For Informed People Using Alternative Treatments

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  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    jojo, thanks for the link. I also like their website as well. Very informative. Took me few days to read thru the site and found the info I needed. 

  • lightandwind
    lightandwind Member Posts: 754
    edited January 2014

    Great site Jojo. Thanks!

  • ponyo
    ponyo Member Posts: 15
    edited January 2014

    Kireeus,

    Thank you for the imagery. It is a powerful way to approach things. My craving for alcohol has subsided some from the intensity I felt at the time i wrote. For now, I am recognizing that I want to have an occasional glass of wine and not to fight it. 

    I am thinking about following some other advise I received and go off on a ten-day meditation retreat. I am recognizing that I need to get more into the mind/body arena the more likely i will be in a position to step away alcohol. I am surprised by how i am about tit. I have stepped away from alcohol for a year after a head injury. it was a no brainer then. but it was also only for a year. 

    As for the mcp--i had previously tried what you suggested, but was still not getting the powder to sufficiently dissolve. I now use a straw to stir and drink, so at least i don't have a big hunk of powder at the end.

    meditation and yoga have been great place of refuge. 

    ~P

  • new2bc
    new2bc Member Posts: 559
    edited February 2014
  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    this really get me thinking hard. i don't take vit E but i do take supplements. with all these info floating out there, it's very diff to really feel great about what to take and what not. anyone else is taking supplements??

  • abigail48
    abigail48 Member Posts: 1,699
    edited January 2014

    organic black rasberry powder, groind termeric, ground cinemon.  don't take pills but grind up nuts seeds & spices

  • abigail48
    abigail48 Member Posts: 1,699
    edited January 2014

    olive leaf decoction I make myself rom dry olive leafs from frontier, bee pollen granules.  not sure the last is good, perhaps too hormonal don';t know

  • hjpz
    hjpz Member Posts: 348
    edited January 2014

    Ugh!  Is anything safe anymore.  This info can all get so daunting.  I am also very confused about Flax Seed because I have read even though it has phytoestrogens it is actually reportedly helps fight breast cancer  -- other places say it is not good for BC survivors due to the phytoestrogens.  I was throwing some in my smoothies everyday because it is otherwise very good for you but now I am second guessing it!  

    On another note - I ordered some Kelp flakes and seaweed so wish me luck.  :)

  • hjpz
    hjpz Member Posts: 348
    edited January 2014

    FYI my primary Doctor left her practice earlier this month so I have been randomly doing google searches for her to see if I could find her practicing medicine  anywhere near by me because I really liked her.  Today I saw an announcement that she opened up her own "Alternative Medicine" place in town!  It appears she got tired of some of the conventional medicine's ways of treating patients (or that is what I inferred from her website statement :)    I am considering going to her even though it would be out of pocket because as I have stated before I don't have a naturopath near me and per her website she offers special treatments for cancer patients.  Very interesting. 

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    hjpz - i would love to hear about her. pls tell us more when you pay her a visit.

  • new2bc
    new2bc Member Posts: 559
    edited January 2014

    The study I posted earlier also mentioned NAC besides Vitamin E. 

  • hjpz
    hjpz Member Posts: 348
    edited January 2014

    Will do Juneping!  I am even more disheartened with regular doctors today because I have been waiting all week for this CA-125 test to come back from my OBGYN and now I am reading multiple things that Tamoixifen (which I take) can cause ovarian cysts (which I now have)!  Why didn't my OBGYN mention this as a possibility instead of freaking me out and going right to talk about removing my ovary and tube and making me think it had to be cancer??   Anywho.  I am still waiting for the office to call me with the test results but I have read that marker test isn't very accurate.  Maybe I need a different OBGYN.  This Dr. is new to me ( I had been getting my annual exams from the aforementioned Dr. who left me!) but my friend loves her (then again my friend told her about her extreme PMS symptoms at her last exam and she was given no real options/ideas so maybe this should have got me thinking).  Sorry to rant! 

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    hjpz - i totally understand what you said. it's a lot of years to become a doctor but they don't really know how the body works, just how to treat the deceases. it's kind of sad and f**ked up the way it is. there's a pill for everything. after reading new2bc link, i am rethinking of taking my supplements as well. i am eating almost everything organic, do i really need supplements?...

  • Fallleaves
    Fallleaves Member Posts: 806
    edited January 2014

    Yeah, the vitamin E may be like folic acid, where it prevents cancer when you take it early on, but once you have cancer it makes it grow faster. I get freaked out very easily and tend to reject any supplement if I read even one study that is negative. If I can get the vitamin or phytochemical naturally I prefer to (like I eat a lot of almonds for the vitamin E). But some things like sulforaphane or DIM are hard to get in large enough quantities through eating alone. 

  • GlobalGirlyGirl
    GlobalGirlyGirl Member Posts: 269
    edited January 2014

    hjpz - Right? The OB/GYN I saw said, "I read they're suggesting 10 years instead of 5 for Tamoxifen. You know it increases your risk for uterine cancer. But it's usually caught early."  How reassuring! Ugh.

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    globalgirl - yes, how ridiculous. and thats why they said we should go for our pep smear regularly.

    is there one drug out there doesn't have a side effect???

