DIEP 2013
Comments
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Deb - Ha! So refreshing to hear that you're 'just too lazy'. I totally relate.
It took me a while to get on the massage band wagon, but was I did I was hooked. It makes my body feel like it's whole again, and helped me find peace with all the weird shapes an incisions. There was a time where I didn't even want to see what I look like, and now I'm rubbing myself whenever I get a private moment. It also helps that I love the smell of Bio Oil. I may be alone in that, but I look forward to putting it on. I'm slipping up on my LE exercises though. A bit lazy. A bit resentful. And I just don't feel like it. Even though I know it's wrong. Good luck on tomorrow's appointment.
Christina - Fabulous news about the nipple! So glad it turned out well
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Thank you Christina- yes, that is absolutely right, two steps forward and one step back. A couple weeks ago my PS said to me, nothing about your recovery is consistent with the norm. Lucky me.
Sbelizabeth - I had so much drainage it looked like something had burst (it appears it did come from the incision). Since yesterday, I've had more but not as much. It is light red/orange and watery. It isn't thick and yellow. What does that mean? Why is this happening 1.5 months after the emergency surgery and 3 weeks after my cellulitis went away?
I'm really trying to stay positive but it is difficult. I keep thinking i am doing something wrong.
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Janet, I don't think you are weird at all. I love the smell of bio oil. I think most people that use it do. I was so pleasantly surprised by the nice smell that I was determined to use it weather it worked, or not on the scars. It's moisturizing properties are so nice I knew I would always find somewhere on my body to use it. It sure helps keep my feet from getting the ugly winter roughness I hate
Zoemom, I remember a very similar thing happening to somebody else on this forum, but I can't remember who. The fact that fluid is the same color that would be in a drain, if you still had them in, makes me think they might have taken out your drains too soon, and that you had a seroma that burst open. But, of course you must call your PS.
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Zoemom, after the PS removed my enormous radiation scar on my back, the incision "leaked" that orangish-red drainage for a while. It was like there was a small seroma that had a little channel to the incisional opening, and just dribbled out. It could be that whatever "popped" and drained was a pocket of drainage, just like goldie described. I don't know that it necessarily means your drains were taken out too soon--I had a huge seroma after my mx and my BS had left the drain in a long time--it just works that way sometimes.
I love the smell of Bio-oil. And Bobby Brown makes a skin cleansing oil whose smell I love, too--I probably wouldn't spend the $$ if I didn't like the smell so much!
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Zoemom... Have you continued compression? The compression will prevent new seromas from forming, and help seromas that exist to dissipate. So sorry you are having such problems.
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Hope everybody is good today. I have spent the afternoon visiting my bf mom in the rehab hospital. She is 86 and had her right lower lobe of her lung removed because of cancer. It's a miracle, they caught it early and she is cured. Never smoked a day in her life. I am pledging a oath. I will never be a whining complaining needy old lady!!! I really hope I never turn into that. She about sent me over the edge after a couple of hours. Nothing tastes good. Nobody is nice to her. It's to cold. The bed is too hard. The TV is too small. She feels awful. I don't know why I have to breath in that thing every hour. OMG!!!!!! I am glad I was able to give my bf an afternoon off from sitting there with her, and she needed it, but I never heard whining like that in my life. And, you can tell the staff there is ready to be rid of her. They have her discharge date in big number on the dry erase board. It cracked me up.
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I am watching the Emmy Red Carpet, and Guiliana Rancic is one of the hosts. Most of you will know that she had breast cancer a couple of years ago, and had a very public reconstruction done. Tonight she is finally showing those babies off. She never has before. She looks great. Good for her!!! She believes the IVF she tried numerous times caused her BC. She might be right. Her docs believe it too. They wouldn't let her try again until she had a mammo, and that is how they found her BC
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Goldie, Sbelizabeth, Betsy -- thanks for your input. I do keep my ab binder on at all times. What concerns me is that I still have pain and dark red area above the incision that won't go away. Can I get an open incision that is still draining wet? Do I need to keep it dry and covered at all times?
