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Christycain17
Christycain17 Member Posts: 29

Hi,I am new to this site and I'm scared to death.Let me start by saying my Mom was diagnosed with stage 3 breast cancer just over a year ago and I have watched her go from Mom to someone totally different.The chemo played heck on her.She has lost part of her hearing and has chemo brain so at times is nothing like the Mom who started this whole thing out. Her breast cancer was of a very invasive type.She had a double mastectomy and has played heck with chemo/radiation therapy.And her doctor said that she will not be considered cancer free for 10 years.Well I have gone in and had my yearly mammogram and a ultra sound. They just called me here in my office to tell me that I will need to go to a surgeon due to my results from tests.I just want to sit here and cry...I have to be okay to take care of Mom...I don't want her to feel that she has "passed down the gene" as she is always fearing she will do.No, I have not told her anything and will not do so.She/they (Mom and Dad)have enough on their plate then to worry about me.But I'm scared.So I guess that's why I'm here.Could someone just tell me to "put on my biggie girl pants!"I just feel so alone and I want to just want to cry.Thanks guys...I feel like such a baby...and like I really want my Mom.

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Comments

  • mkkjd60
    mkkjd60 Member Posts: 583
    edited January 2014

    Hi Christy,  I'm so sorry about your mom.  My mom passed from bc this past May at age 73.  It is TOTALLY frightening for a woman to go through her own testing when she has lived through her mom's bc.  You are not by any means a baby.  OK,  so take a breath and here's the reality.  It is most likely benign.  The overwhelming odds are in your favor.  I can tell you that my docs are much more careful with me I think than they are with the rest of the population just because of my mom.  I feel they always operate on the side of caution because of the history.  I seem to always have more follow ups than other women I know of my age group.  And I don't even have dense breasts or anything.  (They rate me a 2 on a scale of 4).  Did they give you a birads rating on this latest find?  What exactly are their latest findings?  Get a copy of the reports.  I have a file on myself.  Tell them to email or fax it to you.  Your greatest strength will be in your knowledge.  Please let me know. 

  • AZ85048
    AZ85048 Member Posts: 2,613
    edited January 2014

    Christycain17 - Girl, you are never alone in here!  And you are not a baby.  It's all perfectly understandable.  I'm sincerely sorry about your mother's diagnosis.  My mother died from an aggressive form of bc over 20 years ago, so I know about that fear you speak of.  Mkkjd60 is absolutely right - the odds are in your favor, so pull up those big girl panties and take a deep breath.  Find out exactly what they're concerned about and go from there.  No matter what you're up against, someone else in here has gone through the same thing, so you won't be alone.  Sending positive thoughts your way!  Please let us know what happens...

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited January 2014

    Christy - I'm so sorry for all the heartache. I had excisional biopsies twice and neither found cancer, so don't go down that rabbit hole just yet. Also even if your worst fears are realized it doesn't mean that it was necessarily genetic. My BC presented much different and was much later in life, less aggressive, and much smaller than my mother's. Take it step by step. Come back here often for encouragement and support. We understand. Gentle hug.

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited January 2014

    christy, I'm sorry you found yourself here. My Mom was dx'd 20 yrs ago; going to celebrate her 80th bday next wk. Granted, not the same DX as your Mom, but she is here! I'm sure with your Mom's DX, your Dr's are being extra cautious, as they should be. It sounds like you are doing what you can getting your screenings done and helping Mom. I'm sure she is proud of you. I think all of us will have changed in some way after under-going chemo and rads. I hope your tests come back benign and your Mom continues to recover.  Don't give up on her or yourself!!! 

  • Christycain17
    Christycain17 Member Posts: 29
    edited January 2014

    Wow....You know after reading all of your responses I know that God has once again heard my fears and seen my tears.  As he has sent all your kind responses.  I had a horrible day yesterday, and walked in the door from work to find the certified letter from the hospital with directions to contact my docter due to my test results....yup....I listened to Satan whisper in my ear (fear....fear....fear).  They have ordered new tests also for Mom.  They are worried that the cancer has gone to her brain and bones.  Satan has really had a field day with my family through fear.  But I am determined to do what I can to limit, it not totally end, his enjoyment.

