DIEP 2013

Options
1408409411413414421

Comments

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    Bluebird, what  did I miss? You have had more surgery? What did you have done?

    Niknak, welcome. I hope we can all be of some help to you. 

    I went to see my current PS today, because my new one is not my surgeon till I have surgery...lol.  I guess.  Anyway, he knows the implants are tight and don't look that great, and asked me what I wanted to do, and he knew the pain management people couldn't help me unless I stayed on pain meds, for the rest of my life.  He know these things have to come out.  I told him I needed at break.  Which I do.  I don't know how to break up with my surgeon.

  • christina0001
    christina0001 Member Posts: 1,491
    edited January 2014

    goldie just stop seeing him if he's not working for you anymore. Is there any benefit to continuing to see him? 

  • LucyV
    LucyV Member Posts: 177
    edited January 2014

    how are you today Zoemom?

    Glad the cough is better Lahela...that's good news. Oh and I'm a wimp !

    Goldie- breaking up is hard. If you never called him again would he call you?

    Hope everyone is doing well.

  • damiana9
    damiana9 Member Posts: 389
    edited January 2014

    Goldie- I can't break up with anyone either.  Ugh!  With my first PS that placed the TEs, I kept seeing him up till a month before DIEP.  I went ahead and made my next appt with him (knowing full well I wasn't going to keep it) then called the next day and cancelled it and I never heard back.

  • krissy42
    krissy42 Member Posts: 40
    edited January 2014

    Zenful -I was told I only needed 1 or 2 days off of wrk for my stage 2 with very few recovery details. My new job (working from home at a desk) allowed me to only take 2 days...one for surgery one for drugged up sleepinf Lol. My issue was swellinf and pressure on my side from sitting and bending. All my issues are on the Ab Side of things,,,, the breast stuff seems to be easy.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited January 2014

    Christina, Princess Bride is a big hit in our family. Such a funny little movie.

    DebDylan, thinking of you. How did your PS appt. go?

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    LOL, Damiana...glad I am not the only one.

    Lucy, eventually I think he would call me.

    Christiana, like Damiana, I need him until I have my diep.  I am not my new surgeons patient until I have the surgery, so I need my old surgeon for anything that might go wrong with these implants while I am waiting to have my surgery.  I feel like I am using him, but I did tell him today that he didn't do my any favors by not warning me about how aggressive my breast surgeon was, and wish somebody would have been more up front with me.  The nurse was shaking her head like I was right, but the surgeon said it would not have been ethical to steer me in any particular direction.  I don't believe that.  When you tell a PS you want immediate recon, and you have your dx in front of you, he should be able to say this is who he works best with, and if this is what you want then this is who you should see. Then he went on to say, "but she took every bit of breast tissue and your chance of recurrence is practically zero." Oh, and then he said that women who have beautiful recon with implants always have too much fat tissue left behind for aesthetics sake, and have a higher rate of recurrence.  Hmmm.  I am having a pissy night.  Sorry.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited January 2014

    Goldie, you're entitled. These docs don't know who they are dealing with. I don't understand why you can't see your new PS now. I saw mine before surgery, oh-so-long ago.

  • sweetpickle
    sweetpickle Member Posts: 749
    edited January 2014

    Hi Niknak! I had my DIEP a little more than a month after my last chemo and I think that is why I had a harder time than most. I would still have done it that way thoug because I wanted the affected tissue out of me asap.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    Jeannie, I guess I could go see him if there was a problem.  I just feel like the original surgeon should deal with any issues that might come up because of these implants until they are out.  My new surgeon is very nice, but he had no interest in dealing with these implants, or the problems they are causing me now.  He told me how he is going to solve that problem during surgery, which I liked hearing. 

    And, you are right.  These surgeons are a little surprised when people like us come in, and we are informed, and ask questions, and call them on the carpet for errors that might have been made. I sent him an article last week about my condition, and what is causing it, and he was very appreciative.  There is a condition called Post Mastectomy Pain Syndrome, and then there is what I have, Iron Bra.  Two totally different issues. Mine condition can be solved with putting the muscles back where they belong.  Unfortunately, PMPS can be an on going problem.  Thank goodness the Pain Management people were able to rule out that I have that. But, if anybody feels that is what they have, there is help for it. Don't live in pain if you don't have to.

