Winter 2013-2014 Rads

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited January 2014

    checkers, I am just 1 week ahead of you, all the eyelashes & brows fell out, but now are growing back. It is wonderful to have a little bit of eyebrow. 

    White/grey hair....mostly white, my hairdresser told me it might come in red ! It was mostly white/ grey before, I could not believe it could possibly come in with color. It didn't. See how long I will keep it. Not enough to color right now.

    24 radiation treatments down, 9 to go...Skin is not looking good, but I am getting the full dose, lots of cancer...skin on my back where the radiation comes out is kinda raw...

  • checkers
    checkers Member Posts: 95
    edited January 2014

    Peaches, I bought a wig that is very close to what my hair style was before chemo, though the color is a little redder than my "natural" color. Everybody loves it! In fact people thought I had just colored my hair! When they found out it was a wig they said I should go with that color if my hair came back white.  I'm lucky, I look much younger than my age and already I think the white ages me.  I look like my dad at age 80!

    8 of 30 rads today. Noticing some pink developing.

  • lesliecusana
    lesliecusana Member Posts: 97
    edited January 2014

    Well glad this is my last week of rads! My skin is really irritated! Red, rashy, and itchy! Started cortisone cream and aquafor in addition to the recovery cream given at my clinic! Was nice they gave me tubes of everything I needed! Putting away my bra for awhile and on to cotton tank top! Wishing you all the best!

  • peaches12
    peaches12 Member Posts: 67
    edited January 2014

    Good luck, Mimi.  The anticipation is worse than the treatment. I finished 16 today, 9 to go.   You'll do fine.  Just keep that cream on. 

    A good hair color has so much to do with your skin color. I am a true "winter"  person, best in black / white/grays.  My hair was black growing up, started going gray in my 20s and looked frosted for about 10 years and then I colored it brown.  I have skin that looks tan year round and very light eyes.  The brown hair did absolutely nothing for me.  I'm a "winter" and the silver hair makes me light up, not look old. Here I am after chemo and going through radiation and people tell me they have never seen me look so good!   Got to be the hair!  Fair skin I can see white hair making one look older.   I love my wig and still intend to wear it a lot after my hair grows in all the way; short just over the ears with bangs, very sleek.  In fact I can comb it with my hands. The hair I always wanted to have!!

  • msmaples516
    msmaples516 Member Posts: 54
    edited January 2014

    I have 6 more rad treatments. My breast and around is looking bad. Two blisters very sunburn looking I am using silverdene and aquaphore And lidacane can not wait to be done February 5th party time in new bern   Good luck!!!

  • rosie9037
    rosie9037 Member Posts: 12
    edited January 2014

    msmaples516--we will have something to celebrate together.  I too will be finished next week (on Feb 4) and can't wait.  Leaving on a trip the next day.

    I am grateful for the information this group gives.  I never would have thought of asking to see the picture of the field taken during the simulation.  I asked my techs today and they showed me and drew the field on my chest as well.  Really surprised at how large the area is, but since it goes up under the underarm, that explains the redness there.  On the other hand, it really catches the ribs and part of the lung, too.  Already have asthma.  Has anyone reported breathing problems from rads?

  • TeamKim
    TeamKim Member Posts: 568
    edited January 2014

    Rosie, Leslie and Msmaples -- hang in there -- almost done!  You can do it!  Lube the boob!!!  Pocket party when you are D O N E!!

    I too have lost a lot of my eyelashes and eyebrows -- but they aren't all gone -- eyeliner seems to help so that I don't look like an alien, lol.   My last chemo was 12/12, so I am about the same number of weeks done as those of you reporting lash and brow loss.  My hair on my head is coming in.... Fuzzy and soft, looks like the same dishwater blonde I had before.  I didn't have much gray -- just a few of those, I am lucky at 59 to have little gray.  During chemo I didn't shave my head, just had it buzzed to about a half inch.  A few of the gray hairs never fell out.  (Stubborn little critters!). I think once it grows out a little more I will get it highlighted to help the few gray ones blend in.  Nioxin conditioner & scalp treatment seems to be helping it sprout, along with the Biotin supplements.