    So I have decided to live my life and not let the fear of cancer live it for me!  God has everything in his hands and if he chooses to allow this to transpire than there is something I am to take from the experience.  As we all have from living through Moms.  If it is in my future than I pray to be as loving, strong and wise as you all have shown to be by your precious posts.  Yup..here come the tears again.  But this time it's due to the relief that I feel knowing that I'm not alone.  And that even though I am unable to lean on Mom and Dad...I'm not alone. 

    This sounds crazy but I don't only want to say Thank You all from the bottom of my heart but I love you all.  I will keep you posted as to what is going on here.

  • edwards750
    edwards750 Member Posts: 3,761
    edited January 2014

    Christycain...bless your heart let me also echo you are not a baby. I am sure all of us felt and still feel like we want our Mommies. That's perfectly natural and understandable. What a brave young lady you are protecting your parents from your own anxiety. I too had a mother with BC in the late 60's. She died at 83 a few years ago but not from BC. I also agree the doctors are just being cautious and thorough. That doesn't make it any easier for you to deal with but at least she is getting the best care and treatment available. It truly is in God's hands. Just so you know my sister in law and sister both also had BC. My sister in law is 5 years out from Stage 0 and my sister was 2 years out last October with ILC. Obviously my sister and I are carrying the gene. My BC is IDC, Stage 2, Grade 1. All of us no matter what stage or grade we are or were know exactly what the fear factor is but we also know we are stronger than we thought and you are too. This forum was and is my lifeline and it will be yours too. Nowhere else can you go and vent and ask questions and everyone...everyone understands exactly what you are feeling firsthand. Never hesitate to bombard us with questions or just want to talk because you are feeling low. We aren't doctors so we can't dispense medical advice but we can share our own personal experiences with you. So keep the faith and we will keep the prayers coming and do let us know how  you are doing. Diane

  • cymom
    cymom Member Posts: 54
    edited January 2014

    I had a close call (a mammogram finding that had a  95% likelihood of being cancer), followed by a biopsy, while my mom was suffering from Stage IV cancer.   I know what you are going through.  To see your mom go through it, and then to suddenly be on that table yourself, on the precipice of the same fall… it is surreal.  In that moment, it does feel like a nightmare.  

    Try to keep in mind that the vast majority of mammogram findings that require biopsies are benign.  A followup is just that -- more tests are needed.

    Try to separate your thinking -- think about your mom, and then think about yourself, but don't mix the two up.  It's normal to identify with our mothers, to feel their pain when they are suffering, but don't assume that you're destined to follow the same road, and don't feel guilty about not wanting to bear this burden in your own life.  I struggled with strange guilty feelings about this -- my mom has borne her illness with grace and courage, and here I was running scared when the doctor told me I might have cancer.  I felt horrible and shamed at my own instincts, that I had accepted cancer for my mom, but not for myself.

    Accept what you can't control, and try to make sure your fears match your level of risk (I know, its easier said than done…)  To have a mom with BC makes us higher risk, but it doesn't mean we are destined to get breast cancer.  If it comes someday, you will be OK, but odds are, it won't ever come.

    Be well.

  • Christycain17
    Christycain17 Member Posts: 29
    edited January 2014

    I am incredibly sorry to hear about you Moms....I am scared to death of the day God decides to take her, or my Dad, home to heaven.  I have been blessed dearly with the most wonderful parents.  Strong?  You bet they are!!!  Mom fights the effects of the chemo, neuropathy (made worse due to chemo) and the fear of it showing up again. And never really complains!  Shoot I got so worked up before her double mastectomy that I came down with a horrible fever blister and all she could think about and worry about was ME!! HELLO!!!  REALLY!!! 