  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited January 2014

    Thanks Bailey! Took a little picking but once I got the corner started as you suggested the Tegaderm came right off. I am thrilled with how I look! He did such a wonderful job with the incision and got rid of all the mass of scar tissue.. Already looks fantastic and only have 200 cc's in. Goodbye Mrs. Frankenstein!

  • Morningsun1
    Morningsun1 Member Posts: 649
    edited January 2014

    So happy for you, blue!

  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited January 2014

    Thanks Tammy!

    chú jiù bù xīn    Replace the old with the new!  

    Gong Hay Fat Choy! 

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited January 2014

    Oh, Bluebird, yay! It is so good to hear you use the word "thrilled!"

    Deb, I don't know what to say. I'm sorry. Your plan to gather as much info from various docs is a good one to figure out your next steps. I care!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    Blue I cried with joy to read your post . There are no words to express how happy I am for you....how happy all of us are for you :)

    And Debdylan....you are right....you will get there. Hugs, honey. You can do this....keep going. 

  • MartyJ
    MartyJ Member Posts: 1,859
    edited January 2014

    bluebird gung hay fat choi right back atcha.

  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited January 2014

    If the mess on my chest can be fixed, I'm sure yours can too Deb. We just had to take the long, slow route. Hang in there.

  • christina0001
    christina0001 Member Posts: 1,491
    edited January 2014

    Deb, this might be out of line for me to say, but if I went in for a consult, and the consult was with a surgeon's assistant, I would walk out of the office. That is total BS to me. I'm glad you're going for another opinion.

  • Zoemom
    Zoemom Member Posts: 50
    edited January 2014

    i saw my PS today. I had a seroma AND a hematoma. He did an aspiration in his office (ooooouch).  He was VERY surprised I had spontaneous bleeding again (first time after my diep in Sept) and now after my emergency surgery.  He as never seen a case like me before. I seem to be prone to complications.  If the redness/ bruise doesn't go away I go back to NYU for another ultra sound and possible aspiration.  

    Lucy - thank you for asking about me.   All my complications are becoming comical - really. I'll be so happy when they are behind me. 

    bluebird - I am very happy for you. I recall reading your posts a few months ago.

    Debdylan - you may want to consider seeing my PS in NYC he is very experienced and I'm very happy with my foob. I was not an easy case. Don't let my abdominal complications deter you from considering him. I'm the exception. 

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    Yeah, Bluebird.  Such good news.  Is it just an implant, or is it a lat flap with an implant?  Just curious.  Such exciting news. 

    Deb, we will all get there eventually.  We are trying too hard.  Something has to work.  Remember, God helps those who help themselves.  We are working really hard at trying to figure out the best way to help ourselves.  Good things will come.

  • lahela
    lahela Member Posts: 515
    edited January 2014

    Bluebird, I'm so, so, so happy for you! After the road you've had to walk, it is so good to hear that you're happy!

    Deb, I'd try and see as many PS as I could, if I were you. It sucks that there are financial and work complication to consider, but you'll get there and we'll be here supporting you all the way!

    Zoemom, you have been through so much! Your body needs to give you a break!!! Healing thoughts flying your way.

  • Zoemom
    Zoemom Member Posts: 50
    edited January 2014

    Lahela - thank you for the healing thoughts!  I am trying to stay positive and focus on the fact that I have a foob that is doing well.  I work very long hours at one of the banks here in the city and although it is stressful (some friends say that may be the cause of my complications), it does keep my mind off of it temporarily. 

  • kelleyb
    kelleyb Member Posts: 94
    edited January 2014

    Ladies,

    Sorry this photo is so huge!  I'm inserting lots of space so hopefully it doesn't jump out at anyone.

    This is what my tummy incision looks like.  I'm hoping our flight to NOLA tomorrow works out and Dr. Sullivan can do something for me on Friday as planned.