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Thanks sweetpickle...the ice is helping alot.
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Zoemom.....I just popped on the board.....take a pic with your phone and send it to PS........I had the same thing happen, and then my incision opened back up......you may be too far in the game for that to happen, but PS needs to know what is up......good luck....hope it is nothing, and you can go back to just healing up!
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Zoemom... I think you are right to be concerned. You have had repeated issues, maybe not all the same problems, but problem after problem. What does the doctor say? Perhaps you should be going to a wound center for treatment. Let them care for your wounds, as long as its all on the surface. If you think there is something internal going on, you need to express this concern to your doctor.
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Lahela- after my surgery in June, I had a really hard recovery and really bad abdominal pain just in inch to the side of my belly button. I did NOT have a true DIEP and was worried that it was where he had taken the tiny sliver of muscle from, and that it was a hernia. CT scan showed nothing but I just had my revision in December, and it turns out that I had a small growth at the side, completely harmless, caused by trauma to the area. I was so glad it wasn't a hernia!
Kelly- Hey girl
my abdominal revision was smooth sailing compared to the original surgery. However, you haven't had much time to heal- so I imagine it will just slow things down a bit for you but shouldn't be bad.
I had my followup with the PS last week. It went really well. My lifted side is FINALLY starting to feel better. My reconstructed side is still a bit larger than the other side so it will need some tweaking, and my reconstructed nipple is already much flatter than I would like. At some later date my PS is going to do a revision- all in office- which will include some lipo and redoing the nipple- he has a few tricks to help with projection.
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Ah, Movie...it was you it happened to. I couldn't remember who it was. Zoemom, no worries, Movie as gorgeous boobies now. Just make sure you contact your PS.
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How much time should I plan being off work after Stage 2? I am assuming it depends on the amount of revision. Would love to hear your experiences so I can plan. I am supposed to start a new position when I return, but I'm not really sure when that will be.
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Damiana!!!! Hey!!!! Good to hear from you. I know you are busy with school and life. glad to hear you healed well from stage 2. It looks like you will only need one more tweaking episode. Can you hang on till summer? I can't wait to hear what tricks yours surgeon has for projection.
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goldie-Yea, I will probably wait until classes are over- though, maybe spring break- I won't be under anesthesia for any of it, so recovery should be easier (though I am thinking I will be highly traumatized by going through lipo and whatever else in the office!)
Zenful- my flap was opened all the way back up, my abdominal incision opened all the way, and a lift- the lift was really the only difficult part. I was driving less than a week later. Time off work depends on your job. If you just sit around, you might be okay going back a week or 10 days later.
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Oh, Bailey! It must feel like this rodeo (thanks, Sbel) will never end. I am sorry. As for your boss, aaaaaaaarrrrrrrrgggggghhhhh! It's frustrating. I like the new pic! You look as spunky as you sound.
Zoemom and Lahela, an aaarrrggghhh for you two, also. I am praying for healing for you, darn it.
Christina, I was so glad to read about your nipple experience! I am having my nipples done in the procedure room, not an OR. I am nervous about the blood and cutting, etc., too. I had a skin cancer removed from my chest several years ago in a procedure room and I was fine. It was deep-ish, leaving a "good" scar. Pre-bc, though. I was more naive then. I will just put my big girl pants on as usual and think of the positives---the finish line, for one! After all, we have already been through so much.
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Damiana, if he is not going to use the fat he lipo's to do fat grafting he might use the less aggressive lipo machine. It's the kind that just melts that fat instead of sucking it out, and it's not as painful, so I hear. It's called Smart Lipo, I believe. I asked my PS about it, and he felt he had more control with the regular old fashion lipo, but I know of other's that love the smart lipo. I have a friend who had her double chin done with the smart lipo and it looks so awesome.
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damiana, I'm so glad there is no hernia. And glad your follow up went well. That's great your PS can do the revisions right in the office, much less stressful than in the hospital.