    I include my Dad in this as I could not even imagine how hard it is for him to watch her go from running all over town to being unable to drive, walk very far or shoot even stay awake for a conversation to long, and the conversations that she does stay up for ends with her saying something totally unrelated!  Yet he never complains and continues to make me giggle.  I took them to dinner and one sec we are going over the menue and the next Mom is sitting with her head drooped fast asleep.  Dad just says things like "Don't look like your Mom was to excited about this place"....LOL.....all the while I can see the pain and concern in his eyes.   But because they are the loving, giving and protective parents they are...neither will show you fear or concern...always just being that of a rock.  The doctor told me that he doesn't even know how Mom has continued to walk with her neuropathy.  He said she surly is one strong lady.  Yea, that made me so proud!!

    She has lost her brother (of cancer) and her Mother (of a broken heart) since she was diagnosed with BC (1 yr and 2 months ago) and still she worships our Lord and Savior.  Never once questioning him....in all that time...through all that junk that goes along with it.  A true inspiration!!

    LOL...as if any of you really needed to hear all about my parents...I guess that in the past year I had a lot held in..and I'm uncertain that I ever truly reflected on all that has happened since that horrible afternoon that we got the news of Mom's BC diagnosis...but you know...for some reason it feels good to just puke out like this...not really sure why.....

    Thanks for listening...

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited January 2014

    Christy - you go girl. One thing my dad said when I was dx was "I'm almost eighty years old and I've seen a lot of things in those eighty years."  Essentially telling me he was stronger that I thought he was.

  • Christycain17
    Christycain17 Member Posts: 29
    edited January 2014

    Well Dr called my appointment is Jan 29th.  The same day Mom goes in for her test to see if cancer has gone to bones or brain.  This is going to be a tough day. Have to keep my appointment from Mom and Dad....they have enough to worry about. What are the odds they would be the same day?  Grrrrrrr

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited January 2014

    Crossing my fingers and toes that you both get good news. Please let us know!


  • beacon800
    beacon800 Member Posts: 922
    edited January 2014

    I understand your fear!  My mom died of breast cancer and my yearly mammo scared the crap out of me all the time.  I had several rounds of biopsies required over about 3 years, all benign, til they found LCIS (a non cancer non invasive lesion).  After than I had a bilateral MX and never worried about any of it again.

    In my case, and I bet in your case, they look extra hard and always go for biopsy when there is even the slightest question, because they know you have a family history.  So probably your doctors are being extra cautious due to your family history.  Most times these things are benign.  Just hang in there!!

  • Christycain17
    Christycain17 Member Posts: 29
    edited January 2014

    Thanks....I'm really trying to be positive. It's going to be a really long week. My breast hurts tonight. And there is a dark blue blood vein on the side the lump is. Should that concern me? I feel so stupid asking. I'm just so scared.

  • Christycain17
    Christycain17 Member Posts: 29
    edited January 2014

    Guess I'm not doing so good on the positive thinking...sorry. Damn I want so hard to be strong....I have to be for Mom! I want to scream and cry at the same time. 

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited January 2014

    Christy, I know you are frightened because of your Mom, but better than 80% of breast stuff recommended for biopsy turns out benign. They recommend biopsy on anything that they estimate to have over a 3% chance of being cancer, so odds are in your favor that yours will be too. Only a very small percentage of breast cancers are genetic.  How old is your Mom? If she was over 50 when diagnosed it makes it even less likely that it is a genetic form of cancer.

    Hang in there.

  • AZ85048
    AZ85048 Member Posts: 2,613
    edited January 2014

    Christycain17 - Waiting is a special kind of torture that we all understand all too well.  I saw a signature line earlier today on a post that sums it up pretty well - 'God only gives us
    what we can handle, so apparently God thinks I'm a badass'.
     You're much stronger than you think you are.  Don't let fear and anxiety get you down.  You can do this! 

