Starting Chemo in December 2013

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  • J4DC
    J4DC Member Posts: 80
    edited January 2014

    Sending a lot of positive vibes to all your ladies just had treatment. Another one under your belt! Wish you all had minimum SEs this time. I am looking forward to and dreading for AC#4 next Thursday. Now I am on the honeymoon period and feel almost normal. Just try to enjoy it.

    Goldie: thank you so much for sharing your experience with taxol and I am glad you found it easier. 

    RHGSR: I asked the exact question to my doctor last week. I had lumpectamy and lymph node removal on my right two months ago and have port on my left. I always sleep on my side and was afraid of lymphdema. She said it should be ok. Just watch out not carrying heavy stuffs with my right hand and watch out for infection on your right arm too. Because these could increase the lymph production and may overwhelm the system. I also don't think breast feeding will affect baby because cancer is not contagious. But it's a good question to ask your doctor. 

    I also feel very hot all the time and sweat more than usual in the night. My finger tips are very dry even though I try to put as much lotions as I can. Any solutions? Have a good night, everybody! 

  • Goldie8469
    Goldie8469 Member Posts: 90
    edited January 2014

    I had to take 5 steroid pills the night before and 5 that morning. Since I did well, I will take 2 the night before and 2 athat morning. A had a lot of benedril as well as steroid in my Iv. My hands are I little red . I didn't ice them. My doc said I can't control the finger nail issue, it will happen or it won't. I am tired but I have not needed any anti nausea meds and I was taking a lot plus a patch with the ac. I am sleepy but not in pain and no headaches. A huge difference. I don't feel foggy like I felt with ac.

  • Amazonwarrior
    Amazonwarrior Member Posts: 485
    edited January 2014

    jodi: If you are starting with Adriamycin, then you will need your port, as this drug is cardio toxic and if it by any chance leaked out of your veins during the infusion it can cause necrosis (surrounding tissue to die). I have my port which I hate, but I put up with it because I don't want to suffer the damage. I even developed an allergic reaction to a skin prep swab called ChloraPrep that my picc line nurse used on me. My skin started to blister, became terribly itchy and pinchy. At the time I was so fed up with the picc that I was ready to tear it out myself. I even asked the chemo nurses if they could remove it after my 3rd and last treatment with Epirubicin (similar to Adriamycin with its harsh effect on the veins). They all talked me into keeping my picc line, because they said that even Taxotere which I have another 3 treatments to go is quite harmful. So I decided to put up with it for a little longer than I originally thought, because I would like to preserve my veins for a later use, if possible. Now, since they stopped using the above skin prep and use only sterile saline to wash the site, the allergy has calm down significantly and I can cope with the picc.

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited January 2014

    Thanks Amazonwarrior!!!  Sucks the doctor didn't tell me this!   I have had 6 chemo treatments that could have been a port:(. Oh well!  I'll definitely figure out this stuff before next Thursday when I go back;).  Thank you!!!!

  • jackieak
    jackieak Member Posts: 169
    edited January 2014

    Goldie, glad you are going to get the PT and sleeve, it will help.

    I think last round has caught up with me...yuck all day today.  Nausea, weakness, headache, and last night the heart racing really made me nervouse...15 minutes of deep breathing helped.

    It may be 8 glasses of water vs the 10 I've done before, who knows.  No big C but the big D.  Normally I feel good the day after, but it got me this time, hoping tomorrow is better and this is the bad day...ughhhh I hope everyone is coping, and yes the dryness is horrible.

  • J4DC
    J4DC Member Posts: 80
    edited January 2014

    Jackie, many hugs to you and I hope you feel better tomorrow. 

  • Leealice
    Leealice Member Posts: 87
    edited January 2014

    Jodi- I love my port. It bothered me the first two weeks but now I don't notice it and forget that I have it. It makes infusions and blood draws so much easier!

    Jackie-I hope you feel better 

  • kimie06
    kimie06 Member Posts: 215
    edited January 2014

    Hey gals, here I am 5 days out from last treatment,  low energy, and my taste buds have taken a hike, which drives me nuts, they tend to return about day 7, so for now I just eat to eat.  I just started taking neulasta with this round, they switched me, so far seems ok, no SE's.

    I went from having no periods to a bit of spotting, anyone else? 

