Starting Chemo in December 2013

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  • chicopeach57
    chicopeach57 Member Posts: 166
    edited January 2014

    Count it all joy - had my port installed on a Tues it was accessed on Fri. The surgeon left the needle in to make it easier but I couldn't shower! Could bathe without getting it wet. It worked out fine.

    Good luck ladies 

  • DJJ
    DJJ Member Posts: 229
    edited January 2014


    Count_it_all, It was about 10 days for me to and they used it no problem.  It was a little tender still when they were feeling it to find where to pop in the needle but not to bad.   

  • Goldie8469
    Goldie8469 Member Posts: 90
    edited January 2014

    taxol was tolerable the neulasta shot had made so sick, I have never had much pain from the shot before but the doctor on call said that sometimes it happens with first taxol. Now, I am running 102 fever. Why. I don't understand why it caused a fever. I was doing so well.

  • Carol99
    Carol99 Member Posts: 116
    edited January 2014

    count it all, I had my port placed in the morning and had my infusion that afternoon.  The needle access didn't hurt at all.

    I'm up today for my 3rd, Yuck!

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited January 2014

    Count it all joy- my port was put in on a Tue and used on Thurs, no problems, ask for numbing cream to put on it 1-2 hours before using you will not even feel the needle stick.  With all we have to go through feeling the needle stick, even though it is quick, is preventable. 

    Good luck today NEskir and Leealice ( snd anyone else) with your treatments today, fatigue was worse with my third AC but after a week it was much better. 3 more days to feel good before my last AC on Thurs. 

    Goldie8469, did you try the claritin before and after the Neulasta, it really works for a lot of people. In fact I went to Sam's CLub yesterday and bought two more big bottles of it, My husband uses it every day and some one also said it helps with the bone/joint pain from the antiestrogen pills  most of us will be on after chemo. 

    Hopefully my LGFB class will not be canceled for a third time today , we are getting snow this AM but expect <1 inch.

    Anyone going to any BC support groups? My local treatment center sponsors one that will meet tonight, I may go for the first time. A local PS is going to discuss reconstruction surgery. 

    Barbara

  • jackieak
    jackieak Member Posts: 169
    edited January 2014

    this round has kicked my A**,  got my nice long walk in yesterday, puttered around in house and got a short nap, it's the constant pukey feeling, like at anytime it could come, and swallowing is difficult on liquids, especially water...

    I too have felt down this time, how else can we feel?  Only bright thing is I know no more red crap is going through my veins, and I hope and pray the poison has done its job on evil cells...I need this three week break before taxol just to get my mind back into the fight!  I think we all deserve a day or two or three of griping!  Best to all of you, fight on.  

  • jackieak
    jackieak Member Posts: 169
    edited January 2014

    Goldie, are you doing weekly taxol?  My MO said no neulasta with weekly...I have some body aches this time but I don't know what it's from, I do the claritan for 4 days, start the day before, I hope you are doing better.

  • kjfromca
    kjfromca Member Posts: 283
    edited January 2014

    Goldie - I am sorry you are feeling bad.  That Neulasta shot always kicks my butt for a few days.  My body aches and my ribs hurt from it.  I am useless for two to three days after that shot.  

    Jackie - I don't blame you for wanting to take a few extra days off from treatment.  I have Taxol on Thurs. if my counts are good, but am wondering as I feel like I am fighting a cold.  I don't feel recovered from round 4 yet.

    I too am feeling discouraged right now.  

    Kim

  • charusa
    charusa Member Posts: 107
    edited January 2014

    RGHSR...After my second round of AC I started to feel depressed and defeated and so much seemed to go wrong with that infusion...I was at the point of just wanting to run away and forget that I had cancer. I went in for my blood work and my doctor looked at me and said what is wrong....I just started crying....she reassured me about my fears and I realized that for me everything happened so quickly and I am divorsed so I have no significant other to help me through this that I never cried...I never thought there would be so much more strength after the tears. Now I finished round 3 and it kicked my butt. I can not take the claritin but the pain has been more doable until this last round and the nauseous feeling is horrible...Mine was on Thursday, shot on Friday so I know that in a matter of a day or two I should start to feel better. Less pain today but I let the big C get away from me this time so I am dealing with that and no appitite to eat anything that will help me go.