    My #6 zap is in the books -- so far, so good....

  • Miminiemi
    Miminiemi Member Posts: 340
    edited January 2014

    Peaches, thanks for the good wishes.  I'm so ready to started.  Since all the gals here have saidbthevstart goes well I'm not afraid.  The end may be another thing.  But everyone seems to heal eventually.  It also seems like most people get some creams or lubes from the  doctor.  Guess I can ask about that Wednesday.  Hope everyone is warm on these very cold Midwest days.

  • Miminiemi
    Miminiemi Member Posts: 340
    edited January 2014

    What is a pocket party?

  • TeamKim
    TeamKim Member Posts: 568
    edited January 2014

    Pocket party-- (Noun) -- a virtual celebration in support of a friend on BCO; also can be a gathering of support ("in your pockets") for an upcoming challenge, surgery or treatment.  On especially celebratory occasions, the imaginary celebrations can include music, happy dancing, drinking, snacks (chocolate!), whatever floats our collective boats!  LOL!!

  • Miminiemi
    Miminiemi Member Posts: 340
    edited January 2014

    Thanks for explaining pocket party Teamkim.  I'm ready to celebrate a victory for anyone.  

  • LizzieK
    LizzieK Member Posts: 67
    edited January 2014

    I guess I will stay on this board even though I won't start till mid February.  I saw all my doc's on January 16th and got the scan and tattoos done the same day.  My Oncotype score came in at 17 so the MO said I didn't need chemo.  RO says I am the perfect candidate for the one week partial breast radiation they offer at Mass General.  I am a bit worried that getting it all in 4 and a half days (9 sessions) will lead to more side effects but I really need to get this done and over with so I can go back to earning a living.  I am a self employed consultant so if I don't work I don't earn.  This is my second cancer.  I had throat cancer almost three years ago and went through chemo-radiation.  I got the maximum amount of radiation with chemo at the same time.  I got very sick and it took me about 4 months to recover.  All the docs and nurses say this will be so much easier than what I went through before.  I start on February 18th and will get the last treatment on Feb 24th.  Since I live in Upstate NY the short treatment time will mean only one week away from home.  I am so ready to get this done and over with. 

  • bondsy
    bondsy Member Posts: 94
    edited January 2014

    I'll also be done with radiation next week on February 6th. I've heard that it takes about two weeks after radiation ends for all the SE's to go away, so I figure I have another month of this terrible rash and swelling. I'm now taking mega doses of ibuprofen for the swelling, and benedryl for the itching. As for the loss of eyebrows and lashes, uggghhh, it's like adding insult to injury!! 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    bondsy, I don't get the eyelash thing.Talk about a delayed reaction....my last chemo was Nov. 4th and I started losing my eyelashes a couple of weeks ago. I didn't lose any during chemo.

  • TeamKim
    TeamKim Member Posts: 568
    edited January 2014

    Bondsy -- adding you to the honorees list for the mega pocket party coming up!  So sorry the home stretch is full of obstacles -- you can do it, stay strong (and take your meds!). 

    Lizzie -- I have to say that the idea of getting it over quickly is alluring.  Hope the SEs are manageable for you.  Travel safely in this frigid weather.

  • 70charger
    70charger Member Posts: 963
    edited January 2014

    Everyone is talking about loobing the radiated area, don't forget to air it out.  Especially underneath. I found laying on my good side & letting my bc side hang in that direction helped to air out underneath where it was moist & rashy. Airing out helped me more than the lube.  I finished my rads Jan 3rd.

  • MrsDarcy
    MrsDarcy Member Posts: 162
    edited January 2014

    Good morning ladies.   To those that are almost done, hang in there - the end is right around the corner !!  