  • Christycain17
    Christycain17 Member Posts: 29
    edited January 2014

    AZ Thanks soooo much for the reminder.  You are so right. I am so sorry about my panic attack last night. I think I was just tired. And a little FYI.....YOU ALL ARE BAD ASSES!! And I am certain that one day when we all meet in heaven I will recognize you all because like Mom you will all be sporting a beautifully adorned crown.  I really am sorry ladies for my selfish rants. I need to focus on praying for you all. And trusting God has it all under control.

    Love and (((Hugs)))

    Christy

  • Nonblondmom
    Nonblondmom Member Posts: 5
    edited January 2014

    my sister was diagnosed with stage 4 BC May 2013 and passed away December 2013, she was only 36 and her BC was triple negative. Due to high risk, I'm 35, I had a diagnostic Mamm and u/s in July and was given the all clear. Last month in December I found a grape size lump in my right breast,  I was due for my yearly MRI anyway and had it done Jan. 23rd. I'm still waiting for the results of that. I'm biting my nails, I just can't imagine putting my parents through this pain again, and so soon after the passing of my dear sister. Hang in there, it's hard to do but all we can do is be positive. I pray your appointment has good news the 29th, for you and your mom. Take care :-)

  • AZ85048
    AZ85048 Member Posts: 2,613
    edited January 2014

    Christycain17 - No need to apologize for being scared.  Not in here.  You're going to be just fine!  Keep the faith and stay in touch!

    Nonblondmom - I'm so very sorry to hear about the loss of your sister!  I know that you're scared and your mind has gone into overdrive, but remember that of all the lumps that are found every year, only about 20% are actually BC.  So the odds are in your favor that this is will be benign!  Good luck to you and let us know what you find out when you're able.  Sending a hug and a prayer...

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited January 2014

    AZ85048, I need to correct you on something you keep repeating. You keep saying 80% of lumps FOUND are benign. That is incorrect. Actually, it is far more than 80% of found lumps that are benign. The 80% refers to Birads 4 mammograms (or ultrasounds or MRIs). The vast majority of  lumps can clearly be eliminated as most likely benign (Birads 3 or lower). So only a very small percentage fall under a Birads 4 or higher rating. It is 20% of this very small percent you are referring to.

  • AZ85048
    AZ85048 Member Posts: 2,613
    edited January 2014

    MelissaDallas - Thanks.  I stand corrected...

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited January 2014

    nonblondmom - So sorry for the heartache you have already experienced. I don't know why life is so hard sometimes. Crossing my fingers and toes for you as well dear girl. Hugs.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    Is it possible that BC victims have gas cookers inside their homes? I suspect that they might be responsible.

  • Nonblondmom
    Nonblondmom Member Posts: 5
    edited January 2014

    thank u all for your well wishes. I will update as soon as I know more. 

  • marie5890
    marie5890 Member Posts: 3,594
    edited January 2014

    No, Oldstuff.

    Cancer is more complicated than gas cookers. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    The science associated with alien gases produced by gas cookers is old, simple and not therefore complicated.

    I am not able to fall in line with the notion that genetics play any part in the formation of a breast tumour. I know that women very often teach their daughters to cook using gas cookers and that alien gases can become trapped inside homes.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited January 2014

    Oldstuff, do you have breast cancer or are you posting on behalf of a family member? If not you are violating the conditions of use here.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    No I do not have breast cancer but one of my relatives did die from it. I am merely trying to point out that there are two separate issues in order that other members can consider them.

  • Christycain17
    Christycain17 Member Posts: 29
    edited January 2014

    Nonblondmom...I am terrible sorry about your sister. I will pray for you BIG TIME!!! PLEASE do keep us up to date. I will carry your mustard seed (faith) as if you're anything like me it's hard at times to carry when it hits your home.  But I can. carry someone else's with ease :-) .

    (((HUGS)))

  • Christycain17
    Christycain17 Member Posts: 29
    edited January 2014

    Snow storm shut down Dr office. Don't know when I will get new appointment.  

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