    Now that I know I have only one more round of the beast and then on to Taxol....I am beginning to worry about that one. I think I read it was much easier than AC....I hope so. All I know is that I will have it on the same schedule as my AC.  I hate having this phobia of taking new meds but when you have panic/anxiety disorder and had some allergic reactions that almost caused me to stroke out you become so very afraid.

    I hope you feel better RGHSR....

  • QuirkyGirl
    QuirkyGirl Member Posts: 383
    edited January 2014

    Goldie - even with Claritin the shot caused me terrible pain.  My MO ended up telling me to take 4 ibuprofen at a time as needed and then Percocet if I needed that too.  The first shot was the worst.  The last two have been easier and I only use the  ibuprofen.  And I take it just as soon as I feel the pain coming on.

    Charusa - I'm divorced and doing this alone, too.   It's hard but you'll make it!  I've been divorced a long time so it's easier I suppose since its been 11 years since I had that kind of support.  

  • DJJ
    DJJ Member Posts: 229
    edited January 2014

    Ladies, I came across this quote from Eleanor Roosevelt that I think is perfect for us. 

    "You gain strength, courage and confidence by every experience in which you really stop to look fear in the face.  You are able to say to yourself, 'I have lived through this horror.  I can take the next thing that comes along.' You must do the thing you think you cannot do."

    We can do this!

     

  • RHGSR
    RHGSR Member Posts: 774
    edited January 2014

    you ladies are so awesome. Thank you for not only the encouragement but the validation of my fears and concerns. 

    Just need to gear up to keep fighting. 

  • count_it_all_joy
    count_it_all_joy Member Posts: 130
    edited January 2014

    Thanks to all who gave me your port timeline.  Now I'm completely at ease about resuming - hopefully TAC #3 on Thursday.  Funny that it's more  reassuring to hear it from you all than from the surgeon, but sometimes I feel they just tell you what they think you need to hear to keep going on this crazy journey.  But thank goodness for that, really, as it would be so easy to say no more!  The first 2 rounds were so hard, even my MO was saying we may get to a point where the complications I'm having are more danger to me than any cancer cells that may or may not still be hanging around in my body.  There is some relief in knowing 4 treatments instead of 6 is an option, if absolutely need be.  And some fear to hear that it really has been as bad as it seemed.  

    Having this enforced break has me feeling strong and ready to go again.  But I hear you all - round 3 and 4 seem to run you up against a wall of tiredness… physical tiredness of dealing with SE's, emotional tiredness of just wanting normal life back, and feeling it far out ahead… there will come a day again when the end feels closer, and your spirits are renewed.  In the meantime, praying you keep finding just the strength you need to persevere, one day (hour… minute!) at a time.   And unexpected moments of peace and relief from pain that give you fresh courage.  Please remember to pray for me when you hear me echoing your words, and you are back at a stronger place again.  

    Peace, Mary

  • beths1
    beths1 Member Posts: 44
    edited January 2014

    Hi Ladies,

    Interesting how we are all feeling blue...wonder if it is the long month of January taking its toll.  I had my # 3 AC last Tuesday and still feel pretty crappy...heartburn is fierce.    don't feel like eating and drinking and am in a depressed fog.  Trying to shake it but......crying alot and just feeling really down.  People say...oh you look good......I want to scream..I am bald, my skin is like a snake, I have a itchy red rash and my color is gray....are you freakin kidding me! 

    My heart goes out to everyone who is  struggling both physically and mentally.  we work to put up a good front but sometimes it is all too much to bear.

    Re: the port...I had it put in and accessed the same day.   no real problems there.  I hate the feeeling of it under my skin but know it is a necessary part of this journey.  My nurse numbs it 30 min prior to infusion and I have no problems.  

    One more AC to go in another week and I will be done....moving on to 12 weeks of Taxol.  I pray it will be different/easier. 

    Charusa....I understand your anxiety...these drugs are powerful shit and we really don't know how we/our bodies  will react to it 

    Anyone using "compassion cookies etc"    to deal with the SE

    Love to all 

  • beths1
    beths1 Member Posts: 44
    edited January 2014

    lorreymom:  looking forward to hearing what you have been going through

    Hoping you are doing well.

    Missed you.