    As for SE's, I am at 4 days post rads.  Swelling has gone down a lot and I would have to say the most annoying things are the itchy skitchy nipple and the itchies under the breast.    So far I am healing well and so glad to be done.  :)

    I do notice more " wear and tear " on my right breast.  I guess because I sleep on that side and I think it secretly misses the support of a good bra (as opposed to a sports bra or nothing at all).  I will be greatful to find my "normal" again.  Lol

    Keep up the rad fight my pretties !!!!!     ((((Hugs))))

  • peaches12
    peaches12 Member Posts: 67
    edited January 2014

    Mimi- my RO didn't give me any creams, but the nurse went over a 2 page list of instructions for skin care with a list of various creams.  I did a lot of research online and on this site about each of them before deciding what seemed to work the best for others.  The really important thing is to keep the area lubed at all times, 3-5 times a day.  My daily rad is at 11:30 so I put nothing on in the morning before the treatment (4 hour rule), but then faithfully cream 5 times a day beginning in the dressing room about a minute after the treatment.  It's worked for me.  16 rads and no skin irritation or burning at all.  No matter what happens these last 9 days I know I'll get through it and you will, too!  (Of course if I do have a problem the last week RO will prescribe or give me something stronger for healing.) 

  • Miminiemi
    Miminiemi Member Posts: 340
    edited January 2014

    Ladies.  On the Rachel Ray show today they showed Wick Em bra liners.  These liners have a part that goes below the breasts to absorb moisture and keep the breast from rubbing the fold over. I've often treated fungal issues in summer.  Kohl's.com has a model for sensitive for women with allergies or recovering from breast surgery.  This sweaty area is what I'm most afraid for as I begin rads tomorrow.  I'll let you know how or if it works for me.  But you can check it out online if you are interested.

  • checkers
    checkers Member Posts: 95
    edited January 2014

    Mimi, Definitely let us know how the Wick Em works because the reviews I've read are middle of the road.  I think I'll try wearing a fitted cotton tank under my bra until such time that the bra is too uncomfortable to wear. I also have a lot of cotton fabric in my quilting stash that I can use for a liner as well.

    70s Charger, I found laying on my side after I've lubed works well too.

    Junipergirl, Glad to here things are starting to return to normal. Something I look forward to!

    TeamKim, SlowDeepBreaths, Holeinone, etc, Good to know I'm not the only one who's losing eyebrows and eyelashes 6-8 weeks after chemo ended.  I thought I had yet another "not typical" experience.

  • SallyS70
    SallyS70 Member Posts: 947
    edited January 2014

    Hi all,

    After three weeks I noticed that the area under my breast was very red and felt irritated.  I have been very careful to glob on the Aquaphor there since I noticed the tender area.  I will show it to the doctor tomorrow during my weekly check.  I am thinking that the area got moist.  

  • jpteacher1
    jpteacher1 Member Posts: 52
    edited January 2014

    Started my radiation yesterday.  Being in the prone position isn't as bad as I thought it might be.  I am wearing a wrist brace to prevent my hand from falling asleep.  I have severe arthritis in my shoulders, neck and hands, so the brace helps while I'm getting the radiation.  My team has been extremely kind and helpful.  I was surprised at the number of ladies going through radiation treatment.  This makes me very aware of how much breast cancer is being detected these days.  Scary!!

  • desalonde
    desalonde Member Posts: 41
    edited January 2014

    Rosie 9037,

    I thought I had already asked lots of questions before starting rads but seems I did not ask enough and my RadOnc did not volunteer much.

    After I started, I noticed the marks on my body included areas that my RO told me would not be irradiated specifically axilla, arm, non breast underlying areas. But after asking and being shown the field diagram.... the ribs and chest above, below and to middle and side( underarm and arm muscle) are all irradiated with also some "scatter" to all other body parts ( that's why the techs must leave the room not just leave the side of the table.

    Keep asking questions and expect answers.

    Desalonde

  • Gubbyann
    Gubbyann Member Posts: 34
    edited January 2014

    Hi all...just finished my 19th rad today...Have 14 to go....Breast a bit red, not really sore, maybe a bit sensitive...Also skin is dry...Using my Udderly Smooth Cream which works really well.