  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited January 2014

    Falleaves, I may be absolutely alone in this, but my philosophy is that as cancer cells are faster growing, faster reproducing, greedier and grabbier than normal cells, they will therefore demand first dibs on any nutrients they can find.  I wish I'd done more nutritionally before diagnosis, but since radiation, when they discouraged antioxidants that might promote cellular repair in those naughty cells, I've only taken vitamin D and a multivitamin, and try to keep my protein intake moderate.  At this point, my focus has moved from making my body as healthy as I possibly can to making any leftover cancer cells as unhappy as I can.  Reluctantly, I've added calcium for my bones, but, for now at least, I'm taking a very conservative tack and just hoping the magic arimidex pills starve those little buggers .  I've only been on arimidex since April Fool's Day, and after another year or two, I may rethink this.  I know nobody out there (traditional or alternative) seems to be on the same track as me, but I mention this because of your post about the possible Jeckyll and Hyde impact of vitamin E. 

  • lightandwind
    lightandwind Member Posts: 754
    edited January 2014

    http://www.007b.com/breast-cancer-prevention.php

    Vitamin E

    Some studies have found vitamin E to have a protective effect against
    breast cancer, and many have not, but more recent studies are now
    finding that it is the form of vitamin E that makes the difference. It
    appears that the common form of vitamin E that you find in supplements
    and in most food sources, alpha tocopherol, is not protective against
    breast cancer (though it certainly is a powerful antioxidant and needed
    nutrient). But women consuming other forms of vitamin E called tocotrienols
    have been found to have dramatically lower risk of contracting breast
    cancer - 50% less risk for women without family history of breast
    cancer, and as much as 90% for premenopausal women with family history.

    The food sources of tocotrienols are rice bran, barley, and wheat
    germ. Actually, palm oil is the best source of tocotrienols, but the
    palm oil sold in the U.S. is refined, and the refining removes the "good
    stuff."

  • Fallleaves
    Fallleaves Member Posts: 806
    edited January 2014

    Interesting, Light. Guess I'll have to start making barley soup and adding wheat germ to things. Maybe I'll make an oatmeal, barley, wheat germ, flaxseed, blueberry, gojiberry breakfast porridge!

  • abigail48
    abigail48 Member Posts: 1,699
    edited January 2014

    I do a mostly organic combination of oatmeal, black raspberry powder, ground turmeric, bee pollen granuals, coconut shreds, cinnamon, dried cranberries, brazil-pecans ground up, blueberries, sometimes maple sirup & half & half

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    light - thanks for the article. very helpful. but i decided to take it easy on the supplements. i am doing rainbow diet and low carb...i just think too much supplement might not be the best for me.

  • hjpz
    hjpz Member Posts: 348
    edited January 2014

    Does anyone here take DIM?? Also - I read that baby asprin can also help (no clue if this is true!) - anyone take them or hear this before??

  • abigail48
    abigail48 Member Posts: 1,699
    edited January 2014

    many take them I've read here especially DIM         a few minutes ago gary said that there's a study, new I think, that black plum leaves will protect against radiation damage

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    is anyone using raw honey? not for medication but just use it for sweetener on a daily basis. cancer cells feed on glucose so raw honey is bad for us? i use it everyday for my morning lemon juice and also use it in my plain yogurt to add some flavor. pls shed some light. i read thru dr google and it's conflicting. 

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited January 2014

    Juneping, your body converts carbohydrates in general (sugar, honey, bread, potatoes-doesn't matter what kind) to glucose to use them. The only difference between honey & sugar is that honey has a tiny amount of trace minerals. Honey has a sightly lower glycemic index than sugar (55 vs. 68) so it spikes your blood sugar a tad bit less, but not much.

  • hjpz
    hjpz Member Posts: 348
    edited January 2014

    juneping - I use the honey in moderation because I like to have something in my tea - I know it is a sugar but I just think if I use a little amount of it it is still better than straight sugar or any of the fake sweeteners.  I also use Stevia sometimes in my tea but you have to make sure it is real Stevia because a lot of the ones sold at the normal grocery store are not. UGH! 

  • hjpz
    hjpz Member Posts: 348
    edited January 2014

    Well I got my CA-125 results back and they were in the normal range.  The OBGYN still wants me to have the ovary removed as well as the tube.  Don't they do biopsies of these types of things?  I know other women have had a biopsy for the same thing.  I think I am going for a second opinion because I asked the nurse if my Tamoxifen could be causing the cyst and she said she had never heard of that and would run it by the doctor on Monday.   

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited January 2014

    Hipz, from JohnsvHopkins:

    Q: Is there a way to diagnose ovarian cancer without surgery? Can a biopsy of the ovary be performed?

    A: Non-surgical techniques to definitively diagnose ovarian cancer currently are not available. Biopsies of ovarian cysts are not recommended. The limitations of attempting to diagnose ovarian cancer with biopsy techniques guided by ultrasound or CT are:

    • rupture of the cystic mass when a biopsy needle is inserted with possible spread of the tumor to other sites.
    • missing cancerous cells since some parts of the cyst may not contain cancer

    Johns Hopkins scientists currently are studying innovative methods to detect ovarian cancer by identifying markers specific to the disease present in the blood. More information can be found in the Research section of this web site in a variety of news releases on several ovarian cancer blood test research projects.

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    melissa, hjpz - thanks for chiming in. i found it extremely hard to cut carb out of my diet completely. i'll just do it in moderation then. can't live my life just to exist. 

    regarding the cyst, oh i hope you get a better picture of the cyst from the 2nd opinion. why can't they just remove it without removing the whole organ?

  • abigail48
    abigail48 Member Posts: 1,699
    edited January 2014

    plain yogurt is delicious, if organic & whole milk.  it has lactose, milk sugars as well.  not as much as skim, but better.

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