  • kjfromca
    kjfromca Member Posts: 283
    edited January 2014

    Hello ladies,

    Jackieak - I hope you feel better soon.  

    Kimie - I spotted last month when I normally would have had a period, lasted for about 5 days, really light. 

    Goldie - What other issues have you had with the steroid pills other than lack of sleep?  Wondering how many they will give me next week.  I only had it in my IVs with the AC.

    Jodi - My MO didn't recommend a port for me at first, but the infusion nurse insisted.  I went through one AC using my vein, it stressed me out.  I don't mind my port and agree with Leealice re blood draws and chemo are easier, also a bit faster.   

    Kim

  • Brioche78
    Brioche78 Member Posts: 37
    edited January 2014

    hello ladies,

    Anybody doing chemo without port or central line and if yes is taxotere easier on the veins then AC.

    Thank you

  • QuirkyGirl
    QuirkyGirl Member Posts: 383
    edited January 2014

    brioche I'm doing TC chemo just with ivs.  So far, so good!

  • Brioche78
    Brioche78 Member Posts: 37
    edited January 2014

    thank you QuirkyGirl!

  • Mikesgirl17
    Mikesgirl17 Member Posts: 260
    edited January 2014

    Hi ladies.  Kimie, I had just stopped having "That time of the month," and my usual 5 days lasted 2 weeks.  I thought it would never stop. And it wasn't light. 












  • Jodi040812
    Jodi040812 Member Posts: 383
    edited January 2014

    kimie-

     I spot immediately after a taxol treatment every time!  It goes away in a few hours, but every week I bleed a bit after chemo.  No clue why:). 

  • Amazonwarrior
    Amazonwarrior Member Posts: 485
    edited January 2014

    Just woke up from my 2 hour nap. I usually don't nap like this, so this is definitely caused by the chemo. It sure knocked me off my feet today!!!

    I experienced chemo brain today, when my hubby took me to this tea specialty shop. He knows how much I love tea.

    I started to select different teas and before I knew it I had 2 bags full of these wonderfully aromatic exotic teas like wild orange blossom and ginger coconut worth $184!!! Even at the cash register I didn't quite register how much I was willing to pay for the tea. It must have been my chemo brain shopping not me because normally I would not even consider such a purchase. Well, the tea smells great so I plan to use it for some aroma therapy, as well.

    If I can't blame my zombified chemo brain for this, I can blame at least my hubby who took me to the shop! He shouldn't have brought me there!!!Loopy

  • Kuchenhexe
    Kuchenhexe Member Posts: 21
    edited January 2014

    I started Chemo on Dec 10th, dose-dense Taxol. I'm handling it very well - infusion for the Taxol itself takes only 30 minutes now. I hit a rough patch with the second infusion when they gave me 25mg of Benadryl in pill form beforehand, instead of the IV form I got for the first infusion. The oncologist ordered my treatment to include IV Benadryl instead of the pill, and it's gone smoothly ever since. I usually end up napping during the actual infusion because the Benadryl knocks me out.

    I use a power port installed on my right side. I love it, especially since it's hard as hell to get a working IV in me some days.

    My infusion days are Tuesday, I just finished the second round (six infusions, no infusion this week, just lab) and it's always about Thursday afternoon that I start feeling like utter crap and an exhausted, giant, walking bruise. No nausea whatsoever, but oh so very tired until sometime Saturday. I'm usually good to go for Saturdays as long as I don't do anything but huddle in my chair and sleep all day on Fridays.

  • kjfromca
    kjfromca Member Posts: 283
    edited January 2014

    Kuchenhexe - Welcome, I start Taxol next week and am reading that it should be much easier on my stomach.  I am looking forward to that, as I had my last AC tx last Thurs. and my stomach still isn't feeling all that great.  Are you getting a Nuelasta shot the day after your Taxol?  That wipes me out for a couple of days. 

    Amazonwarrior1 - I hope that tea tastes great.  I had no idea that tea could be so expensive, are you sure there isn't pot in it?  Just kidding.

    Kim

  • jackieak
    jackieak Member Posts: 169
    edited January 2014

    my stomach has been a mess this time, just feels full and yucky but I am hungry and eating small meals....have some body aches this time I didn't have before, all I can say is I'm soooo glad I'm done with the AC and I'm looking forward to just feeling normal soon...as normal as we get with this poison.