    Beths1

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited January 2014

    beths1 are compassion cookies the same as funky brownies?  

    a little herbal therapy does help the SEs and also a good pick me up esp with a funny movie

  • jackieak
    jackieak Member Posts: 169
    edited January 2014

    I'd take a special medicinal cookie or brownie right now!  I have had the metallic mouth the last two days, hard to swallow even saliva without having this taste...odd.

    Well I'm not glad my misery has company, but I am glad to know these moods and feelings are normal for what we are going through.  I stay positive and strong mostly for my family and friends, because I know if they see me worried and down it only upsets them more, so when I have my mini break downs I do it alone, which is fine as long as I get it out, because it does make me feel better to just yell and scream and cry about this crap that invaded my life.  

    This too will pass ladies, not soon enough for sure.  I'm relating this to labor pains, a pain you never forget, one hard to explain to someone who has never had it, but once it's gone you don't recall how painful it really was...breast cancer and all that comes with it will be the same someday.

  • beths1
    beths1 Member Posts: 44
    edited January 2014

    yup...that be them....friend offered thinking of trying it   anything at this point!

  • beths1
    beths1 Member Posts: 44
    edited January 2014

    Thanks for the perspective Jackieak

    I too, am trying to keep up the strong outward appearance for family and friends but lately I feel as if i am crumbling on the inside.

    Being house bound with the frigid temperatures doesn't  help either, nor does the lack of sleep that I am  experiencing 

    Thanks for letting me vent ladies....tomorrow  is a new day!

    Beths 1

  • Spoomsister
    Spoomsister Member Posts: 61
    edited January 2014

    Beths1, a friend of mine offered me a "compassion brownie", just one.  I kept it in the fridge for a few days, nervous to try it.  It was the best thing EVER.  Mood improved, nausea went away, felt completely normal for 2-3 hours.  I don't have any more, but I wouldn't mind if I did.  :) I might see if my friend could make a batch to keep on hand for the really bad days.

  • chicopeach57
    chicopeach57 Member Posts: 166
    edited January 2014

    I have some special cookies someone gave me, haven't felt like I have needed them yet.  I remember eating them in high school, wonder if I will feel like a kid again.  Hopefully they won't be doing any random drug tests at work, they should exempt me right???

    The heartburn and tiredness is getting to me.  Everything tastes the same, crappy.

  • Leealice
    Leealice Member Posts: 87
    edited January 2014

    My MO thinks the face rash is an allergic reaction from the taxatore. We will watch it this round and if it gets worse my have to lesson my dose or take it out. Everyone keeps telling me what nice color I have. Looks like a sunburn. hah

    Day 2 of 3rd chemo. Physically fine but very weepy this time and I don't even know why

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited January 2014

    I have had the red cheeks for about a week as well...I will be asking my MO about it before my next TX to see if I need to leave the taxotere out, too...which I really don't have a problem with!

    Leealice, I hope you feel better soon! Weepiness...I guess it's part of our SE's or situation!

    looking foward to my trip, leaving tomorrow! Whoo-hoo!

    ((HUGS))


     

  • Leealice
    Leealice Member Posts: 87
    edited January 2014

    Have a fun trip, Terri

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited January 2014

    Thanks! I was so worried about being able to go and now it's here and it's all coming together! I am feeling so blessed~


     

  • Brioche78
    Brioche78 Member Posts: 37
    edited January 2014

    hello, 

    Got my free wig from the cancer center the other day! I'm glad it fits well and I feel comfortable with it. I'm naturally a brunette but I wanted to try something different. 

    Wanted to share something positive with  you all. Just want to thank you for support.

    I don't post a lot. I'm not so good with words and its not my first language so sometime it might look weird the way it's phrased but I just want to tell you that these post keeps me going I appreciate it. 

    image

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited January 2014

    Brioch78

    Your wig looks great. Very natural looking.  I like the two I have better then my real hair. Never had so much body except with perms and a lot of styling time. 

    Barbara

  • RobinLK
    RobinLK Member Posts: 840
    edited January 2014

    awesome picture!!

  • beths1
    beths1 Member Posts: 44
    edited January 2014

    Brioche78:   You look beautiful as a blonde!

    You Rock that wig!

  • kjfromca
    kjfromca Member Posts: 283
    edited January 2014

    Keepthefaith - Have a great trip.

    Brioche - You look great.

    Kim

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