Jeannie, yes we have been through a lot! The nipple procedure was cake. My PS talked the entire time! I had told her I don't handle blood and whatnot well, so I suspect she was trying hard to distract me. It worked! lol
goldie, OMG "aggressive lipo machine." *faint* lol
Sort of makes me think of the sucking machine in The Princess Bride, that sucks Wesley's life away. lol -
Zoemom, I'd be pushing for a consult if I were you. Hope it's all okay!
Damiana, thanks for sharing that - it's always helpful to find out as many possibilities as I can so I can make sure the PS on call has all the bases covered. It hurts a little less because I'm coughing less, so I'll see how it goes for another day - I really don't want to go in there unnecessarily. You're sounding great - so close to the finish line! And you're an inspiration, studying through all this.
My PS is convinced I'm a total wimp. She's doing my crop circles revision under local because it's just stripping a circle of skin and closing it up (I'm planning on keeping my eyes closed and cranking up the iPod)... but I insisted on a general for the nips because she's doing grafts from my upper thighs and I just don't want to be awake for that!
Christina, I had the same image! LOL! -
krissy- so glad the ice ishelping, its helping me too. Im off pain meds and just taking advil now.
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Christina, I said "less aggressive" lipo machine. Personally, I wish I never watched lipo being done on those TV shows. I would definitely be better off emotionally about the procedure.
Lahela, glad your cough is getting better, and tummy is feeling better. You are getting closer to the finish line. Ask them if you can take an Ativan or something equally relaxing before you go in for your "awake" procedures.
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I was diagnosed in October of last year. I went the route of chemo first. I just finished my last treatment about a week ago. That was a whirl wind and seemed to go really fast (thankfully). Now I need to make a decision about surgery. I really want to do a DIEP flap but am petrified. I do have some circulation issues. I have had blood clots in the past (but am negative for all the blood clotting disorders) and that is a long surgery to lay there for, let alone post op. Just wondering if anyone from Oregon or near by would recommend their PS or be willing to share their experience with me? There aren't many PSs that do the procedure here.
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Damiana, I am expecting my Stage 2 to be similar to yours. I was planning on two weeks off, so it sounds about right. Thanks for your thoughts.
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My ps said 2-3 weeks for my stage II and I was off for 3. I had a drain and seroma issues, though. I had all 46" of scar reopened and closed, removal of fat necrosis and scar tissue, lipo and fat grafting.
Welcome, Niknak. You are in the right place for flap questions, answers and information. You may want to read the 2013 thread for info, but please know there is a diep 2014 thread going, too, for women having surgery in 2014. Many of the 2013 (and earlier) women read and post in the 2014 thread so there is a representation of experience there, too! Throw your questions out there, somebody will answer!
I can't help you with your surgeon question...I am from MI. And I don't know about your clotting issues, either
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Zenful... As you know I had DIEP and GAP and so my stage II revisions have covered all parts of my body. The first stage II I had all incisions revised,lipo, butt lift etc etc, and was back at work two weeks later.
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Welcome, niknak11, I was also diagnosed in October. One year before you, in 2012. Movie is from Portland, OR. She had her surgery in Portland and really likes her ps. I am sure she will jump in to tell you more. bailey is right, many ladies having surgery this year are on the 2014 thread. Tons of information here, happy reading.
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Niknak......I sent you a PM.......Tammy is right......on all counts. LOVE my surgical team!
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Welcome Niknak. I had surgery three weeks after I finished chemo and it was just too soon for me. My body wasn't able to recover well and I wasn't strong enough for the 12 hour surgery I had. In hindsight I wish I had done the dmx first and reconstruction later.
As far as clotting, I was given blood thinners while in the hospital and then sent home with an aspirin regiment for two weeks after.
Has anyone had bandages covered in Tegaderm? This is a first for me and my discharge instructions say I can remove the bandages after 2 days, but these suckers are hermetically sealed!
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Lol me and tegaderm go way, way back, Blue.....get a corner started and it'll give in fairly quickly.....as far as getting that corner started, that's a different story.
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