    Did anyone's tummy look like this after DIEP?  I have some black areas almost immediately after surgery but obviously it's gotten much worse.  My MO gave me some antibiotics last night, she says it looks infected, as well as an area under my left arm along the incision line.

    image

  • nihahi
    nihahi Member Posts: 3,841
    edited January 2014

    Wowzer kelley.......get thee to the surgeon ASAP. I'm very glad you have been put on antibiotics. I'm not saying it's the reason why you are having these complications now, but perhaps it wouldn't hurt for you to bring your surgeon up to speed on the nursing "issues", dirty gowns and bras, etc. that you had post surgery. Hope everything goes better with the coming visit. Hang in there.

    lahela...how's that tummy pain?

    zoemom....this will be the LAST of your complications...RIGHT!!!!!

    bluebird...you are sounding so much more positive...good to hear.

    deb and goldie....hope things eventually sort out the way you are both hoping!!!!

  • lahela
    lahela Member Posts: 515
    edited January 2014

    Eeek! Kelley, that looks far from normal... but I've never looked at anyone else's incisions so I'm no expert. Best of luck with the visit to the surgeon.

    Nihahi - I'm convinced that it's the scar tissue. If I press with the lightest pressure on that 1" wide bit of scar where I had my slow healing spot, it hurts. It didn't use to. It's not as flat as was, either, so I suspect it got torn internally with the coughing. PS never mentioned my scar when talking stage 2, so I guess I'll have to make an appointment and discuss scar revision with her, because it's clearly not right.

  • Janet_M
    Janet_M Member Posts: 1,068
    edited January 2014

    Bluebird - Yipee! Great news! How very very very wonderful that you're thrilled with your results. I'm so happy for you, and I'm sitting at my desk smiling from ear to ear to ear. 

    Deb - From the bottom of my heart, I'm willing you equally happy results. 

  • Curlylocks
    Curlylocks Member Posts: 1,060
    edited January 2014

    WOW, that looks nasty Kelly.  No, my tummy didnt look like that.  It looks like necrosis (dead tissue), from poor blood supply?  I hope you are able to get this looked at right away!

    Let us know how things go...

    Bluebird - so happy for you!

    Michele

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited January 2014

    Kelly, along with the other ladies here, I would want your physician to see your incision asap. 

    It's hard to tell from the photo if there's infection or just a lot of inflammation along the incision line.  My guess is that the black area is "eschar," or scab-like stuff, formed to cover the exposed tissue underneath.  Not necessarily necrosis.

    Probably the issue here is to get this opened area cleaned up and healthy before another closure would be attempted, especially if it's determined there's infection going on.  This might take a bit of time, but as many of us have experienced, it eventually works out.

    We're all in your pockets--good luck!

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited January 2014

    Zoeman, sending healing prayers your way, and I hope you get to see a doc asap.  If you can't get to NOLA, get someplace where a doc can see you, and Dr. Sullivan can talk to them.  

    I have a problem looking at open wounds, so I didn't take a good look, but that needs attention.  Much love coming your way.

    Deb, I have no choice. I can't live like this.  I feel I am doing my homework.  I am changing surgeons, taking my time. talking to people who are a similar size to me and had the same surgery with the same surgeon.  I just talked to a women who is 5'4 and 125 pounds and she got two pretty boobs out of her surgery with the same surgeon last Thursday.  I know, she might carry more fat in her tummy than I do, but he assured me he can do it.  She sent me before and after, and I believe she and I are very similar. I have seen what he did for Kuka, and a few others and I am impressed.  I can only try to be positive this time.  I have no choice. Implants are not going to work for me.  

  • mammalou
    mammalou Member Posts: 823
    edited January 2014

    Kelly. My wound was open like that.  My PS had to cut out all the black and yellow stuff I had. That enabled it to start healing. They just cut it out in the office and it didn't hurt at all. After that, I had to pack it 3 times a day for 3 months.  Mine went deep to the muscle so that is why the packing. It will heal!

Categories