Scared to death
Sorry to start yet another topic, but I find that older topics get passed by. Please refer to my "Happy; Dr. Lagios and liver". I NEED support. I am alone here, entirely alone, and would like to hear a kind word. Sorry so needy, but this last mammo is my only pass. If not good, I will have disfigurement and no money to live on through the process. Please help me.
Comments
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Hi Percy, when ever I see scared I try to come on, but my knowledge is so limited on anything with cancer, as I've always said I just didn't listen, it helped me a lot. But what's going on?
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This is my last mammo; pre-rads. If it's clean, I go on and live. If it isn;t, as my narrow margin is by the front of the skin, I am mutilated for life; the BS and MO could not put it any other way. I've done great so far, but this last test is scaring me to death. -
Percy, I just replied to your other thread.
And I would like to throttle your BS and MO for using the word "mutilated". Its inappropriate, and it's a very subjective and relative term. I had a couple of very big chunks taken out of my small breast when I had my excisional biopsy, and it certainly changed my breast. But when I found out that some cancer was still in there, I would have been thrilled to have the opportunity to have a re-excision rather than a MX. I don't think that removing a bit of skin would be "mutilating", certainly not the way I would define that word. And as someone who's had a MX (not by choice), personally I think anyone who is able to keep her breasts is lucky. I'll happily take some scars and a few dents in a natural breast any day, versus having an unnatural, unfeeling reconstructed breast.
Your doctors were out of line with their use of that word and it's unfortunate that it's scared you so much.
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Thank you. Your support means the World to me. I've held up just great, but this week, not so much. -
Hi Percy,
I would completely second what Beesie said. Your breast might not be perfect if you have to go through a re-excision, but it will still be your natural breast. I prefer to think of it as cosmetic changes, not mutilation. It's true that many women actually chose to go to mastectomy rather than risk having cosmetic changes to the natural breast, and I know you are not contemplating that, but cosmetic changes are just that, changes. You live with it, and the main thing is you are alive and hopefully have a lot still to look forward to in life. Hopefully, this year turns into a blip in your life and you can move on. You will be changed, but maybe in some positive ways. As Beesie has said (I'm always saying that), you've dealt with adversity in the past few months, unexpected turns, and you have done amazingly well. If you are really really concerned about cosmetic changes, ask about oncoplasty, which is plastic surgery for those who had a lumpectomy and there are cosmetic changes they are not happy with. Sometimes that can even be done at the time of the re-excision surgery. It's not something I seriously considered, myself, but it's available. I'm still shocked that breast cancer surgeons and oncologists would use pejorative terms like mutilation, in the context of necessary treatment. I think that they are just warning you, because it they do it and you aren't happy with the result, you can't come back to them and say, you never warned me about this. So, they use the more extreme terms, but it's not helpful at all.
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I'm doing it tomorrow at 10:30, CA time. I think they give me the results before I leave there, as they did with the call-back mammo. I don't know how I will bring myself to go. I'm not the kind of person who would be helped by someone going with me.
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Good luck! I'm hoping and praying it'll be fine. One day at a time.
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percy4 - Sending you a hug and a prayer. Best of luck tomorrow!
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I will be there with you in thought.
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Good luck from me too, and (((HUGS))). I had a male surgeon at a consultation who off handedly said, " I will try not to leave you too mutilated". I got back my records and films and went to another surgeon, a woman. I didn't want to deal with such insensitivity. I perfectly realized that I was going to end up with a scarred breast, but the term mutilated was far too strong for me. I kept wondering how he would feel if someone wanted to operate on his private parts and told him the same thing. I'll bet he would freak out.
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Percy- virtual cali hug!! what an insensitive and awful thing to say- had I been in your pocket I might have whispered- "mutilated really- are your surgery skills that bad, maybe I should see someone else...."
I am NOT kidding- how things end up looking at least on the skin is in the hands of the surgeon- my MO did talk about my scar post lumpectomy she said "oh it looks wonderful, it follows the curve of your breast its fabulous. My RO (dryer-lint personality) said well I don't know I would say it was fabulous- really how about don't say anything at all.
Beesie, Ballet and others are right- stay strong and speak up for yourself. I preferred to hear my stuff alone too- my daughter is still mad at me for that but oh well. We will be watching for your post.
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The mammogram was perfectly clean. I was literally crying, and I'm a strong girl; first with anitcipation (as my margins were so narrow) and then with relief. I asked, and the radiologist assured me that this is not going to be re-reviewed or amended later. Thank you all so much for your love and support. Interestingly, I asked him if my lumpectomy went right up to the front of the skin, and he said he didn't see it that way; there was room. So that means that when I was asking the surgeon about re-excision for bigger margins, so I could decide about rads, she told me it would be mutilating, that there was no more room there before the skin, obviously to scare me into rads. I can't blame the MO. She probably wasn't looking at the after-lump picture; she was only concurring that taking skin would be mutilating. Thanks again. I start rads in 2 weeks; then I'm done. Love - P. xx
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percy4 - Good for you! So happy for your clean mammogram! Take a deep breath and SMILE!
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Doing the happy dance for you!!
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Hi Percy,
I will go to my dance class tonight and do a dance for you--a dance of giving thanks! of relief!
On to rads and hopefully smooth sailing until the end of it.
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