LizzieK Member Posts: 67
    edited February 2014

    I had my lumpectomy on Dec. 3rd.  Biopsy said 1.7 and it turned out to be 1.2 cm.  My surgeon got clean margins, no node involvement and I got an Oncotype score of 17 so no chemo.  The surgery was a piece of cake, I only took one pain pill that night and then Tylenol.  Keep putting cocoa butter on the scars after the sterie strips come off and do the exercises they give you.  Because I have early stage ER+ I qualify for the nine session, one week partial breast radiation protocol in Boston (I live in upstate NY) which I will start on Feb 18th.   Depending on your results you may want to see about the shorter protocols so you can get back to your life sooner. 

    The waiting is the worst.  Once you get your results and your treatment plan it gets better.  

    Ask your doctor for some anti-anxiety medicine.  I took some Lorizepam the night before and day of surgery. 

    Hoping for all good news. 

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