Has anyone gone through radiation on their own?
I moved to Los Angeles to be closer to family. That worked for both chemo and surgery, but the radiation facility is located pretty far from where I am living. With the daily treatment nature of radiation, I will be subletting a room in an apartment closer to the facility. This means that I will basically be on my own during this time and not knowing how my body will react to the treatment (eg. side effects), I'm wondering if I will be able to handle everything on my own (eg. driving to and from my appointments - depending on traffic will be a 20-45 minute drive one-way, cooking meals, etc) for 6.5 weeks.
I am wondering if anyone has gone through radiation on their own and how that was - was it doable or was it very difficult? Is there anything that can be done prior to starting radiation that could make it easier (eg. buying lots of frozen dinners or something)? How was the fatigue?
There is a possibility that someone might be able to come stay with me, but I'm wondering how necessary/helpful that would be because it would make my housing situation more complicated. They would basically stay with me the entire time (6.5 weeks) in the room that I am subletting. For those who have already been through this, would having someone around be significantly more preferable or can I do this on my own? I think people who are on their own typically rely on their friends for help from time to time, but since I'm new to the area, I won't really have people that I could call.
If you have any insight on going through radiation solo, I'd love to hear from you. Thanks!
Comments
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I pretty much did RADS alone. I drove 2 hours each way on some days but syatyed in a hotel for some time each week. It was very doable and sometimes I even enjoyed my time alone. I found walking trails where I stayed and kept up my exercise.
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How did you do on chemo? The fatigue from chemo should be improving. I felt better and better going through rads. I had a 40 minute drive daily and did fine. Usually people who have had chemo before rads see an improvement in generally feeling better, more energy etc. Your concern is likely to be how will your skin hold up. Unfortunately there is no way to know until it happens. But I am reasonable confident that you will be able to manage on your own, thoug of course some company every now and then would probably be appreciated.
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i did rads for five weeks, 80 minute drive each way every day (you get weekends off so can relax then) driving myself, and i found tiredness was worse after i finished hope this helps, see if you can build in some nice times and a daily walk as that helps
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flyjune, the American Cancer Society has a Road to Recovery program to connect volunteer drivers with those who need transportation to treatment appointments. Their site is searchable by zip code. As others have said, you may be just fine driving yourself, but if there are times you'd benefit from someone else driving, it could be worth checking.
• The Mods
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Flyjune, I did get rides from the cancer society so that was great--nice people, but they'd drop me off nd I was alone till the next day, I lived alone and I actually preferred chemo alone and pretty much everythin, and I'm a baby--but I figured when I really need help I'll ask and my kids just tired me out so I didn't ask much. And that's a good idea to stock up on things th will stay good nd u might be surprised u might not feel to bad.
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Hi flyjune! Congratulations on getting to this point in your treatment. I was not alone during radiation, but I would have done just fine. I started radiation about 1 month after chemo so I was definitely feeling stronger. I had my treatment every morning and worked every day...I was even able to take a weekend trip for my grandson's first birthday. My best advice is to drink a lot of water, eat healthy, exercise every day and follow your radiologists instructions about skin care. You will probably need more sleep too, especially as you near the end of treatment. Make sure that you ask for help while you are in treatment, if you need it. My husband was with me all through treatment and has been a great source of comfort.
Wishing you well, MsP
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I went through rads on my own. It was easy apart from the emotional stress of having to travel that path every day and dealing with residual hair loss. The actual treatment is very easy to tolerate.
Good luck to you!
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Hi Racy,
I live far from all family so I actually went through biopsy, surgery and now in rads. all alone. I am fortunate that a woman I know from rowing group volunteered to take me to surgery or else I would have needed to ask a church volunteer or cab and it was very early in morning so that was great of her. She also had dx BC 2 yrs ago so she knew what I was going through. Now she is back to her life and work and family though.
It's lonely going through this and scary but even if family were physically with me, I'd still be worried about the radiation and this condition.