    Trying to stay positive, plan on a nice walk tomorrow no matter how I feel, and finish my bedroom decorating and get some office work done...no more of this laying around feeling like a fog headed chemo brain person who got hit by a Mack truck...enough already!

  • kimie06
    kimie06 Member Posts: 215
    edited January 2014

    whooopps I said I just started neulasta that was wrong, they stopped that and put me on neupogen...(spelling) so far so good, actually feel a bit of a head cold coming on today, good times....ugghhhh...

  • RHGSR
    RHGSR Member Posts: 774
    edited January 2014

    2nd AC on Thursday and Neulasta on Friday. Feel like severe car sick or morning sickness. No vomiting.  Just that nauseated foggy tired feeling. I've been so good at staying positive. But I don't feel like I'm living right now. Just feel like I'm only just getting by. Hoping for this to be over already. It's really getting me down. I never thought in a million years this is where I'd be at 37. Talked to my MO about survival rates this week wasn't great either. He said with treatment (this didn't count on rads) that I still had a 23% chance if reoccurrence.... Sorry just feeling down today. 

  • Carol99
    Carol99 Member Posts: 116
    edited January 2014

    I'm sorry rhgsr, it's awful I know.  My 3rd AC is tomorrow, I'm dreading it!  I hope you get some comfort soon.

    My latest annoyance is my constant watery eyes & dry dry skin!

  • DJJ
    DJJ Member Posts: 229
    edited January 2014

    RHGSR, I'm sorry you're feeling down.  My round 4 was bad with the nausea and hand and feet rawness feeling, it got me down too.  I've actually been marking the days off the calendar in a big red X until this is over.  Sometimes it's hard to keep positive.  But we can do this! One foot in front of the other.

    NEskir99,  Did you see my post on Thursday?  I ended up going to the Ophthalmologist because of my watery eyes that had gotten blurry.  Turns out the watery eyes are from being so dry and my corneas are scratched.  They plugged my drain holes to keep the moisture there.  I can already tell a difference and its only been four days.  So much better.   

  • Carol99
    Carol99 Member Posts: 116
    edited January 2014

    thanks DJJ, if it keeps up I may go to my eye Dr., it just started getting bad yesterday.

  • Leealice
    Leealice Member Posts: 87
    edited January 2014

    So sorry RHGSR that you are feeling bad. I think we all get down and worry about recurrence. My MO said if the nausea gets bad to take phenagran or ativan and sleep it of. (If you can do that time wise)

    I'm going for TAC #3 tomorrow and I'll be halfway done!

  • chicopeach57
    chicopeach57 Member Posts: 166
    edited January 2014

    Port was put in before first chemo.  Under the skin, after you get used to it not a problem.

    Was supposed to start taxol one week after last AC, asked for a weeks reprieve and got it.  Woot, Woot.  Means I'll have another good weekend before it all goes to shit for 12 weeks.


  • lorreymom
    lorreymom Member Posts: 149
    edited January 2014

    Hi. 

    I'm okay.  Lots has happened.  Will fill you all in a bit later.  Just thought I would pop by and say I am still fighting!  

    Fight on!!!

  • RobinLK
    RobinLK Member Posts: 840
    edited January 2014

    Lorreymom, thanks for popping in.

  • Brioche78
    Brioche78 Member Posts: 37
    edited January 2014

    lorrymom, 

    Glad to hear from you! 

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited January 2014

    rhgsr, I hope you feel better soon! It is hard to stay positive when your body feels so negative...I am not sure if you are on steroids, but I read that when they start to wear off, it may make you have feelings of sadness. I felt that way on my first round.

    leealice, neskir, good luck on your TX's  tomorrow!

     

  • count_it_all_joy
    count_it_all_joy Member Posts: 130
    edited January 2014

    You all are so good at posting and keeping up!  I feel good if I just find time to read the posts and see how everyone is doing.  Seems like this last round is taking its toll.  Hang in there, dear ladies.  

    Question - I had my new port put in last Tuesday.  If I start chemo again this week, it would be 10 days after surgery.  Last time I had a whole month, the port wasn't sore anymore, and accessing was completely painless.  Is 10 days rushing it, or pretty common??  No word from my MO yet on what his plan is, just wanted to have my own opinion before I see him...

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