    Remember some of us were talking about how we should be breathing when we get rad, one of us said that she heard that if you have big boobs they can get in the way of rads...Talked to my RO yesterday...Said as far as breathing goes, just breath normally...No deep breaths, or holding breaths...As far as having big boobs in the way of rads, he had no answer to that....Even got to look at my field pics...My rad goes no where near the heart, thank God, and only a very small part of lung, which of course will scar....There is no way to avoid the lung...It all depends upon where the cancer is located in the breast....

    I also see some of you talking about creams to use and such, also talking about being moist under the breast...A good solution to that is corn starch...Don't use baby powder, it clumps to much...Corn starch won't...Hope that helps someone, although I think most of us know about using corn starch...Hope all of you are doing well...Take care, and bless you all

  • rosecal954
    rosecal954 Member Posts: 79
    edited January 2014

    Desalonde,

    I saw your post about "scatter" and had to comment.  I too had felt I had scatter on other parts of my body.  I felt little burns on the sides of my face, on my eyelids, back of my neck, on my right arm. They would stay for a day or two then move to another area.  Asked my RO about it, was shown the CT fields and she said it's not caused by the radiation since it's specifically targeted, said it's either hormonal or immune disease like lupus, etc.  She referred me to my primary doctor and he said he has seen many patients with the same thing and it would go away in a short time.  I've finished radiation last week, 30 treatments and still have a red spot on my hand and am sensitive to hot water.  Also during that time if I went out in the sun those area would burn.  Primary Dr. ran some blood tests to rule out a few things.  All that showed up was I was dehydrated and a slightly low WBC of 3.4 which he considered normal.  I thought interesting the differing opinions. Perhaps some of us are more sensitive and it's good to keep asking questions.  I hope you do well.

  • positivenegative
    positivenegative Member Posts: 106
    edited January 2014

    hello fellow radiants.  just finished zap #2.  they had to add another 2 fields..up to 10 now.  not too bad.  i'm using My Girls cream with calendula.  less expensive than Miaderma.  wearing lymphadema sleeve and glove during rad tx and during day.  sending good  vibes to all.

  • Lilyluv
    Lilyluv Member Posts: 160
    edited January 2014

    Hi There, I'm new here...I posted on the 2012 rads thread by accident and then found this one.   I had my simulation last week and  dry run/short simulation is this Friday.  Then the real deal starts on Monday the 3rd.   I'm getting over a bad rash from (they think) steri strips from surgery, so my breast isn't quite 100% yet, but almost.  It's still a little pink and has just a little swelling yet.  It started about 1.5 weeks after surgery and kept spreading and was pretty miserable, so I'm just hoping that radiation doesn't start up any itching again.   I've had enough itching to last a lifetime at this point!     So a new adventure is about to begin.  It will be 20 sessions with a boost, so hopefully it will go without a hitch.  Until I found the bc discussion board, I never knew anyone who had radiation so it's been real helpful reading everybody's experiences with it!

    I don't know what kind of material they make that cast with, but it felt like there were rocks in there.  Anybody know what that stuff is and is the real mold more comfortable?

  • RedReading
    RedReading Member Posts: 2,143
    edited January 2014

    Hi, I'm new here but I know TeamKim from another thread. I just got the news today, oncotype 28, so no chemo just rads and tamoxifen. Chemo only decreased the chance of recurrence by 2.5% so I'm good with that.

    I started tamoxifen tonight and start rads in 2-3 wks. I have read a few pages of this thread and I am confused. My RO said under no circumstances was I to use any creams, lotions or oils during the process, not even aloe! You all seem to use something, so I don't get it.

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited January 2014

    Hi Red,

    No lotions, creams, ointments on the girls 4 hours before/prior to each zap. After each radiation tx is ok to apply your cream of choice.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2014

    So do you have to shower or wipe everything off before going to radiation?  Or do you assume what was on there before the 4 hour cut-off has soaked in?

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