I am on rads #16 today.... out of 25-28 whole breast then need to have add'l boost treatments. I am unsure whether I want to allow full 28 because I got another doc tell me 25 was enough if I have boost also and my Rad Onc doc is not very nice or heloful. He resents my questions I think.
But so far, I have had some fatigue that is manageable so I still work fulltime from home and take care of myself and I made myself start hiking again past 2 weekends which helps my mood. My skin sometimes burns or is achey and a little pink and itchy. But its not over yet....
Wish you the best.
Desalonde
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I went through the first two weeks of radiation alone, as well as being alone at home after my surgery, throughout chemo etc. I drove myself an hour each way for my last couple of chemos, and drove the same distance daily while doing my initial radiation treatments. Personally for me, radiation was a walk in the park compared to chemo, but everyone is different. My fatigue wasn't too bad, and I didn't burn until my second to last treatment. I had four weeks.
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I did rads on my own. I had offers of help, but no need for it. DIdn't have a long drive (15-20 minutes), but I always felt fine during the day - just got tired earlier in the evening than usual. No skin problems at all - just some swelling. I did 6 weeks total.
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desalonde, I can't remember how many rads I had but it may have been 25. It sounds like you should stay with your current rad onc for the duration, since you don't have long to completion, unless you know another rad onc who can advise you.
It sounds like you are doing really well (in the circumstanes
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I did RADS on my own & took care of my dad who had terminal cancer at the time (he died about a week after my RADS ended). It was had but that was mostly because I was up during the night a lot & trying to manage having someone there for him while I was gone each day.
I think just about everybody would tell you that RADS is very easily doable on your own. The one thing is that I would make sure to have some things scheduled to do - maybe a yoga class, or something that gets you out of an apartment where you don't know anybody. As far as frozen meals? They are probably not the best healthwise - so while you might want to have a few around just in case, you could also consider using the time to emphasize a diet with lots of veggies and fruits & liquids. That will also help with the fatigue. -
Since I had bilateral BC & ended up having bilateral RADs, I feared "fatigue" since I was getting twice as much RADs as most. It never happened. I stopped on my way home & went for a run each day after RADS. My skin did get red & uncomfortable but having someone around doesn't help that. I cooked dinner for myself & family when I got home. I just wanted my life back. If you can drive , try it. The more you can do for yourself might actually make you feel better. Congrats on making it this far!
On another note. There was a women about my age who had treatments right before me. She was brought in by a friend each day. This women had a very difficult time with chemo & wasn't able to drive herself. Her friend was very concerned.
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After going through chemo, rads was a total walk in the park. I had no skin issues or fatigue. Just finished two days ago and feel great. I went on my own with no trouble - 30 to 40 min drive each way. not everyone has a hard time with it. You've just got to feel it out as you go.
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Thanks so much for all of your responses! It's really eased my mind and helped me prepare for the experience. Thanks!!
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flyjune I think you sound like you have prepared for this and are ready to tackle it. I am glad so many people posted how they managed easily so you see it can be done. I have seen some other posters talk a lot about fatigue and skin issues that really had them down for the count so if your experience is a bit more challenging don't feel there is something "wrong".
One benefit to being alone- you can eat and sleep when you want to and you don't have to be "up" or positive when your body does not feel like it. Radiation seems to be more of a head game then a body game for many. The fatigue if it comes seems to come more to the end.
I think its great you are planning for meals- you may not feel like cooking ( I sure didn't at all but was hungry at least). Living where you are I am sure there are grocery stores that deliver as well as all sorts of take-out to be delivered and a lot of options for that can be healthy. My office has a service in the area that delivers pre-cooked meals- some are vegan, organic chicken etc. very reasonably priced- maybe they have some of that where you will be. If all else fails- hit the cafeteria at the hospital where you will be having treatment- there should be a salad bar for sure and most serve 3 meals a day with a lot of variety.
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